Search
Search
About
Log in
Join
Experiences with
Flector
Posts
Communities
1,477 public posts
Filter results
IF and celiac test results 'normal'
Hi all, if you had tests on the NHS for Intrinsic factor did you get details of test or just told normal? I have two tests in my online records which just show up as n/a which I assumed meant they weren't taken at all. When I called the doctors they said that the intrinsic factor one was 'normal'. I
Hi all, if you had tests on the NHS for Intrinsic factor did you get details of test or just told normal? I have two tests in my online records which just show up as n/a which I assumed meant they weren't taken at all. When I called the doctors they said that the intrinsic factor one was 'normal'. I
Bonjourtristesse
in
Pernicious Anaemia Society
3 years ago
Where to get private testing done
Hi I just wondered is anyone can tell me where I could get more in depth testing done for B12 deficiency and pernicious anaemia as my GP only orders the standard serum B12 test and intrinsic factor test Thank you in advance 😊
Hi I just wondered is anyone can tell me where I could get more in depth testing done for B12 deficiency and pernicious anaemia as my GP only orders the standard serum B12 test and intrinsic factor test Thank you in advance 😊
BEE2019
in
Pernicious Anaemia Society
3 years ago
B12 and hot flushes
Hello, I started my loading doses just over a year ago and ended up resorting to SI as many do around Nov 2020 as I had ongoing neuro symptoms (tingling & numbness in hands & feet, some shooting nerve pains in fingers). I now SI every 2 weeks although I still have some mild neuro symptoms (unsure whether
Hello, I started my loading doses just over a year ago and ended up resorting to SI as many do around Nov 2020 as I had ongoing neuro symptoms (tingling & numbness in hands & feet, some shooting nerve pains in fingers). I now SI every 2 weeks although I still have some mild neuro symptoms (unsure whether
Alpaca24
in
Pernicious Anaemia Society
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
My Labs
Just got my labs back (keep in mind that I had a B12 injection from my former GP on June 30th). Not sure what to make of it. I have had two loading doses of B12 the last two days. Should I stay the course on the injections- daily for a week, then weekly for 4 weeks, then monthly? Intrinsic Factor: 1.1
Just got my labs back (keep in mind that I had a B12 injection from my former GP on June 30th). Not sure what to make of it. I have had two loading doses of B12 the last two days. Should I stay the course on the injections- daily for a week, then weekly for 4 weeks, then monthly? Intrinsic Factor: 1.1
Pain12345
in
Pernicious Anaemia Society
3 years ago
B12 Testing
My GP tested my B12 in late June and it was 248. She gave me a B12 (Cyanocobalamin) injection on June 30th without doing any other tests. I then went to see a neurologist and she couldn’t believe that the GP had not done more testing. The neurologist has me scheduled today for the following tests: B12
My GP tested my B12 in late June and it was 248. She gave me a B12 (Cyanocobalamin) injection on June 30th without doing any other tests. I then went to see a neurologist and she couldn’t believe that the GP had not done more testing. The neurologist has me scheduled today for the following tests: B12
Pain12345
in
Pernicious Anaemia Society
3 years ago
D-dimer & Dangerous Blood Clots
I have posted quite a lot about the importance of D-dimer in the past 5+ years, but the recent post from 5_plus_4, "
I almost died Tuesday
" had me thinking that perhaps some basic information on coagulation issues needs to be reposted periodically, particularly for new members. No-one should die
I have posted quite a lot about the importance of D-dimer in the past 5+ years, but the recent post from 5_plus_4, "
I almost died Tuesday
" had me thinking that perhaps some basic information on coagulation issues needs to be reposted periodically, particularly for new members. No-one should die
pjoshea13
in
Advanced Prostate Cancer
3 years ago
CONUNDRUM
Hello, this is my first post. Here's a conundrum. Can anyone out there please help out? A 22 year old patient who last month tested positive for intrinsic factor antibodies in keeping with pernicious anaemia has remained symptomatic for B12 deficiency despite 7 months of oral cyanocobalamin 50 mcg per
Hello, this is my first post. Here's a conundrum. Can anyone out there please help out? A 22 year old patient who last month tested positive for intrinsic factor antibodies in keeping with pernicious anaemia has remained symptomatic for B12 deficiency despite 7 months of oral cyanocobalamin 50 mcg per
Chenders
in
Pernicious Anaemia Society
3 years ago
Birthday present .
After an unnecessary hoo ha of tracing my prescription I'd been assured was ready I went to pay. No charge I wax told?? They grinned abd said I'd reached 'the age So that's a bonus after receiving my first NHS pension payment of ..£9.54 !! A new nurse has started . She asked how often I wad having
After an unnecessary hoo ha of tracing my prescription I'd been assured was ready I went to pay. No charge I wax told?? They grinned abd said I'd reached 'the age So that's a bonus after receiving my first NHS pension payment of ..£9.54 !! A new nurse has started . She asked how often I wad having
Nackapan
in
Pernicious Anaemia Society
3 years ago
False reading?
Hi my daughters B12 was 143 & she was given prescribed B12 50mg x2 daily. She’s had a recent blood test & her levels are 479 n/g. Her consultant wants her to come off the tablets & take a multivitamin. I’m a bit concerned it could be a false reading because she’s taking B12. It’s the second time she
Hi my daughters B12 was 143 & she was given prescribed B12 50mg x2 daily. She’s had a recent blood test & her levels are 479 n/g. Her consultant wants her to come off the tablets & take a multivitamin. I’m a bit concerned it could be a false reading because she’s taking B12. It’s the second time she
Runner169
in
Pernicious Anaemia Society
3 years ago
Gastritis improvement with injections
I am curious if those with gastritis have found it improved after injections. I had an endoscopy last year, after monthly injections were started, which showed moderate gastritis. This year, the endoscopy showed marked improvement, along with better bowel movements and less intestinal cramping. The
I am curious if those with gastritis have found it improved after injections. I had an endoscopy last year, after monthly injections were started, which showed moderate gastritis. This year, the endoscopy showed marked improvement, along with better bowel movements and less intestinal cramping. The
siamesefrmsiam
in
Pernicious Anaemia Society
3 years ago
Positive intrinsic factor tests
Hi there, I have had 2 positive intrinsic factor antibody tests. I also have all of the symptoms of PA. Fatigue, nausea, pins and needles in feet, loose stools, acid reflux and difficulty concentrating. My blood serum B12 levels however seem within the normal range. What do you guys think this means
Hi there, I have had 2 positive intrinsic factor antibody tests. I also have all of the symptoms of PA. Fatigue, nausea, pins and needles in feet, loose stools, acid reflux and difficulty concentrating. My blood serum B12 levels however seem within the normal range. What do you guys think this means
JSD100
in
Pernicious Anaemia Society
3 years ago
Lymphoma Questions
Hi All, Sorry to post on such a crappy topic. So this study came out and it kind of scared me a bit as I have a focus score of 8 from my biopsy at diagnosis which is quite high. The study is here: https://www.sciencedirect.com/science/article/abs/pii/S0896841121000561 It seems to suggest that the higher
Hi All, Sorry to post on such a crappy topic. So this study came out and it kind of scared me a bit as I have a focus score of 8 from my biopsy at diagnosis which is quite high. The study is here: https://www.sciencedirect.com/science/article/abs/pii/S0896841121000561 It seems to suggest that the higher
Insomniacette
in
LUPUS UK
3 years ago
B12 injection appointment
Hi, Following on from my previous post (not sure if I should have started new or just added to last one, if admin want to let me know) Anyway, I went to my appointment and had my jab as I had an ampoule with me but have been told I will no longer be given B12 injections. When I asked why, i was told
Hi, Following on from my previous post (not sure if I should have started new or just added to last one, if admin want to let me know) Anyway, I went to my appointment and had my jab as I had an ampoule with me but have been told I will no longer be given B12 injections. When I asked why, i was told
lfc4eva
in
Pernicious Anaemia Society
3 years ago
Hampshire (UK) neurologist anyone?
Hi. New to the forum and hoping someone can help. I am yet to be diagnosed, waiting for intrinsic factor test result (done privately as GP is being incredibly difficult 😢). I'm due to see gp in 2 hrs as I ended up in a and e Sunday morning falling over from fixings, fainting, whole body tremors etc
Hi. New to the forum and hoping someone can help. I am yet to be diagnosed, waiting for intrinsic factor test result (done privately as GP is being incredibly difficult 😢). I'm due to see gp in 2 hrs as I ended up in a and e Sunday morning falling over from fixings, fainting, whole body tremors etc
KrissieJ
in
Pernicious Anaemia Society
3 years ago
B12 levels and symptoms
I am wondering if anyone can help or advise me on levels and symptoms. My B12 was 183 last August and then 247 in May as I supplemented for a while, but I was admitted to hospital with a racing heart beat of 123. I have regular disabling palpitations, fatigue, crumbling nails, blurred vision, balance
I am wondering if anyone can help or advise me on levels and symptoms. My B12 was 183 last August and then 247 in May as I supplemented for a while, but I was admitted to hospital with a racing heart beat of 123. I have regular disabling palpitations, fatigue, crumbling nails, blurred vision, balance
Mrss25
in
Pernicious Anaemia Society
3 years ago
Cause of b12 deficiency? Should I get private bloods?
Looking for advice. Been having b12 symptoms on and off for awhile: nausea, tingling in body burning on hand, tiredness, brain fog. 10 months ago I was told I was slightly deficient and to supplement, repeat bloods in 3 months. Told they came back fine (I have never had the values for any of my tests
Looking for advice. Been having b12 symptoms on and off for awhile: nausea, tingling in body burning on hand, tiredness, brain fog. 10 months ago I was told I was slightly deficient and to supplement, repeat bloods in 3 months. Told they came back fine (I have never had the values for any of my tests
Gemgem123
in
Pernicious Anaemia Society
3 years ago
B12 results help please
I have received my results which I had tested privately. Does this mean that I do not have PA? B12 -139 pmol/L (25.1. -165 pmol/L) Intrinsic factor - negative I have been suffering with many symptoms but these maybe attributed to hypothyroidism or another endocrine disease so I am trying to exclude
I have received my results which I had tested privately. Does this mean that I do not have PA? B12 -139 pmol/L (25.1. -165 pmol/L) Intrinsic factor - negative I have been suffering with many symptoms but these maybe attributed to hypothyroidism or another endocrine disease so I am trying to exclude
Triciatextiles
in
Pernicious Anaemia Society
3 years ago
Antibody negative PA
Hi. I read the above referred to by an administrator on a previous post and just asking for further info please (post comments were turned off). I've had a test for intrinsic factor that came back negative (yet was told in 2006 that I'd be on injections for life as I can't absorb tablets). Is this the
Hi. I read the above referred to by an administrator on a previous post and just asking for further info please (post comments were turned off). I've had a test for intrinsic factor that came back negative (yet was told in 2006 that I'd be on injections for life as I can't absorb tablets). Is this the
Roses46
in
Pernicious Anaemia Society
3 years ago
Intrinsic factor and GPC antibodies
I have a question about my test results, I was hoping someone here could help explain to me what it might mean because I’m not confident the doctors I’m seeing know anything about this stuff. I had a low b12 level (175), along with high homocysteine and high methylmalonic acid. I was then tested for
I have a question about my test results, I was hoping someone here could help explain to me what it might mean because I’m not confident the doctors I’m seeing know anything about this stuff. I had a low b12 level (175), along with high homocysteine and high methylmalonic acid. I was then tested for
x101210
in
Pernicious Anaemia Society
3 years ago
Can anyone explain?
Intrinsic factor antibody 1.01 u/mL 0 - 1.19 Normal I thought it would say negative or positive, so I’m confused. Thanks
Intrinsic factor antibody 1.01 u/mL 0 - 1.19 Normal I thought it would say negative or positive, so I’m confused. Thanks
Jaiday
in
Pernicious Anaemia Society
3 years ago
1
...
15
16
17
...
74
Next page
10
20
30
40
50
60
70
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
860 results
Thyroid UK
244 results
NRAS
151 results
View top 10 communities
Sort by
Most Relevant
Newest