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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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Road to a BMT... oops just got there
Little did we know that Cancer Care Ontario would not cover the R as Mark received it during 1st line treatment when he received
FCR
and we would have to pay for it??? Well, that started a whole new challenge, that I will leave for another time.
Little did we know that Cancer Care Ontario would not cover the R as Mark received it during 1st line treatment when he received
FCR
and we would have to pay for it??? Well, that started a whole new challenge, that I will leave for another time.
NMMP
in
CLL Support
7 years ago
Post FCR treatment 3 months blood test just taken results lower then expected
I completed a 6 month cycle of
FCR
and I am now 3 months post treatment. I have been feeling good but have to make sure I do not over do it. Yesterday I went for my 3 month check up and had blood work. It did not go as well as expected.
I completed a 6 month cycle of
FCR
and I am now 3 months post treatment. I have been feeling good but have to make sure I do not over do it. Yesterday I went for my 3 month check up and had blood work. It did not go as well as expected.
Lindyver
in
CLL Support
7 years ago
uti, cough, fever and other virus related symptoms
I was diagnosed Stage 4 SLL in December 2014 and started
FCR
the following March in 2015. The gap was due to my oncologist suddenly dying. This combo put me in remission for a year and a half. Came back full force (CT scan) in early 2017 and started Imbruvica then nodes went away again.
I was diagnosed Stage 4 SLL in December 2014 and started
FCR
the following March in 2015. The gap was due to my oncologist suddenly dying. This combo put me in remission for a year and a half. Came back full force (CT scan) in early 2017 and started Imbruvica then nodes went away again.
springie
in
CLL Support
7 years ago
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FCR treatment
I've now received treatment, starting Dec 2016 for six rounds of
FCR
as part in a UK trial. I have been told I am in complete remission, which is great news, and a weight off my mind. I must have been more worried than I was able to admit, as I now feel able to get on with living again.
I've now received treatment, starting Dec 2016 for six rounds of
FCR
as part in a UK trial. I have been told I am in complete remission, which is great news, and a weight off my mind. I must have been more worried than I was able to admit, as I now feel able to get on with living again.
Barbarann
in
CLL Support
7 years ago
Port installed-Chemo Round1 starts Monday
Opted for the Portacath to receive my chemo (in Canada done via infusion) of
FCR
. The Port installation was done yesterday morning, so the afternoon was a little uncomfortable but today I am quite fine.
Opted for the Portacath to receive my chemo (in Canada done via infusion) of
FCR
. The Port installation was done yesterday morning, so the afternoon was a little uncomfortable but today I am quite fine.
Marie-54
in
CLL Support
7 years ago
Recovery time
My OH had his last (of 4)
FCR
treatments in August. He had not tolerated them well, so each session was less than the last. Haematologist says treatment has been 99% successful, and now just try to get on and live life as normal.
My OH had his last (of 4)
FCR
treatments in August. He had not tolerated them well, so each session was less than the last. Haematologist says treatment has been 99% successful, and now just try to get on and live life as normal.
shoppingtrolley
in
CLL Support
7 years ago
FCR Domperidone
I am having my first lot of
FCR
and this is the first day at home with all my tablets! So many! Can I ask those of you that were given domperidone for sickness if you took them when you didn’t feel sick or just when you did? It says I can have 3 per day. I don’t feel sick yet. Thank you.
I am having my first lot of
FCR
and this is the first day at home with all my tablets! So many! Can I ask those of you that were given domperidone for sickness if you took them when you didn’t feel sick or just when you did? It says I can have 3 per day. I don’t feel sick yet. Thank you.
Cindy1462
in
CLL Support
7 years ago
"there has been a further reduction in the presence of the disease and limited evidence of any residual disease"
6 cycles of
FCR
totally worth it to get this news. No more blood thinning injections, and he also said that I would not need chemo again but would have Ibrutinib if I needed more treatment in the future. WBC still low so got to be careful, but definitely a good week.
6 cycles of
FCR
totally worth it to get this news. No more blood thinning injections, and he also said that I would not need chemo again but would have Ibrutinib if I needed more treatment in the future. WBC still low so got to be careful, but definitely a good week.
MattGGibson
in
CLL Support
7 years ago
Excellent Patient power Portland Town Hall Video - especially around 1 hour in. Someone already posted this but very good information.
https://www.patientpower.info/event/cll-portland-2017/ Some key points- 1) Target therapies help keep bone marrow strong for later 2) Ritcher's Transformation shown much more likely with continued
FCR
- Keating talks about it. Note: Ritcher's Transformation is usually very bad.
https://www.patientpower.info/event/cll-portland-2017/ Some key points- 1) Target therapies help keep bone marrow strong for later 2) Ritcher's Transformation shown much more likely with continued
FCR
- Keating talks about it. Note: Ritcher's Transformation is usually very bad.
Hoffy
in
CLL Support
7 years ago
Hi everyone,
My name is Sarah my lovely 61 year old dad is going for his first
FCR
treatment for CLL on Monday am. I thought I'd write to see if any one had any recommendations on someone receiving their first
FCR
treatment - and although it's highly individual anything we should expect.
My name is Sarah my lovely 61 year old dad is going for his first
FCR
treatment for CLL on Monday am. I thought I'd write to see if any one had any recommendations on someone receiving their first
FCR
treatment - and although it's highly individual anything we should expect.
Whitehouse_77
in
CLL Support
7 years ago
Nearing treatment?
My haemotologist says he will confer with his colleagues and see me again in 1 month but that it looks like we are nearing treatment ... and that would be
FCR
. Any advice or thoughts would be appreciated ...
My haemotologist says he will confer with his colleagues and see me again in 1 month but that it looks like we are nearing treatment ... and that would be
FCR
. Any advice or thoughts would be appreciated ...
DebLeeCox
in
CLL Support
7 years ago
Ibrutinib & neuropathy?
(He is waiting to get a stem cell transplant in January & has had
FCR
but relapsed).
(He is waiting to get a stem cell transplant in January & has had
FCR
but relapsed).
Glees
in
CLL Support
7 years ago
The Final Countdown
My oncologist said that CAR T therapy have been approved for people who are in
FCR
and Ibrutinib relapse. Does anybody share my experience or will I be dead in 6 months to a year?
My oncologist said that CAR T therapy have been approved for people who are in
FCR
and Ibrutinib relapse. Does anybody share my experience or will I be dead in 6 months to a year?
pilantd
in
CLL Support
7 years ago
Reaction to FCR or Medicine.
I had my first cycle of
FCR
in August. I had an allergy to something. Most likely the bactrim (sulfur) and was hospitalized twice. I also had a severe rash that covered my entire body except for my face (thank god!). My Oncologist has decided to put off any further treatments at this time.
I had my first cycle of
FCR
in August. I had an allergy to something. Most likely the bactrim (sulfur) and was hospitalized twice. I also had a severe rash that covered my entire body except for my face (thank god!). My Oncologist has decided to put off any further treatments at this time.
Jemisavs5
in
CLL Support
7 years ago
Aciclovir
Hi all During my
FCR
treatment I've had itching in my scalp, neck, back and chest. It did subside a lot over the last few weeks but now this week it's come back with a vengeance!
Hi all During my
FCR
treatment I've had itching in my scalp, neck, back and chest. It did subside a lot over the last few weeks but now this week it's come back with a vengeance!
sallyplest
in
CLL Support
7 years ago
FCR 18 months later
I am wondering if anyone else who is unmutated received
FCR
and my big question is, how long did your response last? I know it will be shorter than if I were mutated. Thank you, Kathy
I am wondering if anyone else who is unmutated received
FCR
and my big question is, how long did your response last? I know it will be shorter than if I were mutated. Thank you, Kathy
beanlake14
in
CLL Support
7 years ago
FCR DIET?
Hearing on here about
FCR
diet. What is that please? Get well everybody!
Hearing on here about
FCR
diet. What is that please? Get well everybody!
bendintheroad1
in
CLL Support
7 years ago
Starting FCR for CLL
Has anyone done an
FCR
treatment and if so how were the side effects? Any warnings about
FCR
that should steer away from going through with treatment?
Has anyone done an
FCR
treatment and if so how were the side effects? Any warnings about
FCR
that should steer away from going through with treatment?
Fbarcia
in
CLL Support
7 years ago
Questions about stopping Imbruvica due to infection
Hi, my husband is a stage 4, SLL/CLL survivor, he was first diagnosed as a healthy 49 year old man and after 6 months completed 6 grueling rounds of
FCR
which gave him a fantastic and healthy 10 years with no detectable cancer.
Hi, my husband is a stage 4, SLL/CLL survivor, he was first diagnosed as a healthy 49 year old man and after 6 months completed 6 grueling rounds of
FCR
which gave him a fantastic and healthy 10 years with no detectable cancer.
bellasmom
in
CLL Support
7 years ago
Starting FCR
writing this for my dad he's had CLL 8 years and in the past year he's started developing symptoms (swollen nodes in the neck) his spleen and everything is fine, he was told 6 months ago he needed to start treatment, his bone marrow and bloods came back ok and he's diagnosed as stage 2 , he's starting
FCR
writing this for my dad he's had CLL 8 years and in the past year he's started developing symptoms (swollen nodes in the neck) his spleen and everything is fine, he was told 6 months ago he needed to start treatment, his bone marrow and bloods came back ok and he's diagnosed as stage 2 , he's starting
FCR
Chelseaxx
in
CLL Support
7 years ago
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