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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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Insomnia and Sinemet
I have posted before about night time meds. I have taken Sinemet plus and entecapone 4 times a day, rasagaline, 24mg ropinirole (split into three doses). Have been taking sinemet cr at 11pm for a while as I felt that I needed some PD meds during the night. However it never seems to do anything. I
I have posted before about night time meds. I have taken Sinemet plus and entecapone 4 times a day, rasagaline, 24mg ropinirole (split into three doses). Have been taking sinemet cr at 11pm for a while as I felt that I needed some PD meds during the night. However it never seems to do anything. I
Hidden
in
Cure Parkinson's
6 years ago
Happy 2018... Choose your Pooh Bear Character!
I'm now just over a year post
FCR
and mainly feeling pretty normal apart from the odd weird sensation where lymph nodes were.. Life has returned to a normal.. Albeit a new normal. Cll can overwhelm us and we drag it with us wherever we go.
I'm now just over a year post
FCR
and mainly feeling pretty normal apart from the odd weird sensation where lymph nodes were.. Life has returned to a normal.. Albeit a new normal. Cll can overwhelm us and we drag it with us wherever we go.
Bethan49
in
CLL Support
7 years ago
burning sensation on my scalp
FCR
in 2012. I am participating in the ACP 196 study since March this year. Then I started Ibrutinib. It has gone well for a while but since a month I have a very burning sensation on my scalp, and stitches and hair loss. Also nerve pains in my body. I have had a nerve block that did not help.
FCR
in 2012. I am participating in the ACP 196 study since March this year. Then I started Ibrutinib. It has gone well for a while but since a month I have a very burning sensation on my scalp, and stitches and hair loss. Also nerve pains in my body. I have had a nerve block that did not help.
jroon08
in
CLL Support
7 years ago
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Urgent question: low platelets
Just to summarize - he is 58, diagnosed 3 1/2 years ago but with symptoms for many years before that, 13q, 11q & trisomy 12, relapsed quickly after
FCR
, on ibrutinib for 9 months, scheduled for stem cell transplant in January.
Just to summarize - he is 58, diagnosed 3 1/2 years ago but with symptoms for many years before that, 13q, 11q & trisomy 12, relapsed quickly after
FCR
, on ibrutinib for 9 months, scheduled for stem cell transplant in January.
Glees
in
CLL Support
7 years ago
FCR Cycle one
Had cycle 1
FCR
- was a little rough but come time for 2nd cycle my BW is normal why continue
Had cycle 1
FCR
- was a little rough but come time for 2nd cycle my BW is normal why continue
Mathild
in
CLL Support
7 years ago
Round 2 FCR complete
I have completed round 2 of
FCR
and am past the lowest point (10 days post) so am starting to recover. The infusion days themselves were easy. I have a port so it is a simple hook up and away they go. No reactions day one and two, but by end of day 3 I was starting to feel some nausea.
I have completed round 2 of
FCR
and am past the lowest point (10 days post) so am starting to recover. The infusion days themselves were easy. I have a port so it is a simple hook up and away they go. No reactions day one and two, but by end of day 3 I was starting to feel some nausea.
Marie-54
in
CLL Support
7 years ago
Dr. Furman on the Diminishing Role of FCR
Furman's post https://cllsociety.org/2017/12/one-mans-opinion-
fcr
-vs-ibrutinib/. We'll be going night and day at ASH and plan to post while we are there. Stay tuned. And stay strong, Brian CLLSociety.org
Furman's post https://cllsociety.org/2017/12/one-mans-opinion-
fcr
-vs-ibrutinib/. We'll be going night and day at ASH and plan to post while we are there. Stay tuned. And stay strong, Brian CLLSociety.org
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
FCR + Ibrutinib trial
The trial sounds like a no-brainer in terms of the potential to lengthen remission and it also seems that blood counts dont go as low on the i +
FCR
as they do on just the
FCR
.
The trial sounds like a no-brainer in terms of the potential to lengthen remission and it also seems that blood counts dont go as low on the i +
FCR
as they do on just the
FCR
.
Haesl
in
CLL Support
7 years ago
Just diagnosed
He is proposing
FCR
early treatment to the hospital tumor board based on my age of 55. I may lose my job and insurance soon. So if
FCR
is an option, I hope I can get it asap.
He is proposing
FCR
early treatment to the hospital tumor board based on my age of 55. I may lose my job and insurance soon. So if
FCR
is an option, I hope I can get it asap.
TXteacher
in
CLL Support
7 years ago
Jules is back and my plans for 2018 are
Since we started fundraisng we have now raised 35k - Its is great to see all these new treatments coming along,
FCR
was the gold standard when I was first diagnosed.
Since we started fundraisng we have now raised 35k - Its is great to see all these new treatments coming along,
FCR
was the gold standard when I was first diagnosed.
TheFlyer
in
CLL Support
7 years ago
Husband with CLL in Rituximab Therapy
He had a
FCR
tratment when his white cells were very high and the platelet level was low. He was OK until last month. He suddenly lost 10 pounds in a month, and started to sweat extremly when sleeping.
He had a
FCR
tratment when his white cells were very high and the platelet level was low. He was OK until last month. He suddenly lost 10 pounds in a month, and started to sweat extremly when sleeping.
aylinozel
in
CLL Support
7 years ago
Venetoclax CLL 11q, Trisomy 12, MDS
Husband was Diagnosed with CLL with MDS in 2008. ( he’s now 50 ) WW until August 2011
FCR
August 2011 -January 2012 - reached good #’s and he felt great until March 2015 when CLL came back very aggressive.
Husband was Diagnosed with CLL with MDS in 2008. ( he’s now 50 ) WW until August 2011
FCR
August 2011 -January 2012 - reached good #’s and he felt great until March 2015 when CLL came back very aggressive.
Midgey_
in
CLL Support
7 years ago
Have Relapsed From FCR and looking for best choice for Round Two
Didnt make it so settled for
FCR
. Took four rounds of
FCR
but was told I had to stop because I was needing transfusions every second day. I had AIHA. They recommended Br but I refused and never went back.
Didnt make it so settled for
FCR
. Took four rounds of
FCR
but was told I had to stop because I was needing transfusions every second day. I had AIHA. They recommended Br but I refused and never went back.
CLLCOLIN
in
CLL Support
7 years ago
Professional nutritional support for PWP in the UK
I am looking for a knowledgeable nutritionist, ideally in London, able to provide individualized advice on good nutrition e.g. for slowing progression, correcting weight loss, supporting intense exercise and solving interaction problems with Parkinsons's meds. Any recommendations? New'ish on this site
I am looking for a knowledgeable nutritionist, ideally in London, able to provide individualized advice on good nutrition e.g. for slowing progression, correcting weight loss, supporting intense exercise and solving interaction problems with Parkinsons's meds. Any recommendations? New'ish on this site
Kevin51
in
Cure Parkinson's
7 years ago
FCR after failing B/R?
My oncologist mentioned the possibility of
FCR
at some point. I am 72 years old and in good health. My question is shouldn't
FCR
be first line? Would you take
FCR
or Imbruvica? What are your thoughts? Thank you for your reply. Sue Atlanta GA
My oncologist mentioned the possibility of
FCR
at some point. I am 72 years old and in good health. My question is shouldn't
FCR
be first line? Would you take
FCR
or Imbruvica? What are your thoughts? Thank you for your reply. Sue Atlanta GA
SueVG
in
CLL Support
7 years ago
Enlarged spleen
It's looking more likely I'll be getting treatment pretty soon, probably
FCR
. Can anyone tell me their experiences of this regime? Have to say, I'm not looking forward to it.
It's looking more likely I'll be getting treatment pretty soon, probably
FCR
. Can anyone tell me their experiences of this regime? Have to say, I'm not looking forward to it.
Daveyo
in
CLL Support
7 years ago
My Itchy skin
Hi I have CLL since Feb. 2015 and had 6 cycles of
FCR
. I was in remission for about a year . Ever since my second treatment of chemo I had all kind of skin issues like really itchy skin easy bruising rash that looks like shingles and ant bites that leaves a scar.
Hi I have CLL since Feb. 2015 and had 6 cycles of
FCR
. I was in remission for about a year . Ever since my second treatment of chemo I had all kind of skin issues like really itchy skin easy bruising rash that looks like shingles and ant bites that leaves a scar.
uncle2015
in
CLL Support
7 years ago
Post-treatment results
My OH had 4
FCR
treatments, each one reduced from the previous one because of his reactions (low platelets, fatigue). Last treatment was early August.
My OH had 4
FCR
treatments, each one reduced from the previous one because of his reactions (low platelets, fatigue). Last treatment was early August.
shoppingtrolley
in
CLL Support
7 years ago
Just finished FIRST round FCR - what will happen next?
What have those of you who have had
FCR
encountered when starting the regimine?
What have those of you who have had
FCR
encountered when starting the regimine?
Marie-54
in
CLL Support
7 years ago
Elevated Lymphocyte Count 4 Months After Bendamustine/Rituxin
As for
FCR
I am 72 years old. I am losing faith in her. She is suppose to be a specialist but she didn't even know if a shingles vaccine is a live vaccine. Has anyone out there had B/R and experienced such a brief remission?
As for
FCR
I am 72 years old. I am losing faith in her. She is suppose to be a specialist but she didn't even know if a shingles vaccine is a live vaccine. Has anyone out there had B/R and experienced such a brief remission?
SueVG
in
CLL Support
7 years ago
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