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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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Cold medication
Hi guys my hubby currently having
FCR
for CLL he seems to be taking the cold does anyone know what cold medication he could take if any ???
Hi guys my hubby currently having
FCR
for CLL he seems to be taking the cold does anyone know what cold medication he could take if any ???
Sailormoon11
in
CLL Support
6 years ago
unmutated cll patient treatment with fcr
[i]Image of overall survival comparison with FC and
FCR
for IGHV mutated and unmutated added by Admin[/i]
[i]Image of overall survival comparison with FC and
FCR
for IGHV mutated and unmutated added by Admin[/i]
Neoklis
in
CLL Support
6 years ago
Overdose of Madopar CR - urgent help please
Please can someone answer or help. My Mum is in hospital and I discovered they’ve been giving her Madopar CR 100/25 (sustained release) all day instead of her Madopar 100/25 (blue and white) pills all day. If they’ve got it wrong at every dose, she’s probably had 4 Madopar CR during the day; she usually
Please can someone answer or help. My Mum is in hospital and I discovered they’ve been giving her Madopar CR 100/25 (sustained release) all day instead of her Madopar 100/25 (blue and white) pills all day. If they’ve got it wrong at every dose, she’s probably had 4 Madopar CR during the day; she usually
Harebell
in
Cure Parkinson's
6 years ago
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Lymphocyte count post FCR
Three years ago my husband had
FCR
which was very effective and he became MRD- (ie complete remission). Everything has been going very well and he is feeling much healthier than he had done for years before
FCR
(he had 2 years in W&W but had clearly had CLL for years before diagnosis).
Three years ago my husband had
FCR
which was very effective and he became MRD- (ie complete remission). Everything has been going very well and he is feeling much healthier than he had done for years before
FCR
(he had 2 years in W&W but had clearly had CLL for years before diagnosis).
Fowey2009
in
CLL Support
6 years ago
Dyskinesia from coffee?
I would like to know if anybody got dyskinesia from coffee. Lately a few days ago I started to drink a cup of coffee in the morning. (I feel much better, better mood, more energy). I take every 2.75 hours 1.5 sinemet 25/100 and 3 times a day Comtan, during the night take 1 Sinemet 25/100 and 1 sinemet
I would like to know if anybody got dyskinesia from coffee. Lately a few days ago I started to drink a cup of coffee in the morning. (I feel much better, better mood, more energy). I take every 2.75 hours 1.5 sinemet 25/100 and 3 times a day Comtan, during the night take 1 Sinemet 25/100 and 1 sinemet
luba1
in
Cure Parkinson's
6 years ago
FCR Treatment, 4 cycles or 6, follow up
About a month ago, I posted that I was considering stopping
FCR
treatment after 4 cycles pending a Bone Marrow Biopsy and PET scan. The results are in and the BMB showed "NO residual CLL detected" and the Normocellular at 40% cellular, Normal for my age.
About a month ago, I posted that I was considering stopping
FCR
treatment after 4 cycles pending a Bone Marrow Biopsy and PET scan. The results are in and the BMB showed "NO residual CLL detected" and the Normocellular at 40% cellular, Normal for my age.
severdon
in
CLL Support
6 years ago
FLAIR Study Site List Map / UK CLL Expert Centres
The FLAIR trial is a very attractive option to consider for patients who need their first treatment, and who would otherwise be prescribed
FCR
on the NHS.
The FLAIR trial is a very attractive option to consider for patients who need their first treatment, and who would otherwise be prescribed
FCR
on the NHS.
AdrianUK
in
CLL Support
6 years ago
Holiday relief
First post on here but have been enjoying the discussions for a while. Based in the UK but had a holiday in Spain recently. Normally take 6 half-Sinemet CR a day and generally pretty well controlled. On holiday I was walking an average of 15000 steps every day including doing 1/2hr of running every
First post on here but have been enjoying the discussions for a while. Based in the UK but had a holiday in Spain recently. Normally take 6 half-Sinemet CR a day and generally pretty well controlled. On holiday I was walking an average of 15000 steps every day including doing 1/2hr of running every
buzbyc
in
Cure Parkinson's
6 years ago
Start FCR next week advice please
Starting
FCR
next week, any words of advice would be much appreciated! I plan to work during treatment,really do hope its not wishful thinking and I can do it need the money. I know everyone is different, is there anyone out there that pulled up ok after treatment or is it as scary as i think??
Starting
FCR
next week, any words of advice would be much appreciated! I plan to work during treatment,really do hope its not wishful thinking and I can do it need the money. I know everyone is different, is there anyone out there that pulled up ok after treatment or is it as scary as i think??
Shirty78
in
CLL Support
6 years ago
FCR treatment - anyone else had burning sensation in bowels?
Hi my partner as just started
FCR
treatment on the 27/07/2018 he was ok till yesterday night he went to toilet several time and complain of a burning sensation in his bowel. Hi this caused by treatment [i] [/i] [i]Title changed for easier search access - Admin[/i]
Hi my partner as just started
FCR
treatment on the 27/07/2018 he was ok till yesterday night he went to toilet several time and complain of a burning sensation in his bowel. Hi this caused by treatment [i] [/i] [i]Title changed for easier search access - Admin[/i]
Angus1953
in
CLL Support
6 years ago
A little news to share ....
Two years ago today I began
FCR
. It was a challenge at times and it was this group that dragged me through it ...sometimes kicking and screaming! Today I've been busy at work, booked a holiday and feel very grateful for the poison that , so far so good, did a decent job.
Two years ago today I began
FCR
. It was a challenge at times and it was this group that dragged me through it ...sometimes kicking and screaming! Today I've been busy at work, booked a holiday and feel very grateful for the poison that , so far so good, did a decent job.
Bethan49
in
CLL Support
6 years ago
Anyone taking Madopar cr?
I was do 2013, resisted meds until now. I'm beginning to think I need to take it. Has anyone taken MadaparCR? This is what my neurologist recommend. Does anyone have any experience of this drug? Thank you.
I was do 2013, resisted meds until now. I'm beginning to think I need to take it. Has anyone taken MadaparCR? This is what my neurologist recommend. Does anyone have any experience of this drug? Thank you.
Nutbeam
in
Cure Parkinson's
6 years ago
Ibrutinib and NHSE current position.
I have already gone through first line treatment with
FCR
. After the third treatment i was hospitalised for 3 days as o had a reaction. Fortunately through good care I was able to continue. However, I was so ill after the 5th treatment i could not continue.
I have already gone through first line treatment with
FCR
. After the third treatment i was hospitalised for 3 days as o had a reaction. Fortunately through good care I was able to continue. However, I was so ill after the 5th treatment i could not continue.
Mick491
in
CLL Support
6 years ago
FCR-12 months on.
Finished 6 cycles of
FCR
June 2017 and bloods are all great. Am 51 an feel severely fatigued. Is this normal? I have a full time job but struggling to cope Anyone out there experiencing this? Thanks in advance, Robbie
Finished 6 cycles of
FCR
June 2017 and bloods are all great. Am 51 an feel severely fatigued. Is this normal? I have a full time job but struggling to cope Anyone out there experiencing this? Thanks in advance, Robbie
rsw147
in
CLL Support
6 years ago
Neutrophils level
Hi guys my husbands
FCR
treatment has be postponed the past three week due to him neutrophils levels being low any recommendations as docs saying will come up naturally :(
Hi guys my husbands
FCR
treatment has be postponed the past three week due to him neutrophils levels being low any recommendations as docs saying will come up naturally :(
Sailormoon11
in
CLL Support
6 years ago
Race for life - for all of you
And that I could die during my soon to come
FCR
! I choose not to let this drag me down. I’m living today and today was for every and each one of you. Loads of love Flabal
And that I could die during my soon to come
FCR
! I choose not to let this drag me down. I’m living today and today was for every and each one of you. Loads of love Flabal
Flabal
in
CLL Support
6 years ago
Just Finished my First Round FCR!
It still feels like an out of body experience. I was on W&W 12 years with no pains/ illnesses, etc. I was fortunate to have my first treatment admitted to hospital for 4 days last week. It was comforting knowing that if anything happened, I was already with medical professionals. My port made the treatment
It still feels like an out of body experience. I was on W&W 12 years with no pains/ illnesses, etc. I was fortunate to have my first treatment admitted to hospital for 4 days last week. It was comforting knowing that if anything happened, I was already with medical professionals. My port made the treatment
GMa27
in
CLL Support
6 years ago
CLL: FLAIR Trial site list and update to design
We have now recruited the number of patients we need to assess the original comparison of
FCR
+ IR. We had planned to continue either IR or I into the final stage of the trial alongside
FCR
and I+V.
We have now recruited the number of patients we need to assess the original comparison of
FCR
+ IR. We had planned to continue either IR or I into the final stage of the trial alongside
FCR
and I+V.
AdrianUK
in
Leukaemia Support
6 years ago
Manuka Honey
Or any ideas as how to get levels up as it’s delaying 2nd round
FCR
for my husband
Or any ideas as how to get levels up as it’s delaying 2nd round
FCR
for my husband
Sailormoon11
in
CLL Support
6 years ago
Medical update
We discussed having
FCR
but he's against that for a number of reasons. The plan is to get me through to August when there maybe a new trial of a combination of drugs one of which is Ibrutinib. So I am to continue with this trio of drugs.
We discussed having
FCR
but he's against that for a number of reasons. The plan is to get me through to August when there maybe a new trial of a combination of drugs one of which is Ibrutinib. So I am to continue with this trio of drugs.
Mick491
in
CLL Support
6 years ago
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