Manuka Honey

[Sailormoon11]

Hi has anyone taken anything particularly Manuka honey to help with low neutrophil ??? Or any ideas as how to get levels up as it’s delaying 2nd round FCR for my husband

[Cllcanada Top Poster CURE Hero]

Be very careful of honey, it must be pasteurized.. raw honey of any kind is a big NO for neutropenia CLL

You husband should discuss the use of a G-CSF, like Neulasta, neuprogen etc...

Short delays in treatment are not uncommon... Rituxan is still working... the F and C have left the building...

~chris

[cook4650 in reply to Cllcanada]

Only yesterday, after my daughter gave me a lovey gift of two different kinds of raw honey, did I look it up and find I shouldn't be taking it! Very disappointing. However, I am not neutropenic. Would it be OK for me to eat raw honey as long as my WBC is normal?

[Cllcanada Top Poster CURE Hero in reply to cook4650]

I wouldn't risk it.. your immune system is still compromised and you are on treatment...

Your numbers can look great, but things can go sideways quite rapidly as I have learned...

~chris

[cook4650 in reply to Cllcanada]

Thanks. Disappointing, as my daughter knows I love honey and was trying to give me different honeys from different flowers. Honey is one food I would never have thought of as having an issue for us. I will stick to the pasteurized, grocery store types. Sigh...

[Sailormoon11 in reply to cook4650]

I’m just going to avoid all together it was for my husband

[Sailormoon11]

Thanks

[Hidden]

Hi Sailormoon

I’ve used Manuka honey for over 18 months up until recently and it’s very good for killing bacteria and many other benefits, heed chris warning though it must be pasteurised.

When purchasing Manuka it must be umf certified and the higher the number the stronger and better the properties, it is very e pensive but definitely worth the purchase

[Sailormoon11 in reply to Hidden]

Can I ask why you stopped ?? Also could you give me the name of the one you used ? Thank you x

[Hidden in reply to Sailormoon11]

I only stopped as I haven’t got round to stocking back up but that’s on my to do list today. The brand I use is comvita umf 15, it’s usually £50 from a store called Holland and Barrett in the U.K but it’s on sale at £33 this week.

It’s definitely an acquired taste but the benefits far outweigh that, I usually take it spread on toast in the morning but you can just consume a small spoon full.

Hope this helps

Stuart

[Sailormoon11 in reply to Hidden]

And this is def pasteurised

[Hidden in reply to Sailormoon11]

Commercial products usually are pasteurised, it usually states when raw as to those with good functioning immune system raw honey holds a lot more benefits, I’ve used this product before and during treatment up until about a few weeks back and I’m going to purchase some more today, for peace of mind you can always ask in store or contact the supplier directly.

Hope this help

Stuart

[tsvieps in reply to Hidden]

In the US Costco sell 1 kg for about $30, if I remember. That is a lot of honey.

It is a decent anti-biotic as a topical ointment. A friend had a very infected wound that was not responding to prescription anti-biotics. He found out about 2 kinds of honey that work well on wounds. Manuka is one. With honey, his wound cleared.

I tried some last week on an itchy mosquito bite reaction just as an experiment. My rash and itch was gone the next morning.

[Mw3456]

I agree to be careful with any honey. My wife has been dealing with CLL for 18 years. A few years ago I read an article about honey boosting B cells in the blood. Believe it or not even after all this time I have not studied enough about CLL to know if it is always the same kind of cell that is malignant in the illness. But I do know my wife’s cll has to do with B cells so we have been careful about her eating any honey.

I do have some knowledge with “natural” and alternative treatments. If you pasteurize the honey you lose the medicinal properties. And with Manuka (which I personally use) it must be 15 umf or higher or it isn’t considered medicinal. Also the brand is very important. There is lots of manuka sold without proof of certification.

[Deeaaa in reply to Mw3456]

What brand do you recommend?

[wmay13241]

We tried a jar of Manuka honey - tasted bad to us - threw it away.

[Sailormoon11]

Do you feel it def helps you

[Mandy56]

I looked up on internet and as a result ate lots of beans - cooked kidney and butter beans in casseroles, also fresh cooked green beans. Had some form of beans each day. My neutrophils went up from 1.1 to 5 in a week. Also had vit c + iron each day. Don’t know if anyone else has tried that?

[Sailormoon11 in reply to Mandy56]

Thanks Mandy. You know what he’s on tonight don’t you lol

[Mandy56 in reply to Sailormoon11]

😀😀😀xxx