Experiences with

Fludarabine, cyclophosphamide and rituximab (FCR)

I have recently been prescribed Sinemet CR to help with my sleep, or rather lack of it. I take 4 x Stalevo 100mg and 1x8mg Requip XL daily. I have been taking last Stalevo at about 7pm and Sinemet at about 10pm when going to bed as advised. I am still waking after about 2 hours. I know a lot of people

Hi everyone, hope you are all okay. I had my consultation this week. I was told that the only option for me was DBS as medication is not working. Next step is to meet with the DBS Team at Queen Square. I am now left in a situation where I am simply trying to manage this rather precarious situation

I am not sleeping well at the moment. My GP suggested that I try 2 x Madopar CR for bedtime dose to see if that helped. I took them at about 11:30pm (I also had Baclofen in my system to calm painful leg dystonia). I fell asleep. I woke at about 2am this morning and felt a bit weird, like my blood

Hi everyone, moaning sesssion......... I have dystonia secondary to PD. Lucky girl :) I like to be active with my yoga etc. but as soon as try and do a little cardio I take a nose dive fatigue wise and totally wipe out sleeping all day for few days and the calf muscle on my right leg clenches

I cannot stick to 1 tablet of Sinemet, 62.5mg 3 times a day as directed by my PD Nurse as I definitely need one every 4 hours or I wear off and have very uncomfortable, painful restless leg syndrome. I have started taking 5 a day and then add in Sinemet CR 25mg Levodopa at night to try and get some

Hi everyone, I am wearing off during the night and am struggling in the mornings to get up, dressed and ready to drive to work for 8:30am. I have the following medications:- - Madopar Booster tablets 12.5mg/40mg dispersible. Tablet form. - Standard - Sinemet - 12.5mg/50mg. Tablet form. -