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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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6-month post FCR
A year ago, before
FCR
-Lite I wouldn't be able to watch TV at night much at all without falling asleep while watching (and while fast forwarding LOL) and that would be a show that started at 8pm! I would fall asleep during teaching etc.
A year ago, before
FCR
-Lite I wouldn't be able to watch TV at night much at all without falling asleep while watching (and while fast forwarding LOL) and that would be a show that started at 8pm! I would fall asleep during teaching etc.
rlyndecker
in
CLL Support
8 years ago
Pneumonian prevention
I was treated with
FCR
in 2010/11 and managed 5 treatments. At my last appiontment i told my consultant of my concerns for this winter and he has given me 3 months of antibiotics to take as a preventative measure as i come to the period i normally get unwell.
I was treated with
FCR
in 2010/11 and managed 5 treatments. At my last appiontment i told my consultant of my concerns for this winter and he has given me 3 months of antibiotics to take as a preventative measure as i come to the period i normally get unwell.
Mick491
in
CLL Support
8 years ago
What normally triggers the start of first treatment
Two scans and 4 blood tests later, my oncologist says I now qualify for treatment, and would I like to join a clinical trial (
FCR
v. Ibrutinib + rituximab). He quotes ( I think) white blood cell count, which went up from 9 to 66 in that year. The thing is, i don't feel unwell at all.
Two scans and 4 blood tests later, my oncologist says I now qualify for treatment, and would I like to join a clinical trial (
FCR
v. Ibrutinib + rituximab). He quotes ( I think) white blood cell count, which went up from 9 to 66 in that year. The thing is, i don't feel unwell at all.
Graham64
in
Healthy Eating
8 years ago
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4 weeks post FCR
Hi All, been a tough last 10days, 2 hospital visits with one of them an overnight stay. Temperature has been spiking at 39 and still continues to do so. Doctors are pretty convinced its a virus as the blood results and cultures don't show an infection, and that it will eventually clear. In with the Prof
Hi All, been a tough last 10days, 2 hospital visits with one of them an overnight stay. Temperature has been spiking at 39 and still continues to do so. Doctors are pretty convinced its a virus as the blood results and cultures don't show an infection, and that it will eventually clear. In with the Prof
jackhammer
in
CLL Support
8 years ago
FCR Cycle 1
Hi, My dad is on day 2 of cycle 1 of
FCR
. Should he expect hair loss? If not, great and if yes then how long did it take for hair loss to occur? Thank you
Hi, My dad is on day 2 of cycle 1 of
FCR
. Should he expect hair loss? If not, great and if yes then how long did it take for hair loss to occur? Thank you
Lena2016
in
CLL Support
8 years ago
FCR stopped after cycle 5
FCR
no big deal as I've written before in response but it's so good to finish. Life back to normal with energy. Yippee!
FCR
no big deal as I've written before in response but it's so good to finish. Life back to normal with energy. Yippee!
devonrr
in
CLL Support
8 years ago
FCR-neutrophils
Hi All, I've just finished 6 rounds of
FCR
, last infusion 2 weeks ago 13th July.I have been hospitalised twice during rounds 3 and 4 with neutropenic sepsis and then had a rest bite of a further 2 weeks before going on to round 5 for my neutrophils to come up and were at 1.1 on treatment day.
Hi All, I've just finished 6 rounds of
FCR
, last infusion 2 weeks ago 13th July.I have been hospitalised twice during rounds 3 and 4 with neutropenic sepsis and then had a rest bite of a further 2 weeks before going on to round 5 for my neutrophils to come up and were at 1.1 on treatment day.
jackhammer
in
CLL Support
8 years ago
New PSP Diagnosis
Hi, After 3 years living with a PD diagnosis, my husband's new dr believes he has PSP. I have read some info about this, but wonder how a definite diagnosis could be made. It seems from what I read that PSP is worse than PD. I pray the dr is wrong, but we would like to know for sure. He has never
Hi, After 3 years living with a PD diagnosis, my husband's new dr believes he has PSP. I have read some info about this, but wonder how a definite diagnosis could be made. It seems from what I read that PSP is worse than PD. I pray the dr is wrong, but we would like to know for sure. He has never
Babowen898
in
PSP Association
8 years ago
Untreated Aussies needing treatment - great clinical trial just for you
Three rounds of
FCR
Jan 2013 -MRD+ remission, relapsed Jan 2015 - clinical trial of ABT-199 plus Obinutuzimab started Nov 2015 - blog: http://www.abtandme.com
Three rounds of
FCR
Jan 2013 -MRD+ remission, relapsed Jan 2015 - clinical trial of ABT-199 plus Obinutuzimab started Nov 2015 - blog: http://www.abtandme.com
Debinoz
in
CLL Support
8 years ago
Severe anemia
Since diagnosis at the beginning of May I have completed three rounds of
FCR
treatments. The first cycle went well and before second cycle my blood counts were close to normal (low lymphs).
Since diagnosis at the beginning of May I have completed three rounds of
FCR
treatments. The first cycle went well and before second cycle my blood counts were close to normal (low lymphs).
Elremsetay
in
CLL Support
8 years ago
Meds changed without notice.
My husband has been on sinemet 125mg 5× daily and sinemet cr at bed time. This Works well for him. The new pharmacy assistant has been wanting to put his parkinsons meds in with his other blister packs . These are administered wirh meals and bed time. Where his sinemet is given 8am 11am 2pm 5pm and
My husband has been on sinemet 125mg 5× daily and sinemet cr at bed time. This Works well for him. The new pharmacy assistant has been wanting to put his parkinsons meds in with his other blister packs . These are administered wirh meals and bed time. Where his sinemet is given 8am 11am 2pm 5pm and
Noella21
in
Cure Parkinson's
8 years ago
The unspeakable side effects of a bit of chemo ( bums and faries)
Recovering well from the trauma of the first round of
FCR
BUT now learning that it's not all plain sailing... Having had the most horrendous diarrhoea last week... Sorry for graphic details .... Which was rancid and bright yellow ... Like piccalilli ...
Recovering well from the trauma of the first round of
FCR
BUT now learning that it's not all plain sailing... Having had the most horrendous diarrhoea last week... Sorry for graphic details .... Which was rancid and bright yellow ... Like piccalilli ...
Bethan49
in
CLL Support
8 years ago
New meds added what to expect
Hi all, My husband 5 yrs dx was on stavelo x 4 a day, 6mg patch, amantadine 2 X day, 1 rasagaline at night, and 1 clomazapam 0.5 at night. This has now changed, all still as above but at different times (more spread out) Now added as below 1 X madopar in the morning 125mg, 1x sinemet cr at night, 1x
Hi all, My husband 5 yrs dx was on stavelo x 4 a day, 6mg patch, amantadine 2 X day, 1 rasagaline at night, and 1 clomazapam 0.5 at night. This has now changed, all still as above but at different times (more spread out) Now added as below 1 X madopar in the morning 125mg, 1x sinemet cr at night, 1x
allofatremor
in
Cure Parkinson's
8 years ago
Is rytary the same as madopar CR?
I have just had a terrible weekend due to a hopelessly ill-informed non-specialist GP (substituting for the consultant neurologist at an outpatient appt) telling me to change my 3 hourly 125 madopar to 125 madopar CR (slow release) plus 62.5 capsule. Within 24 hours I had completely lost the plot.
I have just had a terrible weekend due to a hopelessly ill-informed non-specialist GP (substituting for the consultant neurologist at an outpatient appt) telling me to change my 3 hourly 125 madopar to 125 madopar CR (slow release) plus 62.5 capsule. Within 24 hours I had completely lost the plot.
pen1
in
Cure Parkinson's
8 years ago
Half Sinemet CR
I have only been taking meds for 3 months, Sinemet x 3 low dose. Worked wonders for lifting my energy level, removing anxiety and helping with rigidity and had no more freezing. Now neurologist feels I could benefit from adding Half Sinemet CR at night to help with minor tremor (whole of right hand side
I have only been taking meds for 3 months, Sinemet x 3 low dose. Worked wonders for lifting my energy level, removing anxiety and helping with rigidity and had no more freezing. Now neurologist feels I could benefit from adding Half Sinemet CR at night to help with minor tremor (whole of right hand side
Jeansm
in
Cure Parkinson's
8 years ago
So the party is just about to start!
Just to let you all know that after my appointment in Tuesday I begin
FCR
on Friday....tomorrow!! I was initially elated as previously have gone through the process to start chemo and then it's been decided to keep me on W&W .
Just to let you all know that after my appointment in Tuesday I begin
FCR
on Friday....tomorrow!! I was initially elated as previously have gone through the process to start chemo and then it's been decided to keep me on W&W .
Bethan49
in
CLL Support
8 years ago
MY SENSE OF HUMOUR TOOK TO ITS HEELS AND RAN AS FAST AS IT COULD!!!!
Well last Friday was th first round of
FCR
. I felt quite positive, put on make up and a nice Lacey top to go to the party . All the staff were amazing, loads of reassurance and info... I was ready to go. Took the pills. Fine.
Well last Friday was th first round of
FCR
. I felt quite positive, put on make up and a nice Lacey top to go to the party . All the staff were amazing, loads of reassurance and info... I was ready to go. Took the pills. Fine.
Bethan49
in
CLL Support
8 years ago
TRIAL OR NOT TO TRIAL, THAT IS THE QUESTION?????
I have read so many positive things about
FCR
that now I feel uncertain about a trail. The other issue is we live at least two hours drive from the nearest hospital that will be taking part in the trial. What advice can you all give me?
I have read so many positive things about
FCR
that now I feel uncertain about a trail. The other issue is we live at least two hours drive from the nearest hospital that will be taking part in the trial. What advice can you all give me?
Bethan49
in
CLL Support
8 years ago
Severe pain so may have to stop Ibrutinib
FCR
I guess....unless I qualify for another trial...Feeling very fed up.
FCR
I guess....unless I qualify for another trial...Feeling very fed up.
romarin
in
CLL Support
8 years ago
So it looks like the roller coaster is about to begin...
Been given
fcr
info....so it begins... Part of me is relieved as I feel pretty rotten but there is the fear of the unknown. Any advice about anything please share!!!!
Been given
fcr
info....so it begins... Part of me is relieved as I feel pretty rotten but there is the fear of the unknown. Any advice about anything please share!!!!
Bethan49
in
CLL Support
8 years ago
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