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Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
6 months ago
Treatment changes - Rituximab?
Finally saw my consultant again last week. Think he was quite surprised at how swollen my hands have become and he said I'd done well to keep going. So am feeling a little more positive, though I'm battling through a lot of pain. The steroid jabs I had in my finger and thumb base seem to have given
Finally saw my consultant again last week. Think he was quite surprised at how swollen my hands have become and he said I'd done well to keep going. So am feeling a little more positive, though I'm battling through a lot of pain. The steroid jabs I had in my finger and thumb base seem to have given
whitedog
in
NRAS
5 months ago
Is my problem poor T4-T3 conversion also Endo recommendation please.
Hello all this is my first post although I have been a member of this group for quite a while and have taken so much advice from all the posts. For the past year I have been working on gut health and maximizing my Vitamins. I have been taking Vits – D with K2, B complex with folate not folic acid (
Hello all this is my first post although I have been a member of this group for quite a while and have taken so much advice from all the posts. For the past year I have been working on gut health and maximizing my Vitamins. I have been taking Vits – D with K2, B complex with folate not folic acid (
nannieJen
in
Thyroid UK
6 months ago
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inhalation symbicort 200
iam a smoker for 55yrs about 6-8 a day worked as plumber with constant welding soldering on construction in uk, never had breathing problems until I might have coughed a lot on morning wake up, as you might expect, but after having injections for anti covid 3 times no booster, last chirstmas 2023, I
iam a smoker for 55yrs about 6-8 a day worked as plumber with constant welding soldering on construction in uk, never had breathing problems until I might have coughed a lot on morning wake up, as you might expect, but after having injections for anti covid 3 times no booster, last chirstmas 2023, I
RABS1957
in
Asthma Community Forum
5 months ago
Clonidine - success with RLS anyone?
Evening team I have a query. As some of you may remember I was prescribed Buprenorphine two years ago by a neurologist for my restless limbs. I have a feeling I may have asked this question before, maybe not in one of my posts, (can't remember!) Does anyone out there take Clonidine for RLS? if
Evening team I have a query. As some of you may remember I was prescribed Buprenorphine two years ago by a neurologist for my restless limbs. I have a feeling I may have asked this question before, maybe not in one of my posts, (can't remember!) Does anyone out there take Clonidine for RLS? if
Heatherandgorse
in
Restless Legs Syndrome
6 months ago
can pleural effusion alone come back?
when I was first diagnosed with HGS OC in December 2021, it had spread till the lungs. There were 2 small nodules in the lungs along with pleural effusion in the right lung, which was also tested to be malignant. Have been NED since first line ended in June 22, and been on olaparib since. Day before
when I was first diagnosed with HGS OC in December 2021, it had spread till the lungs. There were 2 small nodules in the lungs along with pleural effusion in the right lung, which was also tested to be malignant. Have been NED since first line ended in June 22, and been on olaparib since. Day before
Goodgirl98
in
My Ovacome
5 months ago
child with dyslexia
My daughter has recently been diagnosed with dyslexic tendencies. She is almost 7yrs old in year 2 of primary school. I had her B12 tested last year due to recurrent mouth ulcers. I’m just concerned that while displaying the characteristics of dyslexia in reading & writing etc she does not experience
My daughter has recently been diagnosed with dyslexic tendencies. She is almost 7yrs old in year 2 of primary school. I had her B12 tested last year due to recurrent mouth ulcers. I’m just concerned that while displaying the characteristics of dyslexia in reading & writing etc she does not experience
Murfie276
in
Pernicious Anaemia Society
6 months ago
Heart worries
Hi All, I have been having an ache in my chest for a number of weeks. The other night I woke up with chest pain. Ended up in A & E and had all the usual tests - ecg., bloods, chest x-ray. Very conscientious doctor couldn't find a problem although he did say troponin was 'slightly elevated'. Repeated
Hi All, I have been having an ache in my chest for a number of weeks. The other night I woke up with chest pain. Ended up in A & E and had all the usual tests - ecg., bloods, chest x-ray. Very conscientious doctor couldn't find a problem although he did say troponin was 'slightly elevated'. Repeated
Sitosea
in
British Heart Foundation
5 months ago
Monitor My Health iron test - lack of ranges
I spent a bit more money on my MMH test this year as I’ve never had an iron panel done but have always had low iron indicators on a full blood test. I didn’t get complete results as ferritin failed (posting the kit back took 48 hours when it was tracked to take 24) but the results I did get, I can’
I spent a bit more money on my MMH test this year as I’ve never had an iron panel done but have always had low iron indicators on a full blood test. I didn’t get complete results as ferritin failed (posting the kit back took 48 hours when it was tracked to take 24) but the results I did get, I can’
Bearo
in
Thyroid UK
6 months ago
TSAT low, ferretin high
Dear fellow sufferers in RLS hell. My sleep medicine doctor suggested an iron infusion because my TSAT is 28,87% while my ferretin is 145,40ng/ml. I was taking iron supplement for 6 months before the test. I am not very knowledgeable about the difference between TSAT and ferritin. How high are
Dear fellow sufferers in RLS hell. My sleep medicine doctor suggested an iron infusion because my TSAT is 28,87% while my ferretin is 145,40ng/ml. I was taking iron supplement for 6 months before the test. I am not very knowledgeable about the difference between TSAT and ferritin. How high are
sigurdur
in
Restless Legs Syndrome
6 months ago
Blood Work
Hello Friends, I asked this question on my original thread but someone suggested I start a new one. I was diagnosed with Autoimmune Atrophic Gastritis 2 weeks ago and have been having a hard time mentally . My family Dr this past Friday sends me the blood tests results and says they cannot comment
Hello Friends, I asked this question on my original thread but someone suggested I start a new one. I was diagnosed with Autoimmune Atrophic Gastritis 2 weeks ago and have been having a hard time mentally . My family Dr this past Friday sends me the blood tests results and says they cannot comment
Canadian77
in
Pernicious Anaemia Society
6 months ago
Exercise intolerance
Hi all. Does anyone have any idea how to tackle this please? Just over four months into PCS. At first I had to build exercise back up but managed to get to walking about five miles a few months ago. Not without symptoms and obviously pretty shattered the next day, but I could do it. Over the last
Hi all. Does anyone have any idea how to tackle this please? Just over four months into PCS. At first I had to build exercise back up but managed to get to walking about five miles a few months ago. Not without symptoms and obviously pretty shattered the next day, but I could do it. Over the last
Ideogram
in
Headway
5 months ago
iron and b12 test results
How am I doing with iron and b12? i posted before about my thyroid results and have reduced my Levo a tiny amount pending testing again in a few weeks time I now have the rest of my results (minus ferritin and folate ) from MMH. I can see that my iron and b12 are not dire but neither are they optimal
How am I doing with iron and b12? i posted before about my thyroid results and have reduced my Levo a tiny amount pending testing again in a few weeks time I now have the rest of my results (minus ferritin and folate ) from MMH. I can see that my iron and b12 are not dire but neither are they optimal
Bearo
in
Thyroid UK
6 months ago
asthma & respiratory illnesses
Hi - I’m asthmatic and it’s always been mild for the most part (managed by salamol & clenil for my reliever and preventer). Whenever I get any form of respiratory illness it goes straight to my chest and I need steroids and antibiotics and have asthma exacerbations not really attacks. Since catching
Hi - I’m asthmatic and it’s always been mild for the most part (managed by salamol & clenil for my reliever and preventer). Whenever I get any form of respiratory illness it goes straight to my chest and I need steroids and antibiotics and have asthma exacerbations not really attacks. Since catching
ellannabanana99
in
Asthma Community Forum
5 months ago
HRT and B12
So I went to see an actual Doctor, having been diagnosed with PA by the nurses last summer, with a B12 level of 143.His opening gambit, having looked at the September blood results, serum vitamin B12 = 496, was "You do not have Pernicious Anemia!" Stupid me hadn't SId for 4 days, because I wanted the
So I went to see an actual Doctor, having been diagnosed with PA by the nurses last summer, with a B12 level of 143.His opening gambit, having looked at the September blood results, serum vitamin B12 = 496, was "You do not have Pernicious Anemia!" Stupid me hadn't SId for 4 days, because I wanted the
Oneash
in
Pernicious Anaemia Society
6 months ago
Subclinical hypothyroidism advice for next appointment
Hi, I was told I was I had Subclinical hypothyroidism in 2017 but was not significant so no further input. Unsure of exact results but TSH was raised, but <10 with normal T4 (but do not have a copy of the results). Past few years have noticed hair loss, muscle aches & pains, tiredness, some weight gain
Hi, I was told I was I had Subclinical hypothyroidism in 2017 but was not significant so no further input. Unsure of exact results but TSH was raised, but <10 with normal T4 (but do not have a copy of the results). Past few years have noticed hair loss, muscle aches & pains, tiredness, some weight gain
bluepenguin
in
Thyroid UK
6 months ago
PVCs experience
Iv posted a few story's of what's been happening recently to me since having palpitations.I havent been diagnosed yet with a heart condition or anxiety by a GP or specialist. I have changed so many things in my life style to try and eliminate where my palpitation came from and where they protionally
Iv posted a few story's of what's been happening recently to me since having palpitations.I havent been diagnosed yet with a heart condition or anxiety by a GP or specialist. I have changed so many things in my life style to try and eliminate where my palpitation came from and where they protionally
AWhittaker
in
British Heart Foundation
5 months ago
Figuring things out - first year since diagnosis
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
CGSLE
in
LUPUS UK
6 months ago
A cause for concern or?
For the past couple of months i started getting notifications via my Samsung 6 watch that my HR was anything from 44 to 52,for more than 10 minutes, numerous times a day or night . I am taking various medications, Bu trans patch, HRT co-codamol 30/500 Pregabalin tramadol & citalopram 40mg. They are
For the past couple of months i started getting notifications via my Samsung 6 watch that my HR was anything from 44 to 52,for more than 10 minutes, numerous times a day or night . I am taking various medications, Bu trans patch, HRT co-codamol 30/500 Pregabalin tramadol & citalopram 40mg. They are
caz1967
in
British Heart Foundation
5 months ago
Should I put my t3 back up.
I,ll try and keep this short...So I went to see my Endo last November, still not feeling great, he said you can always take a bit if extra t3 when not feeling well..Foolishly I did!!!Got the shakes, stop taking it but the shakes carried on.Went to the Docs she sent me straight to A&E.They asked what
I,ll try and keep this short...So I went to see my Endo last November, still not feeling great, he said you can always take a bit if extra t3 when not feeling well..Foolishly I did!!!Got the shakes, stop taking it but the shakes carried on.Went to the Docs she sent me straight to A&E.They asked what
sylus_911
in
Thyroid UK
5 months ago
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