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Factor X deficiency
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Update Day 4 of Treatment for Richters Transformation
Had a major hick up day 4. The beginning of an anaphylaxis reaction. Chemo stopped. Rapid response team called and in my room in 2 minutes. Got IV benedryl, epinephrine, Pepcid. Things resolved pretty quick but the lymph nodes in my neck enlarged so they ordered an mri stat. In the evening had another
Had a major hick up day 4. The beginning of an anaphylaxis reaction. Chemo stopped. Rapid response team called and in my room in 2 minutes. Got IV benedryl, epinephrine, Pepcid. Things resolved pretty quick but the lymph nodes in my neck enlarged so they ordered an mri stat. In the evening had another
ReneeSusan
in
CLL Support
3 months ago
Seeking Diagnostic/Treatment Ideas
As an American living among far less progressive standards I’m so glad to discover this community. I’ve been trying to focus my brain cells to make this brief as I can. Thanks in advance for your generous reading. I’m a 60 year-old female who has for five years reported memory and cognition changes
As an American living among far less progressive standards I’m so glad to discover this community. I’ve been trying to focus my brain cells to make this brief as I can. Thanks in advance for your generous reading. I’m a 60 year-old female who has for five years reported memory and cognition changes
Pamelayne
in
Pernicious Anaemia Society
4 months ago
High stomach pH
I have just done a second gut microbiome test. The first one I did in August last year showed I had a score of 7.2, which indicated I have little stomach acid. The one I have just done has come back higher at 8.1 (ideal range should be 5.8 - 6.5). Does anyone else have this? Is is a good indication
I have just done a second gut microbiome test. The first one I did in August last year showed I had a score of 7.2, which indicated I have little stomach acid. The one I have just done has come back higher at 8.1 (ideal range should be 5.8 - 6.5). Does anyone else have this? Is is a good indication
Chickens44
in
Pernicious Anaemia Society
4 months ago
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Iron Levels
I am a 74-year-old woman living in New Zealand. I was on Ropinirole for restless legs for approximately 3 years. Augmentation set in and I saw his forum went to my doctor who has changed my medication to Pregabalin. Currently on 50mg per day as I weaned off Ropinirole (completely weaned off for 3 nights
I am a 74-year-old woman living in New Zealand. I was on Ropinirole for restless legs for approximately 3 years. Augmentation set in and I saw his forum went to my doctor who has changed my medication to Pregabalin. Currently on 50mg per day as I weaned off Ropinirole (completely weaned off for 3 nights
Brufax
in
Restless Legs Syndrome
5 months ago
b12 keeps dropping ferritin
Hi Friends, Has anyone had success raising and maintaining ferritin after it dropped from b12 injections? I first caught the iron issue in October, after shots all last summer. I tried many supplements until landing on the least bad offender to my stomach. I got my ferritin to 33, but it dropped
Hi Friends, Has anyone had success raising and maintaining ferritin after it dropped from b12 injections? I first caught the iron issue in October, after shots all last summer. I tried many supplements until landing on the least bad offender to my stomach. I got my ferritin to 33, but it dropped
MuppDog
in
Pernicious Anaemia Society
5 months ago
Stopping iron supplement
Hi all hope everyone is well. I am going to have a iron blood test. How many days before the test do i stop my iron supplement?
Hi all hope everyone is well. I am going to have a iron blood test. How many days before the test do i stop my iron supplement?
giggy63
in
Thyroid UK
5 months ago
Rib ache left side
I have rib ache under left breast sometimes around the back had a chest x ray recently nothing out of ordinary I have RA well controlled. Mentioned it to Gp they had no idea. Rheumatology not concerned due to low inflammation. I will go back to GP but always seem to be there it gets wearing I have
I have rib ache under left breast sometimes around the back had a chest x ray recently nothing out of ordinary I have RA well controlled. Mentioned it to Gp they had no idea. Rheumatology not concerned due to low inflammation. I will go back to GP but always seem to be there it gets wearing I have
welsh12
in
NRAS
3 months ago
B vits
I think I need to start taking b vits again as feeling very foggy brained, apathetic etc. I stopped as ineggus b complex seemed to be exacerbating a pain under my right rib. I stopped taking them and the pain ceased. I tried one tablet again last week and the pain returned. I’ve had a chest x ray and
I think I need to start taking b vits again as feeling very foggy brained, apathetic etc. I stopped as ineggus b complex seemed to be exacerbating a pain under my right rib. I stopped taking them and the pain ceased. I tried one tablet again last week and the pain returned. I’ve had a chest x ray and
Fizzwhizz
in
Thyroid UK
3 months ago
How reliably does NHS retest Blood iron levels after IV Iron?
my new NHS gastroenterologist ordered my iron infusion when my GP alerted her to what they are calling complex iron deficiency blood test results, some longstanding. I was given Ferinject on April 11th. The infusion appointment letter says: the physician who is looking after you may follow up with
my new NHS gastroenterologist ordered my iron infusion when my GP alerted her to what they are calling complex iron deficiency blood test results, some longstanding. I was given Ferinject on April 11th. The infusion appointment letter says: the physician who is looking after you may follow up with
Barnclown
in
Restless Legs Syndrome
5 months ago
So many supplements!
I take so many supplements now that sometimes i feel like i'm going to rattle! 😂 I keep adding more and more so i wanted to check that i'm not messing up with timings and supplements taken together. The timings of the ones i take during the day are because of my breaks at work, so i tend to try and
I take so many supplements now that sometimes i feel like i'm going to rattle! 😂 I keep adding more and more so i wanted to check that i'm not messing up with timings and supplements taken together. The timings of the ones i take during the day are because of my breaks at work, so i tend to try and
catpurple7
in
Thyroid UK
5 months ago
TB screening
morning all! Please help me I’m so worried 😟 I have rheumatoid arthritis I’m currently taking 15 ml of injectable methatexate ,but apparently it’s not enough for my active disease so I’m also going on Hemira.but before I start I needed to have a chest X-ray forTB and it was clear!but I had an appointment
morning all! Please help me I’m so worried 😟 I have rheumatoid arthritis I’m currently taking 15 ml of injectable methatexate ,but apparently it’s not enough for my active disease so I’m also going on Hemira.but before I start I needed to have a chest X-ray forTB and it was clear!but I had an appointment
Mybirthday1975
in
NRAS
3 months ago
Vitamin B12—Multifaceted In Vivo Functions and In Vitro Applications
Another interesting paper (already posted on PAS forum!) Parts are very easy to read - but not all. [i]Nutrients. 2023 Jun; 15(12): 2734.[/i] [i]Published online 2023 Jun 13. doi: 10.3390/nu15122734[/i] [i]PMCID: PMC10305463[/i] [i]PMID: 37375638[/i] [i]
Vitamin B12—Multifaceted In Vivo Functions
Another interesting paper (already posted on PAS forum!) Parts are very easy to read - but not all. [i]Nutrients. 2023 Jun; 15(12): 2734.[/i] [i]Published online 2023 Jun 13. doi: 10.3390/nu15122734[/i] [i]PMCID: PMC10305463[/i] [i]PMID: 37375638[/i] [i]
Vitamin B12—Multifaceted In Vivo Functions
helvella
Thyroid UK
in
Thyroid UK
5 months ago
some advice needed please
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Windyway
in
Pernicious Anaemia Society
5 months ago
Echo results.
Hi I have afib, not usually too often but have had a few episodes this year. On all the usual meds. Have just been given an inhaler as hyperinflated patches were found on my lungs in a chest x ray. Anyway had the results of my latest echocardiogram yesterday and was wondering if you good people can interpret
Hi I have afib, not usually too often but have had a few episodes this year. On all the usual meds. Have just been given an inhaler as hyperinflated patches were found on my lungs in a chest x ray. Anyway had the results of my latest echocardiogram yesterday and was wondering if you good people can interpret
Lupaal
in
Atrial Fibrillation Support
3 months ago
Trazodone
Hi , after trying very hard to navigate depression without drugs I have now just started Trazodone . Taking Gabapentin successfully, only mild RL . Had every dopamine drug for many years and now completely free of them for at least 6 months . My question is although Trazodone is deemed not to affect
Hi , after trying very hard to navigate depression without drugs I have now just started Trazodone . Taking Gabapentin successfully, only mild RL . Had every dopamine drug for many years and now completely free of them for at least 6 months . My question is although Trazodone is deemed not to affect
Rubynessie
in
Restless Legs Syndrome
5 months ago
Gas in CT Simulation
Did anyone have trouble getting good imagery in CT simulation or have advice? Went on a low residue diet to prepare for CT simulation. Both times too much gas for imaging despite cutting out so much fiber and plants from diet. I read that about a practice in Austin, TX suggesting Gas-X (simethicone)
Did anyone have trouble getting good imagery in CT simulation or have advice? Went on a low residue diet to prepare for CT simulation. Both times too much gas for imaging despite cutting out so much fiber and plants from diet. I read that about a practice in Austin, TX suggesting Gas-X (simethicone)
Hope49823
in
Advanced Prostate Cancer
7 months ago
Low iron, supplementing with 3 Arrows
Hi everyone, I posted about a week ago after having iron studies done through the NHS, it came back that I wasn’t iron deficient enough to be treated by a doctor, but my levels were definitely low enough to start treatment since I’m already experiencing symptoms and don’t want to get worse….. Latest
Hi everyone, I posted about a week ago after having iron studies done through the NHS, it came back that I wasn’t iron deficient enough to be treated by a doctor, but my levels were definitely low enough to start treatment since I’m already experiencing symptoms and don’t want to get worse….. Latest
MarvelDC
in
Thyroid UK
5 months ago
Finally...🥳
Hi I hope everyone is doing well and if not hang on in there and reach out as there is misch support on here! I've had the toughest few months since last November the worse flare since being diagnosed in 2013, shadow on lung picked on a routine Chest X Ray at screening for new meds, so couldn't start
Hi I hope everyone is doing well and if not hang on in there and reach out as there is misch support on here! I've had the toughest few months since last November the worse flare since being diagnosed in 2013, shadow on lung picked on a routine Chest X Ray at screening for new meds, so couldn't start
3LittleBirds2
in
NRAS
4 months ago
Sometimes the solution is simple !
Getting through the winter isn’t isn’t easy, is it friends ? This one was a long one and once the spring is on its way my energy levels, enthusiasm and motivation get going and life opens up again. It didn’t happen this year though. Asthma COPD for 21 years….was it all getting to the body ? No energy
Getting through the winter isn’t isn’t easy, is it friends ? This one was a long one and once the spring is on its way my energy levels, enthusiasm and motivation get going and life opens up again. It didn’t happen this year though. Asthma COPD for 21 years….was it all getting to the body ? No energy
PaulineHM
in
Lung Conditions Community Forum
4 months ago
Hi, I'm sure it's been answered before,but can't seem to locate...is it OK to test for I.Factor after loading doses please? If not why?
Hi, I've had one Intrinsic factor test before which came in under range. I know its a test that can take a few times to show up.pisitive & kick myself for not trying it again before this loading dose. Was concerned at asking for tests for other things & forgot about this...appreciate any thoughts & would
Hi, I've had one Intrinsic factor test before which came in under range. I know its a test that can take a few times to show up.pisitive & kick myself for not trying it again before this loading dose. Was concerned at asking for tests for other things & forgot about this...appreciate any thoughts & would
Jo5454
in
Pernicious Anaemia Society
5 months ago
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