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Developing antibodies to a Biologic, stopping it working
Would be grateful to hear from anyone who has had their Biologic not work at all from the start due to their body producing antibodies against it working. I've been on Adalimumab for 2 months with no improvement (following Leflunamide stopping working around February) and feel terrible with the daily
Would be grateful to hear from anyone who has had their Biologic not work at all from the start due to their body producing antibodies against it working. I've been on Adalimumab for 2 months with no improvement (following Leflunamide stopping working around February) and feel terrible with the daily
Blodynhaul
in
NRAS
3 years ago
Can anyone help!
Having a major flare, ankles knees wrists arms! I’m in so much pain, having to come off medication, can anyone suggest pain killers lm on naproxen 500mg 2 times it’s not doing much at all,not wanting to go on oral steroids, took over 4 years toget
Having a major flare, ankles knees wrists arms! I’m in so much pain, having to come off medication, can anyone suggest pain killers lm on naproxen 500mg 2 times it’s not doing much at all,not wanting to go on oral steroids, took over 4 years toget
Kate2628
in
NRAS
3 years ago
Endo nerve pain - suggestions welcome
Hello Has anyone been prescribed a painkiller or anything else that's helped with endo nerve pain? I take Etoricoxib for pain and that works pretty well but I have bowel involvement and I believe that the endo is causing nerve issues, this pain isn't covered by the Etoricoxib. I'm not interested in
Hello Has anyone been prescribed a painkiller or anything else that's helped with endo nerve pain? I take Etoricoxib for pain and that works pretty well but I have bowel involvement and I believe that the endo is causing nerve issues, this pain isn't covered by the Etoricoxib. I'm not interested in
TennisAM
in
Endometriosis UK
3 years ago
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Post dental extraction
In my ignorant bliss I thought tooth out,
pain
and
facial
swelling will be gone, how wrong was I. Swelling worse and more widespread and pain is building back up. Has anyone suffered the same and found Prednisolone helped ?
In my ignorant bliss I thought tooth out,
pain
and
facial
swelling will be gone, how wrong was I. Swelling worse and more widespread and pain is building back up. Has anyone suffered the same and found Prednisolone helped ?
ParsnipSoup
in
PMRGCAuk
3 years ago
Wrong alert..
Hi all I have un going shoulders and neck pain 24/7 and the pain killers are not working well .last night I had bad chest pain and my left arm was week and n Numb and I thought I’m having a heart attack so this morning I want to ENE I had X-rays blood test & and they check my heart at end they say it
Hi all I have un going shoulders and neck pain 24/7 and the pain killers are not working well .last night I had bad chest pain and my left arm was week and n Numb and I thought I’m having a heart attack so this morning I want to ENE I had X-rays blood test & and they check my heart at end they say it
LiimaY
in
Fibromyalgia Action UK
3 years ago
Newbie here with frustrating undiagnosed condition. Anyone else have similar symptoms?
Hey there! So my doctors and specialists have thrown around a few terms over the last 3 years like "Chronic nonbacterial Prostatits" or "Chronic Pelvic Pain Disorder/Syndrome" but none have officially diagnosed me with anything. My main symptoms are lower abdominal pain and testicular pain, sometimes
Hey there! So my doctors and specialists have thrown around a few terms over the last 3 years like "Chronic nonbacterial Prostatits" or "Chronic Pelvic Pain Disorder/Syndrome" but none have officially diagnosed me with anything. My main symptoms are lower abdominal pain and testicular pain, sometimes
Hidden
in
Pelvic Pain Support Network
3 years ago
Waiting for biologicals to kick in!
Hi guys, hope your all keeping well. Well as you know I started Humeria a month ago and it has been an agony time! I have been in so much pain all over, especially my hands and wrists! I phoned rumey nurse up on Thursday and then phoned back on Friday. I asked for some steroids or a steroid shot to help
Hi guys, hope your all keeping well. Well as you know I started Humeria a month ago and it has been an agony time! I have been in so much pain all over, especially my hands and wrists! I phoned rumey nurse up on Thursday and then phoned back on Friday. I asked for some steroids or a steroid shot to help
Carolsos
in
NRAS
3 years ago
Painkillers
Have had a very rough time over the last week or so, very bad bleed- lost 1.5-2litres! (unnecessary as I had had an Endoscopy two days before when they failed to band some varices) then a completely unexplained seizure whilst on the ward recovering from bleeding and banding. I fell very awkwardly when
Have had a very rough time over the last week or so, very bad bleed- lost 1.5-2litres! (unnecessary as I had had an Endoscopy two days before when they failed to band some varices) then a completely unexplained seizure whilst on the ward recovering from bleeding and banding. I fell very awkwardly when
theoldboiler
in
British Liver Trust
3 years ago
Help with RA pain
I am in so much pain at the moment I am taking my predication and painkillers. I am using heat pads, stretching, massage gun, cbd oil and ibuprofen gel but nothing is touching it. I can’t get a physio appointment at the hospital or doctors and cannot afford a private physio. My RA team just dismiss me
I am in so much pain at the moment I am taking my predication and painkillers. I am using heat pads, stretching, massage gun, cbd oil and ibuprofen gel but nothing is touching it. I can’t get a physio appointment at the hospital or doctors and cannot afford a private physio. My RA team just dismiss me
Panda91
in
LUPUS UK
3 years ago
Nerve Damage - Laproscopy
Hi everyone... hope all doing as well as possibly can. I had a laproscopy my 2021, to remove endo. Since day one of my op I have had horrendous back/bum pain (think I've mentioned on here before). I've been having physio as mentioned that have nerve damage and my glutes have gone. Recently my pain
Hi everyone... hope all doing as well as possibly can. I had a laproscopy my 2021, to remove endo. Since day one of my op I have had horrendous back/bum pain (think I've mentioned on here before). I've been having physio as mentioned that have nerve damage and my glutes have gone. Recently my pain
Avalonlea
in
Endometriosis UK
3 years ago
Stopped: B. Longum BB536 (Morinaga) probiotic for gut related health issues (IBS) -> switched to b. infantis 35624 (Alflorex)
I'll no longer take Alflorex and will try another probiotic, Bacillus Coagulans. I also don't take bacillus coagulans anymore. These probiotics weren't beneficial for my health symptoms. **************************** Just started, the 11th of August, with a single strain probiotic, bifidobacterium longum
I'll no longer take Alflorex and will try another probiotic, Bacillus Coagulans. I also don't take bacillus coagulans anymore. These probiotics weren't beneficial for my health symptoms. **************************** Just started, the 11th of August, with a single strain probiotic, bifidobacterium longum
Meleber
in
IBS Network
3 years ago
Does anyone have advice pls?
I have severe endo which I have been managing best I can with pain killers and by taking the pill to try and get my periods under control. It’s not been perfect but it’s manageable . I was offered a hysterectomy but because of bowel involvement they couldn’t guarantee that I wouldn’t get long term damage
I have severe endo which I have been managing best I can with pain killers and by taking the pill to try and get my periods under control. It’s not been perfect but it’s manageable . I was offered a hysterectomy but because of bowel involvement they couldn’t guarantee that I wouldn’t get long term damage
Bagpuss1848
in
Endometriosis UK
3 years ago
Hello
Hi my name is allbie have have fibromyalgia , diabetes, high blood pressure, arthritis. and Spondylitis . I keep myself busy and try not to think about it too much. Always been a positive person but I struggle so much with sleeping. I take pain killers along with herbal remedies. Can anyone make
Hi my name is allbie have have fibromyalgia , diabetes, high blood pressure, arthritis. and Spondylitis . I keep myself busy and try not to think about it too much. Always been a positive person but I struggle so much with sleeping. I take pain killers along with herbal remedies. Can anyone make
Allbie
in
Fibromyalgia Action UK
3 years ago
Calquence and muscle/joint pain
Hi all, After a week on Calquence, my hubs is in excruciating pain - from the hips down. Can barely walk, can't sleep, etc. The pharmacist thinks this is a side effect from the Calquence. He's been taking hydrocodone left over from a procedure and I'm applying BioFreeze, which sort of takes the edge
Hi all, After a week on Calquence, my hubs is in excruciating pain - from the hips down. Can barely walk, can't sleep, etc. The pharmacist thinks this is a side effect from the Calquence. He's been taking hydrocodone left over from a procedure and I'm applying BioFreeze, which sort of takes the edge
qtrhorsechic
in
CLL Support
3 years ago
What pain pill can I take?
I am wondering what type of pain medication can be safely taken when on daily propafenone and verapamil? I have arthritis and was told not to take Advil or Aleeve and recently told not even Tylenol?
I am wondering what type of pain medication can be safely taken when on daily propafenone and verapamil? I have arthritis and was told not to take Advil or Aleeve and recently told not even Tylenol?
Flipflopper
in
AF Association
3 years ago
Return of the pain
Pains in lower legs 🦵😫 and lower arms 😫 more at night. Like tin man yet again . Either take pills 💊before go to 💤😴 sleep. To get some sleep or wake up in pain and need pain killers .
Pains in lower legs 🦵😫 and lower arms 😫 more at night. Like tin man yet again . Either take pills 💊before go to 💤😴 sleep. To get some sleep or wake up in pain and need pain killers .
Sleepyachy
in
Thyroid UK
3 years ago
Buprenorphine -Subutex difference from Suboxone
Frequently asked question. Subutex and Suboxone are both Buprenorphine Subutex is singular (pure Buprenorphine) Suboxone has Naloxone added ( the only difference ) Temgesic is pure Buprenorphine only difference is it’s micro dose 0.02 mcg Dr Glen Brooks who is a practicing anesthetiser only recommends
Frequently asked question. Subutex and Suboxone are both Buprenorphine Subutex is singular (pure Buprenorphine) Suboxone has Naloxone added ( the only difference ) Temgesic is pure Buprenorphine only difference is it’s micro dose 0.02 mcg Dr Glen Brooks who is a practicing anesthetiser only recommends
Shumbah
in
Restless Legs Syndrome
3 years ago
Cramps
Hi good morning all Please can anyone help me with this question ? I woke up with an almighty cramp or that what it feels like from my humures to my chest ( right side ) I must have stretched in my sleep which triggered it off, it does happen on certain movements or when I stretch. I've been having
Hi good morning all Please can anyone help me with this question ? I woke up with an almighty cramp or that what it feels like from my humures to my chest ( right side ) I must have stretched in my sleep which triggered it off, it does happen on certain movements or when I stretch. I've been having
Suffering21
in
Fibromyalgia Action UK
3 years ago
Groin Pain.
Hi, I have awful pain in my thigh, going into the groin area. I cannot walk. Please anyone with advice. Taking painkillers and using an ice pack but no good. Help!
Hi, I have awful pain in my thigh, going into the groin area. I cannot walk. Please anyone with advice. Taking painkillers and using an ice pack but no good. Help!
Aoibheann
in
Fibromyalgia Action UK
3 years ago
Blood Test Delays
In July I had a medication review after having to change GP because of some prescription issues. Unlike previous ones which felt little more than box ticking exercises this was very comprehensive looking at every medication, dose and when it was started. Ignoring PRN painkillers I currently take a total
In July I had a medication review after having to change GP because of some prescription issues. Unlike previous ones which felt little more than box ticking exercises this was very comprehensive looking at every medication, dose and when it was started. Ignoring PRN painkillers I currently take a total
MichaelJH
Heart Star
in
British Heart Foundation
3 years ago
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