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Low O2
CAPS survivor here. Lately my O2 has been consistently between 87% -93% resting and walking. A trip to the ER the other day showed no PE and clear lungs. They want to follow up with pulmonologist but I think it's my blood flow. My lungs feel fine! I'm on warfarin. Anybody else going through this?
CAPS survivor here. Lately my O2 has been consistently between 87% -93% resting and walking. A trip to the ER the other day showed no PE and clear lungs. They want to follow up with pulmonologist but I think it's my blood flow. My lungs feel fine! I'm on warfarin. Anybody else going through this?
grandmagigitovivi
in
Hughes Syndrome APS Forum
2 months ago
Statins with an under active thyroid.
Hi everyone. I've recently found out that my thyroid is under active. Because my LDL is elevated, the doctor decided I needed to see a specialist. They won't give me an appointment and have said I need to take a statin while they get to me. The NHS website says you don't give statins to people with an
Hi everyone. I've recently found out that my thyroid is under active. Because my LDL is elevated, the doctor decided I needed to see a specialist. They won't give me an appointment and have said I need to take a statin while they get to me. The NHS website says you don't give statins to people with an
MauveMouse
in
Thyroid UK
4 months ago
Request for advice looking for possible new diagnosis
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia and Lupus communities.I don't want to write too long a post so will try and keep the background brief. Basically
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia and Lupus communities.I don't want to write too long a post so will try and keep the background brief. Basically
Wispymisty
in
NRAS
4 months ago
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Request for advice looking for possible new diagnosis
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia/Rheumatoid Arthritis communities.I don't want to write too long a post so will try and keep the background brief
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia/Rheumatoid Arthritis communities.I don't want to write too long a post so will try and keep the background brief
Wispymisty
in
LUPUS UK
4 months ago
Two weeks after ablation and I'm on the list for a cardioversion
It's two weeks today since I had an ablation for AF. I wasn't in AF before or immediately after the procedure but felt bad on day two with racing irregular pulse, dizziness etc. I had an ecg last week which showed me to be in AF and the arrhythmia nurse has called to let me know and tell me that I've
It's two weeks today since I had an ablation for AF. I wasn't in AF before or immediately after the procedure but felt bad on day two with racing irregular pulse, dizziness etc. I had an ecg last week which showed me to be in AF and the arrhythmia nurse has called to let me know and tell me that I've
JoDogBlue
in
Atrial Fibrillation Support
2 months ago
Now what? Second go-around of docetaxel not responding.
I am 65 years old and was Diagnosed 8 years ago with stage 4 PC. Metastasis to hips, pelvis, ribs and many lymph nodes. Took 6 rounds of docetaxel followed by ongoing Lupron injections and then 3 years of Zytiga. PSA was driven down to 2.0 from 76 with 1st 6 rounds of docetaxel. Zytiga drove PSA down
I am 65 years old and was Diagnosed 8 years ago with stage 4 PC. Metastasis to hips, pelvis, ribs and many lymph nodes. Took 6 rounds of docetaxel followed by ongoing Lupron injections and then 3 years of Zytiga. PSA was driven down to 2.0 from 76 with 1st 6 rounds of docetaxel. Zytiga drove PSA down
westjl2
in
Advanced Prostate Cancer
7 months ago
Orgovyx and its side effects on the heart's electrical system
I've been taking Orgovyx for over two years with few side effects. But I have been experiencing episodes of dizziness and light-headedness over the last few months. My cardiologist has diagnosed bradycardia (a slow heart beat that can cause such episodes). I will need a pacemaker. I know a side effect
I've been taking Orgovyx for over two years with few side effects. But I have been experiencing episodes of dizziness and light-headedness over the last few months. My cardiologist has diagnosed bradycardia (a slow heart beat that can cause such episodes). I will need a pacemaker. I know a side effect
Boonster
in
Advanced Prostate Cancer
2 months ago
INR meter
Hi all, I had a stroke when I was 27 years old and 10 years later I got diagnosed with Palindromic Rheumatism, a form or Arthritis. With both, current medication is Warfarin and X is required. I feel limited about the regular INR control lead by coagulation variability. Thinking to get an INR meter
Hi all, I had a stroke when I was 27 years old and 10 years later I got diagnosed with Palindromic Rheumatism, a form or Arthritis. With both, current medication is Warfarin and X is required. I feel limited about the regular INR control lead by coagulation variability. Thinking to get an INR meter
HectorManzanoDiaz
in
Anticoagulation Support
2 months ago
Bevacizumab v Niraparib
I've had chemo/debulking surgery/ chemo, and have just come to the end of the post surgery chemo. I've been told all along that I will continue with Bevacizumab as a maintenance treatment (I've had 3 rounds of it alongside chemo, 2 before the surgery and 1 after). I caught COVID towards the end of
I've had chemo/debulking surgery/ chemo, and have just come to the end of the post surgery chemo. I've been told all along that I will continue with Bevacizumab as a maintenance treatment (I've had 3 rounds of it alongside chemo, 2 before the surgery and 1 after). I caught COVID towards the end of
LovemyJackRussell
in
My Ovacome
2 months ago
chemo and genetic testing questions
My husband’s genetic testing of the biopsies came back. It’s 19 pages and I am having a super difficult time interpreting. His Oncologist Urologist is overwhelmed with duties and we probably won’t get reviewed at the level we need. attaching the executive summary. They said he tests positive for SPOP
My husband’s genetic testing of the biopsies came back. It’s 19 pages and I am having a super difficult time interpreting. His Oncologist Urologist is overwhelmed with duties and we probably won’t get reviewed at the level we need. attaching the executive summary. They said he tests positive for SPOP
Sunnysailor
in
Advanced Prostate Cancer
2 months ago
Lupron injection not working
Started one injection a month for lupron, October 2023. First psa test came back 26 in November, November got 2nd lupron injection, The second psa was 22 on December 11, 2023, Just got the third injection today, December 11, 2023. Lupron not reducing psa like the doc thought it would. doc said
Started one injection a month for lupron, October 2023. First psa test came back 26 in November, November got 2nd lupron injection, The second psa was 22 on December 11, 2023, Just got the third injection today, December 11, 2023. Lupron not reducing psa like the doc thought it would. doc said
woppaginny
in
Advanced Prostate Cancer
7 months ago
polycystic liver disease
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
Sing2011
in
British Liver Trust
7 months ago
Updated diagnosis of autoimmune thyroid disorder
Just an update. Unsurprisingly with elevated thyroid antibodies I have been diagnosed with an autoimmune thyroid disorder. As I currently have some hyper symptoms as well as hypo ones, the private GO who’s diagnosed me very sensibly, imo, wants to test again to ensure she gets the diagnosis and treatment
Just an update. Unsurprisingly with elevated thyroid antibodies I have been diagnosed with an autoimmune thyroid disorder. As I currently have some hyper symptoms as well as hypo ones, the private GO who’s diagnosed me very sensibly, imo, wants to test again to ensure she gets the diagnosis and treatment
Fizzwhizz
in
Thyroid UK
4 months ago
Gut analysis
I recently provided a sample for analysis and received the results last week. I had a follow up appointment with Gemma my Funtional Health Practitioner (in training) yesterday. I wanted to share some of the info I have learned here. I have Helicobacter Pylori, unsurprising as around 50% of the population
I recently provided a sample for analysis and received the results last week. I had a follow up appointment with Gemma my Funtional Health Practitioner (in training) yesterday. I wanted to share some of the info I have learned here. I have Helicobacter Pylori, unsurprising as around 50% of the population
IdasMum
in
PMRGCAuk
4 months ago
Olaparib for Metastatic Castration-Resistant Prostate Cancer With BRCA1 and/or BRCA2 Alterations
I know these results have been known for a while but me being germline and somatic BRCA 2, I thought it would be important to post this for those warriors with this condition. TAKE-HOME MESSAGE The phase III PROfound trial showed that patients with metastatic castration-resistant prostate cancer
I know these results have been known for a while but me being germline and somatic BRCA 2, I thought it would be important to post this for those warriors with this condition. TAKE-HOME MESSAGE The phase III PROfound trial showed that patients with metastatic castration-resistant prostate cancer
Balsam01
in
Advanced Prostate Cancer
7 months ago
⁹Newbie: can anybody help with local support to me? Surrey/Sussex/South London
Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. However during routine check-up bloods last month, for the first time, my Rheu picked up positive Lupus screen, ANA, rheumatoid factor alongside others i cant remember. (I have always had a negative autoimmune panel, but high
Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. However during routine check-up bloods last month, for the first time, my Rheu picked up positive Lupus screen, ANA, rheumatoid factor alongside others i cant remember. (I have always had a negative autoimmune panel, but high
Gm131987
in
LUPUS UK
4 months ago
Thyroid blood test results
I have been on thyroxine since 2017 to treat my underactive thyroid (confirmed Hashimotos).My bloods from this week are in the attached screenshot. I haven't felt like me for many years. I wondered what peples thoughts were on my results?
I have been on thyroxine since 2017 to treat my underactive thyroid (confirmed Hashimotos).My bloods from this week are in the attached screenshot. I haven't felt like me for many years. I wondered what peples thoughts were on my results?
SusieR68
in
Thyroid UK
4 months ago
Kidney biopsy confirms active GPA
Hi, Thought I'd update what has happened since my last post. I have seen my rheumatologist twice now, given pred and was put forward for rituximab. Due to the blood and protein in my pee I was referred to renal and had a kidney biopsy on Wednesday of this week. It has been confirmed that my vasculitis
Hi, Thought I'd update what has happened since my last post. I have seen my rheumatologist twice now, given pred and was put forward for rituximab. Due to the blood and protein in my pee I was referred to renal and had a kidney biopsy on Wednesday of this week. It has been confirmed that my vasculitis
lollypocket
in
Vasculitis UK
5 months ago
Dizziness
sorry not been on for a while , moved house then had another scare with my cancer in remission. It’s 2 years since my ruptured brain aneurysm, spoke to rehab consultant ( different one ) at last he listened about my dizziness and falls he has now referred me to a ENT consultant to see if he can help
sorry not been on for a while , moved house then had another scare with my cancer in remission. It’s 2 years since my ruptured brain aneurysm, spoke to rehab consultant ( different one ) at last he listened about my dizziness and falls he has now referred me to a ENT consultant to see if he can help
Blu37
in
Brain Aneurysm Support
7 months ago
high heart rate at night
Anyone else out there experience something like this at night and have any idea if this is AFib or something else? Currently on 2.5mg bisoprolol daily thanks
Anyone else out there experience something like this at night and have any idea if this is AFib or something else? Currently on 2.5mg bisoprolol daily thanks
Craneguy83
in
Atrial Fibrillation Support
2 months ago
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