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Pain Relief that isn’t opiate based. Help!
My stage 4 HGOC with mets on bowel (miliary disease) among other places and has now become painful. I was given morphine but it put me into bowel obstruction so I am now too scared to have any opiate based painkillers. Has anyone found any other pain relief that works and doesn’t slow the bowel?
My stage 4 HGOC with mets on bowel (miliary disease) among other places and has now become painful. I was given morphine but it put me into bowel obstruction so I am now too scared to have any opiate based painkillers. Has anyone found any other pain relief that works and doesn’t slow the bowel?
Littlefluffycloud
in
My Ovacome
4 months ago
Fear of getting ill (nosophobia)
Hello, does anyone else have the fear of getting ill? It's really crippling me at the moment. The other day I had a huge "floater" in my eye. I have been to the eye doctor and a retina specialist and everything is ok. But I'm still having extremely bad anxiety attacks. I'm finding it difficult to
Hello, does anyone else have the fear of getting ill? It's really crippling me at the moment. The other day I had a huge "floater" in my eye. I have been to the eye doctor and a retina specialist and everything is ok. But I'm still having extremely bad anxiety attacks. I'm finding it difficult to
Tobytime45
in
Anxiety Support
6 months ago
Orbital Floor Depomedrone Injection
Hi All Has anyone had any experience of the above for TED? Been offered this or intravenous Methyldprednisolone. Thyroid Eye specialist has given me a week to make my mind up as to which way I would like to go. There are 3 options, the 2 I’ve just stated or do nothing and risk permanent bulging eyes
Hi All Has anyone had any experience of the above for TED? Been offered this or intravenous Methyldprednisolone. Thyroid Eye specialist has given me a week to make my mind up as to which way I would like to go. There are 3 options, the 2 I’ve just stated or do nothing and risk permanent bulging eyes
BlueSkiesAbove
in
Thyroid UK
6 months ago
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Tapering problem
Hi I am now down to 3.5mg Again.I got some chest painThat's settled down but I feel soo weak and tired.Im having problems with my toes going numb on me too.Im raising them up at night time .I don't know what the Dr can do.I think it's a nerve thing.I have told him many times about the numbness.I get
Hi I am now down to 3.5mg Again.I got some chest painThat's settled down but I feel soo weak and tired.Im having problems with my toes going numb on me too.Im raising them up at night time .I don't know what the Dr can do.I think it's a nerve thing.I have told him many times about the numbness.I get
Raewynne
in
PMRGCAuk
6 months ago
Advice please
Hello, I am new to the group and have joined PMRGCAuk recently. I have learnt so much from the group and am so glad I found you. I started with awful symptoms in early February 2022 and was treated as arthritis and given strong painkillers as the headaches I was suffering with were horrendous. After
Hello, I am new to the group and have joined PMRGCAuk recently. I have learnt so much from the group and am so glad I found you. I started with awful symptoms in early February 2022 and was treated as arthritis and given strong painkillers as the headaches I was suffering with were horrendous. After
Golfers1
in
PMRGCAuk
4 months ago
I’m Coco & today Joolsg suggested I post re upcoming NHS Iron Infusion
Hello RLS people I’ve been here for a while reading & learning, getting the impression this is a very well informed serious & supportive community. You’ve helped me understand a lot…but am very aware there’s lots more to get my head around, so thanks for being here! now am about to have this IV
Hello RLS people I’ve been here for a while reading & learning, getting the impression this is a very well informed serious & supportive community. You’ve helped me understand a lot…but am very aware there’s lots more to get my head around, so thanks for being here! now am about to have this IV
Barnclown
in
Restless Legs Syndrome
4 months ago
Dense adhesions after 15 surgeries, + 2 rare medical conditions
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
Eegmetem
in
Pelvic Pain Support Network
4 months ago
A reply to Wasabigirl’s post about PID (?) which has since been deleted
You could ask for an MRI of the lower pelvis and muscles there. A sonogram generally cant see those areas (nor a laparoscopy or laparotomy) and pain in those areas can refer to the groin. I had an infection and was only treated with tetracycline for 5 days (many years ago). Then the terrible burning
You could ask for an MRI of the lower pelvis and muscles there. A sonogram generally cant see those areas (nor a laparoscopy or laparotomy) and pain in those areas can refer to the groin. I had an infection and was only treated with tetracycline for 5 days (many years ago). Then the terrible burning
Standup808
in
Pelvic Pain Support Network
4 months ago
Fibromyalgia similar symptoms.
I have fibromyalgia for years, and was born with scoliosis. I found a lot of the symptoms I have were put down to fybro. So nothing more was done. I had infections all year round and for pain and other symptoms were put on all. Acid. Sorry can say the word so can't spell it. Anyway my husband died and
I have fibromyalgia for years, and was born with scoliosis. I found a lot of the symptoms I have were put down to fybro. So nothing more was done. I had infections all year round and for pain and other symptoms were put on all. Acid. Sorry can say the word so can't spell it. Anyway my husband died and
mag123ben
in
MPN Voice
4 months ago
Demodex Blepharitis treatments?
Hello, all. Glaucoma diagnosed late 2019. Initially drops tolerated ok think Latanoprost plus other.After a while developed bad red eyes, itching. Tried various drops since including preservative free, had both cataracts done. Tablets Azetazoloimide? Worked well, not able stay on them! Stopped taking
Hello, all. Glaucoma diagnosed late 2019. Initially drops tolerated ok think Latanoprost plus other.After a while developed bad red eyes, itching. Tried various drops since including preservative free, had both cataracts done. Tablets Azetazoloimide? Worked well, not able stay on them! Stopped taking
TVTech
in
Glaucoma UK
6 months ago
Rythmol/Propafenone
Has anyone been prescribed this antiarrhythmic? Due to the flecainide not working for me, my doctor wants me to go on this drug. I’m really hesitant to try another drug because of the Flecainide not working. Just wondering if anyone has ever tried this medication and if so, did it work?
Has anyone been prescribed this antiarrhythmic? Due to the flecainide not working for me, my doctor wants me to go on this drug. I’m really hesitant to try another drug because of the Flecainide not working. Just wondering if anyone has ever tried this medication and if so, did it work?
Debjimmay
in
Atrial Fibrillation Support
12 days ago
Is it PMR?
Hi. Diagnosed with PMR several years ago and had flare ups along the way. GP trying to reduce prednisolone dosage again, currently about to go down to 8mg. which isn't touching the pain. However I'm now wondering if in fact I have fibromyalgia. I've been doing some research on Dr Google and have just
Hi. Diagnosed with PMR several years ago and had flare ups along the way. GP trying to reduce prednisolone dosage again, currently about to go down to 8mg. which isn't touching the pain. However I'm now wondering if in fact I have fibromyalgia. I've been doing some research on Dr Google and have just
Everett19
in
PMRGCAuk
4 months ago
PV and AMD?
I've had PV since 2015 and have been on Jakafi for 18 months. I've recently been diagnosed with age-related macular degeneration and have been treated with intravitreous avastin. I've seen some papers suggesting that AMD is more common for people with MPNs. Has anyone else had this experience? Steve
I've had PV since 2015 and have been on Jakafi for 18 months. I've recently been diagnosed with age-related macular degeneration and have been treated with intravitreous avastin. I've seen some papers suggesting that AMD is more common for people with MPNs. Has anyone else had this experience? Steve
sbs_patient
in
MPN Voice
6 months ago
Statin and very bad calf pain in right leg
My husband took 10mg Atorvastatin for the first time 2 weeks ago. then a couple of days ago be got terrible calf cramp feeling in right leg which only eases with painkillers and rest. He is hobbling around. He saw the doc today who said it could be a clot and has referred him for a scan. He is normally
My husband took 10mg Atorvastatin for the first time 2 weeks ago. then a couple of days ago be got terrible calf cramp feeling in right leg which only eases with painkillers and rest. He is hobbling around. He saw the doc today who said it could be a clot and has referred him for a scan. He is normally
Catloveruk
in
Fibromyalgia Action UK
4 months ago
PIC - Punctate Inner Choroidopathy
Hi. I have just received a diagnosis for the above condition. I understand it’s extremely rare and would like to hear about other people’s experiences. I’m literally just on the journey and have had the first of 3 ‘rescue’ injections to prevent further sight loss. Would be good to connect with others
Hi. I have just received a diagnosis for the above condition. I understand it’s extremely rare and would like to hear about other people’s experiences. I’m literally just on the journey and have had the first of 3 ‘rescue’ injections to prevent further sight loss. Would be good to connect with others
Rome2023
in
Macular Society
6 months ago
small eyey
I don’t look like my eyes are normal size but the consultant says they are small, not deep and short ??? Says cataract op would be difficult when the time comes . Says further laser surgery not possible. has anyone else been told this ? I worries me for the future
I don’t look like my eyes are normal size but the consultant says they are small, not deep and short ??? Says cataract op would be difficult when the time comes . Says further laser surgery not possible. has anyone else been told this ? I worries me for the future
Sufitzy
in
Glaucoma UK
6 months ago
eye drops side effects
I am on monopost eye drops and now on Azopt eye drops as well as my eye pressure needs to come down. Does anyone have side effects from Azopt drops?
I am on monopost eye drops and now on Azopt eye drops as well as my eye pressure needs to come down. Does anyone have side effects from Azopt drops?
MadMorris
in
Glaucoma UK
26 days ago
arthritis
Hi everyone I have not posted on here for a long time however things have been going on that requires a little bit of help and support. Firstly I am type 2 Diabetic but that is by the by I was referred to the Orthopaedic clinic in 2013 with arthritis in the left knee at that time I was given physiotherapy
Hi everyone I have not posted on here for a long time however things have been going on that requires a little bit of help and support. Firstly I am type 2 Diabetic but that is by the by I was referred to the Orthopaedic clinic in 2013 with arthritis in the left knee at that time I was given physiotherapy
Trina
in
Thyroid UK
4 months ago
Pegasys for MF transitioning from hydroxycarbamide
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
jointpain
in
MPN Voice
6 months ago
Simbrinza eye drops
Does anyone using Simbrinza have problems with a side effect of blurriness? I was on Xalatan for 9 years without any problems, but my ophthalmologist changed me to Simbrinza 2 months ago hoping my eye pressure would not increase so rapidly after an eye injection.
Does anyone using Simbrinza have problems with a side effect of blurriness? I was on Xalatan for 9 years without any problems, but my ophthalmologist changed me to Simbrinza 2 months ago hoping my eye pressure would not increase so rapidly after an eye injection.
ANO_Health
in
Glaucoma UK
28 days ago
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