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Lymphedema & Knee bursitis
I have Inflammatory arthritis, Sjogren's and OA. I have been on Methotrexate and Imraldi since 2017, before that I was on Benepali. I have had a new hip in 2017 and I also suffered with my knees which despite many steroid injections they are no longer having any effect. I saw my rheumatologist
I have Inflammatory arthritis, Sjogren's and OA. I have been on Methotrexate and Imraldi since 2017, before that I was on Benepali. I have had a new hip in 2017 and I also suffered with my knees which despite many steroid injections they are no longer having any effect. I saw my rheumatologist
Bailybiscuit
in
NRAS
5 months ago
Buprenorphine
Hello, have many UK people found it easy or hard to get Buprenorphine px by GP to control pain from RLS? I have been withdrawing from Pramepexole and using only codeine however it is now not effective in controlling my pain. I have a GP appointment in a few days and was going to ask for Buprenorphine
Hello, have many UK people found it easy or hard to get Buprenorphine px by GP to control pain from RLS? I have been withdrawing from Pramepexole and using only codeine however it is now not effective in controlling my pain. I have a GP appointment in a few days and was going to ask for Buprenorphine
Cookiebum24
in
Restless Legs Syndrome
3 months ago
Hip Replacement while on treatment??
My husband, who is in a Clinical Trial at MDA for Richter's, needs a hip replacement badly - such that his severe arthritis is a bigger deal to his quality of life than the Richter's. He saw an orthopedic pain management specialist last week who had nothing to offer, stating that a steroid injection
My husband, who is in a Clinical Trial at MDA for Richter's, needs a hip replacement badly - such that his severe arthritis is a bigger deal to his quality of life than the Richter's. He saw an orthopedic pain management specialist last week who had nothing to offer, stating that a steroid injection
laurieq
in
CLL Support
5 months ago
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dengue fever vaccinate or not?
I started off on 15mg Pred in October and am now down to 10mg. I am off to India (Rajasthan) in February and dengue fever vaccine has been suggested. As it is a live vaccine I am not sure whether having the vaccine is worth the risk of contracting dengue. Any advice? Also big thanks to the community
I started off on 15mg Pred in October and am now down to 10mg. I am off to India (Rajasthan) in February and dengue fever vaccine has been suggested. As it is a live vaccine I am not sure whether having the vaccine is worth the risk of contracting dengue. Any advice? Also big thanks to the community
Hb22
in
PMRGCAuk
7 months ago
Prebiotic Probiotic Antibiotic... What's the deal?
Ok... Antibiotic is just added to the post title for rhyming. This post is not about antibiotic. So what is this about? Bacillus Subtilis PXN21 beneficial for PD... And Bio-Kult sells out. Thankfully pvw2 pointed out that any Subtilis strain works L. Plantarum PS128 beneficial for PD... And
Ok... Antibiotic is just added to the post title for rhyming. This post is not about antibiotic. So what is this about? Bacillus Subtilis PXN21 beneficial for PD... And Bio-Kult sells out. Thankfully pvw2 pointed out that any Subtilis strain works L. Plantarum PS128 beneficial for PD... And
JayPwP
in
Cure Parkinson's
3 months ago
Covid vaccine
I am going to put it out there . Did anyone get ill with encephalitis after taking the Covid vaccine? This has been something that has been playing in my mind for a while My mom was in later 60s in good health and active before having the vaccine.
I am going to put it out there . Did anyone get ill with encephalitis after taking the Covid vaccine? This has been something that has been playing in my mind for a while My mom was in later 60s in good health and active before having the vaccine.
GIL910
in
Encephalitis International
5 months ago
dipyridamole
I’m going to try this next week when I get an Rx. Looking for any pointers from anyone who has had success with it. I gather that 225mg is a common dose for RLS (three 75mg pills). I intend to start with one pill and titrate up to three quickly if there are no issues. I’m currently using buprenorphine
I’m going to try this next week when I get an Rx. Looking for any pointers from anyone who has had success with it. I gather that 225mg is a common dose for RLS (three 75mg pills). I intend to start with one pill and titrate up to three quickly if there are no issues. I’m currently using buprenorphine
707twitcher
in
Restless Legs Syndrome
3 months ago
FET in 4 days and nasty cold
I am so worried now, our FET is this Thursday and some nasty cold got me this weekend. I am afraid to take any cold/flu meds so it won't mess up with my lining etc 🙈 Has anyone been not well before or during transfer and it affected the outcome?
I am so worried now, our FET is this Thursday and some nasty cold got me this weekend. I am afraid to take any cold/flu meds so it won't mess up with my lining etc 🙈 Has anyone been not well before or during transfer and it affected the outcome?
Glaedy
in
Fertility Network UK
4 months ago
Paxlovid for “mild” COVID?
hello all. Just wondering what your experiences have been regarding taking Paxlovid. I realize you can’t advise but I would love to hear from fellow immune suppressed types like me. I have taken it before but when I had it last year I felt pretty bad and taking the Paxlovid was a no brainer. This time
hello all. Just wondering what your experiences have been regarding taking Paxlovid. I realize you can’t advise but I would love to hear from fellow immune suppressed types like me. I have taken it before but when I had it last year I felt pretty bad and taking the Paxlovid was a no brainer. This time
Bon1
in
NRAS
5 months ago
Back to square one
Hi, I first started having coughing problems back in November 2022 when I caught what I thought was just a bad cold or covid, I was getting phlegm stuck in my airways which was tough to get out when coughing, and sometimes I struggled to breath. Sometimes to the point where I actually cried because
Hi, I first started having coughing problems back in November 2022 when I caught what I thought was just a bad cold or covid, I was getting phlegm stuck in my airways which was tough to get out when coughing, and sometimes I struggled to breath. Sometimes to the point where I actually cried because
amygx25
in
Asthma Community Forum
5 months ago
Trimbow update
I have been on the Trimbow three weeks now and it does seem to be working , I noticed I was walking faster and the use of my ventolin is much reduced . I still have a chesty cough lingering on after a cold but no infection , I need to ask the question does Trimbow make you cough? Just wondered as I
I have been on the Trimbow three weeks now and it does seem to be working , I noticed I was walking faster and the use of my ventolin is much reduced . I still have a chesty cough lingering on after a cold but no infection , I need to ask the question does Trimbow make you cough? Just wondered as I
MrsP70
in
Lung Conditions Community Forum
4 months ago
COVID-19
Been battling Covid for 17 days. I am negative but have a lot of physical issues achy big time. Always exhausted. No motivation. Starting to take a toll on me mentally. Doctor says that sometimes it takes weeks or months to get rid of everything. I hate feeling like this
Been battling Covid for 17 days. I am negative but have a lot of physical issues achy big time. Always exhausted. No motivation. Starting to take a toll on me mentally. Doctor says that sometimes it takes weeks or months to get rid of everything. I hate feeling like this
Trainchaser
in
Anxiety and Depression Support
5 months ago
COVID & sulfasalazine?
After all these years hubby has passed COVID to me! Contacted GP, they have referred me to respiratory@home still waiting for them to call. Question is do I keep taking sulfasalazine.? I've called my Rheumy helpline but they've not got back to me and I've looked on here but can't find anything saying
After all these years hubby has passed COVID to me! Contacted GP, they have referred me to respiratory@home still waiting for them to call. Question is do I keep taking sulfasalazine.? I've called my Rheumy helpline but they've not got back to me and I've looked on here but can't find anything saying
Haz58
in
NRAS
5 months ago
questions
In the summer, I noticed sporadic noises in one ear. It only happened at night, when lying down to sleep. It was almost like a deep and faint squeak. It lasted 2 days and went away. Months later, after developing a sinus cold, it returned. I did not react immediately as I thought it would pass. After
In the summer, I noticed sporadic noises in one ear. It only happened at night, when lying down to sleep. It was almost like a deep and faint squeak. It lasted 2 days and went away. Months later, after developing a sinus cold, it returned. I did not react immediately as I thought it would pass. After
Healthymetoday
in
Tinnitus UK
7 months ago
COPD and Long Covid
Hi all, I've been ill for over three years with Long Covid and just last week diagnosed with COPD stage 2. Looking through my medical history COPD was mentioned back in 2005, but I was told it was Asthma! Just joined my local Breathe Easy group who are great and very supportive.
Hi all, I've been ill for over three years with Long Covid and just last week diagnosed with COPD stage 2. Looking through my medical history COPD was mentioned back in 2005, but I was told it was Asthma! Just joined my local Breathe Easy group who are great and very supportive.
SimonJJJ
in
Lung Conditions Community Forum
5 months ago
Immunocompromised?
Hi everyone I have looked at some pinned articles and still wanted to put this question out there. As a person who is Stage 0, is in W&W who has healthy RBC, Platelets and Immunoglobulin numbers… am I still considered immunocompromised? My WBC number is currently around 34. I work in large crowds
Hi everyone I have looked at some pinned articles and still wanted to put this question out there. As a person who is Stage 0, is in W&W who has healthy RBC, Platelets and Immunoglobulin numbers… am I still considered immunocompromised? My WBC number is currently around 34. I work in large crowds
Audioblender
in
CLL Support
7 months ago
Covid - Reflux
Just out of interest has anyone's reflux problems come on after having Covid? I had it back in early December and got problems in middle of January. I have read somewhere that there could be a link .
Just out of interest has anyone's reflux problems come on after having Covid? I had it back in early December and got problems in middle of January. I have read somewhere that there could be a link .
Pinkcatfairy
in
Acid Reflux Support
5 months ago
What would be your Low Dose Naltrexone (LDN) dosing recommendation for long Covid and Mast Cell Activation?
What would be your Low Dose Naltrexone (LDN) dosing recommendation for long Covid and Mast Cell Activation? Answered by Sebastian Denison, RPh https://youtu.be/w5RLJy34ArU
What would be your Low Dose Naltrexone (LDN) dosing recommendation for long Covid and Mast Cell Activation? Answered by Sebastian Denison, RPh https://youtu.be/w5RLJy34ArU
Shewulf
Administrator
in
LDN Research Trust
5 months ago
Raised Blood Pressure after Covid
Not sure if this is the right Forum to post this on but I wondered if anyone who has high blood pressure and has had Covid has found that their blood pressure readings have risen since having it. I had an appointment with my Cardiologist this morning and showed him my readings over the last month orso
Not sure if this is the right Forum to post this on but I wondered if anyone who has high blood pressure and has had Covid has found that their blood pressure readings have risen since having it. I had an appointment with my Cardiologist this morning and showed him my readings over the last month orso
Jomaur
in
Atrial Fibrillation Support
5 months ago
Finally, we may have found the smoking gun.
We had been able to put it aside, and the hospital agreed they had made a mistake when they said Margaret had Cirrhosis. And was, in fact, NASH with Grade 1 fibrosis. Still, NASH was a surprise, as Magaret was a nondrinker, not obese, and had no health conditions that would even be considered for
We had been able to put it aside, and the hospital agreed they had made a mistake when they said Margaret had Cirrhosis. And was, in fact, NASH with Grade 1 fibrosis. Still, NASH was a surprise, as Magaret was a nondrinker, not obese, and had no health conditions that would even be considered for
ceward204
in
British Liver Trust
5 months ago
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