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Hair issues
I've seen post about hair thinning and other hair problems which cause us all distress adding to our other problems related to Pred and PMR. I've been on pred since last April and noticed I was shedding a lot of hair from November onwards, I had my hair cut shorter than my usual shoulder length to chin
I've seen post about hair thinning and other hair problems which cause us all distress adding to our other problems related to Pred and PMR. I've been on pred since last April and noticed I was shedding a lot of hair from November onwards, I had my hair cut shorter than my usual shoulder length to chin
Blues1
in
PMRGCAuk
5 years ago
Update. Headaches/ Eye strain
Hi guys, Ive posteda after a while. So March 2019 I experienced pins and needles on one side and daily headaches. I started treating myself with loading doses and supplements and the tingling went away. I could function but I had the headache since then till July.. July I started taking sibelium for
Hi guys, Ive posteda after a while. So March 2019 I experienced pins and needles on one side and daily headaches. I started treating myself with loading doses and supplements and the tingling went away. I could function but I had the headache since then till July.. July I started taking sibelium for
KurupPrateek
in
Pernicious Anaemia Society
5 years ago
Medicated FET 1st Buserelin injection
Try 3 of getting an embryo inside me! We’ve only used 1 since having them removed almost 2 years ago. A natural FET didn’t get to transfer then 6months after we were going to try a medicated and I got a new job, so abandoned ship for another 6months. So here we are. 1st injection done, very relaxed and
Try 3 of getting an embryo inside me! We’ve only used 1 since having them removed almost 2 years ago. A natural FET didn’t get to transfer then 6months after we were going to try a medicated and I got a new job, so abandoned ship for another 6months. So here we are. 1st injection done, very relaxed and
Montgomery2
in
Fertility Network UK
5 years ago
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Advice on Adalimumab please.
Hello all, my daughter just been started on injections of Adalimumab. She has been very poorly for four years been diagnosed with Bechets, and other things for about two years. The main reason that she has been put on the injections is because basically nothing else has helped long term. However her
Hello all, my daughter just been started on injections of Adalimumab. She has been very poorly for four years been diagnosed with Bechets, and other things for about two years. The main reason that she has been put on the injections is because basically nothing else has helped long term. However her
Jules6663
in
Behçet's UK
5 years ago
Dry eye from Lercanidipine
I have been on Lercanidipine 20mg for just over 2 months now and seem to have tolerated it well enough. Have had sever reactions to several other blood pressure meds in the past. I have had chronic dry eye symptoms the last couple of weeks out of nowhere. Despite buying & using several ocular drops
I have been on Lercanidipine 20mg for just over 2 months now and seem to have tolerated it well enough. Have had sever reactions to several other blood pressure meds in the past. I have had chronic dry eye symptoms the last couple of weeks out of nowhere. Despite buying & using several ocular drops
Medusa14
in
AF Association
5 years ago
Severe pain and light sensitivity 3 days after Eylea injection. Should this last this long?
Pain and light sensitivity after Eylea injection
Pain and light sensitivity after Eylea injection
Cjentry
in
Macular Society
5 years ago
Eylea injection side effects
I received an injection 3 days ago. I am still in a lot of pain and very sensitive to light. In the past my pain and light sensitivity are reduced significantly the day after the injection. Should I be concerned?
I received an injection 3 days ago. I am still in a lot of pain and very sensitive to light. In the past my pain and light sensitivity are reduced significantly the day after the injection. Should I be concerned?
Cjentry
in
Macular Society
5 years ago
MRD Testing after treatment. Help!
Is this good? Have to wait until tomorrow to actually speak to someone. Peripheral blood, flow cytometric immunophenotyping: Normal immunophenotyping results. No monotypic B-cell population identified. Comment: Minimal residual disease (MRD) analysis is intended to detect small clonal populations of
Is this good? Have to wait until tomorrow to actually speak to someone. Peripheral blood, flow cytometric immunophenotyping: Normal immunophenotyping results. No monotypic B-cell population identified. Comment: Minimal residual disease (MRD) analysis is intended to detect small clonal populations of
AuntHelen
in
CLL Support
5 years ago
Two good appointments with GP in a row! Plus opinions on blood results, plz.
Just had my second appt in a row where the GP said my symptoms were more important than the numbers on my blood test results. Two GPs, same practise, so things're looking up. My latest blood results from Tuesday 21st, after 1 week taking 100 mcg/day, the week before 100 six days and 75 one day, the
Just had my second appt in a row where the GP said my symptoms were more important than the numbers on my blood test results. Two GPs, same practise, so things're looking up. My latest blood results from Tuesday 21st, after 1 week taking 100 mcg/day, the week before 100 six days and 75 one day, the
Achilles_Pain
in
Thyroid UK
5 years ago
Hair transplant and CLL
Has anyone here with CLL had a hair transplant (after early stage diagnosis?) Is that safe or crazy? I'm relatively young to have it and I guess a bit vain but am not sure if the CLL makes no difference or the trauma encourages it.....
Has anyone here with CLL had a hair transplant (after early stage diagnosis?) Is that safe or crazy? I'm relatively young to have it and I guess a bit vain but am not sure if the CLL makes no difference or the trauma encourages it.....
Research123
in
CLL Support
5 years ago
Ocrevus-where are you??
I received my 2 half doses of ocrevus in July and August. I was due for my first full dose yesterday. I didn’t receive it because it was day four in the hospital. A month ago I started a relapse and it was discovered by an MRI that I have a new lesion growing in my thoracic. I did three doses of 1000
I received my 2 half doses of ocrevus in July and August. I was due for my first full dose yesterday. I didn’t receive it because it was day four in the hospital. A month ago I started a relapse and it was discovered by an MRI that I have a new lesion growing in my thoracic. I did three doses of 1000
Juleigh21
in
My MSAA Community
5 years ago
Synarel anyone?
Hi, I have just been prescribed Synarel nasal spray to gear me up for implantation. Has anyone got experience with it? I have just taken my first dose and it’s run down the back of my throat leaving a taste so bad I had to drink water in an effort to wash it down. I feel like I must have done it wrong
Hi, I have just been prescribed Synarel nasal spray to gear me up for implantation. Has anyone got experience with it? I have just taken my first dose and it’s run down the back of my throat leaving a taste so bad I had to drink water in an effort to wash it down. I feel like I must have done it wrong
Danniss
in
Fertility Network UK
5 years ago
Vision therapy.
Hi I've been having a few conversation on here about vision therapy lately. There is a distinct lack of understanding in the UK medical establishment about this therapy. As you all know fatigue and other issues are largely caused by sensory overload, especially light sensitivity and visual problems.
Hi I've been having a few conversation on here about vision therapy lately. There is a distinct lack of understanding in the UK medical establishment about this therapy. As you all know fatigue and other issues are largely caused by sensory overload, especially light sensitivity and visual problems.
pinkvision
in
Headway
5 years ago
Hi
Hello. So if anyone remembers I was having more bloods done for vitamin deficiency’s. Well saw my doctor yesterday and they were fine she was very pleased with them, I started crying because it’s so hard not having a diagnosis yet , yet I’ve had so many things happening to me for a while now . She wanted
Hello. So if anyone remembers I was having more bloods done for vitamin deficiency’s. Well saw my doctor yesterday and they were fine she was very pleased with them, I started crying because it’s so hard not having a diagnosis yet , yet I’ve had so many things happening to me for a while now . She wanted
Natz36
in
LUPUS UK
5 years ago
New aid ....to me!
Well, with your help, courageous Forum, I will start my 'scary' (to me) taper tomorrow. I'm on 24 methylpred and Actemra...and will drop off 8 mg for three weeks, then cut an addtional 4 mg for three weeks and so it goes....he is hoping I am off in 3-4 months...we shall see. I'd told him I'd be happy
Well, with your help, courageous Forum, I will start my 'scary' (to me) taper tomorrow. I'm on 24 methylpred and Actemra...and will drop off 8 mg for three weeks, then cut an addtional 4 mg for three weeks and so it goes....he is hoping I am off in 3-4 months...we shall see. I'd told him I'd be happy
Grammy80
in
PMRGCAuk
5 years ago
Recommendations for magnesium
I've got bored of pushing down 2 enormous Solgar magnesium citrate tablets every day, never mind the expense. I'm thinking of something i can mix in water next time. What do people recommend?
I've got bored of pushing down 2 enormous Solgar magnesium citrate tablets every day, never mind the expense. I'm thinking of something i can mix in water next time. What do people recommend?
Wetsuiter
in
Thyroid UK
5 years ago
Eyes
Just to let everyone know, If your eyes are bothering you get them checked!! I’ve just been diagnosed with blepharitis, brought on by rheumatoid arthritis ☹️ It definitely keeps giving!!
Just to let everyone know, If your eyes are bothering you get them checked!! I’ve just been diagnosed with blepharitis, brought on by rheumatoid arthritis ☹️ It definitely keeps giving!!
Pinkplum
in
NRAS
5 years ago
Botox for Incontinence
I didn't go ahead with Botox as i felt it might make my Lupus worse. And I needed to know how to use a Cathether, if it was injected and was not successful, as the Botox last for about 6months. The Failure rate is about 10 per cent. I am now thinking of using Innovo, as its non invasive.
I didn't go ahead with Botox as i felt it might make my Lupus worse. And I needed to know how to use a Cathether, if it was injected and was not successful, as the Botox last for about 6months. The Failure rate is about 10 per cent. I am now thinking of using Innovo, as its non invasive.
robinson9
in
LUPUS UK
5 years ago
Are we so helpless?
I have intermediate dry AMD, and I get fed up being told there's nothing I can do about it other than take AREDS2. Should be more than that - for example - AMD is caused by drusen cluttering up the macula - this only happens to 1 person in 30. Which raises a few questions ... 1) Where dies the drusen
I have intermediate dry AMD, and I get fed up being told there's nothing I can do about it other than take AREDS2. Should be more than that - for example - AMD is caused by drusen cluttering up the macula - this only happens to 1 person in 30. Which raises a few questions ... 1) Where dies the drusen
rollerboy
in
Macular Society
5 years ago
Issues after endo scratch
Advice needed. Had an endo scrath on Tuesday (4th once) and for the first time I am experiencing more than spotting. In addition apologies for TMI but I have noted an odour. I have some concerns 1. Is it likely to be an infection ? 2. I am due to start progynova on day 1 of my cycle and worried if this
Advice needed. Had an endo scrath on Tuesday (4th once) and for the first time I am experiencing more than spotting. In addition apologies for TMI but I have noted an odour. I have some concerns 1. Is it likely to be an infection ? 2. I am due to start progynova on day 1 of my cycle and worried if this
Silvercloud88
in
Fertility Network UK
5 years ago
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