What are the stages of myelofibrosis

[Richinspirit]

My husband of 81 was diagnosed with myelofibrosis last week after having Jack2 negative essential thrombocythaemia since 2009. His consultant will be watching him closely for the next few months and has not yet prescribed any treatment. She gave us an information pamphlet to read, which we found very useful, but having read through a few posts on this site, I am seeing references to stage 2 and stage3 myelofibrosis. Consultant didn't mention what stage he is at - so do I need to check this out or is ignorance the best way forward......

[Sivasi]

HelloI can't give you any useful guidance, I'm afraid, but I'm in exactly the same situation as your husband (post ET Myelofibrosis, recently confirmed). I asked my consultant about the long-term prognosis and she was very vague. I don't know if she genuinely doesn't know or if she's reluctant to tell me. Personally, I'D prefer to know which stage I'm at

[Richinspirit in reply to Sivasi]

Thank you Sivasi - I agree, we would like to know too.

[Scaredy_cat]

prognosis can be estimatedes From dissolve and similar calculations. Eg qxmd.com/calculate/calculat...

[Richinspirit in reply to Scaredy_cat]

Sorry - I don’t understand your reply.

[Mufftreacs]

I am 83, live in Australia and recently progressed from ET to MF. My consultant said I could have a test to see how far it had progressed but the results would take several weeks. This was suggested just in case I wanted to get my house in order. I was horrified at the thought and said I would rather just enjoy each day as it comes. I am doing just this and feel reasonably well at the moment. For me it is better not to be constantly thinking about time running out and to enjoy each day as it comes.

There obviously is a test available if you request it and wish to know.

Wishing you all the best,

Katie