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update on Azacitidine
I’m sure my local haematologist is thinking “be careful what you wish for”. In recent communications with Claire Harrison she tells me that the the fourth cycle is supposed to be the turning point when your body starts to adjust to the drug. I hope she is right as I’ve just finished the 4th cycle and
I’m sure my local haematologist is thinking “be careful what you wish for”. In recent communications with Claire Harrison she tells me that the the fourth cycle is supposed to be the turning point when your body starts to adjust to the drug. I hope she is right as I’ve just finished the 4th cycle and
beetle
in
MPN Voice
9 months ago
1st Recurrence
Hello I know some chemo regimes are similar to ours in the states for the most part I have another appointment with my Onc this Friday with my concerns regarding 6 Carbo/Taxol/Keytruda cocktail would love to hear what was chosen for a 1st recurrence and how your doing. Thank you!
Hello I know some chemo regimes are similar to ours in the states for the most part I have another appointment with my Onc this Friday with my concerns regarding 6 Carbo/Taxol/Keytruda cocktail would love to hear what was chosen for a 1st recurrence and how your doing. Thank you!
Saintgermain
in
My Ovacome
9 months ago
oncologist Today
Hi Everyone , ok so John went back to oncologist to hear the plan . She wants him to have a biopsy on biggest lymph node to see if cancer as changed into small cell as its different treatment , then she suggests to go with chemo first before Lu 177 and also another option is to change his medication
Hi Everyone , ok so John went back to oncologist to hear the plan . She wants him to have a biopsy on biggest lymph node to see if cancer as changed into small cell as its different treatment , then she suggests to go with chemo first before Lu 177 and also another option is to change his medication
palser1
in
Advanced Prostate Cancer
9 months ago
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Blood Transfusion day after Chemo
Hi allI've had many units of blood over the years during my chemo, but I'm having a unit of blood today and my chemo was only yesterday. I know this might sound daft but will having more blood in my system only 1 day after chemo mean that the chemo drugs will kind of be watered down!!? Never thought
Hi allI've had many units of blood over the years during my chemo, but I'm having a unit of blood today and my chemo was only yesterday. I know this might sound daft but will having more blood in my system only 1 day after chemo mean that the chemo drugs will kind of be watered down!!? Never thought
Kouyate
in
My Ovacome
9 months ago
Bloating and weight gain solutions anyone?
I read that hydroxycarbamide treatment is likely to produce a weight gain. Even though I am now on the smallest dose (500mg/day), dealing with a bloated tummy is so difficult. I should add that I have ET and have been on treatment now for close to 3 years. I exercise religiously but feel so frustrated
I read that hydroxycarbamide treatment is likely to produce a weight gain. Even though I am now on the smallest dose (500mg/day), dealing with a bloated tummy is so difficult. I should add that I have ET and have been on treatment now for close to 3 years. I exercise religiously but feel so frustrated
Hidden
in
MPN Voice
9 months ago
Options when Docetaxel stops working
Hi everyone- My brother was diagnosed with stage 4 prostate cancer in April of 2021. His PSA was 52 at the time of his diagnosis. He went on Lupron and Abiraterone which took his PSA to .03 and kept it low until Oct 2022. It went to 8.9 and his doctor put him on Docetaxel chemo. His PSA has continued
Hi everyone- My brother was diagnosed with stage 4 prostate cancer in April of 2021. His PSA was 52 at the time of his diagnosis. He went on Lupron and Abiraterone which took his PSA to .03 and kept it low until Oct 2022. It went to 8.9 and his doctor put him on Docetaxel chemo. His PSA has continued
TerryR123
in
Advanced Prostate Cancer
9 months ago
Suppliments that help with chemo?
A friend on their own chemo journey recommended the following - wondering if anyone agrees, or is this the equivalent of snake oil? Thanks for any help you can give. Pao V “FM”® is a dietary supplement composed of Pao pereira extract (Geissospermum vellosii) and "Quassia amara" powder. Ginkgo V® is
A friend on their own chemo journey recommended the following - wondering if anyone agrees, or is this the equivalent of snake oil? Thanks for any help you can give. Pao V “FM”® is a dietary supplement composed of Pao pereira extract (Geissospermum vellosii) and "Quassia amara" powder. Ginkgo V® is
Tinuriel
in
Advanced Prostate Cancer
9 months ago
Change in low grade diagnosis -to high grade ovarian carcino sarcoma?
Hi everyone, I am hoping for some advice. I am 47 years old and am nearly 4 weeks post cyto-reductive surgery for stage 3C ovarian cancer - biopsy prior to surgery showed it was low grade serous ovarian cancer (lgsoc) and I had been getting my head round that diagnosis. Surgery went well and multidisciplinary
Hi everyone, I am hoping for some advice. I am 47 years old and am nearly 4 weeks post cyto-reductive surgery for stage 3C ovarian cancer - biopsy prior to surgery showed it was low grade serous ovarian cancer (lgsoc) and I had been getting my head round that diagnosis. Surgery went well and multidisciplinary
Happyhome24
in
My Ovacome
9 months ago
Hot flushes help
Hi teal ladies, struggling with hot flushes keeping me awake most of the night. Has anyone found a useful supplement not contraindicated for us teal ladies? I also have a bit of liver impairment since debulking surgery in May without a known cause yet so need to check that wouldn't be a blocker for trying
Hi teal ladies, struggling with hot flushes keeping me awake most of the night. Has anyone found a useful supplement not contraindicated for us teal ladies? I also have a bit of liver impairment since debulking surgery in May without a known cause yet so need to check that wouldn't be a blocker for trying
Jholly4
in
My Ovacome
9 months ago
Capecitabine (Xeloda)
I have for the past 2 and a half years been taking Ibrance and letrozole. Unfortunately my last two scans have shown that they are no longer working and the cancer cells have started to grow. Tomorrow I start taking Capecitabine ( Xeloda) a chemo drug. 3 x 150 twice a day. 2 weeks on 1 week off. I
I have for the past 2 and a half years been taking Ibrance and letrozole. Unfortunately my last two scans have shown that they are no longer working and the cancer cells have started to grow. Tomorrow I start taking Capecitabine ( Xeloda) a chemo drug. 3 x 150 twice a day. 2 weeks on 1 week off. I
LorryLou
in
SHARE Metastatic Breast Cancer
9 months ago
Traditional chemo
has anyone been offered traditional chemo for treatment? My husband will be starting treatment soon. He’s been going to an oncologist in Tennessee. When we lived in NY Dr Rai was his doctor and we trusted him. We picked the oncologist here because he agreed to keep in touch with Dr Rai and discuss his
has anyone been offered traditional chemo for treatment? My husband will be starting treatment soon. He’s been going to an oncologist in Tennessee. When we lived in NY Dr Rai was his doctor and we trusted him. We picked the oncologist here because he agreed to keep in touch with Dr Rai and discuss his
Jill70
in
CLL Support
9 months ago
bung1961
I have told you that I had 2 colonoscopies in a month 1st time 6/7 polyps removed ( no sing of cancer ) 2nd time a further 4/5 more removed only to be told by the hospital you got IBS & Diverticular Disease given fodmap diet shoved out the door yes I do understand it was following 1st COVID stuff and
I have told you that I had 2 colonoscopies in a month 1st time 6/7 polyps removed ( no sing of cancer ) 2nd time a further 4/5 more removed only to be told by the hospital you got IBS & Diverticular Disease given fodmap diet shoved out the door yes I do understand it was following 1st COVID stuff and
bungi1961
in
Bowel Disease Support
10 months ago
one step forward 2 back
Had my CT scan before my 6th chemo , getting ready to go home and had to go to another ward for blood test ?? Turns out I have a small blood clot on my lung , I just feel I’m getting nowhere just carnt get over that hill . Just feeling a bit low
Had my CT scan before my 6th chemo , getting ready to go home and had to go to another ward for blood test ?? Turns out I have a small blood clot on my lung , I just feel I’m getting nowhere just carnt get over that hill . Just feeling a bit low
Cazy1010
in
My Ovacome
10 months ago
Sclc tumor calcified meaning
I was diagnosed with sclc limited to right lung 6cm tumor. Told inoperable and incurable, but treatment woukd give me more time. I had chemo and radiotherapy ending treatment 2 years 1 month ago.I was told tumor had shrunk to 17.5mm and that was good news. At my last appointment was told the tumor had
I was diagnosed with sclc limited to right lung 6cm tumor. Told inoperable and incurable, but treatment woukd give me more time. I had chemo and radiotherapy ending treatment 2 years 1 month ago.I was told tumor had shrunk to 17.5mm and that was good news. At my last appointment was told the tumor had
Croxfest
in
Small Cell Lung Cancer Support
10 months ago
Decision Time Very Soon
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
rsgdmd
in
Advanced Prostate Cancer
10 months ago
confused
I have recently been diagnosed with Oesophageal cancer, T3N+ After a PET scan they also found a ganglion near where the stomach meets the oesophagus. In early discussion they were talking about five weeks radio/chemo combo and then surgery. The surgery sounds scary but from my googling the only
I have recently been diagnosed with Oesophageal cancer, T3N+ After a PET scan they also found a ganglion near where the stomach meets the oesophagus. In early discussion they were talking about five weeks radio/chemo combo and then surgery. The surgery sounds scary but from my googling the only
Vitex
in
Oesophageal & Gastric Cancer
10 months ago
Hi Everyone, I'm new to this but so glad I found it. Thought I'd introduce myself....no point in holding back!
Hi, This October 2023, will mark the 25th 'Anniversary' of when, at the age of 26, I was wheeled into Theatre for an Operation that lasted 7hrs. I had 8 months previously been told that there was nothing wrong with me when I kept going & phoning the Doctors as my Period (as I thought it was) came
Hi, This October 2023, will mark the 25th 'Anniversary' of when, at the age of 26, I was wheeled into Theatre for an Operation that lasted 7hrs. I had 8 months previously been told that there was nothing wrong with me when I kept going & phoning the Doctors as my Period (as I thought it was) came
maddie_1234
in
Pelvic Radiation Disease Association
10 months ago
Two trees, four textures; a mixed media painting
Really this was just playing around with my materials. It was fun. The composition is meant to invite each viewer in turn to examine each tree as a separate painting -- a kind of stand-alone. I hope you enjoy them. On a darker note, I have an appointment with my oncologist on Monday afternoon to discuss
Really this was just playing around with my materials. It was fun. The composition is meant to invite each viewer in turn to examine each tree as a separate painting -- a kind of stand-alone. I hope you enjoy them. On a darker note, I have an appointment with my oncologist on Monday afternoon to discuss
BrentW
in
Care Community
10 months ago
QoL: Mixed media painting, 'Two trees, four textures'.
Really this was just playing around with my materials. It was fun. The composition is meant to invite each viewer in turn to examine each tree as a separate painting -- a kind of stand-alone. I hope you enjoy them. On a darker note, I have an appointment with my oncologist on Monday afternoon to discuss
Really this was just playing around with my materials. It was fun. The composition is meant to invite each viewer in turn to examine each tree as a separate painting -- a kind of stand-alone. I hope you enjoy them. On a darker note, I have an appointment with my oncologist on Monday afternoon to discuss
BrentW
in
Advanced Prostate Cancer
10 months ago
Q & A with my husband's MO
I'm posting this in case someone finds it helpful. The scans show visceral as well as bone mets. That plus a steep rise in his PSA and the start of chemo really soon have us in a sober state of mind. Continuing to lean on Jesus for strength. https://docs.google.com/document/d/1wXoa3LDjRUyZ4dE9wLJQAg32jRcEISF4v3KeSOT83gg
I'm posting this in case someone finds it helpful. The scans show visceral as well as bone mets. That plus a steep rise in his PSA and the start of chemo really soon have us in a sober state of mind. Continuing to lean on Jesus for strength. https://docs.google.com/document/d/1wXoa3LDjRUyZ4dE9wLJQAg32jRcEISF4v3KeSOT83gg
Tinuriel
in
Advanced Prostate Cancer
10 months ago
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