Experiences with

EPOCH chemotherapy

I was admitted into the hospital today for 5 days of DA EPOCH R w Venetoclax for large diffuse large b cell lymphoma, Richter’s Transformation, of my CLL. Still shocked by the diagnosis as I continue to feel pretty good despite the swollen spleen, enlarging lymph modes and fatigue. It’s been a long

I met with the local oncologist today to do treatment plan for confirmed Richters. I will be admitted on Monday to start 5 days of DA EPOCH - R with Venetoclax for 10 days per cycle. The doctor said it will be a challenge but they will see how I tolerate it and adjust appropriately if I have any major

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Finally had a pet scan on May 28 which showed extensive transformed disease above and below the diaphram with extensive head and neck disease, a pelvic mass and spleenomegaly. I am going for a biopsy next week to confirm diagnosis. If RT confirmed, then I will be admitted to Upenn for 5 days of intensive

Hello everyone, I am looking for your advice regarding the decision to proceed with prostate removal surgery. I was diagnosed with stage 4 P/ca in 2021 at the age of 70, and at that time, I had a metastasis on my hip bone. Surgery to remove the prostate was not an option then, so I began receiving

I am a silent follower. I have been reading you all for at least 10 years. I am in Paraguay, South America where there is no access to many medicines. My situation has changed now. gleason 4+4. Radical Prostatectomy 09/2011 + Coadjuvant Radiotherapy 02/2012 + 1 year of Eligard (leuprolide) 22.5 every

Hi Fellas I’m now almost 19 years since original dx and almost 11 years Stage 4. At the moment going through second chemo campaign, but there is disease progression. There is only one clinical trial I meet the criteria for which I hope to start in May after my last chemo. Lutetium 177 would probably

I have stage 4b serous endometrial cancer and am looking for supplements that will complement my soon start chemo therapy regime - placitaxel + carboplatin + keytruda. My oncologist has recommended B6 and l-glutamine to fend off neuropathy and cautioned against tumeric. Unfortunately, the integrative

Good morning all, Next Monday 7th April from 1:00-2:00pm will be the next session in our Members Series. Ovacome members Lisa and Sophie will be hosting a session titled: 'Our first year after diagnosis'. Unlike our webinars, our Members Series sessions are an opportunity for you to connect

Hi - Asking the group for some input related to ADT joint side effects. Has anyone switched from Lupron (LHRH) to Orgorvx/Deralix (GnRH) to alleviate side effects? My husband has developed side effects making his day to day functioning more difficult. He has been on Eligard/Lupron for 14 months since

Have been told that you can get additional benefits from Zytiga after chemo. Should I restart Zytiga

Hi all, I'm grateful for a place to ask a few questions of those dealing with MPN. I was recently diagnosed after seeing my doctor for burning feet and tight sock feeling periodically over the past two years. Naproxen was controlling that to a point. I have been on Hydroxy/500mg day for one week

I get breathless often. It's worse getting out of bed in morning. It takes me a good 30 mins to get settled before I can relax in chair. I rarely sleep(knowingly). I keep taking fast short breaths to try to recover. The cardiologist knows about this as does as waiting for TAVI. Recently diagnosed with

I’m 48 and was diagnosed last year with advanced metastatic prostate cancer, affecting my lymph nodes, pelvic bones, and ribs. I finished chemo with Docetaxel in December. Given my age, I’m aiming for an aggressive treatment approach and am currently exploring radiation to the prostate and pelvic bones

https://www.fda.gov/drugs/resources-information-approved-drugs/fda-expands-pluvictos-metastatic-castration-resistant-prostate-cancer-indication They based their "expanded-use" approval on the PSMAfore trial. In addition to mCRPC, men had to: • have tried one ARPi (Zytiga, Xtandi, Erleada or Nubeqa

I am writing for my sister who is reluctant to communicate with anything other than facebook. Hopefully she will see the value in this forum. I have been subscribed to the advanced prostate cancer forum and have found it very useful. My sister was having all sorts of symptoms including postural orthostatic

can anyone help with a little advice? I am 7 1/2 years post surgery, chemo and pelvic radiation. I have suddenly developed some bleeding which may be PV. I have many prd symptoms but this has never been one of them. anyone else experienced this? really missing Jo’s trust right now 😢

I had diagnosis of HGS3b in May 2020 after hysterectomy and no chemotherapy due to bladder injury. Had chemo 2021 for reoccurance after i had bladder surgery due to fistula. Had surgery last year for 2nd reoccurance near pancreas and 6 months later on ct scan showed few lymph nodes which have grown

Hi all, This is my first post here. My 66 year old father was diagnosed with metastatic PCa in April 2024. Initial PSA was 35.6, Gleason 5+4. A month later, PSMA-PET showed widespread mets in the tissues surrounding his prostate, including bones and lymph nodes. He did [i]not[/i] have mets in his head

We are in Ontario Canada and my husband was on the wait list for the newly government funded Pluvicto., which my husband's oncologist recommended as the next treatment since all other options have been exhausted. Request was put in over 6 weeks ago and we hadn't heard anything from the hospital and