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Needing a bit of inspiration
Been reading posts for quite a while and now looking for some inspiration! Husband has been on this journey for 8 yrs the last 4 with CRPC with extensive bone mets ( see lengthy bio). Nov 2023 ended 5 infusions of Luteium due to low platelets- went on to have 3 quarter strength doses of Docetaxel which
Been reading posts for quite a while and now looking for some inspiration! Husband has been on this journey for 8 yrs the last 4 with CRPC with extensive bone mets ( see lengthy bio). Nov 2023 ended 5 infusions of Luteium due to low platelets- went on to have 3 quarter strength doses of Docetaxel which
Wifeofgary
in
Advanced Prostate Cancer
2 months ago
Immunotherapy
I'm just starting out on immunotherapy and would like to share experiences with others on the same drug. - Pembrolizumab. I'm due my 2nd treatment tomorrow. For someone who avoids taking anything stronger than paracetamol, it's all a bit scary. I haven't met anyone with lung cancer yet, and other
I'm just starting out on immunotherapy and would like to share experiences with others on the same drug. - Pembrolizumab. I'm due my 2nd treatment tomorrow. For someone who avoids taking anything stronger than paracetamol, it's all a bit scary. I haven't met anyone with lung cancer yet, and other
Gingergus
in
The Roy Castle Lung Cancer Foundation
2 months ago
Starting Chemo
Starting Taxatere next week. Just got notified they want to put a port in. My MO said 18 weeks of weekly infusions. I thought the "Normal" was 18 weeks once very 3 weeks for infusions? Any comments on this and any tips to help tolerate the chemo. Thanks
Starting Taxatere next week. Just got notified they want to put a port in. My MO said 18 weeks of weekly infusions. I thought the "Normal" was 18 weeks once very 3 weeks for infusions? Any comments on this and any tips to help tolerate the chemo. Thanks
Joeym1040
in
Advanced Prostate Cancer
2 months ago
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At what point for scan ?
Hi. Currently just had # 4 chemo. Live in Canada so PSMA has never been done . Bone scan and CT scan. I'm wondering at what point it would be good to get a scan ( they already said it would probably be a CT scan as that's all we have in my province and eventually another bone scan which He has to fly
Hi. Currently just had # 4 chemo. Live in Canada so PSMA has never been done . Bone scan and CT scan. I'm wondering at what point it would be good to get a scan ( they already said it would probably be a CT scan as that's all we have in my province and eventually another bone scan which He has to fly
positive-thinking
in
Advanced Prostate Cancer
2 months ago
Low on Chemo - Clear Cell Specific
Hey Ladies I'm halfway through 1st line treatment and really low. I know the weather isn't helping but the 2nd and 3rd treatments have hit my energy levels hard. I have pains in hands and feet, PN, but mainly soooooo tired I'm struggling to keep up with my walking regime. Any tips? I cannot sleep even
Hey Ladies I'm halfway through 1st line treatment and really low. I know the weather isn't helping but the 2nd and 3rd treatments have hit my energy levels hard. I have pains in hands and feet, PN, but mainly soooooo tired I'm struggling to keep up with my walking regime. Any tips? I cannot sleep even
Emcee71
in
My Ovacome
2 months ago
Heading down hospice road too…
I’m so sorry to hear about your dad 😢 I’m in a very similar situation with my dad, age 71, Gleason 9 with Mets to bone, lungs, lymph nodes and now a tumor in his bladder. Zytiga worked for him for years, but last January started with more bone Mets and lymph nodes, zytiga restarted and failed. Tried
I’m so sorry to hear about your dad 😢 I’m in a very similar situation with my dad, age 71, Gleason 9 with Mets to bone, lungs, lymph nodes and now a tumor in his bladder. Zytiga worked for him for years, but last January started with more bone Mets and lymph nodes, zytiga restarted and failed. Tried
LJGD
in
Advanced Prostate Cancer
2 months ago
Chemo progress
PSA 139 @ DX1-2024 started Orgovyx and Nubeqa dropped PSA to 62.93. Started Chemo 1st infusion..PSA 23.3 2nd infusion..PSA 11.26 3rd infusion.. PSA 7.45 Just got my labs back for the 3rd infusion. Just feel disappointed as I was hoping for a larger drop and seemed to have stalled out. Does it look
PSA 139 @ DX1-2024 started Orgovyx and Nubeqa dropped PSA to 62.93. Started Chemo 1st infusion..PSA 23.3 2nd infusion..PSA 11.26 3rd infusion.. PSA 7.45 Just got my labs back for the 3rd infusion. Just feel disappointed as I was hoping for a larger drop and seemed to have stalled out. Does it look
APK3
in
Advanced Prostate Cancer
2 months ago
Spotting - ovarian cancer
I have stage IIIb ovarian clear cell, and I had my first chemo infusion 10 days ago. I've just started to feel a little better after all the side effects. A worrisome new symptom has come up today (Sunday), which was a little spotting when I went pee. I had a total hysterectomy in September, and I can't
I have stage IIIb ovarian clear cell, and I had my first chemo infusion 10 days ago. I've just started to feel a little better after all the side effects. A worrisome new symptom has come up today (Sunday), which was a little spotting when I went pee. I had a total hysterectomy in September, and I can't
Susi3
in
SHARE Ovarian Cancer Support
2 months ago
QOL - Snow Gods are Smiling on SkiingFiend
Up until a week ago it looked like the local mountain ski season here in Vancouver was going to be a complete washout, as in zero ski days all season. Boy did that change fast. I completed my first chemo cycle a week ago friday and during my 3 sessions (wed-fri) and then over the weekend it dumped like
Up until a week ago it looked like the local mountain ski season here in Vancouver was going to be a complete washout, as in zero ski days all season. Boy did that change fast. I completed my first chemo cycle a week ago friday and during my 3 sessions (wed-fri) and then over the weekend it dumped like
skiingfiend
in
Advanced Prostate Cancer
2 months ago
Blood work question
My husband just got round # 4 of chemo yesterday and bloodwork was done the day before. Doctor not concerned with anything on the blood work and did say that it is expected to change with each round of chemo. Everything looked good and hardly any changes but one flag I see was the Red cell distribution
My husband just got round # 4 of chemo yesterday and bloodwork was done the day before. Doctor not concerned with anything on the blood work and did say that it is expected to change with each round of chemo. Everything looked good and hardly any changes but one flag I see was the Red cell distribution
positive-thinking
in
Advanced Prostate Cancer
2 months ago
Stage 4 OC — Deposits on liver
Hi ladies! Could do with a bit of advice, as am spiralling a bit. For context, my Mum (54) was diagnosed with HGS stage 3c/4a OC in Jan 2022. BRACA gene negative. Immediately started three rounds of chemo, then had optimal debunking surgery and full hysterectomy, and continued with three more rounds
Hi ladies! Could do with a bit of advice, as am spiralling a bit. For context, my Mum (54) was diagnosed with HGS stage 3c/4a OC in Jan 2022. BRACA gene negative. Immediately started three rounds of chemo, then had optimal debunking surgery and full hysterectomy, and continued with three more rounds
georgialocksss
in
My Ovacome
2 months ago
Surgery- failed
I've posted here few weeks ago. I had surgery booked for Tuesday. When he operated surgeon said small tumours had spread around stomach, bowel, intestines so he couldn't remove them. Scan said cancer was contained after 6 rounds of chemo so I was devasted when he couldn't remove them. I have long vertical
I've posted here few weeks ago. I had surgery booked for Tuesday. When he operated surgeon said small tumours had spread around stomach, bowel, intestines so he couldn't remove them. Scan said cancer was contained after 6 rounds of chemo so I was devasted when he couldn't remove them. I have long vertical
Leopard2018
in
My Ovacome
2 months ago
UPDATE on my dad. A story of hope.❤️ #advancedPC
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
YC22
in
Advanced Prostate Cancer
2 months ago
Stage 4 OC with liver metastasis
Any guidance or anyone with Cancer metastasis to Liver? My mother has stage 4 Ovarian Cancer which even after chemo has spread to Liver. Her bilrubin levels are not coming under control infact are increasing and situation is not improving. She’s extremely weak and low on energy. Doctors saying nothing
Any guidance or anyone with Cancer metastasis to Liver? My mother has stage 4 Ovarian Cancer which even after chemo has spread to Liver. Her bilrubin levels are not coming under control infact are increasing and situation is not improving. She’s extremely weak and low on energy. Doctors saying nothing
akhilsalwan
in
SHARE Ovarian Cancer Support
2 months ago
Stage 4 OC with Liver Metastasis
Any guidance or anyone with Cancer metastasis to Liver? My mother has stage 4 Ovarian Cancer which even after chemo has spread to Liver. Her bilrubin levels are not coming under control infact are increasing and situation is not improving. She’s extremely weak and low on energy. Doctors saying nothing
Any guidance or anyone with Cancer metastasis to Liver? My mother has stage 4 Ovarian Cancer which even after chemo has spread to Liver. Her bilrubin levels are not coming under control infact are increasing and situation is not improving. She’s extremely weak and low on energy. Doctors saying nothing
akhilsalwan
in
My Ovacome
2 months ago
Stage 4 OC with Liver Metastasis
Any guidance or anyone with Cancer metastasis to Liver? My mother has stage 4 Ovarian Cancer which even after chemo has spread to Liver. Her bilrubin levels are not coming under control infact are increasing and situation is not improving. She’s extremely weak and low on energy. Doctors saying nothing
Any guidance or anyone with Cancer metastasis to Liver? My mother has stage 4 Ovarian Cancer which even after chemo has spread to Liver. Her bilrubin levels are not coming under control infact are increasing and situation is not improving. She’s extremely weak and low on energy. Doctors saying nothing
akhilsalwan
in
OvaCare
2 months ago
Updating my husband's journey, hoping it helps others - any words of encouragement are welcome, but please only positive comments
The first part is in my profile. It makes me feel vulnerable to share, but we have benefited enormously from reading others' stories, so I'm sharing. UPDATE: 8/18/21 PSA =0.45 9/6/21 last dose Orgovyx 9/7/21 First Eligard 3 month shot 9/17/21 PSA =0.78 10/18/21 PSA =1.28 Nov not tested 12
The first part is in my profile. It makes me feel vulnerable to share, but we have benefited enormously from reading others' stories, so I'm sharing. UPDATE: 8/18/21 PSA =0.45 9/6/21 last dose Orgovyx 9/7/21 First Eligard 3 month shot 9/17/21 PSA =0.78 10/18/21 PSA =1.28 Nov not tested 12
SuppWife
in
Advanced Prostate Cancer
2 months ago
Relugolix/Orgovyx or Enzalutamide/Xtandi?
Good morning, all. I have updated my profile with my husband's history. But, long story short, he has been on ADT vacation for 13 months following succesful treatment of metastatic disease with Triplet Therapy (six rounds of Docetaxel, Lupron, and first Abieraterone plus Prednisone and then he switched
Good morning, all. I have updated my profile with my husband's history. But, long story short, he has been on ADT vacation for 13 months following succesful treatment of metastatic disease with Triplet Therapy (six rounds of Docetaxel, Lupron, and first Abieraterone plus Prednisone and then he switched
FaithOverFear104
in
Advanced Prostate Cancer
2 months ago
Letrozole weight gain
Hi, I am posting this on behalf of my mum who suffered from breast cancer 2022-2023 she went through surgery, chemo and radiation and she is now clear of breast cancer. however she has to take Letrozole for 5 years and she is really struggling with the side effects she has put on a lot of weight since
Hi, I am posting this on behalf of my mum who suffered from breast cancer 2022-2023 she went through surgery, chemo and radiation and she is now clear of breast cancer. however she has to take Letrozole for 5 years and she is really struggling with the side effects she has put on a lot of weight since
MyStar86
in
My Breast Cancer Community
2 months ago
I am excited to be here...
After emergency brain surgery November 2023, I was diagnosed with Stage IV, EGFR lung cancer. I started Tagrisso immediately (targeted treatment), followed by radiation for the brain tumors, and then followed chemotherapy. I am a 57 year-old, non-smoker and extremely healthy. This surgery and diagnosis
After emergency brain surgery November 2023, I was diagnosed with Stage IV, EGFR lung cancer. I started Tagrisso immediately (targeted treatment), followed by radiation for the brain tumors, and then followed chemotherapy. I am a 57 year-old, non-smoker and extremely healthy. This surgery and diagnosis
Hike4Life
in
Small Cell Lung Cancer Support
2 months ago
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