any tips for Caelyx side effects (pdrh

[Beatbigc]

I’m stage 3c High grade serous I had debunking surgery an started my first attempt at chemo in September

I’m allergic to paclitaxel so they are going to try Caelyx (pegylated liposomal dioxyrubicin). Alongside the carboplatin

I’ve read a lot about side effects has anyone gif any tips for managing side effects or has anyone had Caelyx

Also my ca125 has come down from over a thousand but is still in the low hundreds but the surgeons got all the visisnlemevidnce of disease is

There a reason for this

im 53

[Numi]

I had caelyx with carboplatin for my first recurrence, and found the side effects minimal. I had a sore mouth occasionally, which was treated with a gel the hospital gave me, and my skin became more delicate, especially around my picc line. I was able to work for half my treatment, and only stopped at the recommendation of my employer’s occupational health doctor. Hope you do as well as I did, but we are all different, so there’s no real way of telling what side effects you might or might not experience until you start treatment.

[NewtonEmma1900 in reply to Numi]

I was stage 3c HGS October 21. I had carbo/caelyx for my 1st recurrence. I have just gone back to my ‘book’ to check what I noted. Round 1 - and 2 constipation butI learned to pre-emt this. Round 3, I was very tired, my finger nails broke and split and had 2 colds. Round 4, my finger nails were still bad and I had dry and sore feet - so massaged with flexitol or l’occitane foot cream. Round 6 nails and feet still an issue, also had a bit of nausea couple with getting very tired. However CA125 down to 6 and I am now on Niraparib. Best Wishes. Katy 🙏

[SopSinger]

CA125 can be elevated by any inflammation anywhere in the body (even a cold) and can often take a few weeks to come down after surgery. Also, it often rises again on Caelyx treatment - one theory is that the Caelyx breaks down the cancer cells and releases more of the protein into the blood. If the overall trend is downward, that's good.

[Hidden]

Hot red feet is a common side effect. I used 10% urea Udderly Smooth cream twice a day and when feet got red, iced them with cool packs wrapped in a towel.

[Lyndy]

Hello, I am midway through my first carbo/caelyx cycle. Mostly ok, the usual chemo affects such as digestive grumbling, aches and sensitivity. It’s the fatigue that has really surprised me.

It’s a 4 week cycle for me so I am still hoping for a ‘normal’ week before wee start again xx

[Ruebacelle]

Caelyx combined w 2 other products keeps the heart safe