Good News

[Pixiepurple]

Got good news yesterday. My oncologist called. I am responding well to treatment & my lymph nodes have shrunk. Going forward after last chemo session I will be put on a tablet. Post mainly for new people. I'm stage 4, happy to take what ever good news comes my way 💜

[Katmal-UK]

Fantastic news, congrats!

[Pixiepurple in reply to Katmal-UK]

Thank you

[Kiara-52]

Brilliant news! Thanks for sharing 🙂

[Pixiepurple in reply to Kiara-52]

Thanks for reply.

[Starbarn]

Fantastic news. You must feel relieved. Good luck with the rest of your treatment.

[Pixiepurple in reply to Starbarn]

So relieved thanks for reply

[0462County]

Brilliant news xx.

[Pixiepurple in reply to 0462County]

Thank you x

[Beoony]

Fantastic news X

[Pixiepurple in reply to Beoony]

Thank you x

[Caleda4]

Well done, fantastic news.x

[Pixiepurple in reply to Caleda4]

Thank you x

[Gakaxy57]

Good newsSending you 💓

Lynne xx

[Pixiepurple in reply to Gakaxy57]

Thanks Lynne x

[NewtonEmma1900]

Great news. Long may it continue! 🙏

[Pixiepurple in reply to NewtonEmma1900]

Thank you. I so hope so 🤞

[BadgerBright]

Hello Pixiepurple Well what cheerful news I am really happy for you. Keep going forward. BB.

[Pixiepurple in reply to BadgerBright]

Thanks BB x

[Jholly4]

Great news, keep fighting it x

[Pixiepurple in reply to Jholly4]

Thank you Jholly4, I don't the fight will ever be over xx

[Motiva]

Fantastic news PixiePurple. I hope I follow your progress when I have my scan next week. Is it Olaparib you are starting? F x

[Pixiepurple in reply to Motiva]

Fingers x you will get good news. I haven't been told yet the name of the tablet. Once I find out I will post x

[Le-gra143]

Wow that is great news pixiepurple

You must have been flying high

Delighted

[Pixiepurple in reply to Le-gra143]

I must say I was over the moon. X

[Lookingahead]

Delighted with your news x

[Pixiepurple in reply to Lookingahead]

Thank you.

[grammeejill]

That’s wonderful news, Pixiepurple! It’s always a sigh of relief when a treatment works! Hugs!

[Pixiepurple in reply to grammeejill]

It so is. Fingers x growing forward it will continue.

[Pixiepurple in reply to grammeejill]

Thank you huge relief

[Lizzieanne]

So pleased for you

[Pixiepurple in reply to Lizzieanne]

Thank you

[bananayo]

That’s great news x

[Pixiepurple in reply to bananayo]

Thank you

[Norelo8]

Such great news !!😘

[Pixiepurple in reply to Norelo8]

Yes it is thank you

[Newbery3]

Yaaahoooo! 🥳🥳🥳 fantastic news 👏 🙌 🥰 you are smashing it! X

[Pixiepurple in reply to Newbery3]

Thank you 🥰hope all going well for you too 🤞🤞

[Newbery3 in reply to Pixiepurple]

Yes, all good here 😘 maintenance treatment going well 👍 x

[Pixiepurple in reply to Newbery3]

Brilliant, thats great, do you take that every day?

[Newbery3 in reply to Pixiepurple]

Yes twice a day lynpraza(parps) and I'm also on avastin 3weekly, just did number 14 yesterday of 18 doses 😅x

[Pixiepurple in reply to Newbery3]

Thank you. All ahead of me, I hope 🤞🤞

[Goodgirl98]

So happy for you! Wishing you continued good health.

[Pixiepurple in reply to Goodgirl98]

Thank you, you too.

[Kaitlinsmum]

Great news!! Go girl!

[Pixiepurple in reply to Kaitlinsmum]

Thank you.

[Tealgirl7]

That is great news. I am a long-term survivor of stage 4 also and my notes always give me issues. Never been NED. Are you braca positive. Sending hugs

[Pixiepurple in reply to Tealgirl7]

Hi Tealgirl7, you have given me so much hope. I have 3 young children & have to stay around for them. I am braca negative. Diagnosed in June 23. Sending hugs too x

[delia2]

That’s wonderful news! Long may it continue!

[Pixiepurple in reply to delia2]

Thank you. I so hope so.

[Pianoplayer731021]

So happy for you! 😊

[Pixiepurple in reply to Pianoplayer731021]

Thank you x

[Realistic]

Thats absolutely fantastic news, and long may it continue you're doing great. Love & hugs SheilaFxxx

[Pixiepurple in reply to Realistic]

Thank you SheilaF x

[TeddyC]

wonderful news that the treatment is working, you must be very relieved x

[Pixiepurple in reply to TeddyC]

Thank you I am so relieved x

[Saintgermain]

Great news! I just started treatment for 2 small enlarged lymph nodes recurrence your an inspiration

[Pixiepurple in reply to Saintgermain]

I hope it all goes to plan for you too xx

[StilCrazy]

Hi Pixie, I am happy for you. What drugs were you on initially and most importantly what is the tablet you have been put on longterm. I am guessing you are BRCA positive and it is a PARP inhibitor?

[Pixiepurple in reply to StilCrazy]

Hi StilCrazy, I have my 6th session of chemo next week & will get info on tablet on the 6th Nov, do PARP only work if you are Brca positive, I was told I was negative? Thank you for reply.

[StilCrazy in reply to Pixiepurple]

I think they are beginning to use PARP inhibitors on BRCA negatives but historically they thought they only worked on BRCA positive people. I am also negative and read an article saying that although they are not as effective as they are in positive people, they are still a lot better than most of the other ovarian drugs used after initial chemo and surgery. I want to try it too!! But I am not in the UK and it would cost me more than a month's salary every month for 2 years so... I need some positive stories to tell my medical aid. Keep me posted if you learn anything new. In my country the oncologists do not even offer it because of the price.

[Pixiepurple in reply to StilCrazy]

Hi Stilcrazy thank you for all the info. So are you taking anything at the moment then to help you?That is awful that they don't provide this great drug because it costs too much. I will keep you posted on what I am offered. Best wishes.

[StilCrazy in reply to Pixiepurple]

No. The cancer came back in my abdominal lymph nodes 6 months after finishing 6 rounds of carbo/taxol. Any other chemo I tried would relapse even quicker and would have worse side effects, so I left it. I feel well and couldn't sacrifice that for a chemo that probably would work for 4 months! 7 months later and no cancer progression for now. I am well and have no discomfort, but we all know how sneaky and asymptomatic this cancer is, so any drug that has even a 20% chance of success is worth trying. I struggle to really enjoy life and not feel like I am waiting for the axe to fall!

[Pixiepurple in reply to StilCrazy]

I so hope it stays away for you & the government supplement the cost of the Parp drugs soon. I know how you feel with regards to life. Its the first thing you think of when you wake & the last thing you think of at night. Hopefully as time goes on things will get easier🤞🤞

[Tealgirl7]

I am BRCA neg and I take Niraparib (parp inhibitor )with Avastin. I think it is working

[Pixiepurple in reply to Tealgirl7]

That is so good to hear. I am taking notes of all the meds so have info at next meeting. Thank you so much x