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Falling ALT - Pathway to Sarcopenia? - More Exercise Needed?
Two years in to my de novo high volume metastatic prostate cancer diagnosis, I am pleased to report excellent results so far with triplet therapy (Docetaxel chemo completed, Abiraterone ARPI, Firmagon/Degarelix GnRH antagonist as ADT). However I would be grateful for any advice today.
My ALT has fallen
Two years in to my de novo high volume metastatic prostate cancer diagnosis, I am pleased to report excellent results so far with triplet therapy (Docetaxel chemo completed, Abiraterone ARPI, Firmagon/Degarelix GnRH antagonist as ADT). However I would be grateful for any advice today.
My ALT has fallen
JohnInTheMiddle
in
Advanced Prostate Cancer
2 months ago
Pain around bikini line.
Looking for a possible explanation. Diagnosed Oct 2021. HG serous carcinoma stage 3c peritoneal/ovarian. I am on 4th line chemo carbo/gem ( I have found this the most challenging so far). Debulking was in March 2022 and I recovered extremely well. Since then I had some abdominal cramping just
Looking for a possible explanation. Diagnosed Oct 2021. HG serous carcinoma stage 3c peritoneal/ovarian. I am on 4th line chemo carbo/gem ( I have found this the most challenging so far). Debulking was in March 2022 and I recovered extremely well. Since then I had some abdominal cramping just
NewtonEmma1900
in
My Ovacome
2 months ago
chemo nausea
hi I am about to embarque on my third chemo session the last two have been awful due to nausea which lasts about a week it’s so bad I struggle to eat and force myself to drink . Any suggestions gratefully received I should say that I am prescribed anti sickness which I was loathe to take but this time
hi I am about to embarque on my third chemo session the last two have been awful due to nausea which lasts about a week it’s so bad I struggle to eat and force myself to drink . Any suggestions gratefully received I should say that I am prescribed anti sickness which I was loathe to take but this time
Hilo13
in
CLL Support
2 months ago
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Operation
Well had my bowel resection 8 weeks ago my concerns about general anaesthetic because of ET and never had operation before was unfounded surgeon said I woke up quick was mobile in hours didn't require painkillers ,got out of hospital on day 3 now having preventative chemo starting Thursday my faith
Well had my bowel resection 8 weeks ago my concerns about general anaesthetic because of ET and never had operation before was unfounded surgeon said I woke up quick was mobile in hours didn't require painkillers ,got out of hospital on day 3 now having preventative chemo starting Thursday my faith
ChillyAsh34
in
MPN Voice
2 months ago
Anyone above 80 years -on triple therapy ?
Anyone over 80 years who has taken triple therapy - first and second generation ADT as well as chemo ? Could you please share how your experience of it was.
Anyone over 80 years who has taken triple therapy - first and second generation ADT as well as chemo ? Could you please share how your experience of it was.
Tinkudi
in
Advanced Prostate Cancer
2 months ago
ADT failure
We saw my Dad's MO on 5/23. Over the course of 4 weeks my dad's PSA moved from 1.46 to 2.14, He said we need to be on Zytiga for three months before we can deem it a failure, but just like Xtandi, it appears my dad had limited help with it. We have talked about the next steps, chemo and pluvicto. My
We saw my Dad's MO on 5/23. Over the course of 4 weeks my dad's PSA moved from 1.46 to 2.14, He said we need to be on Zytiga for three months before we can deem it a failure, but just like Xtandi, it appears my dad had limited help with it. We have talked about the next steps, chemo and pluvicto. My
lgutman
in
Advanced Prostate Cancer
3 months ago
Question for Oncologist
Tall_Allen, if you are around, I would especially appreciate your thoughts…….my husband, Dave is still on Lupron/Zytiga/Pred for M1a pc. only in a few abdominal nodes per PSMA scan. He just completed IMRT and was undetectable two weeks ago. Have you ever heard that the progression of soft tissue mets
Tall_Allen, if you are around, I would especially appreciate your thoughts…….my husband, Dave is still on Lupron/Zytiga/Pred for M1a pc. only in a few abdominal nodes per PSMA scan. He just completed IMRT and was undetectable two weeks ago. Have you ever heard that the progression of soft tissue mets
103532
in
Advanced Prostate Cancer
3 months ago
A related major news article
Antibody drug conjugates with chemo. Developed for AML and being expanded to other cancers. Probobly well known but in the news. https://www.nbcnews.com/health/health-news/cancer-fighting-antibodies-inject-chemo-directly-tumor-cells-upping-ef-rcna153773?cid=sm_npd_nn_fb_ma&utm_source=facebook&utm_campaign
Antibody drug conjugates with chemo. Developed for AML and being expanded to other cancers. Probobly well known but in the news. https://www.nbcnews.com/health/health-news/cancer-fighting-antibodies-inject-chemo-directly-tumor-cells-upping-ef-rcna153773?cid=sm_npd_nn_fb_ma&utm_source=facebook&utm_campaign
Rando21
in
CLL Support
3 months ago
Pre-approvals under Medicare
I have regular Medicare plus a supplement and Part D. I'm just starting to research this, but figured many of you have already dealt with this issue. Does Medicare (not Medicare Advantage) do pre-approvals for things like Provenge, chemo, PSMA PET scan, etc.? None of my medical institutions seem to seek
I have regular Medicare plus a supplement and Part D. I'm just starting to research this, but figured many of you have already dealt with this issue. Does Medicare (not Medicare Advantage) do pre-approvals for things like Provenge, chemo, PSMA PET scan, etc.? None of my medical institutions seem to seek
dhccpa
in
Advanced Prostate Cancer
3 months ago
Time to adjust my course, any suggestions?
Psa is on a steady increase again. I was taking extandi for a year up until 11 /23 over that yr my Psa had dropped from 29, 11/22 to 1.4 ,11/23. I was having significant SEs, brain fog mainly so I decided to switch to nubeqa (daralutimide) even tho there was a steady drop in PSA on extandi. Nubeqa
Psa is on a steady increase again. I was taking extandi for a year up until 11 /23 over that yr my Psa had dropped from 29, 11/22 to 1.4 ,11/23. I was having significant SEs, brain fog mainly so I decided to switch to nubeqa (daralutimide) even tho there was a steady drop in PSA on extandi. Nubeqa
rick8637
in
Advanced Prostate Cancer
3 months ago
Alpelisib and fulversant
Hi all, I was diagnosed June 2021, bones only, ibrance and letrezole for 2 years, then progression to liver, 6 months on paclitaxel then further progression to bones, liver and periteneum. PIC3CA mutation so onc wants to try Alpelisib and fulversant. Feeling extremely down about it all, cancer seems
Hi all, I was diagnosed June 2021, bones only, ibrance and letrezole for 2 years, then progression to liver, 6 months on paclitaxel then further progression to bones, liver and periteneum. PIC3CA mutation so onc wants to try Alpelisib and fulversant. Feeling extremely down about it all, cancer seems
RachH20
in
SHARE Metastatic Breast Cancer
3 months ago
Lupron plus Xtandi Vs lupron plus xtandi plus chemo - survival ?
Are there any studies which show survival or treatment efficacy rates comparing triplet therapy Vs just lupron and xtandi/zytiga
Are there any studies which show survival or treatment efficacy rates comparing triplet therapy Vs just lupron and xtandi/zytiga
Tinkudi
in
Advanced Prostate Cancer
3 months ago
hello
Hello. I'm receiving chemo for the 3rd time since my diagnosis in 2021. I've now had all 3 of the chemo cocktails that are typically used. This time, the cancer has metastasized to my liver. Tiny spots. I just had a scan this week and there is no further metastasis. I will find out today what our
Hello. I'm receiving chemo for the 3rd time since my diagnosis in 2021. I've now had all 3 of the chemo cocktails that are typically used. This time, the cancer has metastasized to my liver. Tiny spots. I just had a scan this week and there is no further metastasis. I will find out today what our
Healingvibes400
in
SHARE Ovarian Cancer Support
3 months ago
Restless Legs
Hi all - curious if any of you are experiencing pretty intense restless legs? I am a triplet therapy patient and am through the chemo and radiation (maybe quad therapy:)) so wondering if somehow Darolutamide is contributing to this? I also take a statin, a reflux pill, vitamin D, flomax, and cialis
Hi all - curious if any of you are experiencing pretty intense restless legs? I am a triplet therapy patient and am through the chemo and radiation (maybe quad therapy:)) so wondering if somehow Darolutamide is contributing to this? I also take a statin, a reflux pill, vitamin D, flomax, and cialis
Yzinger
in
Advanced Prostate Cancer
3 months ago
Is it possible to get back to Platinum based chemo?
Hello beautiful ladies, My mum has been living with ovarian cancer since 2020. After debulking surgery and many treatments, her cancer was declared platinum-resistant. Following this, she received 6 rounds of Doxorubicin + Bevacizumab, which kept her stable. However, she still has many carcinomatosis
Hello beautiful ladies, My mum has been living with ovarian cancer since 2020. After debulking surgery and many treatments, her cancer was declared platinum-resistant. Following this, she received 6 rounds of Doxorubicin + Bevacizumab, which kept her stable. However, she still has many carcinomatosis
violettatolz
in
My Ovacome
3 months ago
Early breast cancer
I've just been diagnosed with early breast cancer. I've had mammogram, biopsy and mri. The lump is 3cm. I am awaiting a tests on my lymph nodes. Then have been told lumpectomy, radiotherapy and /or chemotherapy. It's oestrogen and progesterone driven. I am on hrt, I'm perimenopausal. I also had a heart
I've just been diagnosed with early breast cancer. I've had mammogram, biopsy and mri. The lump is 3cm. I am awaiting a tests on my lymph nodes. Then have been told lumpectomy, radiotherapy and /or chemotherapy. It's oestrogen and progesterone driven. I am on hrt, I'm perimenopausal. I also had a heart
Duvetdays15
in
My Breast Cancer Community
3 months ago
Help with fatigue
Hi, my husband seen the family doctor yesterday and he prescribed Ritalin ( not sure yet of the dose as he faxed to pharmacy )My question is if anyone has tried this for energy? He is very nervous about adding more meds. He also is taking Effexor 75mg for the hot flushes which has decreased them . He
Hi, my husband seen the family doctor yesterday and he prescribed Ritalin ( not sure yet of the dose as he faxed to pharmacy )My question is if anyone has tried this for energy? He is very nervous about adding more meds. He also is taking Effexor 75mg for the hot flushes which has decreased them . He
positive-thinking
in
Advanced Prostate Cancer
3 months ago
pleural effusion
hi all you very supportive ladies . 4 years since my diagnosis with stage 3 ovarian cancer I have had all the chemo combinations available plus Avastin and PARP inhibitors . I was then in a clinical trial for a year which had a small effect and finished in March. a couple of weeks ago , I was admitted
hi all you very supportive ladies . 4 years since my diagnosis with stage 3 ovarian cancer I have had all the chemo combinations available plus Avastin and PARP inhibitors . I was then in a clinical trial for a year which had a small effect and finished in March. a couple of weeks ago , I was admitted
Lookingahead
in
My Ovacome
3 months ago
Choices.
My name is Tania - I was diagnosed with myelofibrosis 8 1/2 years ago at the age of 50. I have been on ruxolitinib for the last 3 1/2 years and am now in a position where it is no longer working as it was and I need to decide where to go from here. I have been offered places on trials which are taking
My name is Tania - I was diagnosed with myelofibrosis 8 1/2 years ago at the age of 50. I have been on ruxolitinib for the last 3 1/2 years and am now in a position where it is no longer working as it was and I need to decide where to go from here. I have been offered places on trials which are taking
Petsgalore
in
MPN Voice
3 months ago
Hydroxicarbamide for PV - UK
Diagnosed late 2018 soon after started on Hydroxycarbamide + Rivaroxyban 10mg daily. In the last year, Hydroxycarbamide has been increased slowly every few months. I am now taking 2000mg 4 days a week and 1500mg on 3 days a week because my platelet score is 640. I am feeling really poorly on this
Diagnosed late 2018 soon after started on Hydroxycarbamide + Rivaroxyban 10mg daily. In the last year, Hydroxycarbamide has been increased slowly every few months. I am now taking 2000mg 4 days a week and 1500mg on 3 days a week because my platelet score is 640. I am feeling really poorly on this
RedEye21
in
MPN Voice
3 months ago
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