Hello
I just had my CT scan and it shows some disease progression in the liver area where a small bit of tumour couldn’t be removed at initial surgery. My bloods are good and I’m really well. I’ve got a plan for Chemo.
I’ve been reading about secondary surgery and chemo at first recurrence. Has anyone got experience of this? Wondering about second opinion? I hear amazing things about a Greek lady surgeon at the Hammersmith.
hello
I am on my fourth relapse I am going to see Miss Fotopoulo on Monday at Hammersmith but I have to pay private for now I will post any news this is a second opinion feel so let down by my oncologist and hospital cannot go on like this hoping for better news and some attention would be nice
I’m so sorry to hear about your experience with your local team. I am really happy with my team and are seeing my oncologist and surgeon next week locally. I trust them but my gut is telling me if my surgeon says surgery isn’t an option in their opinion I have to ask the question of a second opinion. I would appreciate you letting me know how you get on but completely understand this is a private matter. Good luck xx
Hello, I didn't have a recurrence in the liver but the clavicle lymph node which is a more common in low grade. I know the survivor in Greece well as we both have the same type/stage of endometroid low grade impressed with her team very progressive I think she's having a consult for a type of radiation for the liver. Since I was 22 months NED when I had my recurrence, platinum sensitive 6 carbo/taxol.
Hello Kamloops
Thank you for your post. I wanted to let you know about some information we have on secondary surgery and also second opinions, which I hope is helpful.
You can read our secondary surgery booklet on our website here: ovacome.org.uk/secondary-su...
We can also send you a paper copy if you prefer - you can order it through the same website page or email us at support@ovacome.org.uk and we will send one to you.
There is information about second opinions on our website here: ovacome.org.uk/getting-a-se...
You can also view a webinar given by Professor Christina Fotopoulou at our members day in 2019 here: ovacome.org.uk/current-aspe... Please bear in mind this information will have dated, but a lot is still relevant. If you have any queries about the content please do let us know and we can confirm any details with you.
It's reassuring to hear you are happy with your team and I hope this information is helpful in planning for further conversations with them. If it would be helpful to talk anything through or if any further information would be useful, please don't hesitate to get in touch. We're here Monday-Friday 10am-5pm, you can direct message us through this forum, email at the address I gave above, or call us on 0800 008 7054.
Best wishes
Anna
Ovacome Support
Thank you so much for this. Your booklet was were a found out about secondary surgery. 😊
Hi, I had my initial surgery done after a second opinion with Prof Christina, and it was the best thing I could have done! I had to pay private as I am in Wales, and the NHS wasn't transferable. She is very straight and to the point, but if she can help, then she will, she moves very quickly, so be prepared. Good luck x
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