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Enzyme Replacement Therapy
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PSA uptick
Quick background, my dad was diagnosed with metastatic PCa in 2018. Initially treated with docetaxel + ADT. His PSA has been at/near undetected (<0.01-0.02) for several years, but recently there has been an uptick to 0.08 (similar on a recheck, so not lab error). Obviously still low-level, but concerning
Quick background, my dad was diagnosed with metastatic PCa in 2018. Initially treated with docetaxel + ADT. His PSA has been at/near undetected (<0.01-0.02) for several years, but recently there has been an uptick to 0.08 (similar on a recheck, so not lab error). Obviously still low-level, but concerning
mediocra
in
Advanced Prostate Cancer
5 months ago
Reason for ADT
Why is ADT used after SBRT? If radiation kills the cancer or makes it impossible to reproduce, then why do some doctors recommend ADT?
Why is ADT used after SBRT? If radiation kills the cancer or makes it impossible to reproduce, then why do some doctors recommend ADT?
Victor615
in
Prostate Cancer Network
5 months ago
biochemical recurrence after RP. +post leukemia
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
junkwerc
in
Prostate Cancer Network
5 months ago
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6 months after MRI Guided SBRT at MSK
After a year and a half of Active Surveillance, my cancer progressed to GL 4+3 and I decided to have MRI Guided SBRT in August at Memorial Sloan Kettering in NYC under the care of Dr. Sean McBride. I had 5 sessions over 10 days and each lasted about an hour. The entire team at MSK was wonderful and
After a year and a half of Active Surveillance, my cancer progressed to GL 4+3 and I decided to have MRI Guided SBRT in August at Memorial Sloan Kettering in NYC under the care of Dr. Sean McBride. I had 5 sessions over 10 days and each lasted about an hour. The entire team at MSK was wonderful and
rosenjpj
in
Advanced Prostate Cancer
5 months ago
hip replacement, nerve pain
hi just wondering if anyone else has nerve pain radiating down the leg on which they are going to have a hip replacement and if it improves after the op. I take paracetamol, codeine, gaberpentin still in pain, not able to take ibruprofen due to being on warfarin, hip replacement due in the autumn Thanks
hi just wondering if anyone else has nerve pain radiating down the leg on which they are going to have a hip replacement and if it improves after the op. I take paracetamol, codeine, gaberpentin still in pain, not able to take ibruprofen due to being on warfarin, hip replacement due in the autumn Thanks
daisyd
in
Arthritis Action
11 months ago
W&W, Sepsis, Pneumonia,Cellulitis, FEVERS ! - ???
Had my first visit to the Hematologist . He was patient, he was kind , he was very informative and most important to me , he asked me what my questions and concerns were. Unlike a lot of doctors I worked with as a nurse , ( who MANY have seemed to have lost their Sensitivity chip ) , he was full
Had my first visit to the Hematologist . He was patient, he was kind , he was very informative and most important to me , he asked me what my questions and concerns were. Unlike a lot of doctors I worked with as a nurse , ( who MANY have seemed to have lost their Sensitivity chip ) , he was full
Sillysand
in
CLL Support
1 year ago
A Clinical Trial saved my Life ..12 years a Survivor of Advanced Metastatic Prostate Cancer, Stage 4.
When Alfred Samuels was diagnosed with advanced prostate cancer in 2012, it felt as if his world had fallen apart overnight. Doctors said surgery wasn’t an option for him because the cancer had spread beyond his prostate, and he started to lose hope. But then he joined a clinical trial and began treatment
When Alfred Samuels was diagnosed with advanced prostate cancer in 2012, it felt as if his world had fallen apart overnight. Doctors said surgery wasn’t an option for him because the cancer had spread beyond his prostate, and he started to lose hope. But then he joined a clinical trial and began treatment
alsam
in
Understanding Clinical Trials
5 months ago
Do i have PMR
Hi all i follow this site for help and advice .i appoligise in advance for bad spelling after having a stroke . In Feb this yr i was sent to see a specialist do to shoulder and bad hand pain which included pins and needles also numbness swollen knuckles ect,while there i asked about temple and jaw
Hi all i follow this site for help and advice .i appoligise in advance for bad spelling after having a stroke . In Feb this yr i was sent to see a specialist do to shoulder and bad hand pain which included pins and needles also numbness swollen knuckles ect,while there i asked about temple and jaw
pink123floyd
in
PMRGCAuk
7 months ago
Total Hip Replacement tomorrow - yay!
So having been in a lot of pain with my right hip since last September and staving it off with injections, finally I am going into hospital tomorrow for a total hip replacement. Feeling grateful but trepidacious. Have read Dorset Lady’s tips - thank you for those - and have taken them onboard. Doing
So having been in a lot of pain with my right hip since last September and staving it off with injections, finally I am going into hospital tomorrow for a total hip replacement. Feeling grateful but trepidacious. Have read Dorset Lady’s tips - thank you for those - and have taken them onboard. Doing
SusyTe
in
PMRGCAuk
1 year ago
Cirrhosis diagnosis
I have recently been diagnosed with cirrhosis following abnormal blood test and fibroscan. I am a non drinker, with a BMI 22.3. The specialist says I am one of the 5-7% of people with a fatty liver but not over weight and probably hereditary. This has come as a shock. I only had a blood test because
I have recently been diagnosed with cirrhosis following abnormal blood test and fibroscan. I am a non drinker, with a BMI 22.3. The specialist says I am one of the 5-7% of people with a fatty liver but not over weight and probably hereditary. This has come as a shock. I only had a blood test because
0range5520
in
British Liver Trust
1 year ago
Levo and Lio dosage advice please🙏
Hi wonderful forum, I'm in a pickle, always in a pickle😛 please could I have some advice on dosages and next steps, please 😁. 23/1/23 first set of results given to private endocrinologist... FT3. 3.8. 3.1-6.8 FT4. 20.5. 12-22 TSH. 0.54. 0.27-4.2 Was on 175mcg Mercury
Hi wonderful forum, I'm in a pickle, always in a pickle😛 please could I have some advice on dosages and next steps, please 😁. 23/1/23 first set of results given to private endocrinologist... FT3. 3.8. 3.1-6.8 FT4. 20.5. 12-22 TSH. 0.54. 0.27-4.2 Was on 175mcg Mercury
Ankles
in
Thyroid UK
1 year ago
Buying my own T3
Hello all, I've been on Levothyroxine for a long time but since a hysterectomy and menopause I've needed to increase the dose but still feel like I'm struggling. I'm on HRT and working hard to balance ALL hormones, I currently get my Progesterone from abroad because mybuseleas GP doesn't believe I need
Hello all, I've been on Levothyroxine for a long time but since a hysterectomy and menopause I've needed to increase the dose but still feel like I'm struggling. I'm on HRT and working hard to balance ALL hormones, I currently get my Progesterone from abroad because mybuseleas GP doesn't believe I need
Worryworm
in
Thyroid UK
1 year ago
Heart valve replacement - meeting with surgeon
Hi This is the first time I’ve posted so hope you can help please. My hubby has an appointment this Thursday to see the surgeon to discuss mitral heart valve replacement options. It has been such a shock to us both and we are still feeling fairly numbed by it all. There are a number of very obvious
Hi This is the first time I’ve posted so hope you can help please. My hubby has an appointment this Thursday to see the surgeon to discuss mitral heart valve replacement options. It has been such a shock to us both and we are still feeling fairly numbed by it all. There are a number of very obvious
DozyB
in
British Heart Foundation
11 months ago
Targeting Mets w SBRT- what’s your experience?
Have any of you guys had any luck targeting distant metastases with SBRT after your mets remained small or dormant while on ADT but after PSMA scans had showed more in number than olago (more than five mets)? My PSMA scan in January 2022 showed 10 scattered small mets so our area SBRT (Cyberknife) radiation
Have any of you guys had any luck targeting distant metastases with SBRT after your mets remained small or dormant while on ADT but after PSMA scans had showed more in number than olago (more than five mets)? My PSMA scan in January 2022 showed 10 scattered small mets so our area SBRT (Cyberknife) radiation
SeattleDan
in
Advanced Prostate Cancer
5 months ago
What category of Intermediate Risk Am I?
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
Nordman
in
Advanced Prostate Cancer
5 months ago
Restless legs
Morning hun. Iv had it for around 20 years iv always managed okBut Last Tuesday it started really bad and its day and night. Drs have given me some tablets for Parkinson they ste Not working. I'm just in the lounge walking all night 1-3 ,hour sleep a night Went to hospital Saturday they done bloods
Morning hun. Iv had it for around 20 years iv always managed okBut Last Tuesday it started really bad and its day and night. Drs have given me some tablets for Parkinson they ste Not working. I'm just in the lounge walking all night 1-3 ,hour sleep a night Went to hospital Saturday they done bloods
Frenhies
in
Restless Legs Syndrome
10 months ago
IS THIS A PATTERN???? Thoughts and helpful ideas to guide a path
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Mrtroxely
in
Advanced Prostate Cancer
5 months ago
EBRT - Is it the right thing and what to expect?
After DX in November 2018 with Stage IV and Gleason of 5+4 and 4+5, and 5 years of ADT of Lupron (then Orgovyx), prednisone 5mg, and Zytiga 250mg with low fat breakfast, my PSA stayed stable at 0.4 or 0.5. At end of 2013, PSA started rising to latest value of 0.84. Had PSMA PET Scan March 5, 2024
After DX in November 2018 with Stage IV and Gleason of 5+4 and 4+5, and 5 years of ADT of Lupron (then Orgovyx), prednisone 5mg, and Zytiga 250mg with low fat breakfast, my PSA stayed stable at 0.4 or 0.5. At end of 2013, PSA started rising to latest value of 0.84. Had PSMA PET Scan March 5, 2024
JazzMan42
in
Advanced Prostate Cancer
3 months ago
Is there seasonality to testosterone levels?
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
Mascouche
in
Advanced Prostate Cancer
5 months ago
Thoughts on using AI for ADT decisions
I found the following article in the NEJM to be interesting. You may want to review it for future reference to help someone in the future making decisions about their cancer treatment or incorporating AI in your research. Just a side note my grandkids are being exposed to this type of research methodically
I found the following article in the NEJM to be interesting. You may want to review it for future reference to help someone in the future making decisions about their cancer treatment or incorporating AI in your research. Just a side note my grandkids are being exposed to this type of research methodically
Mgtd
in
Advanced Prostate Cancer
5 months ago
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