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Vaccine efficiency
I’m sure I’m not the only one alarmed at the blood cancer Uk announcement today about the ongoing uncertainty over the covid vaccines’ efficiency for this with MPNs and on medication. I’m ET and on Hydroxy and aspirin. Diagnosed about a year ago after a Dvt in nov 19. The results though appear to
I’m sure I’m not the only one alarmed at the blood cancer Uk announcement today about the ongoing uncertainty over the covid vaccines’ efficiency for this with MPNs and on medication. I’m ET and on Hydroxy and aspirin. Diagnosed about a year ago after a Dvt in nov 19. The results though appear to
Ettu
in
MPN Voice
3 years ago
5dFET transfer with blood thinners
After a miscarriage post 5dT, I am in the 8th day of the 2 WW wait my 2nd try. The docs added blood thinners, immunosuppressant with low dose aspirin as they said it will help prevent miscarriage. I have 25ml progesterone injection daily and estrogen of total 8mg I’m trying to stay relaxed and be prepared
After a miscarriage post 5dT, I am in the 8th day of the 2 WW wait my 2nd try. The docs added blood thinners, immunosuppressant with low dose aspirin as they said it will help prevent miscarriage. I have 25ml progesterone injection daily and estrogen of total 8mg I’m trying to stay relaxed and be prepared
PositivaCH
in
Fertility Network UK
3 years ago
ET - how many of you have this condition and then have it develop into MF or another condition
Hi all I'm new here. A little bit about me, I was diagnosed with ET Jak2 positive in 2018 via a routine blood test when I was pregnant with my 2nd child. It wasn't until after I had my baby that the diagnosis really sunk in that this was a condition that I had to live with and maintain. I was initially
Hi all I'm new here. A little bit about me, I was diagnosed with ET Jak2 positive in 2018 via a routine blood test when I was pregnant with my 2nd child. It wasn't until after I had my baby that the diagnosis really sunk in that this was a condition that I had to live with and maintain. I was initially
vickivicki
in
MPN Voice
3 years ago
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Prescribed aspirin to thin my blood, skull fracture, led to light headedness, lack of balance, hospital prescribed aspirin! Side effects?
Light headedness slowly levelling out, even eyesight beginning to normalise, which were why in hospital? BUT flaking of skin on hands and dramatically my feet, which are now red and swollen, tired legs, hands tired, dramatic fatigue! [walking sore!] This has happened since being prescribed aspirin 75mg
Light headedness slowly levelling out, even eyesight beginning to normalise, which were why in hospital? BUT flaking of skin on hands and dramatically my feet, which are now red and swollen, tired legs, hands tired, dramatic fatigue! [walking sore!] This has happened since being prescribed aspirin 75mg
Adlon57
in
Healthy Evidence
3 years ago
Newbie with possible GCA
Hello everyone, this is my first post here. I've read through a lot of your concerns and experiences and I feel kind of guilty in having to ask this here... but here it goes. I'm a 22 year old italian female and I've been suffering with near-constant headaches since the 10th of June. They started very
Hello everyone, this is my first post here. I've read through a lot of your concerns and experiences and I feel kind of guilty in having to ask this here... but here it goes. I'm a 22 year old italian female and I've been suffering with near-constant headaches since the 10th of June. They started very
insomniac_
in
PMRGCAuk
3 years ago
Low Bp after running
Hi folks, Haven’t posted here for a while, just getting on with life and navigating the strange journey we’ve all been on over the last 12 months. Massive HA 2 years ago, single stent, significant scarring leading to EF 34% on last MRI in Jan 2020. Haven’t had a scan since, but taking Entresto, Eplerenone
Hi folks, Haven’t posted here for a while, just getting on with life and navigating the strange journey we’ve all been on over the last 12 months. Massive HA 2 years ago, single stent, significant scarring leading to EF 34% on last MRI in Jan 2020. Haven’t had a scan since, but taking Entresto, Eplerenone
Hidden
in
British Heart Foundation
3 years ago
PV, asthma and high B12
Crotchety here. First let me say how useful all your posts have been. I have PV, taking hydroxicarbamide and aspirin. I have asthma but am investigating whether breathlessness on extreme exertion, not relieved by asthma meds, is asthma, angina or simply sticky blood not moving fast enough. My breathlessness
Crotchety here. First let me say how useful all your posts have been. I have PV, taking hydroxicarbamide and aspirin. I have asthma but am investigating whether breathlessness on extreme exertion, not relieved by asthma meds, is asthma, angina or simply sticky blood not moving fast enough. My breathlessness
Crotchety
in
MPN Voice
3 years ago
Blood clots, pre eclamsia in first unsuccessful pregnancy. Now looking for a ray of hope in second.
Hi I am looking for some positive pregnancy stories. I had a stillbirth last year at 24 weeks gestation because of early severe pre eclampsia. Later developed extensive bilateral dvt all the way up to my heart. The doctors said it was an acquired thrombophilia. I am on blood thinners and still residual
Hi I am looking for some positive pregnancy stories. I had a stillbirth last year at 24 weeks gestation because of early severe pre eclampsia. Later developed extensive bilateral dvt all the way up to my heart. The doctors said it was an acquired thrombophilia. I am on blood thinners and still residual
Ansh1988
in
Hughes Syndrome APS Forum
3 years ago
AZ second jab - preparation
Hi all, Im waiting on my second AZ jab. It should be soon. I had my fiirst jab on a Sat, had a flare on the Sunday, felt like I never had a pain in my life on the Monday and was back to 'normal' on the Monday, stiff/sore in the mornings!! I never took anything beforehand like paracetamol or aspirin
Hi all, Im waiting on my second AZ jab. It should be soon. I had my fiirst jab on a Sat, had a flare on the Sunday, felt like I never had a pain in my life on the Monday and was back to 'normal' on the Monday, stiff/sore in the mornings!! I never took anything beforehand like paracetamol or aspirin
lkcreedon
in
PMRGCAuk
3 years ago
Elevated D Dimer post COVID infection and CLL - does elevated D Dimer mean poor chance of successful treatment?
Had covid 2 months ago. Tests showed only D-Dimer was elevated and other blood parameters like CRP, Ferritin were normal. It’s still elevated at 2000 range. Have been prescribed anti coagulants and aspirin. Could DDimer be elevated due to my CLL? Does having higher DDimer mean low chances of successful
Had covid 2 months ago. Tests showed only D-Dimer was elevated and other blood parameters like CRP, Ferritin were normal. It’s still elevated at 2000 range. Have been prescribed anti coagulants and aspirin. Could DDimer be elevated due to my CLL? Does having higher DDimer mean low chances of successful
nooji
in
CLL Support
3 years ago
Anyone taken Perindopril long term and suddenly developed chesty cough?
Have been taking Perindopril more than 10 years for blood pressure without problems. Have had a chesty cough for several weeks now and GP diagnosed post nasal drip and prescribed a nasal spray after having tried a week of antibiotics. The cough is still persisting, affecting mine and my wife’s sleep
Have been taking Perindopril more than 10 years for blood pressure without problems. Have had a chesty cough for several weeks now and GP diagnosed post nasal drip and prescribed a nasal spray after having tried a week of antibiotics. The cough is still persisting, affecting mine and my wife’s sleep
Cruise1
in
British Heart Foundation
3 years ago
Pain relief
At the start, this is not meant tobe preachy or judgemental. I apologise in avance, if this offends any 1. Im 6 months in to fibro discovery, and see so many new people every day. This is predominately for newbies. I have seen how many long existing sufferers are on strong meds for pain relief. It terrifies
At the start, this is not meant tobe preachy or judgemental. I apologise in avance, if this offends any 1. Im 6 months in to fibro discovery, and see so many new people every day. This is predominately for newbies. I have seen how many long existing sufferers are on strong meds for pain relief. It terrifies
Bruton
in
Fibromyalgia Action UK
3 years ago
Hydrea etc
Does anyone know the criteria for going on Hydrea etc. I've had PV for 13 years and am on daily aspirin and venesections as and when required. Venesections used to be about 3 a year and one at a time. The last few years they've become more two at a time with a 2 week gap between. Probably no more than
Does anyone know the criteria for going on Hydrea etc. I've had PV for 13 years and am on daily aspirin and venesections as and when required. Venesections used to be about 3 a year and one at a time. The last few years they've become more two at a time with a 2 week gap between. Probably no more than
mark382
in
MPN Voice
3 years ago
PREGABLIN. a possible cure.
Not a question, but this may help someone. I suffer, from amongst other things, headaches. My doctor had me try a different tablet to the usual asprin. It did not work on the headaches but has stopped my restless leg about 95%, It is PREGABALIN. I take two 50mg in the morning and two about an hour
Not a question, but this may help someone. I suffer, from amongst other things, headaches. My doctor had me try a different tablet to the usual asprin. It did not work on the headaches but has stopped my restless leg about 95%, It is PREGABALIN. I take two 50mg in the morning and two about an hour
whalley
in
Restless Legs Syndrome
3 years ago
Alternative to aspirin article
Chris Kresser has an interesting article on aspirin.
Chris Kresser has an interesting article on aspirin.
Mostew
in
MPN Voice
3 years ago
Pacemaker
Hello I join HealthUnlocked a few month ago, but I'm new here posting. I went into hospital on the first lockdown as I woke up at 4.00 am with breathing problems and tingling feeling all over and at A&E they told me i had a first degree heart block, within an hour that I was in A&E it went to second
Hello I join HealthUnlocked a few month ago, but I'm new here posting. I went into hospital on the first lockdown as I woke up at 4.00 am with breathing problems and tingling feeling all over and at A&E they told me i had a first degree heart block, within an hour that I was in A&E it went to second
juanitamc
in
British Heart Foundation
3 years ago
Concerns about long-term risks/effects of daily aspirin
Hi, I've been lurking on the forum for a few months and am so thankful to have found this site at the beginning of my MPN journey. I'm a 30-year-old female in the United States with a likely diagnosis of ET. I will eventually be getting a BMB to confirm this, but I have platelets between 725-830 and
Hi, I've been lurking on the forum for a few months and am so thankful to have found this site at the beginning of my MPN journey. I'm a 30-year-old female in the United States with a likely diagnosis of ET. I will eventually be getting a BMB to confirm this, but I have platelets between 725-830 and
Lucy2022
in
MPN Voice
3 years ago
Angina help please
Hubby had HA Oct 2016, 4 stents and all the normal drugs. He has been fine until today, he had chest pains and looked very white. I went straight for 999, advised to give him aspirin and use his GTN spray, ever been diagnosed with Angina but years ago given spray in case of need. BP 240/120, ECG looked
Hubby had HA Oct 2016, 4 stents and all the normal drugs. He has been fine until today, he had chest pains and looked very white. I went straight for 999, advised to give him aspirin and use his GTN spray, ever been diagnosed with Angina but years ago given spray in case of need. BP 240/120, ECG looked
Bazmack48
in
British Heart Foundation
3 years ago
Glyndale
been diagnosed with et 2 years ago take aspirin and recently started on iron tablets cos my hb was low,but now I am really fatigued, any advice.
been diagnosed with et 2 years ago take aspirin and recently started on iron tablets cos my hb was low,but now I am really fatigued, any advice.
glyndale
in
MPN Voice
3 years ago
Blood clotting disorder
Hi I also have a blood clotting disorder . Mine is called factor v Leiden for which I take 75 mg aspirin per day . Apparently it’s hereditary which dr argued at first that it wasn’t . Anyways after urging my daughter to get blood test sure enough she has it too .
Hi I also have a blood clotting disorder . Mine is called factor v Leiden for which I take 75 mg aspirin per day . Apparently it’s hereditary which dr argued at first that it wasn’t . Anyways after urging my daughter to get blood test sure enough she has it too .
Looby60
in
PMRGCAuk
3 years ago
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