Search
Search
About
Log in
Join
Experiences with
Empirin
Posts
Communities
5,903 public posts
Filter results
Ectopic beats
My heart often has runs of bigeminy, with no clear cause. I have ET Jak+ve, with platelets usually around 1200. Another condition (neurofibromatosis) makes medicating me tricky so I just take Aspirin. Does anyone else have experience of this? I
My heart often has runs of bigeminy, with no clear cause. I have ET Jak+ve, with platelets usually around 1200. Another condition (neurofibromatosis) makes medicating me tricky so I just take Aspirin. Does anyone else have experience of this? I
lynnieb
in
MPN Voice
3 years ago
Pregnancy/delivery (in particular c sections) and blood thinners
Hi ladies, I'm currently 23 weeks pregnant and so far so good. I have APS and FVL so I'm on 2 dalteparin 5000 injections and a mini aspirin a day. I am looking to hear your experiences of childbirth on blood thinners, specifically women who have had c sections. Were epidurals or spinal taps a problem
Hi ladies, I'm currently 23 weeks pregnant and so far so good. I have APS and FVL so I'm on 2 dalteparin 5000 injections and a mini aspirin a day. I am looking to hear your experiences of childbirth on blood thinners, specifically women who have had c sections. Were epidurals or spinal taps a problem
Bella_Bee
in
Pregnancy and Parenting Support
3 years ago
Pregnancy and delivery with APS
Hi ladies, I'm currently 23 weeks pregnant and so far so good. I have APS and FVL so I'm on 2 dalteparin 5000 injections and a mini aspirin a day. I am looking to hear your experiences of childbirth on blood thinners, specifically women who had c sections. Were epidurals a problem? Were you asked to
Hi ladies, I'm currently 23 weeks pregnant and so far so good. I have APS and FVL so I'm on 2 dalteparin 5000 injections and a mini aspirin a day. I am looking to hear your experiences of childbirth on blood thinners, specifically women who had c sections. Were epidurals a problem? Were you asked to
Bella_Bee
in
Hughes Syndrome APS Forum
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Statin reaction
This may seem petty and unimportant but two years ago I had a stent fitted as I had a blockage in my LAD . Every morning I take 75m aspirin and 40g Atorvastatin. I usually take these after breakfast about 9.00 the an hour and a half later I feel spaced out. At night I take ramipril and
This may seem petty and unimportant but two years ago I had a stent fitted as I had a blockage in my LAD . Every morning I take 75m aspirin and 40g Atorvastatin. I usually take these after breakfast about 9.00 the an hour and a half later I feel spaced out. At night I take ramipril and
Bartie123
in
British Heart Foundation
3 years ago
Castle Walt Disney designed the castle he built at Disney Land. This castle welcomes you to the outskirts of the diamond village of Toledo.
My name is Anna, I was officially diagnosed by BMB of a Myeloproliferative Neoplasm, Essential Thrombocytosis in December 2011. I have been aware of the condition due to the consistently high platelets counts since I got a DVT while travelling in 1999. I have also been informed over the years and
My name is Anna, I was officially diagnosed by BMB of a Myeloproliferative Neoplasm, Essential Thrombocytosis in December 2011. I have been aware of the condition due to the consistently high platelets counts since I got a DVT while travelling in 1999. I have also been informed over the years and
Gordito
in
MPN Voice
3 years ago
So we had Covid19!
Dear all, I thought I share our experience of Covid19 and update you on how we managed it. Please note, the cases are increasing and people with long term conditions can never be too careful. I tested positive about three weeks ago after a slight pain on my upper back (right lung) and felt extremely
Dear all, I thought I share our experience of Covid19 and update you on how we managed it. Please note, the cases are increasing and people with long term conditions can never be too careful. I tested positive about three weeks ago after a slight pain on my upper back (right lung) and felt extremely
LalSD
in
LUPUS UK
3 years ago
Aspirin
When I was having my booster vaccine I mentioned to the GP (the head of the practice who is very well thought of) that I was not taking an anticoagulant. He said that I should do, but if I was not willing to I should take an aspirin every day. I thought that studies in Europe showed that this
When I was having my booster vaccine I mentioned to the GP (the head of the practice who is very well thought of) that I was not taking an anticoagulant. He said that I should do, but if I was not willing to I should take an aspirin every day. I thought that studies in Europe showed that this
Hidden
in
AF Association
3 years ago
Non STEMI
I am new here, I had a non STEMI 2 months ago and was prescribed the most common medications, I.e. Ticegralor, Bisoprolol, Artovastatin and Aspirin. I was fortunate that the angiogram and subsequent ultrasound indicated there was no apparent damage to the heart muscle and I have recovered fully. No
I am new here, I had a non STEMI 2 months ago and was prescribed the most common medications, I.e. Ticegralor, Bisoprolol, Artovastatin and Aspirin. I was fortunate that the angiogram and subsequent ultrasound indicated there was no apparent damage to the heart muscle and I have recovered fully. No
LordElpus58
in
British Heart Foundation
3 years ago
end of my tether
Hi all So once again I am contemplating going private just to get some sensible answers and get on the right treatment plan but with latest developments I am not sure now if I need rheumatology or haemotology. I will be posting this in APS group and NRAS. The long and short of it is that I have finally
Hi all So once again I am contemplating going private just to get some sensible answers and get on the right treatment plan but with latest developments I am not sure now if I need rheumatology or haemotology. I will be posting this in APS group and NRAS. The long and short of it is that I have finally
Brychni
in
Hughes Syndrome APS Forum
3 years ago
help - end of my tether
Hi all So once again I am contemplating going private just to get some sensible answers and get on the right treatment plan but with latest developments I am not sure now if I need rheumatology or haemotology. I will be posting this in APS group and NRAS. The long and short of it is that I have finally
Hi all So once again I am contemplating going private just to get some sensible answers and get on the right treatment plan but with latest developments I am not sure now if I need rheumatology or haemotology. I will be posting this in APS group and NRAS. The long and short of it is that I have finally
Brychni
in
NRAS
3 years ago
Has anybody ever heard of anything like this. ?
I have always struggled with my sleep for at least the past 20yrs. If i get 4 hrs I think Ime doing well., However over the past 4 years things have gotten worse and a bit sinister. Every night for the past 4 years or (around 1500 concecutive nights) I have had very strong heart palpitations when I
I have always struggled with my sleep for at least the past 20yrs. If i get 4 hrs I think Ime doing well., However over the past 4 years things have gotten worse and a bit sinister. Every night for the past 4 years or (around 1500 concecutive nights) I have had very strong heart palpitations when I
Mgs333
in
Sleep Matters
3 years ago
Angiogram & Angioplasty
Hi 6 months ago I was sent for a CT angiography after getting shortness of breath and pain in my left arm walking up a hill. The scan showed a narrowing in my LAD artery and I was put on asprin & 80mg statins. I have had no further angina symptoms for six months but I have been scheduled to have an angiogram
Hi 6 months ago I was sent for a CT angiography after getting shortness of breath and pain in my left arm walking up a hill. The scan showed a narrowing in my LAD artery and I was put on asprin & 80mg statins. I have had no further angina symptoms for six months but I have been scheduled to have an angiogram
Ash52
in
British Heart Foundation
3 years ago
Tingling in arms and legs
Hi, I’ve read that some people with MPNs suffer from tingling in various parts of the body . I was diagnosed with ET earlier this year and am just taking aspirin at the moment. Although I have had tinnitus for a number of years - just after getting my diagnosis, I started developing tingling in my
Hi, I’ve read that some people with MPNs suffer from tingling in various parts of the body . I was diagnosed with ET earlier this year and am just taking aspirin at the moment. Although I have had tinnitus for a number of years - just after getting my diagnosis, I started developing tingling in my
Cb1001
in
MPN Voice
3 years ago
Covid Antibodies after 3rd Dose
Hi. Just wanted to share my experience of the antibody tests. I have PV and I am on Hydroxy and Aspirin. I had Pfizer as my covid vaccine (2nd one in April). During the summer I had an antibody test by the GP at my request and it came back with no detectable antibodies. When Blood Cancer Uk advertised
Hi. Just wanted to share my experience of the antibody tests. I have PV and I am on Hydroxy and Aspirin. I had Pfizer as my covid vaccine (2nd one in April). During the summer I had an antibody test by the GP at my request and it came back with no detectable antibodies. When Blood Cancer Uk advertised
MWxxxx
in
MPN Voice
3 years ago
No bleed after failed FTE
Hey ladies. I had my BFN on Thurs 28th, did a second test on Saturday and stopped my medication since but no bleeding yet. Not even spotting or any signs of a period flow. I was on progynova, cyclogest, clexane and aspirin. Is it normal? I’m a bit frustrated now since I can’t plan anything until I’m
Hey ladies. I had my BFN on Thurs 28th, did a second test on Saturday and stopped my medication since but no bleeding yet. Not even spotting or any signs of a period flow. I was on progynova, cyclogest, clexane and aspirin. Is it normal? I’m a bit frustrated now since I can’t plan anything until I’m
Mahriya
in
Fertility Network UK
3 years ago
A Few Months of Tendon Issues
Good morning to you all! Over the last few months I have managed to damage a calf tendon, achilles heel and a tendon in my right elbow (particularly debilitating). This seemed a little unusual as none of the events occurred due to heavy lifting or exercise. I did an online search - as you do - and found
Good morning to you all! Over the last few months I have managed to damage a calf tendon, achilles heel and a tendon in my right elbow (particularly debilitating). This seemed a little unusual as none of the events occurred due to heavy lifting or exercise. I did an online search - as you do - and found
Maxspencer
in
British Heart Foundation
3 years ago
breathlessness issue's
i had a mild heart attack on April 13th 2020 since the heart attack i initially was feeling great a bit jittery but have since settled down and am feeling confident that my heart is good. Approximately 6 weeks post surgery i started to feel breathless itching all over my body which i constantly use a
i had a mild heart attack on April 13th 2020 since the heart attack i initially was feeling great a bit jittery but have since settled down and am feeling confident that my heart is good. Approximately 6 weeks post surgery i started to feel breathless itching all over my body which i constantly use a
simonhall9
in
British Heart Foundation
3 years ago
Bone pain?
Hi, I have ET Jak2, on hydroxy and aspirin. I’ve had intermittent pain down my R leg this weekend and wondering if it could be bone pain or a reaction to my Pfizer vaccine (3rd) that I had on Fri. What does bone pain feel like and which parts of our body do we get it if it’s MPN related? Or has anyone
Hi, I have ET Jak2, on hydroxy and aspirin. I’ve had intermittent pain down my R leg this weekend and wondering if it could be bone pain or a reaction to my Pfizer vaccine (3rd) that I had on Fri. What does bone pain feel like and which parts of our body do we get it if it’s MPN related? Or has anyone
SDJD
in
MPN Voice
3 years ago
Aspirin IVF when to stop
Hi there. My FET done end of August and now I'm nearly 3 months pregnant but my doctor said I should continue using aspirin till 20weeks. Why??? My first successful pregnancy back in 2017 and my doctor (in different clinic) told me to stop at 10 weeks which I did. Why this time is different?
Hi there. My FET done end of August and now I'm nearly 3 months pregnant but my doctor said I should continue using aspirin till 20weeks. Why??? My first successful pregnancy back in 2017 and my doctor (in different clinic) told me to stop at 10 weeks which I did. Why this time is different?
itsworks17
in
Fertility Network UK
3 years ago
What are your thoughts about Interferon Vs. Hydroxurea?
I’ve been reading different studies about this and most of them says Interferon is advisable for younger patients and for pregnancy but current practice is using Hydrea as a first line of defense instead of Interferon? I would love to hear your experience about this. I’m still on a low-dose aspirin
I’ve been reading different studies about this and most of them says Interferon is advisable for younger patients and for pregnancy but current practice is using Hydrea as a first line of defense instead of Interferon? I would love to hear your experience about this. I’m still on a low-dose aspirin
livelovelaugh1992
in
MPN Voice
3 years ago
1
...
76
77
78
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
MPN Voice
1448 results
British Heart Foundation
1269 results
Hughes Syndrome APS Forum
711 results
View top 10 communities
Sort by
Most Relevant
Newest