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EBRT - Is it the right thing and what to expect?
After DX in November 2018 with Stage IV and Gleason of 5+4 and 4+5, and 5 years of ADT of Lupron (then Orgovyx), prednisone 5mg, and Zytiga 250mg with low fat breakfast, my PSA stayed stable at 0.4 or 0.5. At end of 2013, PSA started rising to latest value of 0.84. Had PSMA PET Scan March 5, 2024
After DX in November 2018 with Stage IV and Gleason of 5+4 and 4+5, and 5 years of ADT of Lupron (then Orgovyx), prednisone 5mg, and Zytiga 250mg with low fat breakfast, my PSA stayed stable at 0.4 or 0.5. At end of 2013, PSA started rising to latest value of 0.84. Had PSMA PET Scan March 5, 2024
JazzMan42
in
Advanced Prostate Cancer
1 month ago
My journey thus far
I am currently at the point of deciding on treatment for my high risk prostate cancer. Here is where things stand thus far:
October 2023:
PSA of 22 discovered at routine physical
November 2023:
PSA score of 25.6 upon retest by urologist
December 2023:
TRUS Biopsy. Cancer in
I am currently at the point of deciding on treatment for my high risk prostate cancer. Here is where things stand thus far:
October 2023:
PSA of 22 discovered at routine physical
November 2023:
PSA score of 25.6 upon retest by urologist
December 2023:
TRUS Biopsy. Cancer in
CavScout
in
Advanced Prostate Cancer
4 months ago
Evorel Conti Patches
I'm currently on HRT oral tablets and have been for a number of years but wanted to try a more bio identical type. I've now been prescribed Evorel Conti patches and just wondered if anyone had used them and what they thought.
I'm currently on HRT oral tablets and have been for a number of years but wanted to try a more bio identical type. I've now been prescribed Evorel Conti patches and just wondered if anyone had used them and what they thought.
Sparklingsunshine
in
Thyroid UK
4 months ago
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cardioversion within 3 weeks of ablation?
Despite playing by the book and doing everything I could, I’ve been back in persistent AFib for 4 days since my ablation two and a half weeks ago. The arrhythmia team had me in for an ECT today and are arranging an appointment for a cardioversion possibly this Saturday. Just wondering if anyone else
Despite playing by the book and doing everything I could, I’ve been back in persistent AFib for 4 days since my ablation two and a half weeks ago. The arrhythmia team had me in for an ECT today and are arranging an appointment for a cardioversion possibly this Saturday. Just wondering if anyone else
Rainfern
in
AF Association
7 months ago
Darolutamide and Desunomab Questions
Prostate was radiated in 2021 and pelvic node and pelvis in 2023. Cancer is growing prostate, shrinking in pelvic node, and spread to an abdominal node. Opinions are welcome on two subjects. I have started on ADT Orgovyx with no side effects in a month. The urologist plans to add an ARI (reception
Prostate was radiated in 2021 and pelvic node and pelvis in 2023. Cancer is growing prostate, shrinking in pelvic node, and spread to an abdominal node. Opinions are welcome on two subjects. I have started on ADT Orgovyx with no side effects in a month. The urologist plans to add an ARI (reception
vintage42
in
Advanced Prostate Cancer
4 months ago
Symptoms v’s blood test
Hello I am so happy I’ve found this forum, I have been lurking and learning a lot over recent weeks. I previously had Graves, diagnosed by radioactive scan. Then subsequent to pregnancy was diagnosed hypo in 2013. I have been on 50mcg Levo for several years, also on HRT several years. I am looking
Hello I am so happy I’ve found this forum, I have been lurking and learning a lot over recent weeks. I previously had Graves, diagnosed by radioactive scan. Then subsequent to pregnancy was diagnosed hypo in 2013. I have been on 50mcg Levo for several years, also on HRT several years. I am looking
Candycanelane
in
Thyroid UK
4 months ago
Thyroid research project
I wrote to complain about the thyroid research being carried out in Newcastle and there have been a little flurry of emails with me getting nowhere. Here is what has been written. The article he refers to can be found in THYROID Volume 31, Number 5, 2021 Clinical Outcomes After Discontinuation of Thyroid
I wrote to complain about the thyroid research being carried out in Newcastle and there have been a little flurry of emails with me getting nowhere. Here is what has been written. The article he refers to can be found in THYROID Volume 31, Number 5, 2021 Clinical Outcomes After Discontinuation of Thyroid
mstp
in
Thyroid UK
4 months ago
Thyroid - updated bloods - advice
Good morning, Just had the attached bloods back from Medichecks and wonder if anyone had any advice before I return to GP to discuss. I took the test at 7:30am after fasting overnight and within one hour of waking. I’ve put columns for previous tests in April and September for comparison. TSH
Good morning, Just had the attached bloods back from Medichecks and wonder if anyone had any advice before I return to GP to discuss. I took the test at 7:30am after fasting overnight and within one hour of waking. I’ve put columns for previous tests in April and September for comparison. TSH
MPG15
in
Thyroid UK
4 months ago
New menopause hot flush treatment discussed on BBC Breakfast around 8.17am 15th Jan
Also discussing standard HRT though this form is suitable for people needing non hormonal options
Also discussing standard HRT though this form is suitable for people needing non hormonal options
TiggerMe
in
Thyroid UK
4 months ago
Dry-Needling and Low Level Laser Therapy By Physios: Does this really work and can it worsen tinnitus?
I triggered tinnitus and hyperacusis over 7 years ago now. Luckily it always went eventually but as of about 4 months ago it seems as if it is here to stay and a lot worse. An otologist told me that areas I said gave me pain could be consistent with TMJ issues and that he worked with a physio who could
I triggered tinnitus and hyperacusis over 7 years ago now. Luckily it always went eventually but as of about 4 months ago it seems as if it is here to stay and a lot worse. An otologist told me that areas I said gave me pain could be consistent with TMJ issues and that he worked with a physio who could
PuddingChipsAndGravy
in
Tinnitus UK
9 months ago
Overwhelmed, what do I do next? Mutations In my Germline & a Tier 1 ATM Frameshift Alteration
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
Shorehousejam
in
Advanced Prostate Cancer
4 months ago
any one like me??
***Edited post to add bloods history*** not as many T3 readings as often they refuse to test it T3 (normal range 3.1-6.8 pmol/L) 20/3/23 - 2.8 13/11/23 - 2.8 Started taking Tiromel December 23 so yet to test T4 (normal range 11.3 - 21.6 pmol/L) 20/3/23 - 12.3 (after which started on 25mcg levo)
***Edited post to add bloods history*** not as many T3 readings as often they refuse to test it T3 (normal range 3.1-6.8 pmol/L) 20/3/23 - 2.8 13/11/23 - 2.8 Started taking Tiromel December 23 so yet to test T4 (normal range 11.3 - 21.6 pmol/L) 20/3/23 - 12.3 (after which started on 25mcg levo)
Clauds123
in
Thyroid UK
4 months ago
changing from Armour to levo
Hi all I take armour thyroid and have done for over 10 yrs now. I was originally prescribed this by a private doctor but further down the rd I found a way to buy Armour myself so I self medicate. I test my levels regularly (probably every 4-6 months) and I’ve felt in a good place for years. That’s
Hi all I take armour thyroid and have done for over 10 yrs now. I was originally prescribed this by a private doctor but further down the rd I found a way to buy Armour myself so I self medicate. I test my levels regularly (probably every 4-6 months) and I’ve felt in a good place for years. That’s
Tweetypie28
in
Thyroid UK
4 months ago
Any Data or MO Advice Regarding Dutasteride / Finasteride At Very Early Biochemical Recurrence?
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
jazj
in
Advanced Prostate Cancer
4 months ago
PSA Response From Broccoli Sprout Extract (Sulforaphane) May Due To Just Being Moderate ADT
I forgot I ran across this a 2 years ago as many with PCa diagnosis are very interested in Sulforaphane due to a lot of excitement from a few studies a few years ago. (This fueled an explosion of supplements on Amazon.) This however is one of the more expensive supplements and my jury is still out
I forgot I ran across this a 2 years ago as many with PCa diagnosis are very interested in Sulforaphane due to a lot of excitement from a few studies a few years ago. (This fueled an explosion of supplements on Amazon.) This however is one of the more expensive supplements and my jury is still out
jazj
in
Advanced Prostate Cancer
4 months ago
Declining psa #9
Gm folks, hope all are having a wonderful New Year. I’m following up n giving results on using ivermectin, cbd oil, turmeric Vit b3,6,12 Vit c And zinc solely after eliminating ADT after 7 months, post Rp n rad… Psa dropped another .29 points to .66 down from .95 n psa was hovering 7 when I first got
Gm folks, hope all are having a wonderful New Year. I’m following up n giving results on using ivermectin, cbd oil, turmeric Vit b3,6,12 Vit c And zinc solely after eliminating ADT after 7 months, post Rp n rad… Psa dropped another .29 points to .66 down from .95 n psa was hovering 7 when I first got
Nfler
in
Advanced Prostate Cancer
4 months ago
Anyone tried adrenal supplements? Any feedback please?
Currently looking at adrenal supplements saw from an old post on here a product recommendation and used by a Dr P but this has been discontinued now and the closest product is this one. Thorne Advanced Adrenal Cortex. Any feedback on these supplements or similar support please and what supplements
Currently looking at adrenal supplements saw from an old post on here a product recommendation and used by a Dr P but this has been discontinued now and the closest product is this one. Thorne Advanced Adrenal Cortex. Any feedback on these supplements or similar support please and what supplements
Fizzwhizz
in
Thyroid UK
4 months ago
HDR boost Brachytherapy + IMRT
Hi all, This is my first post since being diagnosed with g9 metastatic PC. PSMA PET showed several pelvic lymph nodes with Mets, but no other spread, and bones are clean. I’m trying to finalize my choice of radiation treatments. I’m currently on Lupron and Zytiga, and PSA is dropping like a rock
Hi all, This is my first post since being diagnosed with g9 metastatic PC. PSMA PET showed several pelvic lymph nodes with Mets, but no other spread, and bones are clean. I’m trying to finalize my choice of radiation treatments. I’m currently on Lupron and Zytiga, and PSA is dropping like a rock
Cenerus
in
Advanced Prostate Cancer
1 month ago
PSMA PET SCAN AND PSA
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
Tally111
in
Advanced Prostate Cancer
1 month ago
Stratification test for ADT effectiveness
As someone who has had the awful experience of ADT side effects, I give this tool a standing ovation: https://artera.ai/arteraai-prostate-cancer-test Just approved for Medicare coverage, and just a matter of time before California and New York join the other 48 states in approving it.
As someone who has had the awful experience of ADT side effects, I give this tool a standing ovation: https://artera.ai/arteraai-prostate-cancer-test Just approved for Medicare coverage, and just a matter of time before California and New York join the other 48 states in approving it.
ron_bucher
in
Advanced Prostate Cancer
4 months ago
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