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SCT journey update No.4
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell Transplant. Last tests @ Addenbrookes yesterday, was a very early start as Lung function testing was @ 8.30am and it’s about 2 hour journey. Wife and I were up about 3-4am ( to be fair, couldn’t sleep anyway ) The drive
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell Transplant. Last tests @ Addenbrookes yesterday, was a very early start as Lung function testing was @ 8.30am and it’s about 2 hour journey. Wife and I were up about 3-4am ( to be fair, couldn’t sleep anyway ) The drive
LFCLove
in
MPN Voice
10 days ago
ASXL1 mutation 39% Worried about MF turning into leukemia
Hello Everyone, I have almost taken Rux for more than 7 years. and added interferon during the time. Actually my platelets are already very low now because of prolonged suppression of signaling pathways and the use of interferon. China site only available Rux in the markets. and I also have the ASXL1
Hello Everyone, I have almost taken Rux for more than 7 years. and added interferon during the time. Actually my platelets are already very low now because of prolonged suppression of signaling pathways and the use of interferon. China site only available Rux in the markets. and I also have the ASXL1
merlisa
in
Fight MPN
12 days ago
don’t know what to think anymore.
Hi all, I posted on here little while ago about my mum having total abdo hysterectomy for ovarian cancer. We are now 3 weeks on from surgery. a 10cm cyst was removed which at the time, they assumed it was cancer. We went to her results and biopsy results yesterday. We were all extremely shocked
Hi all, I posted on here little while ago about my mum having total abdo hysterectomy for ovarian cancer. We are now 3 weeks on from surgery. a 10cm cyst was removed which at the time, they assumed it was cancer. We went to her results and biopsy results yesterday. We were all extremely shocked
Kerri1402
in
Colon Cancer Connected
9 months ago
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A new immunotherapy trial?
Not really super new...but maybe it could help someone! https://jitc.bmj.com/content/10/Suppl_2/A781 For advanced prostate cancer and other solid tumors
Not really super new...but maybe it could help someone! https://jitc.bmj.com/content/10/Suppl_2/A781 For advanced prostate cancer and other solid tumors
Maxone73
in
Advanced Prostate Cancer
9 months ago
Using AI to understand what is the best treatment for each patient
https://www.urologytimes.com/view/study-applies-ai-tool-to-stampede-data-in-prostate-cancer "We already know that there are various variables that get reported as part of routine histology reporting, which have a degree of prognostic impact, particularly in the early stage of the disease. But these
https://www.urologytimes.com/view/study-applies-ai-tool-to-stampede-data-in-prostate-cancer "We already know that there are various variables that get reported as part of routine histology reporting, which have a degree of prognostic impact, particularly in the early stage of the disease. But these
Maxone73
in
Advanced Prostate Cancer
9 months ago
Got a job interview. Plus my top 3 choice for therapists in my homecity. Overthinking the decisions
Okay so yesterday was a mayhem. Mom decided to clean while she's off work and got the house upside down, before that the night before that telling sis over and over again to drink water and telling me to tell her. Sis was avoiding me, asked me to stay in the car instead in the café with her, yelled at
Okay so yesterday was a mayhem. Mom decided to clean while she's off work and got the house upside down, before that the night before that telling sis over and over again to drink water and telling me to tell her. Sis was avoiding me, asked me to stay in the car instead in the café with her, yelled at
Against_the_current
in
Anxiety and Depression Support
21 days ago
How effective is fenofibrate for itch?
My doctor suggested a few different drugs, like rifampricin, naltrexone, and fenofibrate for my itch. He prescribed fenofibrate as he thinks it works best. Does anyone here take it and if so, has it helped? I'm worried about the warnings it comes with about severe liver damage.
My doctor suggested a few different drugs, like rifampricin, naltrexone, and fenofibrate for my itch. He prescribed fenofibrate as he thinks it works best. Does anyone here take it and if so, has it helped? I'm worried about the warnings it comes with about severe liver damage.
Carly92
in
PBC Foundation
7 months ago
Weight, bloating, and itchy arms
After a long, tortuous fight to get diagnosed and treated with/for hypothyroidism, which was achieved almost entirely with the help and info from this forum, I think that my meds are now very close to perfect and my blood test results are continuing to improve. So thank you again to everyone. But I
After a long, tortuous fight to get diagnosed and treated with/for hypothyroidism, which was achieved almost entirely with the help and info from this forum, I think that my meds are now very close to perfect and my blood test results are continuing to improve. So thank you again to everyone. But I
noquitter
in
Thyroid UK
7 months ago
Continued Journey
I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions (day5 was the worst) were much harder. Chemo: Fladarabine -6 thru-2 with addition of Melphalan on day-2. When you start treatment (chemo) for
I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions (day5 was the worst) were much harder. Chemo: Fladarabine -6 thru-2 with addition of Melphalan on day-2. When you start treatment (chemo) for
FiArt12X
in
CLL Support
24 days ago
Ex is going to the Netherlands next week. I'm stuck in what help i should get. I have dissosiated and headache
Had headache, fell asleep, had nightmares about dad, woke up panicking, searched therapists and psychiatrists but i can't choose nor pay, texted my ex, he said he's going back to the Netherlands next week. Almost puked. Mom came home, stressed. I wonder whether to travel to see him for the last time
Had headache, fell asleep, had nightmares about dad, woke up panicking, searched therapists and psychiatrists but i can't choose nor pay, texted my ex, he said he's going back to the Netherlands next week. Almost puked. Mom came home, stressed. I wonder whether to travel to see him for the last time
Against_the_current
in
Anxiety and Depression Support
26 days ago
Octasa and Diarrhea
Hi there, I have diagnosed UC, on last day of an 8 week course of steroids which stopped all my symptoms (bloody lose stool).I am also on day 10 of 6 x 800 mg Octasa. In the last 48 hours started getting diarrhea and fatigue and mild stomach cramps. 6 x loose/watery stools a day. Is this a normal side
Hi there, I have diagnosed UC, on last day of an 8 week course of steroids which stopped all my symptoms (bloody lose stool).I am also on day 10 of 6 x 800 mg Octasa. In the last 48 hours started getting diarrhea and fatigue and mild stomach cramps. 6 x loose/watery stools a day. Is this a normal side
Sma4fh
in
Crohn's and Colitis Support
7 months ago
Tirosint
I am unable to take tablet form levothyroxine, I have a gene issue with metabolising some medications. I have started liquid thyroxine but I think the ingredients are affecting my stomach and I have been told to stop taking this to see if it is the cause. I see that Tirosint is quite pure but not sure
I am unable to take tablet form levothyroxine, I have a gene issue with metabolising some medications. I have started liquid thyroxine but I think the ingredients are affecting my stomach and I have been told to stop taking this to see if it is the cause. I see that Tirosint is quite pure but not sure
Da52
in
Thyroid UK
7 months ago
Hope for the future
New research into autoimmune liver condition suggests unique cell movements may be driving disease A Birmingham study reveals a novel cellular phenomenon could be responsible for the onset of primary biliary cholangitis (PBC). Research suggests that a recent understanding of cell movements may
New research into autoimmune liver condition suggests unique cell movements may be driving disease A Birmingham study reveals a novel cellular phenomenon could be responsible for the onset of primary biliary cholangitis (PBC). Research suggests that a recent understanding of cell movements may
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Latest results.
Hi all. I wonder if you could share your thoughts on my latest results. My levothyroxine has been increased from 50 to 75mg. I have had a very sore mouth and tongue for over 12 months and was hoping if my B12 levels increased and my levothyroxine was working well, it would go. It hasn’t. My B12
Hi all. I wonder if you could share your thoughts on my latest results. My levothyroxine has been increased from 50 to 75mg. I have had a very sore mouth and tongue for over 12 months and was hoping if my B12 levels increased and my levothyroxine was working well, it would go. It hasn’t. My B12
Kebabalon
in
Thyroid UK
7 months ago
Wednesday Words
The words this week I want to define are
alkaline phosphatase.
Alkaline phosphatase (ALP)
is an enzyme that is released by the bile ducts cells ( among other organs). The release of ALP is a marker of stress or injury. So the more injury or stress to the bile duct cells, the higher
The words this week I want to define are
alkaline phosphatase.
Alkaline phosphatase (ALP)
is an enzyme that is released by the bile ducts cells ( among other organs). The release of ALP is a marker of stress or injury. So the more injury or stress to the bile duct cells, the higher
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Continued Journey
Getting my forth chemo treatment today. This has been much easier than the O CHOP. It has been smooth sailing especially with the surgically implanted port.( I forgot to mention). I am starting to notice some fatigue and energy slow down which is quite natural. One more chemo treatment tomorrow then
Getting my forth chemo treatment today. This has been much easier than the O CHOP. It has been smooth sailing especially with the surgically implanted port.( I forgot to mention). I am starting to notice some fatigue and energy slow down which is quite natural. One more chemo treatment tomorrow then
FiArt12X
in
CLL Support
29 days ago
COPD-NEW TO ME!
Hi all, I was diagnosed with CLL 5 years ago, and am now ready for treatment. Soon after I was told this I was diagnosed with 'Bells Palsy' After ten days of Steroid treatment, which did not help, I was sent for an MRI scan, which showed a small tumour in my neck, which I was told was on the move from
Hi all, I was diagnosed with CLL 5 years ago, and am now ready for treatment. Soon after I was told this I was diagnosed with 'Bells Palsy' After ten days of Steroid treatment, which did not help, I was sent for an MRI scan, which showed a small tumour in my neck, which I was told was on the move from
Vindicatrix
in
Lung Conditions Community Forum
9 months ago
Myelofibrosis- GVHD graft, versus, host, disease.
Hi, thanks for accepting me onto your site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
Hi, thanks for accepting me onto your site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
FreemanSaviors
in
MPN Voice
30 days ago
Myelofibrosis - GVHD - graft, versus, host, disease
Hi, thanks for accepting me onto the site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
Hi, thanks for accepting me onto the site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
FreemanSaviors
in
MPN Voice
1 month ago
Abraxane
Hi ladies, I’m absolutely over the moon to hear that my oncologist has been able to get the Abraxane chemotherapy funding for me! I am due to start in January, I wonder if any of you ladies have had this chemotherapy in the past and if so what side effects you had, how you found it in general, did
Hi ladies, I’m absolutely over the moon to hear that my oncologist has been able to get the Abraxane chemotherapy funding for me! I am due to start in January, I wonder if any of you ladies have had this chemotherapy in the past and if so what side effects you had, how you found it in general, did
Willowsmum51
in
My Ovacome
8 months ago
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