Abraxane

[Willowsmum51]

Hi ladies,

I’m absolutely over the moon to hear that my oncologist has been able to get the Abraxane chemotherapy funding for me!

I am due to start in January, I wonder if any of you ladies have had this chemotherapy in the past and if so what side effects you had, how you found it in general, did it work for you? And did you loose your hair? I’m not bothered as I’ve been lucky (or unlucky some may like to call it) as was allergic to Taxol and caelyx so haven’t lost my hair on the last two chemo regimes, but just want to get looking at decent wigs if this is the case this time around.

Abraxane is usually given to Breast Cancer/Pancreatic Cancer patients that are allergic to Paclitaxel and not available for us on the NHS at the moment, my oncologist was lucky to get the funding through the Cancer Care Fund for me as it’s simply my last option as I’m now allergic to all the other chemo and platinum resistant 😬

She did say that things are changing, I’m not sure if she meant just at my hospital or in general but let’s hope so! 🙏

Hope you are all keeping OK?

Many thanks

Julie xx

[Skyeplus]

That’s such fantastic news. I hope all goes really well for you xxx

[carrotmunch5]

That's great news. Maybe looking into breast cancer forum? Also I know some of ladies here had it. If you scroll down for past posts, you maybe find something?

[Leniko]

That is Wonderful News!

[Mtngirl9]

Hello! I’m excited for you. I was on a trial with Abraxane and Taxol and the combination/dose was too toxic and my platelets dropped to 2 so I was removed from the trial but my tumors shrunk so I’m thinking that with the right dose it should be very effective. I read that they combine it with gemcitibine as well. Is that an option for you? Keep us posted on how you do! I’m rooting for you.

[Willowsmum51 in reply to Mtngirl9]

Oh that’s encouraging to hear! Thank you for that. I’m not sure if they will add Gemcitabine to the mix, will find out the plan on my next Onc appointment in December. I have had Gemcitabine before, and had a relatively good response so perhaps that may be the plan.

Thank you for replying and all the best to you x

[Summergold2]

great news for you! Was on Abraxane for 4 months before it quit working the side affects are very easy I did lose my hair

Unfortunately it has stopped working and I have nothing more to access. I have been fighting this disease for four years. I am at the end of this fight. Not braca or folate positive or her2 or anything. Never been off chemo. I hope you respond wonderfully and have months and months of success! It is very tolerable and you can be on for as long as it works. Make sure to eat lots of protein and keep Those blood counts up especially platelets and neutrophils.

Had lots of energy when it was working

Good luck and I hope it becomes available to all there.

Debbie

[Willowsmum51 in reply to Summergold2]

Oh Debbie I’m so sorry to hear that you have reached the end of available treatment lines. That day will come to most of us at some point. 😢 if the Abraxane doesn’t work for me then I’ll have nothing left in the cupboard to try too. I wish you all the very best for you and your family and keep praying for that miracle eh?

Kindest regards

Julie

[Summergold2 in reply to Willowsmum51]

Thank you Julie I hate this disease and get pretty riled up as we all do sometimes

I am hopeful that it works !

[DinkyAnnecy]

Hi There! I had Abraxane and had a lot of Gastro Issues and mouth and chest burning. I lost all of my hair. We all respond differently to chemo though. Glad you got the funding for it🙏🙏 The important thing to remember is that you are saving your life by taking it. Best of luck to you!

[Willowsmum51 in reply to DinkyAnnecy]

Thank you for replying, you’re absolutely right, this will give me more time, and I’m extremely grateful that it’s available for me. Wishing you all the very best x

[Ruebacelle]

Great news Good luck

[Stanmore]

that is brilliant good luck xx

[Pinkredorange]

Hello,This is my first reply as just joined. I have just finished 6 cycles of Abraxane with Carbo. I was diagnosed in 2017 and got recurrence in June 2023. I lost a fair bit of hair. I got away with it by wearing a hairband. I found it ok and dont remember it being too too bad. I was given a lot of steriods because I had an severe reaction to taxol before..anaphylatic shock.

I hope and pray everything goes very well.fpr you.