Search
Search
About
Log in
Join
Experiences with
Ear conditions
Posts
Communities
31,798 public posts
Filter results
Stopping Injections After 3 Loading Doses
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hidden
in
Pernicious Anaemia Society
4 months ago
Hydroxychloroquine toxic retinopathy
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Juniperm
in
LUPUS UK
4 months ago
Webinar: Is it possible to slow myopia progression in childhood and adolescence?
Dr Annegret Dahlmann-Noor, who is director of the children's service at Moorfields Eye Hospital, will be joining our second webinar of the month to talk about myopic macular degeneration (MMD). As well as the condition itself, Dr Dahlmann-Noor will discuss its prevalence, as well as her latest research
Dr Annegret Dahlmann-Noor, who is director of the children's service at Moorfields Eye Hospital, will be joining our second webinar of the month to talk about myopic macular degeneration (MMD). As well as the condition itself, Dr Dahlmann-Noor will discuss its prevalence, as well as her latest research
Carol_MacularSociety
Partner
in
Macular Society
4 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Pluvicto Question
Hi Fellow Warriors! Six months of Taxotere failed miserably. After 8 rounds, I was done. After chemo, my second PSMA-PET showed additional bone mets and a spread to the lymph nodes. My MO told me I was a good candidate for Pluvicto, so, three months after finishing Taxotere, I started that therapy
Hi Fellow Warriors! Six months of Taxotere failed miserably. After 8 rounds, I was done. After chemo, my second PSMA-PET showed additional bone mets and a spread to the lymph nodes. My MO told me I was a good candidate for Pluvicto, so, three months after finishing Taxotere, I started that therapy
MJCA
in
Advanced Prostate Cancer
4 months ago
aspirin
12 moths today I was told I had AF in the hospital Was given anticoagulants and doubled up on BB Was already on BB because of a heart attack 6 years ago Also aspirin and a number of other meds I asked if I needed to stop the aspirin and was told to carry on taking it I have heard and read since that
12 moths today I was told I had AF in the hospital Was given anticoagulants and doubled up on BB Was already on BB because of a heart attack 6 years ago Also aspirin and a number of other meds I asked if I needed to stop the aspirin and was told to carry on taking it I have heard and read since that
Shoefairy
in
Atrial Fibrillation Support
4 months ago
How do you contact your Rheumatologist?
Hi lovely Lupies. Just a quick question to people in the UK regarding how you make contact with your Rheumy? I have never tried to contact my Rheumy here in `wales previously but at my last two appointments he said if you are struggling with flares contact me. Well since coming out if hospital I am
Hi lovely Lupies. Just a quick question to people in the UK regarding how you make contact with your Rheumy? I have never tried to contact my Rheumy here in `wales previously but at my last two appointments he said if you are struggling with flares contact me. Well since coming out if hospital I am
CecilyParsley
in
LUPUS UK
4 months ago
Eliquis and surgery
I will have to go off my Eliquis for several days prior to having surgery on one of my eyes. I am terrified that I may go into AF while off it. Has anyone had to go off their anticoagulant for surgery and had AF without it causing a stroke?
I will have to go off my Eliquis for several days prior to having surgery on one of my eyes. I am terrified that I may go into AF while off it. Has anyone had to go off their anticoagulant for surgery and had AF without it causing a stroke?
brit1
in
Atrial Fibrillation Support
4 months ago
Still no photo
Short episode for tonight. Mum's life has not always followed a smooth course and she has never been one to complain. It was only after several months of poor vision that she finally went to the optician only to discover too late that she had a badly detached retina. She was quickly admitted to hospital
Short episode for tonight. Mum's life has not always followed a smooth course and she has never been one to complain. It was only after several months of poor vision that she finally went to the optician only to discover too late that she had a badly detached retina. She was quickly admitted to hospital
LissacFrance
in
Lung Conditions Community Forum
4 months ago
Need help
Recently diagnosed with raynauds, I have been diagnosed with autoimmune, lupus 10 years ago, I was diagnosed raynauds 2 days ago when I went to the emergency room doctors. my toes are the only area affected and the pain is unbearable!!! Feeling like big toes are going to burst! Emergency Doctors say
Recently diagnosed with raynauds, I have been diagnosed with autoimmune, lupus 10 years ago, I was diagnosed raynauds 2 days ago when I went to the emergency room doctors. my toes are the only area affected and the pain is unbearable!!! Feeling like big toes are going to burst! Emergency Doctors say
Grammi5
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
Potential biochemical recurrence post radical prostatectomy, looking for perspective on the outcomes and treatments.
63-year old Male, months shy of 5-year mark of the radical prostatectomy, showed PSA of .08 in January then .07 in March. Originally had up to Gleason 9’s. I know it’s not technically a recurrence until .2, and doubling time is the next variable to look out for. But what else should we keep in mind
63-year old Male, months shy of 5-year mark of the radical prostatectomy, showed PSA of .08 in January then .07 in March. Originally had up to Gleason 9’s. I know it’s not technically a recurrence until .2, and doubling time is the next variable to look out for. But what else should we keep in mind
Stevescut
in
Advanced Prostate Cancer
4 months ago
How long to wait for trabeculectomy?
I'm wondering how long people have waited for a trabeculectomy operation, once they have been told they need one, either through NHS or going private? I'm asking because when I saw my consultant ( privately) in Feb he said that the visual fields test showed there was some deterioration ( normal tension
I'm wondering how long people have waited for a trabeculectomy operation, once they have been told they need one, either through NHS or going private? I'm asking because when I saw my consultant ( privately) in Feb he said that the visual fields test showed there was some deterioration ( normal tension
Iona57
in
Glaucoma UK
4 months ago
Biologic and methotrexate injections
hi I have had an infection and had to delay my methotrexate by a few days which is fine apart from it’s now on the same day as my Biologic/Adalimumab. Does anyone know what time gap there should be between the two injections? Thank you x
hi I have had an infection and had to delay my methotrexate by a few days which is fine apart from it’s now on the same day as my Biologic/Adalimumab. Does anyone know what time gap there should be between the two injections? Thank you x
Amb1xkr
in
NRAS
4 months ago
Urgent Synarel - help!
Hi everyone I have just had my final scan today, before ER on Monday. I take my trigger shot tomorrow- and im sure the Dr said to me to take my last Synarel/nafarelin nasal spray as usual (I have been taking it twice each nostril, 9am and 9pm) However, the paper instructions she has written down state
Hi everyone I have just had my final scan today, before ER on Monday. I take my trigger shot tomorrow- and im sure the Dr said to me to take my last Synarel/nafarelin nasal spray as usual (I have been taking it twice each nostril, 9am and 9pm) However, the paper instructions she has written down state
MollyHar
in
Fertility Network UK
4 months ago
Unsure how to proceed after flare continues
I wrote awhile back about having a return of PMR symptoms after successfully (over a year and a half) tapering to 5mg and staying on that dose for two months. The weather had gotten a lot colder here in Seattle and I attributed the flare partly to that. I increased my dose to 10mg for a week and had
I wrote awhile back about having a return of PMR symptoms after successfully (over a year and a half) tapering to 5mg and staying on that dose for two months. The weather had gotten a lot colder here in Seattle and I attributed the flare partly to that. I increased my dose to 10mg for a week and had
Donna5658
in
PMRGCAuk
4 months ago
Megaloblastic anaemia
Hi, I was diagnosed with megaloblastic anaemia yesterday. My gp, sent over a prescription for Cyanocobalamin 1mg/1ml solution for injection ampoules. My pharmacy and other pharmacies don't stock it. I left a note for my doctor with the receptionist to ask for possibly a different brand or type. I'm new
Hi, I was diagnosed with megaloblastic anaemia yesterday. My gp, sent over a prescription for Cyanocobalamin 1mg/1ml solution for injection ampoules. My pharmacy and other pharmacies don't stock it. I left a note for my doctor with the receptionist to ask for possibly a different brand or type. I'm new
fatfatfat
in
Pernicious Anaemia Society
4 months ago
promising delivery technique for cancer drugs
we will attack you in any possible way from every direction you bastard (ok, I talk to my cancer, don’t call me crazy…I would be crazy if I heard him reply!) https://pubs.acs.org/doi/10.1021/acsbiomaterials.3c01540# from your one reference in the paper: Chondroitin sulfate-hybridized zein nanoparticles
we will attack you in any possible way from every direction you bastard (ok, I talk to my cancer, don’t call me crazy…I would be crazy if I heard him reply!) https://pubs.acs.org/doi/10.1021/acsbiomaterials.3c01540# from your one reference in the paper: Chondroitin sulfate-hybridized zein nanoparticles
Maxone73
in
Advanced Prostate Cancer
4 months ago
help with results please
I’d be grateful if anyone could help with results please. I’m on combined therapy 50mg T4 and 35mg T3 TFT 0.02 (0.35-4.94) FT3 4.5 (2.4-6.00) FT4 8.1 (9.00-19.00) B12 433 (187-883) Vit D 126.1 >50 Thank you :)
I’d be grateful if anyone could help with results please. I’m on combined therapy 50mg T4 and 35mg T3 TFT 0.02 (0.35-4.94) FT3 4.5 (2.4-6.00) FT4 8.1 (9.00-19.00) B12 433 (187-883) Vit D 126.1 >50 Thank you :)
Bollieforme
in
Thyroid UK
4 months ago
Experiences with urso, ocaliva and bezafibrate
Hi everyone!I was just curious about your experiences taking a combination of udca, ocaliva 10 mg and bezafibrates. Does it improve the itching? Did you notice any unwanted side effect from bezafibrate, e.g. in kidneys? Thanks for sharing and stay healthy and motivated!
Hi everyone!I was just curious about your experiences taking a combination of udca, ocaliva 10 mg and bezafibrates. Does it improve the itching? Did you notice any unwanted side effect from bezafibrate, e.g. in kidneys? Thanks for sharing and stay healthy and motivated!
nickey8
in
PBC Foundation
4 months ago
Tired weak hips when walking - is it still Pmr
Hi, I'm feeling despondent as it seems that I can walk less and less and I don't know what's wrong.I've been on 1mg, trying to get off for over a year. I have no pain except when I do sustained walking. It kicks in after about 3 minutes. Tired, aching hips and lower back and I have to stop. I've got
Hi, I'm feeling despondent as it seems that I can walk less and less and I don't know what's wrong.I've been on 1mg, trying to get off for over a year. I have no pain except when I do sustained walking. It kicks in after about 3 minutes. Tired, aching hips and lower back and I have to stop. I've got
Blossom20
in
PMRGCAuk
4 months ago
Diabetic and Eye Damage
I have been insulin dependant diabetic for 40 years, which has been the cause of my eye conditions. I was one of the first patients my consultant gave eye injection, I've had three steroid implants, lots of Lazer and eye injections. Last year I had a sever bleed at the back of the eye resulting in
I have been insulin dependant diabetic for 40 years, which has been the cause of my eye conditions. I was one of the first patients my consultant gave eye injection, I've had three steroid implants, lots of Lazer and eye injections. Last year I had a sever bleed at the back of the eye resulting in
123charl
in
Macular Society
4 months ago
1
...
34
35
36
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
IBS Network
2902 results
Thyroid UK
2493 results
Diabetes India
1501 results
View top 10 communities
Sort by
Most Relevant
Newest