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Experiences with
Dilated cardiomyopathy
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Fibroscan Results
I got a copy of my results Median Liver Stiffness 10.9 IQR/Median 12% Cap Median 269 Cap Interquartile Range 31 Fibrosis Stage F3 is there somewhere I can interpret these results?
I got a copy of my results Median Liver Stiffness 10.9 IQR/Median 12% Cap Median 269 Cap Interquartile Range 31 Fibrosis Stage F3 is there somewhere I can interpret these results?
drittz78
in
British Liver Trust
2 years ago
Heptic encalapthy
I had a heptic encalapthy diagnosed in 2020 and although I'm on rifaxmin and have non alcoholic liver disease , with this condition I couldn't speak or walk or do anything for my self and touch wood I haven't had a bout of HE since then , although I do find however that if I'm so so tired or run down
I had a heptic encalapthy diagnosed in 2020 and although I'm on rifaxmin and have non alcoholic liver disease , with this condition I couldn't speak or walk or do anything for my self and touch wood I haven't had a bout of HE since then , although I do find however that if I'm so so tired or run down
Tonisha123-mm
in
British Liver Trust
2 years ago
Ramipril
I have early signs of
dilated
cardiomyopathy
. I’m on day 3 of taking it. It says on the label to take it in the morning, but it’s making me feel very light headed and groggy around lunchtime. I work with special needs youngsters, so I need to be alert. Can I take it at night instead? Carol
I have early signs of
dilated
cardiomyopathy
. I’m on day 3 of taking it. It says on the label to take it in the morning, but it’s making me feel very light headed and groggy around lunchtime. I work with special needs youngsters, so I need to be alert. Can I take it at night instead? Carol
Carolx
in
British Heart Foundation
3 years ago
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Can liver regenerate after high fibroscan score
Hi all, my relative was hospitalised and diagnosed with alcoholic liver disease late 2020, fibroscan of 74.2 and moderate ascites. We didn't they think she would survive until Easter but she did. However now she is back drinking at least 2 bottles of wine a week....... I dont know much about fibroscans
Hi all, my relative was hospitalised and diagnosed with alcoholic liver disease late 2020, fibroscan of 74.2 and moderate ascites. We didn't they think she would survive until Easter but she did. However now she is back drinking at least 2 bottles of wine a week....... I dont know much about fibroscans
daisydo1
in
British Liver Trust
2 years ago
HOW TO MANAGE DILATED CARDIOMYOPATHY?
I'm a
dilated
cardiomyopathy
patient. On regular medications. Salt restriction upto 1500 mg daily.Regular exercise. Fluid restriction of 1.5 litres. Included dapagliflozin 5 mg for the six months. Spironolactone plus torsemide 10 mg daily is my diuretic for 3.5 years.
I'm a
dilated
cardiomyopathy
patient. On regular medications. Salt restriction upto 1500 mg daily.Regular exercise. Fluid restriction of 1.5 litres. Included dapagliflozin 5 mg for the six months. Spironolactone plus torsemide 10 mg daily is my diuretic for 3.5 years.
Vivi2711
in
British Heart Foundation
3 years ago
From what I've been told by medical professions, they either make my liver disease seem very serious or no big deal. Anyone else?
My GP incorrectly diagnosed me with cirrhosis. I went to see a liver specialist who told me I had non-alcoholic fatty liver disease, not cirrhosis. I'm angry that I was incorrectly diagnosed, but I'm glad it's not the former. I have lots of mixed feelings. I know I need to lose weight (currently over
My GP incorrectly diagnosed me with cirrhosis. I went to see a liver specialist who told me I had non-alcoholic fatty liver disease, not cirrhosis. I'm angry that I was incorrectly diagnosed, but I'm glad it's not the former. I have lots of mixed feelings. I know I need to lose weight (currently over
Hidden
in
British Liver Trust
2 years ago
Association Between Anxiety and Depression and Nonalcoholic Fatty Liver Disease
As some of you know, I often like to share information about liver disease. I have found that the more I learn and understand, the easier it is to accept and deal with certain situations if I happen to understand what is causing them. For example, if a person was suffering from depression, knowing the
As some of you know, I often like to share information about liver disease. I have found that the more I learn and understand, the easier it is to accept and deal with certain situations if I happen to understand what is causing them. For example, if a person was suffering from depression, knowing the
Richard-Allen
in
British Liver Trust
2 years ago
Nerve pain
I'm 34 and have severe
dilated
cardiomyopathy
which is the reason for the ICD. Thanks in advance Cherrelle
I'm 34 and have severe
dilated
cardiomyopathy
which is the reason for the ICD. Thanks in advance Cherrelle
Cherrelleford
in
British Heart Foundation
3 years ago
Mild dilated cardiomyopathy with paroxysmal AF
I have no symptoms whatsoever apart from these heart palpitations due to the arrhythmia problem caused by the
dilated
cardiomyopathy
.
I have no symptoms whatsoever apart from these heart palpitations due to the arrhythmia problem caused by the
dilated
cardiomyopathy
.
GM1987
in
British Heart Foundation
3 years ago
cirrhosis and edema / ascites
My partner diagnosed 22.12.21 with alcoholic cirrhosis stopped drinking on that date. Since then has been having 3 weekly drains and wasn't able to have diuretics due to low sodium. Was hospitalised last Friday due to extreme edema in feet, legs and scrotum. Has been on IV diuretics as sodium now OK
My partner diagnosed 22.12.21 with alcoholic cirrhosis stopped drinking on that date. Since then has been having 3 weekly drains and wasn't able to have diuretics due to low sodium. Was hospitalised last Friday due to extreme edema in feet, legs and scrotum. Has been on IV diuretics as sodium now OK
Rshc
in
British Liver Trust
2 years ago
Medication
Hi is carvedilol safe to take if you have liver disease portal hypertension Thanks for any information
Hi is carvedilol safe to take if you have liver disease portal hypertension Thanks for any information
Lippy42
in
British Liver Trust
2 years ago
Enlarged liver
Hi I have been told I have a mildly enlarged liver and fatty liver. The ultrasound was private and wasn't the best at relaying information. I knew I had a fatty liver but the enlarged bit has got me really worried. I don't know what it means. I've googled it but had to stop because it was taking me down
Hi I have been told I have a mildly enlarged liver and fatty liver. The ultrasound was private and wasn't the best at relaying information. I knew I had a fatty liver but the enlarged bit has got me really worried. I don't know what it means. I've googled it but had to stop because it was taking me down
Rawdy
in
British Liver Trust
2 years ago
Heart Failure Diagnosis
I'm 32 and have been diagnosed with Severe
Dilated
Cardiomyopathy
, and currently undergoing tests to see if I'm eligible for a Heart Transplant.
I'm 32 and have been diagnosed with Severe
Dilated
Cardiomyopathy
, and currently undergoing tests to see if I'm eligible for a Heart Transplant.
LukeBarnes88
in
British Heart Foundation
3 years ago
Delusions/Hallucinarions
I became very sick 5 years ago with all the symptoms of PA but was undiagnosed. I got to the point where I started having delusions of parasitosis and hallucinations. Has anyone else experienced delusions or halluconations? I'm afraid my brain may have been permanently damaged?
I became very sick 5 years ago with all the symptoms of PA but was undiagnosed. I got to the point where I started having delusions of parasitosis and hallucinations. Has anyone else experienced delusions or halluconations? I'm afraid my brain may have been permanently damaged?
sunshinebee
in
Pernicious Anaemia Society
2 years ago
Timeframe for antivegf injections…
Hello me again! Sorry this is all really new to me. I ve just a week ago had a macula bleed with suspected myopic maculopathy and my health board is slow to send an urgent appt despite me being an NHS worker and being off work with it. They have classed me as needing an appt in a few weeks but I m aware
Hello me again! Sorry this is all really new to me. I ve just a week ago had a macula bleed with suspected myopic maculopathy and my health board is slow to send an urgent appt despite me being an NHS worker and being off work with it. They have classed me as needing an appt in a few weeks but I m aware
Deepbluesea2022
in
Macular Society
2 years ago
Diet for fibrosis
Hi I still haver liver fibrosis through alcohol and haven’t touched a drop for 2 years now, but my ELF score has gone up from 9.8, 10.1, 9.1, now 10.1 again (all done at 6 monthly intervals) I don’t understand why? I lost two stone in weight although I have put a stone back on, but my ultrasound last
Hi I still haver liver fibrosis through alcohol and haven’t touched a drop for 2 years now, but my ELF score has gone up from 9.8, 10.1, 9.1, now 10.1 again (all done at 6 monthly intervals) I don’t understand why? I lost two stone in weight although I have put a stone back on, but my ultrasound last
kippy2
in
British Liver Trust
2 years ago
Waiting for blood and ultrasound results, suspected cirrhosis and portal hypertension
Had bloods taken February and Ultrasound March and am awaiting results. I gave up alcohol in February which I haven't found too difficult. The sonographer told me quite a bit, apparently pancreas, kidneys, spleen and gall bladder seem to be okay. There is some scarring on my liver but he said he'd seen
Had bloods taken February and Ultrasound March and am awaiting results. I gave up alcohol in February which I haven't found too difficult. The sonographer told me quite a bit, apparently pancreas, kidneys, spleen and gall bladder seem to be okay. There is some scarring on my liver but he said he'd seen
eileenet49
in
British Liver Trust
2 years ago
Pace 23
Has anyone else had an extra wire fitted to there pacemaker had two wires now my heart isn’t pumping very well and have developed
cardiomyopathy
dilated
they want to insert another wire
Has anyone else had an extra wire fitted to there pacemaker had two wires now my heart isn’t pumping very well and have developed
cardiomyopathy
dilated
they want to insert another wire
Maggie122
in
British Heart Foundation
3 years ago
Hello all
Hello everyone, my name is Scott, I'm 46 and I'm new here, I have some questions regarding what has been happening with me over the past (almost 6 months) period. I was a heavy drinker for many years leading a stressful life with work etc. My mum passed away in 2019 and that then led me down a deeper
Hello everyone, my name is Scott, I'm 46 and I'm new here, I have some questions regarding what has been happening with me over the past (almost 6 months) period. I was a heavy drinker for many years leading a stressful life with work etc. My mum passed away in 2019 and that then led me down a deeper
Traacs
in
British Liver Trust
2 years ago
Fluid retention
I have ecld and severe HE I've been refused a transplant. My gp cut my spironolactone down from 100mg to 50mg, I started noticing a full feeling and put on 5 pounds in a week, I got out the shower today and noticed my left ankle is swelling, I've never had this before, any advice please
I have ecld and severe HE I've been refused a transplant. My gp cut my spironolactone down from 100mg to 50mg, I started noticing a full feeling and put on 5 pounds in a week, I got out the shower today and noticed my left ankle is swelling, I've never had this before, any advice please
Hidden
in
British Liver Trust
2 years ago
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