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Collagen powder and increased stiffness?
Recently, my husband experienced a distressing episode of extreme stiffness. He described it as a sensation of having someone squeeze him at the base of his brain (he had DBS in 2022), causing him to feel extremely stiff in his head, shoulders, neck and arms. In general, stiffness is his issue, but
Recently, my husband experienced a distressing episode of extreme stiffness. He described it as a sensation of having someone squeeze him at the base of his brain (he had DBS in 2022), causing him to feel extremely stiff in his head, shoulders, neck and arms. In general, stiffness is his issue, but
1rocketman
in
Cure Parkinson's
5 months ago
#1 Symptom Reducer
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
staceysack
in
Cure Parkinson's
5 months ago
DBS??
I’m seriously considering DBS. Would love some feedback from people who have had it done.
I’m seriously considering DBS. Would love some feedback from people who have had it done.
CostaVal
in
Cure Parkinson's
6 months ago
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Prof Tim Noakes and low carb diet benefits
I hope it's ok to attach a link to this Q&A session - it's clarified a lot for me and low carb is how I reduced my blood sugar when I was in the pre-diabetic range. He also explains that diabetes is a more serious disease than people believe. I found it very interesting. https://www.facebook.com/thenoakesfoundation
I hope it's ok to attach a link to this Q&A session - it's clarified a lot for me and low carb is how I reduced my blood sugar when I was in the pre-diabetic range. He also explains that diabetes is a more serious disease than people believe. I found it very interesting. https://www.facebook.com/thenoakesfoundation
Miserere
in
PMRGCAuk
8 months ago
addicted to C/L?
i have DBS 3.5 years ago.th DBS doing quite well during night time when i am completely off C/L feeling almost normal. when in the morning after taking 25/100 madopar when wearing off, my symptoms magnified, i become very off, my fingers jam together. so wearing off is much worse than being off, if
i have DBS 3.5 years ago.th DBS doing quite well during night time when i am completely off C/L feeling almost normal. when in the morning after taking 25/100 madopar when wearing off, my symptoms magnified, i become very off, my fingers jam together. so wearing off is much worse than being off, if
limcheeese22
in
Cure Parkinson's
6 months ago
DBS. Did it improve your life as much as you hoped?
Well I feel the DBS conveyor belt moving again, bringing me closer to the surgery date. I have an appointment with Professor Silverdale in a couple of weeks and I have questions to ask. Can anyone reading this who has had the surgery give me their honest thoughts as to whether the DBS surgery has improved
Well I feel the DBS conveyor belt moving again, bringing me closer to the surgery date. I have an appointment with Professor Silverdale in a couple of weeks and I have questions to ask. Can anyone reading this who has had the surgery give me their honest thoughts as to whether the DBS surgery has improved
gingerj
in
Cure Parkinson's
6 months ago
Ibs pain
I have recently been diagnosed with ibs, well my doctor has said it’s ibs but I am awaiting further tests. I have been following a gluten free diet for about 2 months now, I have noticed that I am less bloated but that has been the only change. I am wanting to ask, does anyone else get woke up through
I have recently been diagnosed with ibs, well my doctor has said it’s ibs but I am awaiting further tests. I have been following a gluten free diet for about 2 months now, I have noticed that I am less bloated but that has been the only change. I am wanting to ask, does anyone else get woke up through
Pink_Lover
in
IBS Network
8 months ago
I’m scheduled to have DBS surgery February 29 - if you have had DBS, is there anything you wish you‘d known beforehand?
I want to prepare mentally (and physically) for the surgery, and would appreciate any input from members of this community who have had the experience of DBS surgery. Thank you in advance. Wayne
I want to prepare mentally (and physically) for the surgery, and would appreciate any input from members of this community who have had the experience of DBS surgery. Thank you in advance. Wayne
Megafone
in
Cure Parkinson's
6 months ago
Kinder , Gentler and harmless Alternative of DBS
Seeking a kinder, gentler alternative, researchers from Korea's Yonsei University created minuscule magnets tagged with antibodies. The devices are known as nanoscale magnetic force actuators, or m-Torquers. These m-Torquers were injected into the subthalamic nucleus of mice with early- and late-stage
Seeking a kinder, gentler alternative, researchers from Korea's Yonsei University created minuscule magnets tagged with antibodies. The devices are known as nanoscale magnetic force actuators, or m-Torquers. These m-Torquers were injected into the subthalamic nucleus of mice with early- and late-stage
Farooqji
in
Cure Parkinson's
6 months ago
Let's change the way we're treated by adding metabolic therapy to SOC
Some good recent videos on a subject Dr. Thomas Seyfried: https://youtu.be/u2s6z37YIzM?si=UXIhw6X4T0nPwAyV PCa specific discussion on the same: https://youtu.be/RbrX_ZrYxJg?si=wTRoC7-f2N6RDTY0 I must add: I've been on low-carb diet (Atkins) since 1999 and recently (August of this year) started
Some good recent videos on a subject Dr. Thomas Seyfried: https://youtu.be/u2s6z37YIzM?si=UXIhw6X4T0nPwAyV PCa specific discussion on the same: https://youtu.be/RbrX_ZrYxJg?si=wTRoC7-f2N6RDTY0 I must add: I've been on low-carb diet (Atkins) since 1999 and recently (August of this year) started
TryGuyCP
in
Advanced Prostate Cancer
8 months ago
First Post and confused
Hi all. Not sure if I'm in the right group but trying to find answers. Thank you. I was diagnosed with IBS about 35 years ago. I started a low carb and keto way of eating 7 years ago and it's all settled down. However, the past six months I've had abdominal pain and bloating, worsening throughout
Hi all. Not sure if I'm in the right group but trying to find answers. Thank you. I was diagnosed with IBS about 35 years ago. I started a low carb and keto way of eating 7 years ago and it's all settled down. However, the past six months I've had abdominal pain and bloating, worsening throughout
LtAngua52
in
Bowel Disease Support
8 months ago
Gluten free diet
I have been on a Gluten Free diet for more then 10 years. Recently I have had abdominal pain, flatulence, and reflux after food. I found out you can buy a Coeliac kit from the chemist, but not sure about it. I feel I should go to the GP but have been in hospital in the past and the DR there said I had
I have been on a Gluten Free diet for more then 10 years. Recently I have had abdominal pain, flatulence, and reflux after food. I found out you can buy a Coeliac kit from the chemist, but not sure about it. I feel I should go to the GP but have been in hospital in the past and the DR there said I had
Simpson43
in
Gluten Free Guerrillas
8 months ago
Test results 🤨🧐
Morning all, Thought I’d share latest results- In all honesty I’ve not felt so bad mentally in a long time- between this and being menopausal hormones are nightmare not to mention weight gain☹️😭I’ve just had enough since diagnosis I feel I’m on a hamster wheel part of me wants to stop medication as
Morning all, Thought I’d share latest results- In all honesty I’ve not felt so bad mentally in a long time- between this and being menopausal hormones are nightmare not to mention weight gain☹️😭I’ve just had enough since diagnosis I feel I’m on a hamster wheel part of me wants to stop medication as
J2506
in
Thyroid UK
8 months ago
Next NoSilverBullet webinar on 12th of February: Dr Raul Martinez on “The role of Focused Ultrasound in the management of Parkinson's”
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 12th of February. Dr Raul Martinez Will be talking to us about “The role of Focused Ultrasound in the management of Parkinson's Disease”. Please use the Eventbrite link below
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 12th of February. Dr Raul Martinez Will be talking to us about “The role of Focused Ultrasound in the management of Parkinson's Disease”. Please use the Eventbrite link below
Michel0220
in
Cure Parkinson's
6 months ago
AST, ALT high
Hi, while been on Interferon journey my AST and ALT rocketed up high to 64 for ast and 92 for alt.Is this change a concern ? How can I maintain liver enzymes ? I am on a low carb high fat diet but I am using all the healthy ingredients. Not sure if related. Haematologist doesn't seem worry about that
Hi, while been on Interferon journey my AST and ALT rocketed up high to 64 for ast and 92 for alt.Is this change a concern ? How can I maintain liver enzymes ? I am on a low carb high fat diet but I am using all the healthy ingredients. Not sure if related. Haematologist doesn't seem worry about that
kamiilos
in
MPN Voice
8 months ago
angioplasty
I am 66 I am going for an angioplasty on the 27th November with the possibility of a stent in LAD. Very nervous. I have had LBBB since in my early 30’s so always got a slight tight chest on hills, i had an angiogram in 2012 and an MRI I was put on Bisoprolol, statins and ramipril after this. Dosage reduced
I am 66 I am going for an angioplasty on the 27th November with the possibility of a stent in LAD. Very nervous. I have had LBBB since in my early 30’s so always got a slight tight chest on hills, i had an angiogram in 2012 and an MRI I was put on Bisoprolol, statins and ramipril after this. Dosage reduced
Sukaya
in
British Heart Foundation
8 months ago
Berberine and Levothyroxine
Hi This is my first post. I was wondering if anyone could give me advice about taking berberine with levothyroxine. I am currently taking 100mcg of levo daily. About 2 years ago I was diagnosed with Type 2 diabetes which I try and control with a low carb diet. However my blood sugar seems to be rising
Hi This is my first post. I was wondering if anyone could give me advice about taking berberine with levothyroxine. I am currently taking 100mcg of levo daily. About 2 years ago I was diagnosed with Type 2 diabetes which I try and control with a low carb diet. However my blood sugar seems to be rising
treeflower1954
in
Thyroid UK
9 months ago
Does deep brain stimulation help with cognitive problems in Parkinson's disease? Theta frequency STN-DBS boosts working memory
Does deep brain stimulation help with cognitive problems in Parkinson's disease? Theta frequency STN-DBS boosts working memory, a key cognitive process often impaired in PD. https://academic.oup.com/brain/advance-article-abstract/doi/10.1093/brain/awad433/7513222?login=false
Does deep brain stimulation help with cognitive problems in Parkinson's disease? Theta frequency STN-DBS boosts working memory, a key cognitive process often impaired in PD. https://academic.oup.com/brain/advance-article-abstract/doi/10.1093/brain/awad433/7513222?login=false
nednedned
in
Cure Parkinson's
7 months ago
Advice please 😌
Hi everybody, It’s nice to meet you all! So I’m sure you have loads of people posting on here about their frustrations with the NHS/GPs etc. therefore I won’t bore you with all of the details. My journey began in Dec 22 with what I thought was a bout of viral infection-induced joint pain in my hands
Hi everybody, It’s nice to meet you all! So I’m sure you have loads of people posting on here about their frustrations with the NHS/GPs etc. therefore I won’t bore you with all of the details. My journey began in Dec 22 with what I thought was a bout of viral infection-induced joint pain in my hands
Rocinante_89
in
LUPUS UK
9 months ago
COQ10
👋 to allHas anyone tried COQ10 supplement? Have been recommended to try it by 'holistic' nutritionist. Was very impressed with her research into AI inflammatory diseases - one suggestion was to try Gluten free diet for 4 weeks to see if any improvements noticed and the above supplement. Going down to
👋 to allHas anyone tried COQ10 supplement? Have been recommended to try it by 'holistic' nutritionist. Was very impressed with her research into AI inflammatory diseases - one suggestion was to try Gluten free diet for 4 weeks to see if any improvements noticed and the above supplement. Going down to
Poshdog
in
PMRGCAuk
9 months ago
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