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Update: Pred 3 and a half weeks completed
Quick update and my usual questions to follow 🙄..... So, I managed to get through my two weeks on 15mg and tapered down on to 12.5mg where I will stay for a further 2 weeks (until the 16/01/24) using the 3 tablets 1 day and 2 tablets the next set up. .....(couldn't get a pill cutter quick enough and
Quick update and my usual questions to follow 🙄..... So, I managed to get through my two weeks on 15mg and tapered down on to 12.5mg where I will stay for a further 2 weeks (until the 16/01/24) using the 3 tablets 1 day and 2 tablets the next set up. .....(couldn't get a pill cutter quick enough and
Paulx222
in
PMRGCAuk
7 months ago
IBS Diarrhoea
Hi Just wondered if other people have experienced the same as me, I have had diarrhoea for over 5 weeks now and gone through 5 boxes of Imodium and severe stomach pain with several trips to the hospital in the last month. I have not been able to work in the last month and have no idea what to eat
Hi Just wondered if other people have experienced the same as me, I have had diarrhoea for over 5 weeks now and gone through 5 boxes of Imodium and severe stomach pain with several trips to the hospital in the last month. I have not been able to work in the last month and have no idea what to eat
Buddybella
in
IBS Network
7 months ago
Tremor Assessment
Has anyone had a tremor assessment prior to deep brain stimulation?
Has anyone had a tremor assessment prior to deep brain stimulation?
Ostap
in
Ataxia UK
4 months ago
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Brilliant presentation!
It’s good to hear that the right messages are getting out there. This presentation was at a Low Carb conference. https://youtu.be/ZE6-FHf-0oY?si=1KSnuGcRexz4SvMw
It’s good to hear that the right messages are getting out there. This presentation was at a Low Carb conference. https://youtu.be/ZE6-FHf-0oY?si=1KSnuGcRexz4SvMw
dolphin5
in
Thyroid UK
7 months ago
eating gluten prior to biopsy
Hi, I was diagnosed with coeliac disease a few years ago during covid. At that time (lockdown), the second stage of diagnosis was suspended. In my case, my blood results and the fact that I have first degree relatives with coeliac disease and I also have thyroid disease all combined to mean there was
Hi, I was diagnosed with coeliac disease a few years ago during covid. At that time (lockdown), the second stage of diagnosis was suspended. In my case, my blood results and the fact that I have first degree relatives with coeliac disease and I also have thyroid disease all combined to mean there was
lauram1978
in
Gluten Free Guerrillas
7 months ago
DBS: Medtronic question re. voice
Hi everyone. As many of you know I had DBS last August. Didn’t reverse my symptoms 5 years as was touted by my neuro but patched me up to fight another couple of rounds. When I was switched on, after a day or so I noticed that it was much harder to speak: volume and articulacy were much harder to produce
Hi everyone. As many of you know I had DBS last August. Didn’t reverse my symptoms 5 years as was touted by my neuro but patched me up to fight another couple of rounds. When I was switched on, after a day or so I noticed that it was much harder to speak: volume and articulacy were much harder to produce
jeeves19
in
Cure Parkinson's
4 months ago
Liothyronin T3 and insulin resistance
I’ve been doing some research as my blood sugar levels (measured by HbA1C) have been persistently high despite exercise, low carb diet, weight loss and muscle gain. Prompted by the very wise SlowDragon that T3 can cause high sugars, I decided to delve deeper. I came across a lot of articles online
I’ve been doing some research as my blood sugar levels (measured by HbA1C) have been persistently high despite exercise, low carb diet, weight loss and muscle gain. Prompted by the very wise SlowDragon that T3 can cause high sugars, I decided to delve deeper. I came across a lot of articles online
Wired123
in
Thyroid UK
7 months ago
Diet Advice
hey all, My mum continues to fight, and I’m determined not to let her give in to this awful illness. she’s agreed to make a good effort with food, and the NHS dietician isn’t going to be able to see her until mid Feb earliest. what should she be doing? I previously thought it was low carb, med diet
hey all, My mum continues to fight, and I’m determined not to let her give in to this awful illness. she’s agreed to make a good effort with food, and the NHS dietician isn’t going to be able to see her until mid Feb earliest. what should she be doing? I previously thought it was low carb, med diet
PerpetuallySad
in
British Liver Trust
7 months ago
Insomnia
Hello, I was diagnosed PD when i was 37, now I'm 46 years old. 5 months ago i was DBS. After surgery, things did not go bad, but not as good I have expected. On March 7th i was reajusted the neurostimulator by my neourologist. On March 15th i started HDT Protocol, 50 mg sublingual on alternative days
Hello, I was diagnosed PD when i was 37, now I'm 46 years old. 5 months ago i was DBS. After surgery, things did not go bad, but not as good I have expected. On March 7th i was reajusted the neurostimulator by my neourologist. On March 15th i started HDT Protocol, 50 mg sublingual on alternative days
carlosgarcia2048
in
Cure Parkinson's
4 months ago
AbbVie’s Produodopa approved by SMC to treat Parkinson’s disease patients in Scotland
AbbVie’s Produodopa (foslevodopa-foscarbidopa) has been accepted by the Scottish Medicines Consortium (SMC) for use within NHS Scotland to treat advanced levodopa-responsive Parkinson’s disease (PD). PD patients with severe motor fluctuations and hyperkinesia or dyskinesia when previous available combinations
AbbVie’s Produodopa (foslevodopa-foscarbidopa) has been accepted by the Scottish Medicines Consortium (SMC) for use within NHS Scotland to treat advanced levodopa-responsive Parkinson’s disease (PD). PD patients with severe motor fluctuations and hyperkinesia or dyskinesia when previous available combinations
Farooqji
in
Cure Parkinson's
4 months ago
Visit to endocrinologist and Prednisone at wee hours.
I visit my, very helpful, endocrinologist every three months. Yesterday we were discussing my medication and I was telling her that I was taking prednisone at around 2-4 am in the morning -when I got up . She asked me why take it at night? Well, I had a garbled expression as to how we think about
I visit my, very helpful, endocrinologist every three months. Yesterday we were discussing my medication and I was telling her that I was taking prednisone at around 2-4 am in the morning -when I got up . She asked me why take it at night? Well, I had a garbled expression as to how we think about
Karenjaninaz
in
PMRGCAuk
7 months ago
Pain diminishing
Hi All Wanted to post an update and share what I'm doing with my diet: I was diagnosed on 20th October 2023, put on 15mg Pred, 1 month later reduced to 12.5mg then Saturday 16th Dec reduced to 10mg, at first all the pain and stiffness reappeared and I was gutted but it was "only" 6/10 and after taking
Hi All Wanted to post an update and share what I'm doing with my diet: I was diagnosed on 20th October 2023, put on 15mg Pred, 1 month later reduced to 12.5mg then Saturday 16th Dec reduced to 10mg, at first all the pain and stiffness reappeared and I was gutted but it was "only" 6/10 and after taking
MalloryMoss
in
PMRGCAuk
7 months ago
Neurologist update and gaviscon
Just a quick update. I met with the private neurologist and she was very perplexed. She did a very thorough physical examination and said I was neurologically normal- meaning no loss of balance, sensations, numbness, etc. She said the symptoms I have are similar to small fiber neuropathy but the examination
Just a quick update. I met with the private neurologist and she was very perplexed. She did a very thorough physical examination and said I was neurologically normal- meaning no loss of balance, sensations, numbness, etc. She said the symptoms I have are similar to small fiber neuropathy but the examination
e365
in
Restless Legs Syndrome
7 months ago
Low Carb Plant Based Help!
I'm trying sooo hard to go plant based, but struggle getting full without chicken, turkey or fish (no red meat!). Every vegetarian recipe I find has lot of carbs, and as a diabetic, they all immediately raise my blood sugar (yes, even whole grains). I'd like to find about a dozen meals I can just cycle
I'm trying sooo hard to go plant based, but struggle getting full without chicken, turkey or fish (no red meat!). Every vegetarian recipe I find has lot of carbs, and as a diabetic, they all immediately raise my blood sugar (yes, even whole grains). I'd like to find about a dozen meals I can just cycle
GoodHealthIsAJourney
in
Kidney Disease
7 months ago
European Masters Championships 2023 Pescara, Italy 21/09-01/10, Intro and 100 metres
I’ve decided to split my report into sections as it covers three events and quite a few races. It’s also getting unimaginably long 😬 and I don’t like to keep folk waiting. This is the first instalment which sets the scene and covers the 100 metre event. Make yourself a nice cuppa tea and maybe even
I’ve decided to split my report into sections as it covers three events and quite a few races. It’s also getting unimaginably long 😬 and I don’t like to keep folk waiting. This is the first instalment which sets the scene and covers the 100 metre event. Make yourself a nice cuppa tea and maybe even
RunBrianRun
Half Marathon
in
Fun Beyond 10K & Race Support
10 months ago
Persistent Angina/Palpitations Following Stent & Multi Vessel Atherosclerosis Diagnosis
Hi everyone. Have had my RH artery stented following heart pain whilst exercising. RH artery 90% blocked and other vessels 50%-70% blocked. Have had persistent palpitations and/or mild angina every day now since the operation in March 2021. Now on 80mg Atorvastatin, 10mg Ramipril, 5mg Bisoprolol and
Hi everyone. Have had my RH artery stented following heart pain whilst exercising. RH artery 90% blocked and other vessels 50%-70% blocked. Have had persistent palpitations and/or mild angina every day now since the operation in March 2021. Now on 80mg Atorvastatin, 10mg Ramipril, 5mg Bisoprolol and
Torbjorn
in
British Heart Foundation
7 months ago
pain?
Anybody else have pain on waking, from hips and legs up to arms & shoulders--not explained by exercise or lack thereof? Can barely hobble about the house to get my meds and feed the cat. Sometimes it helps to tighten all the muscles to form an upright posture--but as soon as I loosen them to move, it
Anybody else have pain on waking, from hips and legs up to arms & shoulders--not explained by exercise or lack thereof? Can barely hobble about the house to get my meds and feed the cat. Sometimes it helps to tighten all the muscles to form an upright posture--but as soon as I loosen them to move, it
ottercat
in
Cure Parkinson's
5 months ago
non responsive or refactory coeliac’s disease
hi Was wondering if anyone else has had similar issues ? Sorry it’s a long one My Nan, Mother and Brother all have coeliacs and have been diagnosed for many years my brother also has colitis. I’ve only been diagnosed for 4years now, but had been tested regularly due to hereditary link. A gluten
hi Was wondering if anyone else has had similar issues ? Sorry it’s a long one My Nan, Mother and Brother all have coeliacs and have been diagnosed for many years my brother also has colitis. I’ve only been diagnosed for 4years now, but had been tested regularly due to hereditary link. A gluten
RJane83
in
Gluten Free Guerrillas
7 months ago
The problematic 2nd dose of the day
Good evening. Wondering if anybody else experienced similar or if you’ve any idea why the following happens: my first CL of the day works reasonably well (although I only get two hours of relief from it). The second thought is really bad: after my first dose I go badly off (it’s been getting worse as
Good evening. Wondering if anybody else experienced similar or if you’ve any idea why the following happens: my first CL of the day works reasonably well (although I only get two hours of relief from it). The second thought is really bad: after my first dose I go badly off (it’s been getting worse as
jeeves19
in
Cure Parkinson's
5 months ago
DBS awake or under general anesthesia
I've been told that for my DBS operation I will be under general anesthesia. I'm just wondering what others have experienced. I like the idea of a good sleep and waking to find the operation over but I was under the impression that when done awake the patient can indicate when the probes are correctly
I've been told that for my DBS operation I will be under general anesthesia. I'm just wondering what others have experienced. I like the idea of a good sleep and waking to find the operation over but I was under the impression that when done awake the patient can indicate when the probes are correctly
gingerj
in
Cure Parkinson's
5 months ago
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