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DBS levadopa challenge. Glad its over, but it does raise a question.
Just left hospital after my levadopa challenge assessment for DBS.Wow, i wasn't prepared for how I'd be after having no meds since 7pm last night. I can honestly say I appreciate my meds so much more now. My normal day starts at 4:30am when i take my Stalevo 125mg. I'm very slow, shakey, and have some
Just left hospital after my levadopa challenge assessment for DBS.Wow, i wasn't prepared for how I'd be after having no meds since 7pm last night. I can honestly say I appreciate my meds so much more now. My normal day starts at 4:30am when i take my Stalevo 125mg. I'm very slow, shakey, and have some
gingerj
in
Cure Parkinson's
1 year ago
treatment of prednisone side affects
I live in the USA I’ve posted before but have a question . My rheumatologist has not agreed to taper my 20:mg dosage of prednisone yet , ( 6 months on this dose) Ive had two doses of Kevzara and all labs are normal,but IL-6 is increasing . He says soon we will taper slowly . In the meantime my FBS are
I live in the USA I’ve posted before but have a question . My rheumatologist has not agreed to taper my 20:mg dosage of prednisone yet , ( 6 months on this dose) Ive had two doses of Kevzara and all labs are normal,but IL-6 is increasing . He says soon we will taper slowly . In the meantime my FBS are
GMA74
in
PMRGCAuk
1 year ago
Which DBS system?
So it's not going to be too long now. August/September? At my last appointment they asked me which DBS system I would choose. This is at Bristol in the UK. Sayeth I , 'errrrrrrrrrrrr.........................dunno...................Id better go and ask my mates'. So my ever helpful community! Over
So it's not going to be too long now. August/September? At my last appointment they asked me which DBS system I would choose. This is at Bristol in the UK. Sayeth I , 'errrrrrrrrrrrr.........................dunno...................Id better go and ask my mates'. So my ever helpful community! Over
jeeves19
in
Cure Parkinson's
1 year ago
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Felinegood
I was diagnosed with coeliac in April 2023, I had been losing weight, was feeling tired , had a bloated stomach and cramps, especially after eating bread and pasta. I was also anaemic. since been on a gluten-free diet for the past eight weeks, I feel a lot better. I am happy to cook my own meals as
I was diagnosed with coeliac in April 2023, I had been losing weight, was feeling tired , had a bloated stomach and cramps, especially after eating bread and pasta. I was also anaemic. since been on a gluten-free diet for the past eight weeks, I feel a lot better. I am happy to cook my own meals as
Hidden
in
Gluten Free Guerrillas
1 year ago
Felinefine
I was diagnosed with coeliac in April 2023, I have been feeling tired, losing weight, and had, a bloated stomach & cramps. was also anaemic. I have been on a gluten-free diet for eight weeks now I’m feel so much better.
I was diagnosed with coeliac in April 2023, I have been feeling tired, losing weight, and had, a bloated stomach & cramps. was also anaemic. I have been on a gluten-free diet for eight weeks now I’m feel so much better.
Hidden
in
Gluten Free Guerrillas
1 year ago
New here....
Hi my name is Amanda and I am fifty two years old. I had my colonoscopy this past Friday and I have my diagnosis of ulcerative colitis officially yesterday. I began a gluten free diet this past Saturday. I have been sick since intestinal Covid last November but finally found a great doctor team. While
Hi my name is Amanda and I am fifty two years old. I had my colonoscopy this past Friday and I have my diagnosis of ulcerative colitis officially yesterday. I began a gluten free diet this past Saturday. I have been sick since intestinal Covid last November but finally found a great doctor team. While
Amandabrat78
in
Crohn's and Colitis Support
1 year ago
Recommendation re supplements
Hi allI'm fairly new to the forum and I'm finding all your info and wealth of experience extremely helpful. Have learnt that addressing possible nutritional deficiencies is important before Thyroid hormone therapy can be optimally effective. I have Hashimotos and recently posted full thyroid panel results
Hi allI'm fairly new to the forum and I'm finding all your info and wealth of experience extremely helpful. Have learnt that addressing possible nutritional deficiencies is important before Thyroid hormone therapy can be optimally effective. I have Hashimotos and recently posted full thyroid panel results
Hollybushroad
in
Thyroid UK
1 year ago
medication?
hi everyone, I am prescribed 1200mg Gabapentin x 4 times a day, 30mg Codeine x 3 a day and after a medication review with a GP. I stated im still in constantly agony and pain, there isn’t a day where I am not in pain. Some days more than others but on average around 7/8 pain scale with my medication
hi everyone, I am prescribed 1200mg Gabapentin x 4 times a day, 30mg Codeine x 3 a day and after a medication review with a GP. I stated im still in constantly agony and pain, there isn’t a day where I am not in pain. Some days more than others but on average around 7/8 pain scale with my medication
NewToFibrox
in
Fibromyalgia Action UK
1 year ago
Working full-time with a DBS
DBS Deep Brain Stimulation. 1) Are there any warriors who have received DBS and are still employed full-time? 2) Are there any IT/computers warriors who have received DBS and are still working? Just wondering if that's humanly possible. Thank you for your time.
DBS Deep Brain Stimulation. 1) Are there any warriors who have received DBS and are still employed full-time? 2) Are there any IT/computers warriors who have received DBS and are still working? Just wondering if that's humanly possible. Thank you for your time.
surdug1
in
Cure Parkinson's
1 year ago
Help with a gluten free diet? Any gluten ataxia support groups?
After nearly 3 years of gluten free and dairy free diet, I would like to hear from others. Their personal stories and any support groups. There is so much information and knowledge to share with each other. Thank you.
After nearly 3 years of gluten free and dairy free diet, I would like to hear from others. Their personal stories and any support groups. There is so much information and knowledge to share with each other. Thank you.
penelope2
in
Ataxia UK
1 year ago
TENS machine for period cramps in stage 4 endometriosis
Hi all !!! I'm stage 4 endometriosis patient and had a laparoscopy surgery 15months ago and I get lower back pain and stomach pain during my periods .I've heard of TENS machine is it suitable for everyone and can anyone suggest which brand TENS machine i should buy . Are deep heat period pain heat
Hi all !!! I'm stage 4 endometriosis patient and had a laparoscopy surgery 15months ago and I get lower back pain and stomach pain during my periods .I've heard of TENS machine is it suitable for everyone and can anyone suggest which brand TENS machine i should buy . Are deep heat period pain heat
Chotu5
in
Endometriosis UK
1 year ago
is it common for coeliacs to have crohns or colitis as well?
hi Coeliac disease runs strongly in my family, my Nan, mom and brother all have it - I had been tested regularly for it over the last 30 years but had severe food poisoning in November 2018 which triggered coeliac disease and a lactose intolerance. Tests always came back negative but never had any
hi Coeliac disease runs strongly in my family, my Nan, mom and brother all have it - I had been tested regularly for it over the last 30 years but had severe food poisoning in November 2018 which triggered coeliac disease and a lactose intolerance. Tests always came back negative but never had any
RJane83
in
Gluten Free Guerrillas
1 year ago
Internal Burning
Hi,I am new here. I am desperate for answers. I had a hysterectomy 21 years ago and it was only through recurrent UTI’s that I was eventually diagnosed with vaginal atrophy. I was put on Vagifem and a vaginal moisturiser but whereas my UTI’s stopped the intense burning ( as if someone had put a tube
Hi,I am new here. I am desperate for answers. I had a hysterectomy 21 years ago and it was only through recurrent UTI’s that I was eventually diagnosed with vaginal atrophy. I was put on Vagifem and a vaginal moisturiser but whereas my UTI’s stopped the intense burning ( as if someone had put a tube
CecilyParsley
in
Pelvic Pain Support Network
1 year ago
OFF time but so much more!
I learned so much about our disease through this video. It was about OFF time but through that lens I learned out about the medications prescribed to us. There is a clear description of the different DBS devices available. This guy made my neurologist look like an amateur. https://youtu.be/TunPzh2Lw3U
I learned so much about our disease through this video. It was about OFF time but through that lens I learned out about the medications prescribed to us. There is a clear description of the different DBS devices available. This guy made my neurologist look like an amateur. https://youtu.be/TunPzh2Lw3U
PalmSprings
in
Cure Parkinson's
1 year ago
feeling grim after levo increase
have been struggling to find right treatment for months levothyroxine since august last year initially helped a lot with low energy and muscle pain but didn’t last. After several posts on here I have now gone up to 100 mcg for a week with a view to re testing in 2 months to see if my t3 has moved at
have been struggling to find right treatment for months levothyroxine since august last year initially helped a lot with low energy and muscle pain but didn’t last. After several posts on here I have now gone up to 100 mcg for a week with a view to re testing in 2 months to see if my t3 has moved at
Mag999
in
Thyroid UK
1 year ago
Would t3 benefit me? Latest bloods
hi, I have hashinotos and take 125mcg of thyroxine. I don’t feel great. I’ve just started a gluten free diet and take iron and folate as both were low. I’ve been taking them for 8 weeks and have just had the levels tested so can share all those results when I have them. I wondered if t3 may help me
hi, I have hashinotos and take 125mcg of thyroxine. I don’t feel great. I’ve just started a gluten free diet and take iron and folate as both were low. I’ve been taking them for 8 weeks and have just had the levels tested so can share all those results when I have them. I wondered if t3 may help me
HiRach
in
Thyroid UK
1 year ago
A new randomised study comparing diets
A new randomised study compares a low carbohydrate diet to the DASH diet. The conclusion: the low carb diet wins hands down. https://www.annfammed.org/content/21/3/256
A new randomised study compares a low carbohydrate diet to the DASH diet. The conclusion: the low carb diet wins hands down. https://www.annfammed.org/content/21/3/256
Eryl
Visitor
in
Weight Loss Support
1 year ago
Thinking of our conversation on pred level and how to handle stressful moments to keep adrenal drama at bay....
So things for me and PMR and pred have not gone the way a lot of folks have. I read about when you take the pred in the beginning most have amazing relief then begin the journey of slowly reducing to find the next good dose. Then reading the symptom tea leaves of symptoms to make decisions on the next
So things for me and PMR and pred have not gone the way a lot of folks have. I read about when you take the pred in the beginning most have amazing relief then begin the journey of slowly reducing to find the next good dose. Then reading the symptom tea leaves of symptoms to make decisions on the next
Wallysma
in
PMRGCAuk
1 year ago
Gluten free diet
Hi just wondering if anyone has tried a gluten free diet to reduce inflammation? I’m off steroids now so would like at least a change from low carbs . Just interested in other opinions
Hi just wondering if anyone has tried a gluten free diet to reduce inflammation? I’m off steroids now so would like at least a change from low carbs . Just interested in other opinions
Devoid
in
PMRGCAuk
1 year ago
Need faster research on Neuro-modulation
I attended 2 various zoom meets of Vibratory Neuro-modulation . In UK they have a CUE1 available at less than 500 dollars that is showing some amazing strides for some people. Then I watched a zoom with Dr Peter Tass who is a researcher involved with the amazing Vibratory Gloves. My wife was a participant
I attended 2 various zoom meets of Vibratory Neuro-modulation . In UK they have a CUE1 available at less than 500 dollars that is showing some amazing strides for some people. Then I watched a zoom with Dr Peter Tass who is a researcher involved with the amazing Vibratory Gloves. My wife was a participant
Furch
in
Cure Parkinson's
1 year ago
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