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lipodystrophy and Parkinson’s?
does anyone else have lipodystrophy associated with their Parkinson’s? I’ve had Parkinson’s for more than 12 years and it has mostly been well controlled by steadily increasing levels of medication. Recently, however, I’ve been losing weight and body fat consistent with generalised Lipodystrophy. I
does anyone else have lipodystrophy associated with their Parkinson’s? I’ve had Parkinson’s for more than 12 years and it has mostly been well controlled by steadily increasing levels of medication. Recently, however, I’ve been losing weight and body fat consistent with generalised Lipodystrophy. I
Cv235
in
Cure Parkinson's
11 months ago
Sharing Info : Thorne Gut Test
Please note : This is not an endorsement. Wanted to share with everyone. Hope it helps you. ( Also, I am not a doctor and should not be considered and medical advice Given the recent news that there is high probability that PD starts in the gut and travels to the brain (Alpha Synuclein found
Please note : This is not an endorsement. Wanted to share with everyone. Hope it helps you. ( Also, I am not a doctor and should not be considered and medical advice Given the recent news that there is high probability that PD starts in the gut and travels to the brain (Alpha Synuclein found
John_morris71
in
Cure Parkinson's
9 months ago
so confused by biologics?Are they different doses?!
bad effects with infliximab so suggested to go to entyvio so read up on that and now it’s humia?? I’ve read about it and still don’t know why this one would me? I’m UK so it’s not insurance? How do they make decisions. I haven’t had bloods done just had to stop after 2nd infliximab because it caused
bad effects with infliximab so suggested to go to entyvio so read up on that and now it’s humia?? I’ve read about it and still don’t know why this one would me? I’m UK so it’s not insurance? How do they make decisions. I haven’t had bloods done just had to stop after 2nd infliximab because it caused
Hidden
in
Crohn's and Colitis Support
9 months ago
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Hypo type episode on Dapaglaflozin/Forxiga, and Spironolactone, while waiting for a pacemaker upgrade. Advice anyone?
I felt sweaty and shaky after skipping breakfast this morning, and looking at the leaflet for Dapaglaflozin, I see one of the side effects is to cause low blood sugar levels. It's a diabetes drug which has been found to help with Heart Failure patients. It makes you pee away blood sugar. So I ate some
I felt sweaty and shaky after skipping breakfast this morning, and looking at the leaflet for Dapaglaflozin, I see one of the side effects is to cause low blood sugar levels. It's a diabetes drug which has been found to help with Heart Failure patients. It makes you pee away blood sugar. So I ate some
Coco51
in
British Heart Foundation
9 months ago
Hypo type episode while on Forxiga /Dapaglaflozin, waiting for pacemaker upgrade. Any experiences with this drug anyone?
I felt sweaty and shaky after skipping breakfast this morning, and looking at the leaflet for Dapaglaflozin, I see one of the side effects is to cause low blood sugar levels. It's a diabetes drug which has been found to help with Heart Failure patients. It makes you pee away blood sugar. So I ate some
I felt sweaty and shaky after skipping breakfast this morning, and looking at the leaflet for Dapaglaflozin, I see one of the side effects is to cause low blood sugar levels. It's a diabetes drug which has been found to help with Heart Failure patients. It makes you pee away blood sugar. So I ate some
Coco51
in
Atrial Fibrillation Support
9 months ago
Scientific opinion on the tolerable upper intake level for vitamin B6
The new scientific opinion (EFSA) revised in Europe the Tolerable Upper Intake Level
(UL) for vitamin B6 of 12.5 mg/day
for adults (including pregnant and lactating women), down from the previous UL of 30 mg/day set in 2000. For infants and children the ULs are: 2.2-2.5 mg/day (4-11 months), 3.2
The new scientific opinion (EFSA) revised in Europe the Tolerable Upper Intake Level
(UL) for vitamin B6 of 12.5 mg/day
for adults (including pregnant and lactating women), down from the previous UL of 30 mg/day set in 2000. For infants and children the ULs are: 2.2-2.5 mg/day (4-11 months), 3.2
Esperanto
in
Cure Parkinson's
11 months ago
Feeling a little disillusioned about TTFD and High Dose Thiamine (HDT):
My opinion: You can watch videos that say other B1’s are better; they are more powerful; they cross the BBB; etc. but you cannot find much (if any) info on long-term positive results [success stories]. Best to leave Benfothiamine, TTFD, Sulbutiamine, etc. alone and stay with what works for other people
My opinion: You can watch videos that say other B1’s are better; they are more powerful; they cross the BBB; etc. but you cannot find much (if any) info on long-term positive results [success stories]. Best to leave Benfothiamine, TTFD, Sulbutiamine, etc. alone and stay with what works for other people
Gcf51
in
Cure Parkinson's
11 months ago
Hope neuro is right
Hope neurologist is right or I'm done.Well the neurologist said it is not restless legs but nerve damage. He flatly refused to give me subutex without scientific proof, I told him that I did , He has taken me off temgesic as well and informed the other drs looking after me not to put me on it again..
Hope neurologist is right or I'm done.Well the neurologist said it is not restless legs but nerve damage. He flatly refused to give me subutex without scientific proof, I told him that I did , He has taken me off temgesic as well and informed the other drs looking after me not to put me on it again..
Hidden
in
Neuropathy Support
11 months ago
Hope neuro is right
Hope neurologist is right or I'm done.Well the neurologist said it is not restless legs but nerve damage. He flatly refused to give me subutex without scientific proof, I told him that I did , He has taken me off temgesic as well and informed the other drs looking after me not to put me on it again..
Hope neurologist is right or I'm done.Well the neurologist said it is not restless legs but nerve damage. He flatly refused to give me subutex without scientific proof, I told him that I did , He has taken me off temgesic as well and informed the other drs looking after me not to put me on it again..
Hidden
in
Neuropathy Support
11 months ago
Hope neuro is right
Hope neurologist is right or I'm done.Well the neurologist said it is not restless legs but nerve damage. He flatly refused to give me subutex without scientific proof, I told him that I did and to ring your dr also, he said he is not looking at someone's sob letter. He has taken me off temgesic as well
Hope neurologist is right or I'm done.Well the neurologist said it is not restless legs but nerve damage. He flatly refused to give me subutex without scientific proof, I told him that I did and to ring your dr also, he said he is not looking at someone's sob letter. He has taken me off temgesic as well
Hidden
in
Restless Legs Syndrome
11 months ago
Latest liver ultrasound
I went to Duke for my six month ultrasound and bloodwork. It appears all is stable with my cirrhosis. Still well compensated and no signs of portal hypertension, ascities, etc. Liver blood numbers are good. Kidney function tests were way off, but with high diuretic doses and heart problems, that’s become
I went to Duke for my six month ultrasound and bloodwork. It appears all is stable with my cirrhosis. Still well compensated and no signs of portal hypertension, ascities, etc. Liver blood numbers are good. Kidney function tests were way off, but with high diuretic doses and heart problems, that’s become
Bluegirl52
in
Living with Fatty Liver and NASH
9 months ago
Losing Hope of a good life
Sitting here jerking away, feels like someone has a cattle prod stuck in my thigh and sending shocks down my leg..my foot is twisting up....I'm about done with this. My husband may as well go and find someone else that can give him a happy retirement...the last 2 days I have had to drug myself up to
Sitting here jerking away, feels like someone has a cattle prod stuck in my thigh and sending shocks down my leg..my foot is twisting up....I'm about done with this. My husband may as well go and find someone else that can give him a happy retirement...the last 2 days I have had to drug myself up to
Hidden
in
Restless Legs Syndrome
11 months ago
v non-invasive treatment may offer significant relief to and restore gait function in patients with neurological disorders
To this end, the clinical researchers from Japan recruited twenty-three patients with PD or Parkinson’s syndrome. All study participants were randomly assigned to receive either the active treatment or a “sham” treatment that mimics the active treatment but does not offer any therapeutic benefit.
To this end, the clinical researchers from Japan recruited twenty-three patients with PD or Parkinson’s syndrome. All study participants were randomly assigned to receive either the active treatment or a “sham” treatment that mimics the active treatment but does not offer any therapeutic benefit.
Farooqji
in
Cure Parkinson's
11 months ago
HEAL YOUR GUT! (..... many docs say that is WHERE PD comes from)
Many medical researchers and doctors have concluded that PD and other neuro diseases
START IN OUR GUT.
I believe that and that is why for
552 days I have been on the O.M.A.D.
(one meal a day with all calories eaten within a 2 hour window). I've lost about 50 pounds and I feel much better
Many medical researchers and doctors have concluded that PD and other neuro diseases
START IN OUR GUT.
I believe that and that is why for
552 days I have been on the O.M.A.D.
(one meal a day with all calories eaten within a 2 hour window). I've lost about 50 pounds and I feel much better
PDWarrior1900
in
Cure Parkinson's
9 months ago
Research on effect of red light
Not directly thyroid related but it sheds some light on how we might improve our metabolism at the cellular level, which our thyroids should be partaking in. The text is from my Facebook post, so the tone is for a different audience! https://youtu.be/6Win49aeh8A?si=c7sxkdvvzmceR2lN I highly recommend
Not directly thyroid related but it sheds some light on how we might improve our metabolism at the cellular level, which our thyroids should be partaking in. The text is from my Facebook post, so the tone is for a different audience! https://youtu.be/6Win49aeh8A?si=c7sxkdvvzmceR2lN I highly recommend
Decant
in
Thyroid UK
9 months ago
steroids & diabetes
Hi I’m diabetic type 2 . I was put on a high dose of steroids in the spring , due to suspected GCA after being diagnosed with pmr . I was on the steroids for about 4 months . Rheumatologist tapered me off . Pain returned in neck , shoulders , arms, hips & upper legs. And as time has gone on the pain
Hi I’m diabetic type 2 . I was put on a high dose of steroids in the spring , due to suspected GCA after being diagnosed with pmr . I was on the steroids for about 4 months . Rheumatologist tapered me off . Pain returned in neck , shoulders , arms, hips & upper legs. And as time has gone on the pain
TedTheMaineCoon
in
PMRGCAuk
9 months ago
Alpro Almond Milk..... why do they do this? Any chemists have words of advice?
I stopped having cow's milk sometime ago and have been very happy using Alpro Almond milk instead. It contains Vitamins D2, E, B2 and B12 and calcium as shown in the photo. I noticed today that the packaging had changed and thought to myself "I wonder if anything else has?" So I checked. Yes indeed
I stopped having cow's milk sometime ago and have been very happy using Alpro Almond milk instead. It contains Vitamins D2, E, B2 and B12 and calcium as shown in the photo. I noticed today that the packaging had changed and thought to myself "I wonder if anything else has?" So I checked. Yes indeed
goingholiday
in
Thyroid UK
9 months ago
tramadol
I was on tramadol for at least 10 years----100 mg. then my doc took me off because a neurologist put me on Clonazepam for REM/SBD (rapid eye movement sleep behavior disorder.) But I was also getting cervical and lumbar rhizotomies...and still do every 12-14 months or so. I am now working with the VA
I was on tramadol for at least 10 years----100 mg. then my doc took me off because a neurologist put me on Clonazepam for REM/SBD (rapid eye movement sleep behavior disorder.) But I was also getting cervical and lumbar rhizotomies...and still do every 12-14 months or so. I am now working with the VA
Shadowperson
in
Pain Concern
11 months ago
Low B6... taking a complex with pyridoxine which obviously doesn't suit
Back to the search for the best B complex (Thorne being elusive at the moment and didn't do particularly well at keeping my B12 up)... one which contains pyridoxal 5' phosphate Does anyone rate Igennus Super B Complex? All suggestions welcome 🤗
Back to the search for the best B complex (Thorne being elusive at the moment and didn't do particularly well at keeping my B12 up)... one which contains pyridoxal 5' phosphate Does anyone rate Igennus Super B Complex? All suggestions welcome 🤗
TiggerMe
in
Thyroid UK
11 months ago
Free auto injector : )
Hi all - I am in Germany and have a new, unused Union Medico Needle Guide Assistant with English instructions. I don't need it and don't want to just toss it. I know some of you struggle with injections and might need it. I'm happy to send free to anyone in Europe or the UK. Please just let me know
Hi all - I am in Germany and have a new, unused Union Medico Needle Guide Assistant with English instructions. I don't need it and don't want to just toss it. I know some of you struggle with injections and might need it. I'm happy to send free to anyone in Europe or the UK. Please just let me know
SigNi
in
Pernicious Anaemia Society
11 months ago
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