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Ocrevus today and now insomnia?!?
I had my 3rd Ocrevus infusion today and I can't sleep tonight. The only thing I can figure is the small amount of solumedrol that they give at the beginning of the infusion is causing my insomnia. Has anyone else experienced this?
I had my 3rd Ocrevus infusion today and I can't sleep tonight. The only thing I can figure is the small amount of solumedrol that they give at the beginning of the infusion is causing my insomnia. Has anyone else experienced this?
Wizardsmom
in
My MSAA Community
5 years ago
Happy Zero Day!
TIL infusion complete now with the clinical trial Team in our room all morning. Dr Phan bedside in striped shirt, RN's Jenn and Steph In scrubs. Oncology NP's Courtney and Stephanie ran the actual cell transfers while Charles kept track of all the research documentations of thaw, start, flush and finish
TIL infusion complete now with the clinical trial Team in our room all morning. Dr Phan bedside in striped shirt, RN's Jenn and Steph In scrubs. Oncology NP's Courtney and Stephanie ran the actual cell transfers while Charles kept track of all the research documentations of thaw, start, flush and finish
missyrand
Ambassador
in
Melanoma Caregivers
5 years ago
Low cortisol levels thyroid hormone levels, especially on T3/NDT
I find this article on low cortisol, and the interaction between thyroid hormone and cortisol, very interesting, especially since it was written by a doctor able to think outside the box: http://hormonerestoration.com/Cortisol.html A few months ago, I weaned myself off Medrol (put on 4 mg daily by hormone
I find this article on low cortisol, and the interaction between thyroid hormone and cortisol, very interesting, especially since it was written by a doctor able to think outside the box: http://hormonerestoration.com/Cortisol.html A few months ago, I weaned myself off Medrol (put on 4 mg daily by hormone
Hidden
in
Thyroid UK
5 years ago
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Cholesterol
I had a massive stroke in 2009 and then two heart attacks in 2013 and 2014. I was put onto statins. Three years ago the statin I was taking was changed by my doctor. He prescribed Ezetrol. Unfortunately my medical aid would not pay for this medicine and so over and above my monthly medical aid contribution
I had a massive stroke in 2009 and then two heart attacks in 2013 and 2014. I was put onto statins. Three years ago the statin I was taking was changed by my doctor. He prescribed Ezetrol. Unfortunately my medical aid would not pay for this medicine and so over and above my monthly medical aid contribution
Umgaba
in
Cholesterol Support
5 years ago
Liver pain - what disease is this?
Hi there, I have a problem with the liver and I do not know what disease is that. Let me explain how all started. In the winter of 2017-2018 (1 year and half ago) I had a lot of problems respiratory tract infections (pneumonia, bronchitis and colds) and I took several rounds of antibiotics (2nd
Hi there, I have a problem with the liver and I do not know what disease is that. Let me explain how all started. In the winter of 2017-2018 (1 year and half ago) I had a lot of problems respiratory tract infections (pneumonia, bronchitis and colds) and I took several rounds of antibiotics (2nd
Mihain
in
British Liver Trust
5 years ago
SLE from 2013
My wife (age 43) was diagnosed with SLE - Nephrotic syndrome class IV. I was on and off on Wysolene (5mg to 40 mg at times) and Immutil 360 (4 times a day) However, in remission the doses have reduced. Last 2-3 months my general physician stopped all my medicines since I was in complete remission.
My wife (age 43) was diagnosed with SLE - Nephrotic syndrome class IV. I was on and off on Wysolene (5mg to 40 mg at times) and Immutil 360 (4 times a day) However, in remission the doses have reduced. Last 2-3 months my general physician stopped all my medicines since I was in complete remission.
sam9
in
LUPUS UK
5 years ago
Adrenal fatigue - a chronic or reversible condition?
I have been asking myself a lot of question lately about adrenal fatigue and the best way to treat it: I was diagnosed with adrenal fatigue in late 2011, by a so called Hertoghe doctor in Belgium who used blood and 24 h urine analyses to diagnose it. At the time, I had spent 11 years on thyroxine without
I have been asking myself a lot of question lately about adrenal fatigue and the best way to treat it: I was diagnosed with adrenal fatigue in late 2011, by a so called Hertoghe doctor in Belgium who used blood and 24 h urine analyses to diagnose it. At the time, I had spent 11 years on thyroxine without
Hidden
in
Thyroid UK
5 years ago
Recurring pericarditis
I’ve had recurring pericarditis for almost 7 years. I’m treated as having an autoimmune disease as if I have rheumatoid arthritis. I have “flare ups” almost every month, or 6 weeks at the longest. Every time I have a flare I use a medrol dose pack to get the pain back under control. I’ve tried prednisone
I’ve had recurring pericarditis for almost 7 years. I’m treated as having an autoimmune disease as if I have rheumatoid arthritis. I have “flare ups” almost every month, or 6 weeks at the longest. Every time I have a flare I use a medrol dose pack to get the pain back under control. I’ve tried prednisone
ershrussia
in
Cure Arthritis Community
5 years ago
Update about my treatment and current status!
So as I had mentioned in the last post I was diagnosed with ITP 2 months back and being the the hospital for a week and on 1g of solumedrol for 3 days my platelets came to 74k after the discharge I was put on 40mg of prednisolone for a month and my platelets remained in 35-45k after that my doctor lowered
So as I had mentioned in the last post I was diagnosed with ITP 2 months back and being the the hospital for a week and on 1g of solumedrol for 3 days my platelets came to 74k after the discharge I was put on 40mg of prednisolone for a month and my platelets remained in 35-45k after that my doctor lowered
Harshankolekar
in
ITP Support Association
5 years ago
Boils and Abscesses
Hi I Suffer From APS Hughes Syndrome, approximately last 1-2 years I’ve been having Awful Boils and Abscesses mainly on Buttocks and Back , All range from Big to little, Some are full of blood others are quite small in size and mimic ackee , Just wondered if other patients suffer these, just been to
Hi I Suffer From APS Hughes Syndrome, approximately last 1-2 years I’ve been having Awful Boils and Abscesses mainly on Buttocks and Back , All range from Big to little, Some are full of blood others are quite small in size and mimic ackee , Just wondered if other patients suffer these, just been to
Markgammon06
in
Hughes Syndrome APS Forum
5 years ago
T3 and insulin resistance?
I have been diagnosed with insulin resistance (fasting blood glucose and insulin levels in range but close to upper normal limit). Symptoms are difficulty losing weight (I'm overweight), cravings and increased appetite. My doctor suggested Metformin, but I preferred to try a supplement instead and opted
I have been diagnosed with insulin resistance (fasting blood glucose and insulin levels in range but close to upper normal limit). Symptoms are difficulty losing weight (I'm overweight), cravings and increased appetite. My doctor suggested Metformin, but I preferred to try a supplement instead and opted
Hidden
in
Thyroid UK
5 years ago
Prescription cortisone for adrenal fatigue?
I'd really appreciate some feedback on this. Diagnosed with adrenal fatigue by Hertoghe doctor in Belgium in 2011 (using 24 h urine analysis). Put on 4 mg of Medrol and told I could raise to 6 or even 8 mg daily if needed; apparently, 8 mg daily is the equivalent of 40 mg of bioidentical hydrocortisone
I'd really appreciate some feedback on this. Diagnosed with adrenal fatigue by Hertoghe doctor in Belgium in 2011 (using 24 h urine analysis). Put on 4 mg of Medrol and told I could raise to 6 or even 8 mg daily if needed; apparently, 8 mg daily is the equivalent of 40 mg of bioidentical hydrocortisone
Hidden
in
Thyroid UK
5 years ago
Update after a very long week
I have not been able to see my GP since the negative TAB and the surgeon’s recommendation to still treat me clinically. I had a very bad week, terrible hip/pelvic pain couldn’t turn over or get up from bed, sensative and painful shoulders at top of arms, bad bad headache in the temple and jaw pain ..
I have not been able to see my GP since the negative TAB and the surgeon’s recommendation to still treat me clinically. I had a very bad week, terrible hip/pelvic pain couldn’t turn over or get up from bed, sensative and painful shoulders at top of arms, bad bad headache in the temple and jaw pain ..
Boozsa
in
PMRGCAuk
5 years ago
TMJ Misery
Greetings all. I am new on this website. I have had severe TMJ problems for many years now, since age about 10. I am 55 now. 5 years of braces were an attempt with no help. I have just completed a Medrol treatment and am taking Carbamazepine. Narcotics do not help much, only a bandaid anyway.
Greetings all. I am new on this website. I have had severe TMJ problems for many years now, since age about 10. I am 55 now. 5 years of braces were an attempt with no help. I have just completed a Medrol treatment and am taking Carbamazepine. Narcotics do not help much, only a bandaid anyway.
ocpoolsys
in
Fibromyalgia Action UK
6 years ago
Pain
So, I want to understand this disease and what others are feeling. I have been taking Medrol for about four months now, started at 15 and reduced too fast and went up to 24, and have been on a slow taper ever since. Now down to 17mg. At 20-24 I was almost pain free, but not really. I just felt so much
So, I want to understand this disease and what others are feeling. I have been taking Medrol for about four months now, started at 15 and reduced too fast and went up to 24, and have been on a slow taper ever since. Now down to 17mg. At 20-24 I was almost pain free, but not really. I just felt so much
Manchild
in
PMRGCAuk
6 years ago
Methotrexate while on Methadone treatment. I need advice.
Has anyone ever taken Methotrexate while on methadone treatment I currently take 75 mg of methadone liquid oral once-daily I was prescribed methotrexate 2.5 mg six tablets once per week for sarcoidosis my question is has anyone else taken Methotrexate while on methadone treatment because I am concerned
Has anyone ever taken Methotrexate while on methadone treatment I currently take 75 mg of methadone liquid oral once-daily I was prescribed methotrexate 2.5 mg six tablets once per week for sarcoidosis my question is has anyone else taken Methotrexate while on methadone treatment because I am concerned
Hidden
in
NRAS
6 years ago
Flare
I ave only been taking Medrol for about three months, and because of the idiocy of my Rheumy, who had me taper to quickly, I have already had two flares. I was ok on 18 mg but flared at 16mg. Took myself back to 20mg at which I am ok. Not totally pain free, but ok. I have been taking the higher dose
I ave only been taking Medrol for about three months, and because of the idiocy of my Rheumy, who had me taper to quickly, I have already had two flares. I was ok on 18 mg but flared at 16mg. Took myself back to 20mg at which I am ok. Not totally pain free, but ok. I have been taking the higher dose
Manchild
in
PMRGCAuk
6 years ago
Sulfasalazine, feeling much worse
I started three weeks ago. My health and symotons are much worse now. Feel like my health is declining and in a full on flare with hands curling again. Only other drug is depo medrol shot. Is this normal that it gets worse before it gets better?
I started three weeks ago. My health and symotons are much worse now. Feel like my health is declining and in a full on flare with hands curling again. Only other drug is depo medrol shot. Is this normal that it gets worse before it gets better?
Debra6590
in
NRAS
6 years ago
Hello everyone
I have been here for just a couple of days, am still finding my way around. I was diagnosed with RRMS in 1994 and was doing very good up until about 6 years ago. That is when I had to quit work and go on disability. I have a wonderful neuro who has been with me since the start of my journey. Since becoming
I have been here for just a couple of days, am still finding my way around. I was diagnosed with RRMS in 1994 and was doing very good up until about 6 years ago. That is when I had to quit work and go on disability. I have a wonderful neuro who has been with me since the start of my journey. Since becoming
dearydear57
in
My MSAA Community
6 years ago
Urgent help needed for "leaky" legs!
Good morning! My husband, who has heart failure, and also has bilateral osteoarthritis of the knees, was diagnosed with cellulitis in June. Since then, he's had perpetually "leaky" legs, and is currently on his fifth course of antibiotics. I dress his legs twice a day for him, using Dermol cream,
Good morning! My husband, who has heart failure, and also has bilateral osteoarthritis of the knees, was diagnosed with cellulitis in June. Since then, he's had perpetually "leaky" legs, and is currently on his fifth course of antibiotics. I dress his legs twice a day for him, using Dermol cream,
Hollysmum
in
British Heart Foundation
6 years ago
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