Solumedrol joy

[KelliJ]

I'm experiencing all of the joys of solumedrol. I'm sitting in my living room at 2 am after my first of 3 solumedrol treatments. I always have a relapse in the spring (if it would ever stop raining here in Utah long enough for spring to arrive). Not sure why solumedrol makes the pain in my legs so intense before it improves in a week. I find it interesting how your whole focus can completely center on one part of your body, no matter how much meditating or distraction you try.

But tomorrow I will put on my happy 😊 face and attend my granddaughter's preschool graduation followed by treatment 2, then on Friday that 😊 will come out again while I go to treatment 3 followed by my grandson's elementary school graduation. Did I mention that I'm really good at fooling people into believing I feel great? I find that if I tell people how I really feel, I just end up consoling them instead.

I don't write on this blog often, but I promise to write a more positive post using my normal personality next time. Thanks for listening.

[Ali_B62]

You can vent all you like in this group, not a problem! ☺

[bxrmom]

When I have had solumendaral in the past, I was either VERY tired or had lots of energy. The last time I had solumendaral it made me really tired and instead of going to bed, I decided to sleep on the couch (love seat was all I had at the time) and later I got a blood clot most likely from sleeping on the love seat instead of my bed That's what I got for being too lazy to get up and go to my bed

[Lilith08 in reply to bxrmom]

Oh! Was the clot in your leg? I’ve only had Solumedrol once (a five-day event) but I developed a small clot in my arm from the IV. Not fun.

[bxrmom in reply to Lilith08]

Yes, in my left leg (dvt - deep vein thrombosis). Ever since then, it is the leg that gets the most painful spasticity. Before the clot, I really didn't have much spasticity

[Lilith08 in reply to bxrmom]

Yikes. DVT is serious stuff.

[Lilith08]

Good job staying engaged in your grandkids’ big events! I’m sorry you’re feeling crappy, though. Take care of yourself.

[goatgal]

I hate solumedrol. I can feel it traveling through my system and it leaves a metallic taste in my mouth. It also makes me very tired.

[bxrmom in reply to goatgal]

The metallic taste is the worst...always brought mountain dew with me when I was getting it...helped keep the taste out of my mouth. Also brought hard candy.