Search
Search
About
Log in
Join
Experiences with
Detrol
Posts
Communities
358 public posts
Filter results
Knee problems
I have had PMR for about five years and it is reasonably well controlled with 5mg of Medrol. Recently I have been having problems with swollen and sore knees. I am slightly overweight, probably due to the cortisone and two relatively recent ankle operations which left me with very limited mobility for
I have had PMR for about five years and it is reasonably well controlled with 5mg of Medrol. Recently I have been having problems with swollen and sore knees. I am slightly overweight, probably due to the cortisone and two relatively recent ankle operations which left me with very limited mobility for
Loco99
in
PMRGCAuk
6 years ago
Statin use/cholesterol management during venetoclax
Has anyone had to use statins/cholestorol reducing meds during venetoclax? In particular has anyone used ezetrol or crestor? My Dad was on statins prior to commencing venetoclax and he is hoping to continue with the statins if they will not cause any trouble.
Has anyone had to use statins/cholestorol reducing meds during venetoclax? In particular has anyone used ezetrol or crestor? My Dad was on statins prior to commencing venetoclax and he is hoping to continue with the statins if they will not cause any trouble.
jaye0
in
CLL Support
6 years ago
Need tapering off steroid support
Hi, I have been on Medrol ( similar to prednisone) for two and a half years. My highest dose was 30 mg. I am in the process of tapering off very slowly and would really like to hear your taper stories. I have many of the withdrawal symptoms that are listed and some that are not like swollen ankles and
Hi, I have been on Medrol ( similar to prednisone) for two and a half years. My highest dose was 30 mg. I am in the process of tapering off very slowly and would really like to hear your taper stories. I have many of the withdrawal symptoms that are listed and some that are not like swollen ankles and
sara1215
in
NRAS
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
I’d like to introduce myself
New here and want to share my history with you. On Dec 2015 went to primary doctor due to sore throat and while there told him “oh by the way, my index finger is swollen and really hurts.” Sent me to a rheumatologist who thought I had psoriatic arthritis ( I have2 brothers with that) and started me
New here and want to share my history with you. On Dec 2015 went to primary doctor due to sore throat and while there told him “oh by the way, my index finger is swollen and really hurts.” Sent me to a rheumatologist who thought I had psoriatic arthritis ( I have2 brothers with that) and started me
sara1215
in
NRAS
6 years ago
Can prednisone cause hives.
A few days ago when taking my daily dose of 25 mg prednisone I started to feel panicky, complete with the feeling of chest tightness and some difficulty swallowing. At first I dismissed it, knowing prednisone can cause panic attacks and I am prone to them. Next day same symptoms, but noticed hives in
A few days ago when taking my daily dose of 25 mg prednisone I started to feel panicky, complete with the feeling of chest tightness and some difficulty swallowing. At first I dismissed it, knowing prednisone can cause panic attacks and I am prone to them. Next day same symptoms, but noticed hives in
Skenjin
in
NRAS
6 years ago
Question about New Pain(s) with CPS
Hello, This is long and complicated, but I am hopeful for advice for next move. I'm experiencing a new pain; a neck/throat pain. It is a sharp cutting pain and sometimes excruciating. The x-ray came back as degenerative C3, C4, and C5. My doctor has offered no solution and referred me to pain management
Hello, This is long and complicated, but I am hopeful for advice for next move. I'm experiencing a new pain; a neck/throat pain. It is a sharp cutting pain and sometimes excruciating. The x-ray came back as degenerative C3, C4, and C5. My doctor has offered no solution and referred me to pain management
redeyes2
in
Pain Concern
6 years ago
Finally
No lupus RRMS had my fst series of solumedrol it's kicking my ass with late side effects but at least I know what expect next time. This will explain all the problems I've been experiencing. Good luck to all of you and thanks for the support.
No lupus RRMS had my fst series of solumedrol it's kicking my ass with late side effects but at least I know what expect next time. This will explain all the problems I've been experiencing. Good luck to all of you and thanks for the support.
I814u24u
in
LUPUS UK
6 years ago
Finally
After almost three years and multiple doctors I finally have a diagnoses of RRMS. Now they want do genetic testing for what I don't know, it's expensive and I'm not going to pay for it. I get my first round of solumedrol Monday. Wish me luck. It's got allot of side effects. I'm very apprehensive
After almost three years and multiple doctors I finally have a diagnoses of RRMS. Now they want do genetic testing for what I don't know, it's expensive and I'm not going to pay for it. I get my first round of solumedrol Monday. Wish me luck. It's got allot of side effects. I'm very apprehensive
I814u24u
in
LUPUS UK
6 years ago
Lots of veins
I've been on medrol for over a year. I've noticed the skin on my hands has thi nes and my veins now show. My hands appear older than the rest of me. Also lots of spider veins on my face and legs. I'm hoping to get off medrol at some point. Will the spider veins on my face disappear after I'm off
I've been on medrol for over a year. I've noticed the skin on my hands has thi nes and my veins now show. My hands appear older than the rest of me. Also lots of spider veins on my face and legs. I'm hoping to get off medrol at some point. Will the spider veins on my face disappear after I'm off
Kdbarnes
in
NRAS
6 years ago
Exacerbation
I know there are many knowledgable people on this site so I'm hoping somebody can help. I have stage 4 emphysema. Cutting a long story short grandson came over with bad cough and 4 days later I develop a cough and the next day I was so sob I could hardly talk. Went to local GP who said chest infection
I know there are many knowledgable people on this site so I'm hoping somebody can help. I have stage 4 emphysema. Cutting a long story short grandson came over with bad cough and 4 days later I develop a cough and the next day I was so sob I could hardly talk. Went to local GP who said chest infection
CyprusPat
in
Lung Conditions Community Forum
6 years ago
LUNG INVOLEMENT IN CFS/FIBRO
Hi, My name is Nancy and I am new here. Have had fibro/cfs for 30 yrs Things have changed … Now I am having swallowing disorder. Had barium swallow/ manometry...all tests show that my esophagus has little motility. So I cough to the point of going to ER, and prednisone and IV solumedrol help to stop
Hi, My name is Nancy and I am new here. Have had fibro/cfs for 30 yrs Things have changed … Now I am having swallowing disorder. Had barium swallow/ manometry...all tests show that my esophagus has little motility. So I cough to the point of going to ER, and prednisone and IV solumedrol help to stop
JChris
in
Fibromyalgia Action UK
6 years ago
asking for help finding a doctor in Reading
Good day! I have lupus Nephritis. I have plans on visiting UK this coming July, I just wanted to know if you guys have idea how much this medicines will cost in UK? I am taking Cycloposporine, medrol, and hydroxycloquine, and I wanted to ask if you can recommend where I can see a doctor for Lupus in
Good day! I have lupus Nephritis. I have plans on visiting UK this coming July, I just wanted to know if you guys have idea how much this medicines will cost in UK? I am taking Cycloposporine, medrol, and hydroxycloquine, and I wanted to ask if you can recommend where I can see a doctor for Lupus in
jessa08
in
LUPUS UK
6 years ago
GETTING BETTER ALL THE TIME! TOO GOOD TO BE TRUE? VACULITIS, PMR/GCA??
Hi to All, My diagnosis has never been entirely clear. Antibodies to PR3 at 1.6 in September, 2016; given diagnosis of C- ANCA vasculitis, but no lung or kidney involvement that I could feel or see. I have always thought symptoms were PMR, (with family history of my maternal grandmother having had it
Hi to All, My diagnosis has never been entirely clear. Antibodies to PR3 at 1.6 in September, 2016; given diagnosis of C- ANCA vasculitis, but no lung or kidney involvement that I could feel or see. I have always thought symptoms were PMR, (with family history of my maternal grandmother having had it
Christophene47
in
Vasculitis UK
6 years ago
I can’t get relief from costochondritis
can’t take nsaids . I’m on tramadol (already on it for fibromyalgia) muscle relaxants and now gabapentin and lidocaine patches. I want to die ! This is terrible pain I get severe sternal chest tightness abs then my back feels like it will collapse. I was initially diagnosed with pericarditis ( now resolved
can’t take nsaids . I’m on tramadol (already on it for fibromyalgia) muscle relaxants and now gabapentin and lidocaine patches. I want to die ! This is terrible pain I get severe sternal chest tightness abs then my back feels like it will collapse. I was initially diagnosed with pericarditis ( now resolved
Nickel38
in
Fibromyalgia Action UK
6 years ago
I can’t get relief from costochondritis
. I can’t take nsaids . I’m on tramadol (already on it for fibromyalgia) muscle relaxants and now gabapentin and lidocaine patches. I want to die ! This is terrible pain I get severe sternal chest tightness abs then my back feels like it will collapse. I was initially diagnosed with pericarditis ( now
. I can’t take nsaids . I’m on tramadol (already on it for fibromyalgia) muscle relaxants and now gabapentin and lidocaine patches. I want to die ! This is terrible pain I get severe sternal chest tightness abs then my back feels like it will collapse. I was initially diagnosed with pericarditis ( now
Nickel38
in
My Fibro Community
6 years ago
MS giving flu like symptoms
Hi everyone, I was wondering if anyone ever feels like they have the flu but really don’t? In the past I’ve realized that I start to have flu like symptoms prior & during a relapse which is not fun at all. The last several days my head feel heavy, I have a constant headache or dull pain behind my eyes
Hi everyone, I was wondering if anyone ever feels like they have the flu but really don’t? In the past I’ve realized that I start to have flu like symptoms prior & during a relapse which is not fun at all. The last several days my head feel heavy, I have a constant headache or dull pain behind my eyes
Eveliz
in
My MSAA Community
6 years ago
i was admitted with 4000 platelet count!!!
2 years back 2016 jaundice hepatatis A striked me den through it the bilribrium level reached to 51 count and then my haemglobin level came down to 4 frm 13 or 11. i was admitted and transfused blood twice.and was given treatment for autoimmuno disease and jaundice i was given predinasolone from 60mg
2 years back 2016 jaundice hepatatis A striked me den through it the bilribrium level reached to 51 count and then my haemglobin level came down to 4 frm 13 or 11. i was admitted and transfused blood twice.and was given treatment for autoimmuno disease and jaundice i was given predinasolone from 60mg
Platelet4000
in
ITP Support Association
6 years ago
Having PMR Is Like Dancing With A Gorilla……..
The dance isn’t over until the gorilla decides it’s over. On August 25, 2017, I began a treatment regimen which included weekly injections of depo-medrol that provided me with an average of 11.4 mg per day. Ten months later, I had tapered my daily dose to approximately 3.3 mg and switched over to 4.0
The dance isn’t over until the gorilla decides it’s over. On August 25, 2017, I began a treatment regimen which included weekly injections of depo-medrol that provided me with an average of 11.4 mg per day. Ten months later, I had tapered my daily dose to approximately 3.3 mg and switched over to 4.0
Admiral06
in
PMRGCAuk
6 years ago
Introductions
Hello! I’m Ali, recently (January) diagnosed with progressive relapsing MS. It’s been a huge learning curve to manage the slew of symptoms and my new normal. But it’s worth the fight when I’m enjoying time doing something I love. I am married to a wonderful Navy sailor and we have 2 kids. Ryan is 12
Hello! I’m Ali, recently (January) diagnosed with progressive relapsing MS. It’s been a huge learning curve to manage the slew of symptoms and my new normal. But it’s worth the fight when I’m enjoying time doing something I love. I am married to a wonderful Navy sailor and we have 2 kids. Ryan is 12
alimitchell1
in
My MSAA Community
6 years ago
What can I expect at first Rheumy appt?
Hi all! I’m usually on the MS board but it turns out I probably have RA as well. Both my knees puffed up so bad 2 weeks ago I coundn’t even stand, much less walk. I got a steroid shot and some medrol for 5 days. Since then my wrists, ankles, finger and toes have been very painful and sometimes puffy.
Hi all! I’m usually on the MS board but it turns out I probably have RA as well. Both my knees puffed up so bad 2 weeks ago I coundn’t even stand, much less walk. I got a steroid shot and some medrol for 5 days. Since then my wrists, ankles, finger and toes have been very painful and sometimes puffy.
Qt314grl
in
NRAS
6 years ago
1
...
6
7
8
...
18
Next page
10
Filter results
Clear filters
Posted in
All communities
PMRGCAuk
88 results
Thyroid UK
78 results
My MSAA Community
45 results
View top 10 communities
Sort by
Most Relevant
Newest