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Trying to cope…
In October 2021, my dad was diagnosed with a terminal Glioblastoma. In the same week, we also found out my mum had bowel cancer. Both underwent a operation. Mum is now hopefully all clear and hasn’t needed any chemo. Dad hasn’t been as lucky and now lives in a care home, receiving palliative care. I’
In October 2021, my dad was diagnosed with a terminal Glioblastoma. In the same week, we also found out my mum had bowel cancer. Both underwent a operation. Mum is now hopefully all clear and hasn’t needed any chemo. Dad hasn’t been as lucky and now lives in a care home, receiving palliative care. I’
Shanice1997
in
Glioblastoma Support
3 years ago
tapering of steroids while on hydrocortisone
Hi all Further to my last post, GP went ahead with the endocrinologist plan to taper me off my daily 5mg Pred to try and get my adrenal glands working again! I started to take hydrocortisone tablets 2x10mg a day yesterday and 4mg of Pred. All through yesterday I felt much less tired and washed out and
Hi all Further to my last post, GP went ahead with the endocrinologist plan to taper me off my daily 5mg Pred to try and get my adrenal glands working again! I started to take hydrocortisone tablets 2x10mg a day yesterday and 4mg of Pred. All through yesterday I felt much less tired and washed out and
ccccc
in
Asthma Community Forum
3 years ago
When to take Thyroxine advice please
Hi everyone, I’ve been taking my thyroxine (100/125), with all my morning meds + tiny bit of food, followed by breakfast 60-90 minutes later for 10 years and my endo says this is fine. I can’t say I’ve ever felt the thyroxine’s made any difference, and lately other major health problems have begun
Hi everyone, I’ve been taking my thyroxine (100/125), with all my morning meds + tiny bit of food, followed by breakfast 60-90 minutes later for 10 years and my endo says this is fine. I can’t say I’ve ever felt the thyroxine’s made any difference, and lately other major health problems have begun
Mitsy123
in
Thyroid UK
3 years ago
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A big thank you to all pmr sufferers who have supported me.
I haven't been of line for a few days, i thought it best to rest for a while. I was in a bad place but it was reading your kind and supportive posts that helped me through. This is a block thank you to all you lovely people. I would like to answer some of the questions you asked. i have been on
I haven't been of line for a few days, i thought it best to rest for a while. I was in a bad place but it was reading your kind and supportive posts that helped me through. This is a block thank you to all you lovely people. I would like to answer some of the questions you asked. i have been on
mustcarryon
in
PMRGCAuk
3 years ago
thanks to all....and curious about palliative care?
thanks so much to all of you for your thoughtful and caring replies. you are an amazing group of women, but i already knew that! yesterday i gave an overview...a lengthy one at that...lol. today i will be more specific.... the deterioration of my spine is progressing rapidly the past couple months.
thanks so much to all of you for your thoughtful and caring replies. you are an amazing group of women, but i already knew that! yesterday i gave an overview...a lengthy one at that...lol. today i will be more specific.... the deterioration of my spine is progressing rapidly the past couple months.
kokopelli2017
in
SHARE Metastatic Breast Cancer
3 years ago
Rock on Cabazitaxel!!
Dx 18 months ago, becoming mCRPC after only 6 months on ADT, failing abiraterone , failing docetaxel and failing Lu 177 my husband was running out of options. He was in a lot of pain with a soaring PSA - things were looking grim. We had our first visit from the palliative care team two weeks ago. We
Dx 18 months ago, becoming mCRPC after only 6 months on ADT, failing abiraterone , failing docetaxel and failing Lu 177 my husband was running out of options. He was in a lot of pain with a soaring PSA - things were looking grim. We had our first visit from the palliative care team two weeks ago. We
Crummy64
in
Advanced Prostate Cancer
3 years ago
Hydrocortisone 5mg ??
Hi All, So my GP have finally accepted I have adrenal fatigue. I was prescribed 5mg of hydrocortisone every morning until I see the endo in mid march. My question is I'm already on LDN (private) I haven't disclosed that to them. I really struggle to get out of bed , still so tried and often have
Hi All, So my GP have finally accepted I have adrenal fatigue. I was prescribed 5mg of hydrocortisone every morning until I see the endo in mid march. My question is I'm already on LDN (private) I haven't disclosed that to them. I really struggle to get out of bed , still so tried and often have
Maya_83
in
Thyroid UK
3 years ago
Adrenal suppression
Hi everyone I was put on 5mg Pred in 2020 due my asthma flaring up after several emergency courses (actually think it was Covid but no testing around at the time) and to cut a long story short my cortisol levels are now very low. Had to really push respiratory to do a short synacthen test, which came
Hi everyone I was put on 5mg Pred in 2020 due my asthma flaring up after several emergency courses (actually think it was Covid but no testing around at the time) and to cut a long story short my cortisol levels are now very low. Had to really push respiratory to do a short synacthen test, which came
ccccc
in
Asthma Community Forum
3 years ago
Covid.
I turned up positive for Covid Wednesday after taking an LFT despite living like Howard Hughes (minus the bank balance) for two years. I am on Methotrexate, Prednisolone, Hydrocortisone and Tocilizumab yet despite that lot throwing the gates wide open in terms of having any immune defence they are some
I turned up positive for Covid Wednesday after taking an LFT despite living like Howard Hughes (minus the bank balance) for two years. I am on Methotrexate, Prednisolone, Hydrocortisone and Tocilizumab yet despite that lot throwing the gates wide open in terms of having any immune defence they are some
AncientMariner
in
PMRGCAuk
3 years ago
Clinical trials for Richter's transformation
Hello. I would like to ask if you know of any current clinical trials for patients with Richter's Transformation who have already reached the Car-T and it did not work for them. We have in our group a very young 22-year-old boy whose Car-Ts didn't work for him in the UK. They have told him that they
Hello. I would like to ask if you know of any current clinical trials for patients with Richter's Transformation who have already reached the Car-T and it did not work for them. We have in our group a very young 22-year-old boy whose Car-Ts didn't work for him in the UK. They have told him that they
Priss69
in
CLL Support
3 years ago
Primrose123
Has anyone been prescribed 20mg Hydrocortisone tablets per day /10mg morning 5 mg lunchtime. & 5mg evening for asthma & if so have they had any side effects? All answers& advice warmly received..Thank you..
Has anyone been prescribed 20mg Hydrocortisone tablets per day /10mg morning 5 mg lunchtime. & 5mg evening for asthma & if so have they had any side effects? All answers& advice warmly received..Thank you..
primrose123
in
Asthma Community Forum
3 years ago
Biopsy in intervention radiology
I'm 77 years old, was diagnosed with Stage 3c in February 2017. I went through 2 rounds of chemo - was on Zejula since 3-27-20, but my CA-125 steadily climbed to 377, so my Dr. discontinued it. I had a CT scan on 1-7-22 because I felt bloated most of the time, especially after eating. The scan showed
I'm 77 years old, was diagnosed with Stage 3c in February 2017. I went through 2 rounds of chemo - was on Zejula since 3-27-20, but my CA-125 steadily climbed to 377, so my Dr. discontinued it. I had a CT scan on 1-7-22 because I felt bloated most of the time, especially after eating. The scan showed
lucybake
in
SHARE Ovarian Cancer Support
3 years ago
Stage 4 Prostate Cancer, Quadruple bypass, & now a brain tumor!
Hello health unlocked friends! It's been a while since I posted here. I wanted to give an update. For a while my dad was doing pretty well, managing his stage 4 PC with Xtandi and Lupron and then August came and pretty much everything came undone. In August dad told me he was having some pain in his
Hello health unlocked friends! It's been a while since I posted here. I wanted to give an update. For a while my dad was doing pretty well, managing his stage 4 PC with Xtandi and Lupron and then August came and pretty much everything came undone. In August dad told me he was having some pain in his
Lynsi13
in
Advanced Prostate Cancer
3 years ago
Saw my Endo bloke today ..............
Yeah , seems like a good bloke too ............... A lot of questions from him, He said this could be a challenge........... So, the short story is .........stop pred ........start hydrocortisone.............. Going away for a couple of weeks to see our son and his wife......so, not wanting to start
Yeah , seems like a good bloke too ............... A lot of questions from him, He said this could be a challenge........... So, the short story is .........stop pred ........start hydrocortisone.............. Going away for a couple of weeks to see our son and his wife......so, not wanting to start
billydownunder
in
PMRGCAuk
3 years ago
My latest very sad news
I posted on here quite some time ago. My beloved husband had been on immunotherapy (Keytruda) for lung cancer. He was doing so well - until he developed meningitis and was taken off the programme. He was out on steroids. He was observed and had MRI scans. Six months later he went on to chemotherapy.
I posted on here quite some time ago. My beloved husband had been on immunotherapy (Keytruda) for lung cancer. He was doing so well - until he developed meningitis and was taken off the programme. He was out on steroids. He was observed and had MRI scans. Six months later he went on to chemotherapy.
yellowtulip55
in
The Roy Castle Lung Cancer Foundation
3 years ago
Petition Deadline!! (Re; Liothyronine T3 and other generic drugs)
The deadline to sign this petition is approaching! Please sign and share the petition via the link below to “Create a publicly owned manufacturer for off-patent, generic drugs in the UK”. (Such as hydrocortisone, liothyronine or insulin). After clicking on the ‘Parliament Petition’ link via this
The deadline to sign this petition is approaching! Please sign and share the petition via the link below to “Create a publicly owned manufacturer for off-patent, generic drugs in the UK”. (Such as hydrocortisone, liothyronine or insulin). After clicking on the ‘Parliament Petition’ link via this
limonene7
in
Thyroid UK
3 years ago
Update on Brother
I wrote a week or so ago about my older brother. He has since been released from the Hospital they are recommending Skilled Nursing or Home Care but he is refusing. At a minimum we have tried to push for Palliative Care and again he refuses. I worry about him as he live alone in a tiny camper and
I wrote a week or so ago about my older brother. He has since been released from the Hospital they are recommending Skilled Nursing or Home Care but he is refusing. At a minimum we have tried to push for Palliative Care and again he refuses. I worry about him as he live alone in a tiny camper and
Jag9380
in
British Liver Trust
3 years ago
Synactthen test
Could anyone give me a fuller explanation of the following please . I have just had the medical report for the Synacthen test that they i recently had at my local hospital. It states that “my baseline cortisol was 248 and that the 30 min cortisol was 369 implying that this was a sub-optimal test therefore
Could anyone give me a fuller explanation of the following please . I have just had the medical report for the Synacthen test that they i recently had at my local hospital. It states that “my baseline cortisol was 248 and that the 30 min cortisol was 369 implying that this was a sub-optimal test therefore
Johnone1940
in
PMRGCAuk
3 years ago
My Addisons disease (adrenal insufficiency)
Hi. I am 59 later this month and in January this year I was diagnosed with Addisons disease. I've been in prednisolone oral tablets for the last 6/7 years to control my asthma. Every time I had a chest infection they would give me antibiotics and up my steroids. It got to the point my lungs couldn't
Hi. I am 59 later this month and in January this year I was diagnosed with Addisons disease. I've been in prednisolone oral tablets for the last 6/7 years to control my asthma. Every time I had a chest infection they would give me antibiotics and up my steroids. It got to the point my lungs couldn't
Tysonsmum
in
Thyroid UK
3 years ago
Chronic Balanitis Practical Home Remedies
Chronic Balanitis is not only physically debilitating but also a highly psychological stress and depression causing condition. When suffered frequent flare-ups, it not only affects the sufferer but also mentally affect the whole family and friends. Some statistics infer that the condition is suffered
Chronic Balanitis is not only physically debilitating but also a highly psychological stress and depression causing condition. When suffered frequent flare-ups, it not only affects the sufferer but also mentally affect the whole family and friends. Some statistics infer that the condition is suffered
Hcures
in
Men's Health Forum (Penis Health)
3 years ago
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