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BREAKING NEWS. New Draft Guidelines by American Sleep Academy for RLS
https://www.relacshealth.com/media?ss_source=sscampaigns&ss_campaign_id=65f0805ba96cc4630a4616b5&ss_email_id=65f0fe1e0dc01b00c518c64f&ss_campaign_name=Big+News%21+2024+AASM+Guidelines+for+RLS+Have+Been+Released&ss_campaign_sent_date=2024-03-13T01%3A15%3A13Z https://aasm.org/aasm-invites-public-comment-on-draft-guideline-for-the-treatment-of-restless-legs-syndrome-and-periodic-limb-movement-disorder
https://www.relacshealth.com/media?ss_source=sscampaigns&ss_campaign_id=65f0805ba96cc4630a4616b5&ss_email_id=65f0fe1e0dc01b00c518c64f&ss_campaign_name=Big+News%21+2024+AASM+Guidelines+for+RLS+Have+Been+Released&ss_campaign_sent_date=2024-03-13T01%3A15%3A13Z https://aasm.org/aasm-invites-public-comment-on-draft-guideline-for-the-treatment-of-restless-legs-syndrome-and-periodic-limb-movement-disorder
Joolsg
in
Restless Legs Syndrome
3 months ago
The power of HIIT
Proof of concept Yale’s proof-of-concept study involved 10 patients who had been diagnosed for less than four years and hadn’t lost all their dopamine-producing neurons. They received MRI and PET scans to measure the amount of neuromelanin found in dopamine-producing neurons and the protein dopamine
Proof of concept Yale’s proof-of-concept study involved 10 patients who had been diagnosed for less than four years and hadn’t lost all their dopamine-producing neurons. They received MRI and PET scans to measure the amount of neuromelanin found in dopamine-producing neurons and the protein dopamine
Farooqji
in
Cure Parkinson's
3 months ago
Pramipexole withdrawals (Dopamine Agonist Withdrawal)
Hello I am fairly new here. I am wondering what besides restless legs can this drug cause while tapering? I cut 25% of my dose and my depression has increased immensely. Hardly able to function. I have horrible flu like symptoms like nausea and no appetite at all until late at night. I am very fatigued
Hello I am fairly new here. I am wondering what besides restless legs can this drug cause while tapering? I cut 25% of my dose and my depression has increased immensely. Hardly able to function. I have horrible flu like symptoms like nausea and no appetite at all until late at night. I am very fatigued
loloball2
in
Restless Legs Syndrome
3 months ago
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new to RLS
hi, I’ve been trying to understand what RLS is and what treatments to have. The neurologist tells me I have RLS, my symptoms are tingling sensation, sometime pins and needles in both feet and calves. I have it all day, everyday. I notice it when resting and don’t when standing and walking. My B12
hi, I’ve been trying to understand what RLS is and what treatments to have. The neurologist tells me I have RLS, my symptoms are tingling sensation, sometime pins and needles in both feet and calves. I have it all day, everyday. I notice it when resting and don’t when standing and walking. My B12
Rosecup
in
Restless Legs Syndrome
3 months ago
How do I taper .50mg pram?
I am currently on 3 very sedating drugs . Klonopin, Mirtazapine and Pramipexole. I have been on Pram for about 1 yr and feel I am only experiencing the side effects from it. I was put on it for depression and mild rls. I don’t worry about my sleep as the other 2 drugs really knock me out when I take
I am currently on 3 very sedating drugs . Klonopin, Mirtazapine and Pramipexole. I have been on Pram for about 1 yr and feel I am only experiencing the side effects from it. I was put on it for depression and mild rls. I don’t worry about my sleep as the other 2 drugs really knock me out when I take
loloball2
in
Restless Legs Syndrome
4 months ago
DA withdrawal
I'm in the U.S. Last Oct, I attended the RLS Foundation's annual patient conference in Baltimore, Maryland. Speakers included many of the scientists mentioned in this forum - Berkowski, Earley, Buchfuhrer (also called Dr. B), and more. At that time, I was taking pramipexole ER. All the patients begged
I'm in the U.S. Last Oct, I attended the RLS Foundation's annual patient conference in Baltimore, Maryland. Speakers included many of the scientists mentioned in this forum - Berkowski, Earley, Buchfuhrer (also called Dr. B), and more. At that time, I was taking pramipexole ER. All the patients begged
Debra626
in
Restless Legs Syndrome
4 months ago
Pramipexole
I was diagnosed with PD ten years ago, bradykenesia, facial mask, no left arm swing and now both aren't in time, no tremor. Have anxiety/looping thoughts and general low mood. Have a physical job and have been able to carry on but this year festination developed, walking often turns into running short
I was diagnosed with PD ten years ago, bradykenesia, facial mask, no left arm swing and now both aren't in time, no tremor. Have anxiety/looping thoughts and general low mood. Have a physical job and have been able to carry on but this year festination developed, walking often turns into running short
grower
in
Parkinson's New Zealand
4 months ago
Citicoline: "patients treated with citicoline experienced a significant worsening 45 days after the medication was discontinued". Updated.
This statement appears in a review that was published here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10548481/ It is attributed to a study published in a book on citicoline in 1985. I've been unable to locate a copy of this book either online, for sale or to borrow from a library. Book: Zappia
This statement appears in a review that was published here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10548481/ It is attributed to a study published in a book on citicoline in 1985. I've been unable to locate a copy of this book either online, for sale or to borrow from a library. Book: Zappia
park_bear
in
Cure Parkinson's
4 months ago
Restless legs
Hi im a 67 yr female and live in the uk . I was diagnosed in London privately over 30 yrs ago and since then have been on dopamine agonists , when things got bad I just changed Dop Ag . I was also under a rls specialist in Bath who when I had a problem just upped my dose! When I queried augmentation
Hi im a 67 yr female and live in the uk . I was diagnosed in London privately over 30 yrs ago and since then have been on dopamine agonists , when things got bad I just changed Dop Ag . I was also under a rls specialist in Bath who when I had a problem just upped my dose! When I queried augmentation
Huntingleroy
in
Restless Legs Syndrome
4 months ago
dopamine pump
hi I was wondering if this new levodopa pump can give more stable levels of the medicine instead of using it in advance stages of Parkinson why shouldn't,t ,t they use it earlier??
hi I was wondering if this new levodopa pump can give more stable levels of the medicine instead of using it in advance stages of Parkinson why shouldn't,t ,t they use it earlier??
Rupa88
in
Cure Parkinson's
4 months ago
High-intensity Exercise Can Reverse Neurodegeneration in Parkinson’s Disease
In fact, after six months of exercise, the neurons actually had grown healthier and produced stronger dopamine signals. Dopamine is a chemical that helps brain cells communicate with each other. The researchers published their findings in npj Parkinson’s Disease on February 9. https://medicine.yale.edu
In fact, after six months of exercise, the neurons actually had grown healthier and produced stronger dopamine signals. Dopamine is a chemical that helps brain cells communicate with each other. The researchers published their findings in npj Parkinson’s Disease on February 9. https://medicine.yale.edu
Farooqji
in
Cure Parkinson's
4 months ago
Another Withdrawing from Dopamine Agonist Question
Hello Everyone, It may seem over the top, but every time I post here, I feel the need to verbally genuflect to show my respect and thanks to those who are the foundation of this site. Thank you. First, the good news for me is that I have not put a Neupro patch on in 5 days! My second attempt to put
Hello Everyone, It may seem over the top, but every time I post here, I feel the need to verbally genuflect to show my respect and thanks to those who are the foundation of this site. Thank you. First, the good news for me is that I have not put a Neupro patch on in 5 days! My second attempt to put
RiversW
in
Restless Legs Syndrome
4 months ago
Patients with Parkinson’s disease (PD) report a strong craving for sweets
"Lately, studies have shown that patients with Parkinson’s disease (PD) report a strong craving for sweets and consume significantly more fast-acting carbohydrates than healthy controls.
[u]
Consuming food with a high-sugar content is assumed to lead to an increase in insulin concentration,
"Lately, studies have shown that patients with Parkinson’s disease (PD) report a strong craving for sweets and consume significantly more fast-acting carbohydrates than healthy controls.
[u]
Consuming food with a high-sugar content is assumed to lead to an increase in insulin concentration,
Bolt_Upright
in
Cure Parkinson's
4 months ago
Dopamine the problem?
This is old, but scares the crap put of me. Is dopamine and possibly c/l making things worse? Seems kinda like Dr. Sackler Bernstein is saying. My fear is mindless taking CL will burn me later... Any thoughts? https://www.science.org/content/article/dopamine-may-exacerbate-parkinsons-disease
This is old, but scares the crap put of me. Is dopamine and possibly c/l making things worse? Seems kinda like Dr. Sackler Bernstein is saying. My fear is mindless taking CL will burn me later... Any thoughts? https://www.science.org/content/article/dopamine-may-exacerbate-parkinsons-disease
stocktiki
in
Cure Parkinson's
4 months ago
Vyalev, steady levodopa/carbidopa infusion, now available in Canada
Advanced Parkinson's treatment for severe motor symptoms despite oral meds Margarida Maia, PhD avatar by Margarida Maia, PhD | February 12, 2024 A person wearing a baseball cap uses a megaphone cone to make an announcement. Vyalev, a brand name for AbbVie’s ABBV-951 (foslevodopa/foscarbidopa), is
Advanced Parkinson's treatment for severe motor symptoms despite oral meds Margarida Maia, PhD avatar by Margarida Maia, PhD | February 12, 2024 A person wearing a baseball cap uses a megaphone cone to make an announcement. Vyalev, a brand name for AbbVie’s ABBV-951 (foslevodopa/foscarbidopa), is
Thal
in
Cure Parkinson's
4 months ago
olanzapine
My husband without my knowledge was skipping some days of taking his olanzapine. He had a psychotic episode. The PA filling in for a dr was taking him off some meds (depakote) and up with others. Nothing was working so I requested a dr. He was originally on 5 mgs. The dr. Put him back on depakote and
My husband without my knowledge was skipping some days of taking his olanzapine. He had a psychotic episode. The PA filling in for a dr was taking him off some meds (depakote) and up with others. Nothing was working so I requested a dr. He was originally on 5 mgs. The dr. Put him back on depakote and
Ep0522
in
Mental Health Support
4 months ago
Off Dyskinesia-anyone else have it? What's your fix?
Approximate 11 years into taking sinemet my pharmacy started only carrying generic versions. Which I'd when I started experiencing dyskinesia when the Carbidopa/levadopa started to wear off. And was told snd treated by a movement specialist that I was over medicated and attempted to reduce my dosage
Approximate 11 years into taking sinemet my pharmacy started only carrying generic versions. Which I'd when I started experiencing dyskinesia when the Carbidopa/levadopa started to wear off. And was told snd treated by a movement specialist that I was over medicated and attempted to reduce my dosage
YOParky
in
Cure Parkinson's
4 months ago
Informative video on updated RLS guidelines
This video is a MUST see video by Dr. John Winkelman, M.D., PHD from Mass General in Boston. He explains the problems with dopamine agonists and RLS, talks at length about augmentation and how to get off the DA with the help of gabapentin, Lyrica and opioids and other pharmaceuticals. The presentation
This video is a MUST see video by Dr. John Winkelman, M.D., PHD from Mass General in Boston. He explains the problems with dopamine agonists and RLS, talks at length about augmentation and how to get off the DA with the help of gabapentin, Lyrica and opioids and other pharmaceuticals. The presentation
Deesee
in
Restless Legs Syndrome
4 months ago
addicted to C/L?
i have DBS 3.5 years ago.th DBS doing quite well during night time when i am completely off C/L feeling almost normal. when in the morning after taking 25/100 madopar when wearing off, my symptoms magnified, i become very off, my fingers jam together. so wearing off is much worse than being off, if
i have DBS 3.5 years ago.th DBS doing quite well during night time when i am completely off C/L feeling almost normal. when in the morning after taking 25/100 madopar when wearing off, my symptoms magnified, i become very off, my fingers jam together. so wearing off is much worse than being off, if
limcheeese22
in
Cure Parkinson's
5 months ago
Flip flopping TSH and recommendations for private endo please
Hello I've been hypo for 23 years. I rarely stay level for too long. October my TSH was 0.21, meds were tweaked from 125mcg mon-fri & 150 at weekends to 125mcg 7 days. January my TSH 5.05 but told stay on 125mcg for anther couple months. As i'm sure the reason most of us are on here, you understand
Hello I've been hypo for 23 years. I rarely stay level for too long. October my TSH was 0.21, meds were tweaked from 125mcg mon-fri & 150 at weekends to 125mcg 7 days. January my TSH 5.05 but told stay on 125mcg for anther couple months. As i'm sure the reason most of us are on here, you understand
Princesspeach128
in
Thyroid UK
5 months ago
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