Experiences with

Depakine

having been afflicted with RLS for over 15 yrs and I can tell you that medical specialists of all categories and so many Doctors have changed medications and confused me and themselves totally,you name it I’ve had it over many many years and on lots of occasions have been reverted to the same treatments

https://acnr.co.uk/articles/dopamine-agonists-for-restless-legs-syndrome/ A rather depressing recent article on RLS by two British neurologists from Newcastle hospital. They do at least acknowledge that iron therapy and replacing trigger medications should be first line treatment. BUT they still advise

For anyone who missed posts by Joolsg and SueJohnson about AASM's drafting work last year, there is a new Clinical Practice Guideline from the AASM advising against the use of dopamine agonists for RLS except in some exceptional circumstances, strongly recommending iron therapy, and advising for gabapentinoids

"L-theanine may help with restless legs syndrome (RLS) because it can increase GABA levels in the brain. GABA is a chemical that can help calm the brain. How it works L-theanine can be taken as a supplement or in tea. It's recommended to take it in the evening before bed. L-theanine can be taken

After 14 years on dopamine agonists (first ropinerole and now pramipexole) and the inevitable augmentation, I have been tapering off of pramipexole since last April. I am under the care of a neurologist who is educated about DAs and augmentation. I was taking 1 mg of pramipexole last April and am currently

Hi do you remember recently about Emmerdale bringing up the subject of gambling and sexulised behaviour as side effects ? I did a survey can't remember where it was from but I've had a BBC reporter wanting to talk to me about the side effects I had . Their doing a piece on it but your picture has to

I hear a lot of discussion about Dr. Laurie Mischley in this forum. She has been very helpful to me so I want to share my experience under her treatment. I am paraphrasing a letter of thanks I sent Dr Mischley recently. I have communicated with her via zoom for the last 4 years. I follow her dietary

I hear a lot of discussion about Dr. Laurie Mischley in this forum. She has been very helpful to me so I want to share my experience under her treatment. I am paraphrasing a letter of thanks I sent Dr Mischley recently. I have communicated with her via zoom for the last 4 years. I follow her

so a year after all my problems started I finally got my NHS appt with Dr Nijam Lovely bloke set my mind at rest regarding the twitching stiffness cramps etc that I wasn’t in early stages MND or Parkinson’s he was concerned my GP had put me on buprenorphine but I explained the painful damaged hip and

I'm seeing a neurologist this month after waiting for 6 years! In his letter to my Gp in response to the referral, he was suggesting l dopa. I'm guessing this is yet another dopamine agonist and wonder if anyone has experience of it?

This research is being done in Australia "Direct nose-to-brain delivery of dopamine is company’s goal Gel given directly to nasal passages might be more effective, longer lasting" By Andrea Lobo https://parkinsonsnewstoday.com/news/nose-brain-delivery-dopamine-parkinsons-company-goal/?utm_source=

This website is totally brilliant! I have learnt so much. Many thanks to all who give their time and energy to help others. Have had RLS since 2000, been on ropinerole since 2008 and, due to augmentation, am now on 7mg at night. Coping but only just. Live in UK, am in my 70s and female. Have an

I'm in the UK and recently there have been several articles in the press about the side effects of dopamine agonist, particularly compulsive behaviour. The BBC are planning to highlight people's experiences in a programme. I have been approached and I am under discussion with a journalist. I have to

Hi all, I've been very slowly tapering off Neupro for aroud 10 months and just a week ago I took my final dose which was a sixth of one miligram , down from 2 mg. I had been on the patch for around 5 years and augmented for many of those. With each reduction I have felt increased anxiety but I'm surprised

https://acrobat.adobe.com/id/urn:aaid:sc:EU:7137a930-39d8-40fe-85ed-e5d0887bcabc An interesting article in Podiatry Management. It appears that podiatrists know more about RLS than most UK medics. Maybe we should all be seeing podiatrists instead of GPs. They refer to the Mayo Clinic Algorithm , and

I have had this nearly all my life due to stresses and traumas throughout my childhood. At present I am just recovering from my 4th breakdown at the end of 2024. Still going through immense stresses and anxiety issues with lots more too follow up. My stress levels are rising constantly and I am now

I listened to the Steven Bartlett podcast with Dr Lembke on dopamine and at the very beginning I felt thrilled about the test on rats and the effect of no dopamine because it confirmed how disabling a lack of dopamine is …. Yippee…I can stop doubting my adhd diagnosis! however….as the podcast progresses

Driven by high doses of Levocarb, On a hunch, I went back to a genetic test (which dealt with Detoxification) result from 2009 that I received early in my diagnosis that was never clearly explained to me or properly documented as it turns out. It dealt with the COMT gene. What follows is the answer to

I am new to the space and the amount of information is amazing. I have read most of information from Mayo, Cleveland Clinic and a lot of info here. I am a 73 YO female and was diagnosed 12 years ago with RLS and put on Dopamine agonist at that time and have been on it ever since. I have symptoms every

I asked it "how to treat bradykinesia naturally" and his reply was "While **natural approaches** can support symptom management for bradykinesia (slow movement), it’s important to note that they should complement—not replace—medical treatment, especially if bradykinesia is linked to Parkinson’s disease