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Dessert? Think Twice!
I posted this article a while back, but it’s worth re-posting I think. When doing research on-line, I wouldn’t necessarily always use the term RLS. You might find more info by using the phrase “D2 receptors.” So, if you want to see whether severe calorie restriction might benefit RLS, use that phrase
I posted this article a while back, but it’s worth re-posting I think. When doing research on-line, I wouldn’t necessarily always use the term RLS. You might find more info by using the phrase “D2 receptors.” So, if you want to see whether severe calorie restriction might benefit RLS, use that phrase
DesertOasis
in
Restless Legs Syndrome
14 hours ago
Need Advice
I need some advice. To make a long story short, a friend went through augmentation on dopamine agonists, tapered off and Gabapentin was prescribed 600mg at 4 hrs and 2 hours before bedtime (total dose 1200mg). Additionally, hydrocodone was prescribed to relieve severe RLS and PLMD. Hydrocodone 10 mg
I need some advice. To make a long story short, a friend went through augmentation on dopamine agonists, tapered off and Gabapentin was prescribed 600mg at 4 hrs and 2 hours before bedtime (total dose 1200mg). Additionally, hydrocodone was prescribed to relieve severe RLS and PLMD. Hydrocodone 10 mg
Busunsc713
in
Restless Legs Syndrome
21 hours ago
RLS-UK PATIENTS SURVEY - DOPAMINE AGONISTS - UPDATE
3,722
RLS sufferers completed the Survey posted here and on other social media channels on 20 August 2024. Thank you very much to all those who took part after seeing the thread here. We intend to use the findings to galvanise press and parliamentary attention on #RLS. https://www.rls-uk.org
3,722
RLS sufferers completed the Survey posted here and on other social media channels on 20 August 2024. Thank you very much to all those who took part after seeing the thread here. We intend to use the findings to galvanise press and parliamentary attention on #RLS. https://www.rls-uk.org
Kaarina
Administrator
in
Restless Legs Syndrome
2 days ago
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American Academy of Sleep Medicine Guidance
It's out! I haven't read it yet as it's 82 pages long. But everyone needs to read this. Especially if you're on a Dopamine agonist. https://scholar.google.com/scholar_url?url=https://jcsm.aasm.org/doi/pdf/10.5664/jcsm.11392&hl=en&sa=X&d=8200287882152620678&ei=OFH5ZvmcMbCDy9YPgrj5gAQ&scisig=AFWwaeYvq2wzZ_QH9zF1mM6c-V_F
It's out! I haven't read it yet as it's 82 pages long. But everyone needs to read this. Especially if you're on a Dopamine agonist. https://scholar.google.com/scholar_url?url=https://jcsm.aasm.org/doi/pdf/10.5664/jcsm.11392&hl=en&sa=X&d=8200287882152620678&ei=OFH5ZvmcMbCDy9YPgrj5gAQ&scisig=AFWwaeYvq2wzZ_QH9zF1mM6c-V_F
Joolsg
in
Restless Legs Syndrome
3 days ago
Why GCA went haywire?... Today I was diagnosed with Parkinson's Disease~
I'm still kind of processing this; just numb and flat. At my last visit, my neuro-ophthalmologist told me he wanted me to see my neurologist. I've been seeing one every six months. During my high school years, I had epileptic seizures and was on a low-maintenance dose of meds at the onset of GCA.
I'm still kind of processing this; just numb and flat. At my last visit, my neuro-ophthalmologist told me he wanted me to see my neurologist. I've been seeing one every six months. During my high school years, I had epileptic seizures and was on a low-maintenance dose of meds at the onset of GCA.
Grammy80
in
PMRGCAuk
4 days ago
need new neurologist
Hi, I was diagnosed with RLS about 12 yrs ago, weeks after my first knee replacement. I have read that others also didn’t have it until after hip and knee surgery. I’ve been put on all the old dopamine drugs in the past which all resulted in augmentation. Going through 3 neurologists, I finally had
Hi, I was diagnosed with RLS about 12 yrs ago, weeks after my first knee replacement. I have read that others also didn’t have it until after hip and knee surgery. I’ve been put on all the old dopamine drugs in the past which all resulted in augmentation. Going through 3 neurologists, I finally had
Irmajs
in
Restless Legs Syndrome
5 days ago
Discussion about treatment options in India
I have been to multiple neurologists in India for RLS before and they all prescribed pramipexole as first line treatment. Hearing all the advice here I have my reservations about taking it. I have also talked to a member here and a few others on Facebook who are in India and they are on ungodly amounts
I have been to multiple neurologists in India for RLS before and they all prescribed pramipexole as first line treatment. Hearing all the advice here I have my reservations about taking it. I have also talked to a member here and a few others on Facebook who are in India and they are on ungodly amounts
MrCrow
in
Restless Legs Syndrome
6 days ago
Report: Ceylon Cinnamon Relieves Parkinson's Motor Impairment. Evidence Suggests Remedy of Underlying Disease (repost)
Image credit: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7720887/pdf/nihms-1649509.pdf Can cinnamon spice down autoimmune diseases? This post includes both evidence from the medical literature and personal observation. It was originally posted in 2020 and had been deleted recently due to an unfortunate
Image credit: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7720887/pdf/nihms-1649509.pdf Can cinnamon spice down autoimmune diseases? This post includes both evidence from the medical literature and personal observation. It was originally posted in 2020 and had been deleted recently due to an unfortunate
park_bear
in
Cure Parkinson's
7 days ago
Diagnosed age 44, 46 now - what I learned about Rytary
Male, living in CA. A report about my symptoms and how I learned to interpret them to avoid overdosing. When I was diagnosed I fairly soon switched to Rytary 245mgs. They would last about 5 hours and I was on 4/day which was good, along with 1 ongentys in the morning or evening. At bad times of stress
Male, living in CA. A report about my symptoms and how I learned to interpret them to avoid overdosing. When I was diagnosed I fairly soon switched to Rytary 245mgs. They would last about 5 hours and I was on 4/day which was good, along with 1 ongentys in the morning or evening. At bad times of stress
SanMateoPD
in
Cure Parkinson's
7 days ago
Request for a link to the dopamine blood level calculator
hi, i saw a model on here probably over a year ago that tracks dopamine levels based on dosage and duration. i thought i saved such a handy tool, but obviously didnt …;-). Could one of you kind community members who DID save it send me a link? THANK YOU
hi, i saw a model on here probably over a year ago that tracks dopamine levels based on dosage and duration. i thought i saved such a handy tool, but obviously didnt …;-). Could one of you kind community members who DID save it send me a link? THANK YOU
JacksMomTX
in
Cure Parkinson's
9 days ago
Am planning to get off .625 nightly pramipexole. Have been increasing slowly over the last 7-10 years and need to stop.
First diagnosed in my 20s. First medication in my early 40s was Sinamet. Then another drug I think was ropinerole but not certain. I’ve been on Pramipexole for approximately 10 years. Slowly increasing dosage till now on .625 nightly. Thank goodness I found this blog and Sue Johnson and Jools and other
First diagnosed in my 20s. First medication in my early 40s was Sinamet. Then another drug I think was ropinerole but not certain. I’ve been on Pramipexole for approximately 10 years. Slowly increasing dosage till now on .625 nightly. Thank goodness I found this blog and Sue Johnson and Jools and other
Iloverls
in
Restless Legs Syndrome
9 days ago
Rebound pain after reducing pramiprexole
I had been taking 3 tabs of .125 mg of pramiprexole for a couple of years, but I have been on dopamine agonists for about a decade (ropinerole to pramiprexole). I also take hydrocodone 10 mgs 2-3x day for both back & leg pain. Finally, I take 300-600 mg of gabapentin as needed. About reducing the
I had been taking 3 tabs of .125 mg of pramiprexole for a couple of years, but I have been on dopamine agonists for about a decade (ropinerole to pramiprexole). I also take hydrocodone 10 mgs 2-3x day for both back & leg pain. Finally, I take 300-600 mg of gabapentin as needed. About reducing the
Dustylee22
in
Restless Legs Syndrome
9 days ago
Mail On Sunday article on RLS and Dopamine agonists
A useful article on the dangers of dopamine agonists. Hopefully some doctors will actually read it. https://mol.im/a/13877837
A useful article on the dangers of dopamine agonists. Hopefully some doctors will actually read it. https://mol.im/a/13877837
Joolsg
in
Restless Legs Syndrome
10 days ago
SMOKING!
Smoking
Smoking is the practice of inhaling smoke from burning plant material. Nicotine works on your brain to create a relaxing, pleasurable feeling that makes it tough to quit. But smoking tobacco puts you at risk for cancer, stroke, heart attack, lung disease and other health issues. Nicotine
Smoking
Smoking is the practice of inhaling smoke from burning plant material. Nicotine works on your brain to create a relaxing, pleasurable feeling that makes it tough to quit. But smoking tobacco puts you at risk for cancer, stroke, heart attack, lung disease and other health issues. Nicotine
jillygirl
Administrator
in
Quit Support
12 days ago
Sorry, just venting.
Hi, sorry in advance. I'm just feeling the need to vent frustration. So thankyou for reading this. Please scroll past if your low on energy. It's been a while since I posted but have been following. Long story short....rls for over 10 yrs. Aware of and following guidence given here re diet, bloods,
Hi, sorry in advance. I'm just feeling the need to vent frustration. So thankyou for reading this. Please scroll past if your low on energy. It's been a while since I posted but have been following. Long story short....rls for over 10 yrs. Aware of and following guidence given here re diet, bloods,
Annty
in
Restless Legs Syndrome
13 days ago
Serum Alpha synuclein levels reduced in RLS patients
https://academic.oup.com/sleep/advance-article-abstract/doi/10.1093/sleep/zsae217/7758610?redirectedFrom=fulltext This study shows a reduction in serum a syn levels in RLS patients and suggests that it may be the reason for reduced dopamine/faulty dopamine system in RLS patients. It also mentions that
https://academic.oup.com/sleep/advance-article-abstract/doi/10.1093/sleep/zsae217/7758610?redirectedFrom=fulltext This study shows a reduction in serum a syn levels in RLS patients and suggests that it may be the reason for reduced dopamine/faulty dopamine system in RLS patients. It also mentions that
Joolsg
in
Restless Legs Syndrome
13 days ago
ADHD drugs and affect on Bipolar and Anxiety
Hi Everyone, I have been diagnosed with Bipolar Disorder and Generalised Anxiety Disorder and have an unofficial ADHD diagnosis from my previous psychiatrist who is ADHD trained. My Bipolar and Anxiety are almost under control now but it's clear that my ADHD symptoms are triggering my anxiety which
Hi Everyone, I have been diagnosed with Bipolar Disorder and Generalised Anxiety Disorder and have an unofficial ADHD diagnosis from my previous psychiatrist who is ADHD trained. My Bipolar and Anxiety are almost under control now but it's clear that my ADHD symptoms are triggering my anxiety which
Futurity
in
CHADD's Adult ADHD Support
13 days ago
long read: asking for community help deciding next steps -- worsening RLS/PLMD, medications, Neurologist, no sleep, HRT
Hi everyone, I haven’t been around in a long while because I’ve been unwell and dealing with family matters. I always feel guilty popping back in after a long while but I’ve not been able to maintain any sort of consistency the last several months. Up until I started HRT I was alright with what I
Hi everyone, I haven’t been around in a long while because I’ve been unwell and dealing with family matters. I always feel guilty popping back in after a long while but I’ve not been able to maintain any sort of consistency the last several months. Up until I started HRT I was alright with what I
HappyGreenBean
in
Restless Legs Syndrome
15 days ago
Severe RLS Augmentation on Pramipexole
I just discovered this wonderful site. I am 69, female, and live in Quebec, Canada. I have had RLS since I my youth and can identify with so many of your struggles. When officially diagnosed in my 20’s, I was prescribed clonazepam which helped for a few years. I then was referred to a neurologist and
I just discovered this wonderful site. I am 69, female, and live in Quebec, Canada. I have had RLS since I my youth and can identify with so many of your struggles. When officially diagnosed in my 20’s, I was prescribed clonazepam which helped for a few years. I then was referred to a neurologist and
GoForward
in
Restless Legs Syndrome
15 days ago
I'm RLS free now and want to share how
Hi! As a person more or less RLS free I want to share something. I had to abondone Emoxypine (you can find my original post here) after the initial 7 days course. An elevated level of dopamine caused indigestion in my guts. After some time it became obvious. Now I'm more or less RLS free, since it was
Hi! As a person more or less RLS free I want to share something. I had to abondone Emoxypine (you can find my original post here) after the initial 7 days course. An elevated level of dopamine caused indigestion in my guts. After some time it became obvious. Now I'm more or less RLS free, since it was
Alex2308
in
Restless Legs Syndrome
15 days ago
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