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Informative video on updated RLS guidelines
This video is a MUST see video by Dr. John Winkelman, M.D., PHD from Mass General in Boston. He explains the problems with dopamine agonists and RLS, talks at length about augmentation and how to get off the DA with the help of gabapentin, Lyrica and opioids and other pharmaceuticals. The presentation
This video is a MUST see video by Dr. John Winkelman, M.D., PHD from Mass General in Boston. He explains the problems with dopamine agonists and RLS, talks at length about augmentation and how to get off the DA with the help of gabapentin, Lyrica and opioids and other pharmaceuticals. The presentation
Deesee
in
Restless Legs Syndrome
5 months ago
addicted to C/L?
i have DBS 3.5 years ago.th DBS doing quite well during night time when i am completely off C/L feeling almost normal. when in the morning after taking 25/100 madopar when wearing off, my symptoms magnified, i become very off, my fingers jam together. so wearing off is much worse than being off, if
i have DBS 3.5 years ago.th DBS doing quite well during night time when i am completely off C/L feeling almost normal. when in the morning after taking 25/100 madopar when wearing off, my symptoms magnified, i become very off, my fingers jam together. so wearing off is much worse than being off, if
limcheeese22
in
Cure Parkinson's
5 months ago
Flip flopping TSH and recommendations for private endo please
Hello I've been hypo for 23 years. I rarely stay level for too long. October my TSH was 0.21, meds were tweaked from 125mcg mon-fri & 150 at weekends to 125mcg 7 days. January my TSH 5.05 but told stay on 125mcg for anther couple months. As i'm sure the reason most of us are on here, you understand
Hello I've been hypo for 23 years. I rarely stay level for too long. October my TSH was 0.21, meds were tweaked from 125mcg mon-fri & 150 at weekends to 125mcg 7 days. January my TSH 5.05 but told stay on 125mcg for anther couple months. As i'm sure the reason most of us are on here, you understand
Princesspeach128
in
Thyroid UK
5 months ago
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Falls - result of DAs?
My Mum has periods of falling a lot, and I'm wondering if there's a connection to Ropinerole? She's also on Zapain for arthritis pain....so that could also be a culprit. Just wondered if anyone on here has had balance issues as a result of dopamine agonists?
My Mum has periods of falling a lot, and I'm wondering if there's a connection to Ropinerole? She's also on Zapain for arthritis pain....so that could also be a culprit. Just wondered if anyone on here has had balance issues as a result of dopamine agonists?
Boldgirl45
in
Restless Legs Syndrome
5 months ago
Day 1 as a CHADD member
I am a 64 year old married man who has suspected something wrong with me my entire life. When I was a child, ADHD was not something the world knew about. there was no understanding, no diagnosis, no help, and certainly no treatment. I just thought I was dumber than the rest of the world. The trouble
I am a 64 year old married man who has suspected something wrong with me my entire life. When I was a child, ADHD was not something the world knew about. there was no understanding, no diagnosis, no help, and certainly no treatment. I just thought I was dumber than the rest of the world. The trouble
JokerAce
in
CHADD's Adult ADHD Support
5 months ago
The most common failures in relation to the treatment of RLS, from my experience:
My name is Kimberley Bradfield and I am a clinical negligence solicitor at Switalskis Solicitors. Switalskis is a large firm that specialises in clinical negligence and has offices across the UK. We have successfully settled a number of clinical negligence cases relating to the negligent treatment of
My name is Kimberley Bradfield and I am a clinical negligence solicitor at Switalskis Solicitors. Switalskis is a large firm that specialises in clinical negligence and has offices across the UK. We have successfully settled a number of clinical negligence cases relating to the negligent treatment of
Switalskis
in
Restless Legs Syndrome
5 months ago
advice on anti inflammatory?
My Rl is nearly under control with gabapentin now , I have an appointment with the arthritis clinic and I’m hoping to start some kind of anti inflammatory medication. Osteoarthritis in most joints and in lots of pain . Can you advise which ones are safe to take and will not aggravate rl ? The prospect
My Rl is nearly under control with gabapentin now , I have an appointment with the arthritis clinic and I’m hoping to start some kind of anti inflammatory medication. Osteoarthritis in most joints and in lots of pain . Can you advise which ones are safe to take and will not aggravate rl ? The prospect
Rubynessie
in
Restless Legs Syndrome
5 months ago
Ropinerole augmentation
I would like some opinions on this question. I have been on a dopamine agonist for a little over 2 years. Currently on 2 mg of ropinerole before sleep. My last increase was 4-5 months ago. I have decided against anymore increases and will look to switch to Gabapentin if augmentation appears evident.
I would like some opinions on this question. I have been on a dopamine agonist for a little over 2 years. Currently on 2 mg of ropinerole before sleep. My last increase was 4-5 months ago. I have decided against anymore increases and will look to switch to Gabapentin if augmentation appears evident.
pyramidhiker
in
Restless Legs Syndrome
5 months ago
Post Illness Food Issues?
Two weeks ago I contracted COVID for the third time and this lady week since I've been better I've had a frustrating issue with eating. (Yes, I am fully vaxed; no, I do not want to debate that with anyone) I now find all of my go to foods uninteresting or unpleasant. I thought it might be an issue with
Two weeks ago I contracted COVID for the third time and this lady week since I've been better I've had a frustrating issue with eating. (Yes, I am fully vaxed; no, I do not want to debate that with anyone) I now find all of my go to foods uninteresting or unpleasant. I thought it might be an issue with
E-Dubs
in
CHADD's Adult ADHD Support
5 months ago
COVID survivors may be at a greater risk of developing Parkinson’s–like symptoms, researchers warn. What to know to protect your health
COVID survivors may be at a greater risk of developing Parkinson’s disease–like symptoms, researchers warn. What you need to know to protect your health
https://finance.yahoo.com/news/covid-survivors-may-greater-risk-170451040.html "The virus was able to infect cells from all the aforementioned
COVID survivors may be at a greater risk of developing Parkinson’s disease–like symptoms, researchers warn. What you need to know to protect your health
https://finance.yahoo.com/news/covid-survivors-may-greater-risk-170451040.html "The virus was able to infect cells from all the aforementioned
Bolt_Upright
in
Cure Parkinson's
5 months ago
Psychedelics anti inflammatory can help neurodegeneration?
Came across this video while looking for info on anti inflammatory effects of psychedelics. Last week I tried for first time a small dose. Though I didn’t get any hallucinations or visuals I did spontaneously laughed a lot and it felt cathartic and to my surprise I felt 30-40% improvement in my PD symptoms
Came across this video while looking for info on anti inflammatory effects of psychedelics. Last week I tried for first time a small dose. Though I didn’t get any hallucinations or visuals I did spontaneously laughed a lot and it felt cathartic and to my surprise I felt 30-40% improvement in my PD symptoms
palamrinder
in
Cure Parkinson's
5 months ago
Success (I hope) with Gabapentin
I have had RLS for more years than I can remember. For years I took mirapexin till I augmented. I tried Pregabalin but I felt dizzy all the time and I put on a lot of weight quickly. I started tramadol and then alternated between that and mirapexin ( yes I went back on it). I coped like this for a long
I have had RLS for more years than I can remember. For years I took mirapexin till I augmented. I tried Pregabalin but I felt dizzy all the time and I put on a lot of weight quickly. I started tramadol and then alternated between that and mirapexin ( yes I went back on it). I coped like this for a long
Coeso
in
Restless Legs Syndrome
5 months ago
Suvorexant Trial
https://link.springer.com/article/10.1007/s40263-023-01055-y Another trial result. Dr Diego Garcia Borreguerro has shown that Suvorexant significantly improved RLS in 40 trial participants. Results were better in patients who had not previously been treatedwith Dopamine agonists. Suvorexant is a sleeping
https://link.springer.com/article/10.1007/s40263-023-01055-y Another trial result. Dr Diego Garcia Borreguerro has shown that Suvorexant significantly improved RLS in 40 trial participants. Results were better in patients who had not previously been treatedwith Dopamine agonists. Suvorexant is a sleeping
Joolsg
in
Restless Legs Syndrome
5 months ago
Neuromodulation for RLS
https://www.frontiersin.org/articles/10.3389/fneur.2024.1278200/full?utm_source=F-NTF&utm_medium=EMLX&utm_campaign=PRD_FEOPS_20170000_ARTICLE Another very interesting article on neuromodulation for RLS. It does point out the difficulties in using this therapy, as results are short lived after the treatment
https://www.frontiersin.org/articles/10.3389/fneur.2024.1278200/full?utm_source=F-NTF&utm_medium=EMLX&utm_campaign=PRD_FEOPS_20170000_ARTICLE Another very interesting article on neuromodulation for RLS. It does point out the difficulties in using this therapy, as results are short lived after the treatment
Joolsg
in
Restless Legs Syndrome
5 months ago
DIY Parkinson's Glove Users - How are you adjusting?
Hi I'm interested in anecdotal information from those who are using a DIY version of a vibrotactile glove specifically on how you have adjusted (or not adjusted) your medication over the course of your glove testing. I'm trying to see if there are any trends that would imply that this is replacing
Hi I'm interested in anecdotal information from those who are using a DIY version of a vibrotactile glove specifically on how you have adjusted (or not adjusted) your medication over the course of your glove testing. I'm trying to see if there are any trends that would imply that this is replacing
JacksMomTX
in
Cure Parkinson's
5 months ago
Still can't tolerate thyroid medication, housebound 26 F, very hypo and hypo adrenals, on HC 25mg
Hi guys..does anyone have any advice. I am house bound 26 year old female for over a year now. I was put on HC 25 mg by an endo because he suspects non classical congenital adrenal hyperplasia. My adrenals are completley exhausted. I no longer make enough catecholamines also confirmed by a neurotransmitter
Hi guys..does anyone have any advice. I am house bound 26 year old female for over a year now. I was put on HC 25 mg by an endo because he suspects non classical congenital adrenal hyperplasia. My adrenals are completley exhausted. I no longer make enough catecholamines also confirmed by a neurotransmitter
ratqueenxo
in
Thyroid UK
5 months ago
Gabapentin post dopamine treatment (Aripiprazole)
Hello, I took Aripiprazole during 12 years, suffered from augmentation symptom (went to 20mg daily which is a big dose). I think that taking such dose can damage dopamine receptors and lower Gabapentin efficiency, right? Any of you can send me some links to read more about this? or giving me more
Hello, I took Aripiprazole during 12 years, suffered from augmentation symptom (went to 20mg daily which is a big dose). I think that taking such dose can damage dopamine receptors and lower Gabapentin efficiency, right? Any of you can send me some links to read more about this? or giving me more
tttlandddd
in
Restless Legs Syndrome
5 months ago
Valproate: new safety and educational materials to support regulatory measures in men and women under 55 years of age
I don't think there is any reason to expect many members to be taking any form of Valproate, but this is such an important issue, with such significant consequences, I've decided to post it anyway. Even if you are not taking it, someone you know might be. [i]
Valproate (Belvo, Convulex, Depakote,
I don't think there is any reason to expect many members to be taking any form of Valproate, but this is such an important issue, with such significant consequences, I've decided to post it anyway. Even if you are not taking it, someone you know might be. [i]
Valproate (Belvo, Convulex, Depakote,
helvella
Thyroid UK
in
Thyroid UK
5 months ago
DO YOUR RESEARCH. Cure yourself.
PXN21 has worked wonders for all my symptoms. I have been having symptoms of Parkinson’s/IBS for several years now which have progressively gotten worse. Now mind you I’ve never been diagnosed with anything, the key thing is catching all these things early and treating them, not just treating the symptoms
PXN21 has worked wonders for all my symptoms. I have been having symptoms of Parkinson’s/IBS for several years now which have progressively gotten worse. Now mind you I’ve never been diagnosed with anything, the key thing is catching all these things early and treating them, not just treating the symptoms
pdefa
in
Cure Parkinson's
5 months ago
Covid 19 may infect dopamine neurons
this article is in Neuroscience News and I guess this did not seem surprising to me https://neurosciencenews.com/dopamine-covid-25475/
this article is in Neuroscience News and I guess this did not seem surprising to me https://neurosciencenews.com/dopamine-covid-25475/
Boscoejean
in
Cure Parkinson's
5 months ago
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