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DAWS success story?
Hi all, After a brutal stop of pramipexole (extended release) two weeks ago, predated by a tapering off Venlafaxine from March to August, I'm experiencing the hell of DAWS (Dopamine Agonist Withdrawal Syndrom). I'm now hospitalized in a neurology service, and they are giving me pregabalin, dypirimadole
Hi all, After a brutal stop of pramipexole (extended release) two weeks ago, predated by a tapering off Venlafaxine from March to August, I'm experiencing the hell of DAWS (Dopamine Agonist Withdrawal Syndrom). I'm now hospitalized in a neurology service, and they are giving me pregabalin, dypirimadole
Mikatrap
in
Restless Legs Syndrome
8 months ago
FINALLY found a scientific study that supports my theory about Brain Iron and Serum Iron. Finally!!!
First, the relevant quote from the article: “The serum iron concentration was significantly higher in the RLS group than in the control group, but remained within normal ranges in both groups. In this study, there was a significant correlation between serum and CSF iron concentrations, both in the RLS
First, the relevant quote from the article: “The serum iron concentration was significantly higher in the RLS group than in the control group, but remained within normal ranges in both groups. In this study, there was a significant correlation between serum and CSF iron concentrations, both in the RLS
DesertOasis
in
Restless Legs Syndrome
8 months ago
To Infuse or not to Infuse
I figured it was time to put the 45 infusion stories I could find all together so people can make an informed decision. Simply tap on the link and within a few lines you will know whether the person gave it a thumbs up or down. If you read the replies you may find more stories. I welcome anyone who
I figured it was time to put the 45 infusion stories I could find all together so people can make an informed decision. Simply tap on the link and within a few lines you will know whether the person gave it a thumbs up or down. If you read the replies you may find more stories. I welcome anyone who
DesertOasis
in
Restless Legs Syndrome
9 months ago
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Duration of dopamine agonist withdrawal symptoms?
I stopped Mirapexin extended release 0.26mg 12 days ago, and my withdrawal symptoms are a nightmare and getting worse and worse. How long should it last? When can I hope to be better ?
I stopped Mirapexin extended release 0.26mg 12 days ago, and my withdrawal symptoms are a nightmare and getting worse and worse. How long should it last? When can I hope to be better ?
Mikatrap
in
Restless Legs Syndrome
9 months ago
Levadopa questions
Maybe someone knows or can point to scientific literature 1) Why should you take levadopa, if you have no tremor? I believe tremor is the main symptom relieved by taking levadopa. 2) Levadopa on average stops being efficient after 5-10 years. Why? This is strange as the brain should still need dopamine
Maybe someone knows or can point to scientific literature 1) Why should you take levadopa, if you have no tremor? I believe tremor is the main symptom relieved by taking levadopa. 2) Levadopa on average stops being efficient after 5-10 years. Why? This is strange as the brain should still need dopamine
Xauxatz
in
Cure Parkinson's
9 months ago
Influence of sunlight on dopamine transporters.
A recent study from the Radboudumc in the Netherlands shows that there is a relationship between sunlight and dopamine production. It seems yet another confirmation of the importance of outdoor activities for people with PD, as I have experienced experimentally myself this summer (and so far), with a
A recent study from the Radboudumc in the Netherlands shows that there is a relationship between sunlight and dopamine production. It seems yet another confirmation of the importance of outdoor activities for people with PD, as I have experienced experimentally myself this summer (and so far), with a
Esperanto
in
Cure Parkinson's
9 months ago
Be Aware To Beware.....FYI
Medications To Be Avoided Or Used With Caution In Parkinson’s Disease The manufacturers of these medications may not list Parkinson’s disease as an absolute contraindication; however, better choices within a medication class may be suggested. Some of these medications alter the brain ‘s dopamine
Medications To Be Avoided Or Used With Caution In Parkinson’s Disease The manufacturers of these medications may not list Parkinson’s disease as an absolute contraindication; however, better choices within a medication class may be suggested. Some of these medications alter the brain ‘s dopamine
beehive23
in
Cure Parkinson's
9 months ago
I found an answer!
So after all my struggling to lose weight despite dieting and loads of exercising I have discovered my missing ingrediant!! Love! Lust? Dopamine?? I started trying to be happier by accepting myself as I am. But I cant truely be happy with my size. But I tried and I lowered my expectations (even losing
So after all my struggling to lose weight despite dieting and loads of exercising I have discovered my missing ingrediant!! Love! Lust? Dopamine?? I started trying to be happier by accepting myself as I am. But I cant truely be happy with my size. But I tried and I lowered my expectations (even losing
CrimsonMama
Restart June 2023
in
Weight Loss Support
9 months ago
UPDATE: Dad's Surgery on Broken Ankle Bone and Resulting PSYCHOSIS. QUESTION: How do you deal with Episodes of Hallucinations & Delusions?
Update- ON OUR FATHER WHO RECENTLY BROKE HIS ANKLE WHILE GARDENING, AND THEN UNDERWENT A SUDDEN, UNPLANNED SURGERY ON THE ANKLE , ONLY TO BE FOLLOWED BY THE ONSET OF PSYCHOSIS ALMOST IMMEDIATELY AFTER: BRIEF HISTORY: My dad is 78yo and was diagnosed with Parkinson's in 2010 but likely has had PD close
Update- ON OUR FATHER WHO RECENTLY BROKE HIS ANKLE WHILE GARDENING, AND THEN UNDERWENT A SUDDEN, UNPLANNED SURGERY ON THE ANKLE , ONLY TO BE FOLLOWED BY THE ONSET OF PSYCHOSIS ALMOST IMMEDIATELY AFTER: BRIEF HISTORY: My dad is 78yo and was diagnosed with Parkinson's in 2010 but likely has had PD close
rsacdoolittle
in
Cure Parkinson's
9 months ago
To those newly diagnosed! There is hope!
I was diagnosed with Parkinson’s in Dec 2018. My form of Parkinson’s has a huge psychological element that many of you can relate to. It’s obvious because of how quickly I progressed while I was getting diagnosed . My Dad who was my best friend and business partner died unexpectedly in 2013, which destroyed
I was diagnosed with Parkinson’s in Dec 2018. My form of Parkinson’s has a huge psychological element that many of you can relate to. It’s obvious because of how quickly I progressed while I was getting diagnosed . My Dad who was my best friend and business partner died unexpectedly in 2013, which destroyed
38yroldmale
in
Cure Parkinson's
9 months ago
40 years of RLS
I started with RLS about 40 years ago. Over the past 15 years, it has been diagnosed as severe.I have tried all of the dopamine drugs, none worked except for pramipexol, I have augmented and spent the past year still trying to get off this. I am under a sleep specialist and on 50mg of oxycodone per
I started with RLS about 40 years ago. Over the past 15 years, it has been diagnosed as severe.I have tried all of the dopamine drugs, none worked except for pramipexol, I have augmented and spent the past year still trying to get off this. I am under a sleep specialist and on 50mg of oxycodone per
Trish8433
in
Restless Legs Syndrome
9 months ago
Scientists Offer a New Explanation for Long Covid
https://www.nytimes.com/2023/10/16/health/long-covid-serotonin.html?campaign_id=7&emc=edit_mbae_20231016&instance_id=105359&nl=morning-briefing%3A-asia-pacific-edition®i_id=138732216&segment_id=147501&te=1&user_id=521e6fb33d8cd5099db772394e0d2157 “A team of scientists is proposing a new explanation
https://www.nytimes.com/2023/10/16/health/long-covid-serotonin.html?campaign_id=7&emc=edit_mbae_20231016&instance_id=105359&nl=morning-briefing%3A-asia-pacific-edition®i_id=138732216&segment_id=147501&te=1&user_id=521e6fb33d8cd5099db772394e0d2157 “A team of scientists is proposing a new explanation
LAJ12345
in
Cure Parkinson's
9 months ago
Reintroducing DA at a low dose?
What is the current thinking around taking a low dose of a dopamine agonist in conjunction with another RLS medication? I took pramipexole ten years ago and experienced augmentation after approximately 12 months. Fortunately I didn't experience DAWS when coming off it. I have been on pregabalin for
What is the current thinking around taking a low dose of a dopamine agonist in conjunction with another RLS medication? I took pramipexole ten years ago and experienced augmentation after approximately 12 months. Fortunately I didn't experience DAWS when coming off it. I have been on pregabalin for
Hidden
in
Restless Legs Syndrome
9 months ago
High Dose CL ?
I am often puzzled by the high dose her neurologist/ movement specialist has her taking. I have not found anyone taking this high of dose: 8am: 25/100 CL x 3 11am: 25/100 CL x3 2pm: 25/100 CL x3 5pm: 25/100 CL x3 8pm: 25/100 CL x3 11pm: 25/100 CL x 1 but then a Rytary along with 3mg Melatonin.
I am often puzzled by the high dose her neurologist/ movement specialist has her taking. I have not found anyone taking this high of dose: 8am: 25/100 CL x 3 11am: 25/100 CL x3 2pm: 25/100 CL x3 5pm: 25/100 CL x3 8pm: 25/100 CL x3 11pm: 25/100 CL x 1 but then a Rytary along with 3mg Melatonin.
Furch
in
Cure Parkinson's
9 months ago
How to escape Augmentation?
I only learnt about Health Unlocked and its efforts on RLS through RLS -UK and this is my first post. I have suffered from RLS for several years and various doctors have prescribed all the general medicines starting with antidepressants (amitriptyline, mirtazapine, imipramine, and citralopram), dopramine
I only learnt about Health Unlocked and its efforts on RLS through RLS -UK and this is my first post. I have suffered from RLS for several years and various doctors have prescribed all the general medicines starting with antidepressants (amitriptyline, mirtazapine, imipramine, and citralopram), dopramine
davchar23
in
Restless Legs Syndrome
9 months ago
“Strategies for the Treatment of Parkinson’s Disease: Beyond Dopamine”
“[i]Therapies to date have been directed to the restoration of the dopaminergic system, and the prevention of dopaminergic neuronal cell death in the midbrain. This review discusses the physiological mechanisms involved in PD as well as new and prospective therapies for the disease. The current data
“[i]Therapies to date have been directed to the restoration of the dopaminergic system, and the prevention of dopaminergic neuronal cell death in the midbrain. This review discusses the physiological mechanisms involved in PD as well as new and prospective therapies for the disease. The current data
Gioc
in
Cure Parkinson's
9 months ago
The environment makes the cells says Bruce Lipton. The importance of isolating the supposedly sick person...
"There are cells that can come to know their true essence by going beyond their environment and their conditioning" Parkinson's is caused by intense fears whose original cause, being the "effect" itself at a multifactorial biochemical level, comes from tendencies in perception established by a process
"There are cells that can come to know their true essence by going beyond their environment and their conditioning" Parkinson's is caused by intense fears whose original cause, being the "effect" itself at a multifactorial biochemical level, comes from tendencies in perception established by a process
ManuCalma
in
Cure Parkinson's
9 months ago
Surrendering to Parkinson's is not "throwing in the towel" it is "changing it for a new one."
Probably if you are affected by PD it is because you have always lived trying to achieve something that did not reach you. You moved forward in fits and starts. Everything seemed to be going well until you observed an obstacle that stood in your way, plunging your body into a nest of pure stress, a constant
Probably if you are affected by PD it is because you have always lived trying to achieve something that did not reach you. You moved forward in fits and starts. Everything seemed to be going well until you observed an obstacle that stood in your way, plunging your body into a nest of pure stress, a constant
ManuCalma
in
Cure Parkinson's
9 months ago
On the Holistic origin of Parkinson's
The symptom is "the straw that broke the camel's back" not the beginning of the disease as such... Imagine two people reacting to the same traumatic event. One experiences it from an intense fear due to its configuration and the other experiences it in a less intense way. The body of each of them generates
The symptom is "the straw that broke the camel's back" not the beginning of the disease as such... Imagine two people reacting to the same traumatic event. One experiences it from an intense fear due to its configuration and the other experiences it in a less intense way. The body of each of them generates
ManuCalma
in
Cure Parkinson's
9 months ago
Sharing Info : Thorne Gut Test
Please note : This is not an endorsement. Wanted to share with everyone. Hope it helps you. ( Also, I am not a doctor and should not be considered and medical advice Given the recent news that there is high probability that PD starts in the gut and travels to the brain (Alpha Synuclein found
Please note : This is not an endorsement. Wanted to share with everyone. Hope it helps you. ( Also, I am not a doctor and should not be considered and medical advice Given the recent news that there is high probability that PD starts in the gut and travels to the brain (Alpha Synuclein found
John_morris71
in
Cure Parkinson's
9 months ago
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