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I am 55 years old and I've suffered intermittently from RLS for many years but over the last couple of months it has been almost every night. It has really started to interfere with my work and life in general. I have tried some lifestyle measures but never gone further than that. I was wondering what
I am 55 years old and I've suffered intermittently from RLS for many years but over the last couple of months it has been almost every night. It has really started to interfere with my work and life in general. I have tried some lifestyle measures but never gone further than that. I was wondering what
ChilliChocolateLover
in
Restless Legs Syndrome
3 months ago
New Opiod Registry Paper published! Year 4.
National RLS Opioid Registry: Four-year Dose Stability, Efficacy and Tolerability April 2024Sleep 47(Supplement_1):A293-A293 John Winkelman Introduction Refractory or augmented restless legs syndrome (RLS) is often treated with opioids. Despite their short-term efficacy, concerns about long-term
National RLS Opioid Registry: Four-year Dose Stability, Efficacy and Tolerability April 2024Sleep 47(Supplement_1):A293-A293 John Winkelman Introduction Refractory or augmented restless legs syndrome (RLS) is often treated with opioids. Despite their short-term efficacy, concerns about long-term
RLSLearner
in
Restless Legs Syndrome
3 months ago
new to forum and thanks
hi, I discovered you in the middle of the night and am so relieved to find I am not the only person with this, tho sorry others are also suffering… my doctor prescribed me ropinirole in January and it initially worked but my overeating went crazy and I have been tapering off it- my first night without
hi, I discovered you in the middle of the night and am so relieved to find I am not the only person with this, tho sorry others are also suffering… my doctor prescribed me ropinirole in January and it initially worked but my overeating went crazy and I have been tapering off it- my first night without
Sparrowhawk43
in
Restless Legs Syndrome
3 months ago
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My niece
I feel so bad as my niece has rls. She is like me in many ways and now has inherited it probably from me. Luckily she hasn't seen any doctors yet. I've warned her against taking dopamine agonists. Please recommend any doctor in the Birmingham UK area. She is even willing to go to London
I feel so bad as my niece has rls. She is like me in many ways and now has inherited it probably from me. Luckily she hasn't seen any doctors yet. I've warned her against taking dopamine agonists. Please recommend any doctor in the Birmingham UK area. She is even willing to go to London
Coeso
in
Restless Legs Syndrome
3 months ago
Buprenorphine patch and swimming
Dear Everyone, About 3 months ago, I started withdrawing from Neupro with the help of Buprenorphine. Buprenorphine is only available as a patch in Brasil where I live. I am now free of any dopamine agonist for over 2 months and continue to use Buprenorphine to effectively control my RLS. The quality
Dear Everyone, About 3 months ago, I started withdrawing from Neupro with the help of Buprenorphine. Buprenorphine is only available as a patch in Brasil where I live. I am now free of any dopamine agonist for over 2 months and continue to use Buprenorphine to effectively control my RLS. The quality
RiversW
in
Restless Legs Syndrome
3 months ago
Very interesting video on controversial issues regarding managing Parkinson’s at different stages (from 2 guys that seem smart).
Controversies in the Use of Medications, Herbs, and Early DBS for Parkinson's April 2024:
https://youtu.be/RhaUZFczGmc?si=R0Nb5tfh3jFnvZdg Movement Disorders Foundation of Arizona: Movement disorders neurologists Dr. Paarth Shah and Dr. Virgilio Gerald Evidente will be discussing in a panel discussion
Controversies in the Use of Medications, Herbs, and Early DBS for Parkinson's April 2024:
https://youtu.be/RhaUZFczGmc?si=R0Nb5tfh3jFnvZdg Movement Disorders Foundation of Arizona: Movement disorders neurologists Dr. Paarth Shah and Dr. Virgilio Gerald Evidente will be discussing in a panel discussion
Bolt_Upright
in
Cure Parkinson's
3 months ago
Phase 3 Positive Topline Results for Tavapadon
Cerevel Therapeutics Announces Positive Topline Results for Tavapadon in Phase 3 Adjunctive Trial for People Living with Parkinson’s Disease https://investors.cerevel.com/news-releases/news-release-details/cerevel-therapeutics-announces-positive-topline-results-0
Tavapadon met the primary endpoint
Cerevel Therapeutics Announces Positive Topline Results for Tavapadon in Phase 3 Adjunctive Trial for People Living with Parkinson’s Disease https://investors.cerevel.com/news-releases/news-release-details/cerevel-therapeutics-announces-positive-topline-results-0
Tavapadon met the primary endpoint
nednedned
in
Cure Parkinson's
3 months ago
Trazodone
Hi , after trying very hard to navigate depression without drugs I have now just started Trazodone . Taking Gabapentin successfully, only mild RL . Had every dopamine drug for many years and now completely free of them for at least 6 months . My question is although Trazodone is deemed not to affect
Hi , after trying very hard to navigate depression without drugs I have now just started Trazodone . Taking Gabapentin successfully, only mild RL . Had every dopamine drug for many years and now completely free of them for at least 6 months . My question is although Trazodone is deemed not to affect
Rubynessie
in
Restless Legs Syndrome
3 months ago
update from Ruffabug (End of life plan)
A big thank you to those who kindly replied to my post of a couple weeks ago entitled HELP PLEASE TO REDUCE DOSE OF NEUPRO .To remind you I have terminal cancer with roughly six to nine months life expectancy. After reading your replies I decided not to try to reduce the Dopamine Agonist Receptor drugs
A big thank you to those who kindly replied to my post of a couple weeks ago entitled HELP PLEASE TO REDUCE DOSE OF NEUPRO .To remind you I have terminal cancer with roughly six to nine months life expectancy. After reading your replies I decided not to try to reduce the Dopamine Agonist Receptor drugs
Ruffabug
in
Restless Legs Syndrome
3 months ago
Bad RLS.
Hi all, I've been hovering around these boards for a couple of years now but this is my first post. I am a 39 year old male. As a child and adult sometimes after walking a lot during the day I would have the urge to move my legs when I was in bed trying to sleep, it would feel like I had excess
Hi all, I've been hovering around these boards for a couple of years now but this is my first post. I am a 39 year old male. As a child and adult sometimes after walking a lot during the day I would have the urge to move my legs when I was in bed trying to sleep, it would feel like I had excess
Wintermute
in
Restless Legs Syndrome
3 months ago
Somebody asked why I take Berberine. I figured it something good to share.
Yeah, I need to write down why I take things (I forget why eventually).
So Berberine:
1: It suppresses viruses, including EBV. I think viruses may play some role in PD (I have not been diagnosed with PD. I have RBD and a sore shoulder and some other troubling symptoms): https://healthunlocked.com
Yeah, I need to write down why I take things (I forget why eventually).
So Berberine:
1: It suppresses viruses, including EBV. I think viruses may play some role in PD (I have not been diagnosed with PD. I have RBD and a sore shoulder and some other troubling symptoms): https://healthunlocked.com
Bolt_Upright
in
Cure Parkinson's
3 months ago
Bang for your buck
Supplements, medication, procedures Can someone tell me what supplements should be used with Parkinsons Among the various therapies that have shown at least some effect in the animal and/or human model are Carbadopa/Levadopa Actylcholine Actigal/Ursolic acid Adderil (amphetamine) Alcohol Alpha
Supplements, medication, procedures Can someone tell me what supplements should be used with Parkinsons Among the various therapies that have shown at least some effect in the animal and/or human model are Carbadopa/Levadopa Actylcholine Actigal/Ursolic acid Adderil (amphetamine) Alcohol Alpha
heartinmotion
in
Cure Parkinson's
3 months ago
Long term Ropinirole update
Hi all, I’ve been on ropinirole for about 13 years with a fair amount of success, so thought my feedback to the group may be of value. My RLS is relatively mild compared to some: I can’t manage without medication, but I’ve been able to keep it under control. Things I have learned (in no particular
Hi all, I’ve been on ropinirole for about 13 years with a fair amount of success, so thought my feedback to the group may be of value. My RLS is relatively mild compared to some: I can’t manage without medication, but I’ve been able to keep it under control. Things I have learned (in no particular
OldHollow
in
Restless Legs Syndrome
3 months ago
Impulse Control Disorder on Dopamine Agonists. TV Drama Mr Bates v The Post Office
I have been in touch with a producer of Mr Bates v The Post Office. This programme succeeded in forcing the British Government to pardon all those innocent postmasters falsely accused of theft. The producer has been investigating Dopamine Agonists and Impulse Control Disorder since 2022 and would very
I have been in touch with a producer of Mr Bates v The Post Office. This programme succeeded in forcing the British Government to pardon all those innocent postmasters falsely accused of theft. The producer has been investigating Dopamine Agonists and Impulse Control Disorder since 2022 and would very
Joolsg
in
Restless Legs Syndrome
3 months ago
Help - kindling?
As described in my other posts, my dopamine agonist withdrawal is awful. I suffer from DAWS, and I've done several stays in an hospital neurology service, and they are doing their best to help me, but something is awfully wrong. I got out of the hospital the day after yesterday. Yesterday, I had a
As described in my other posts, my dopamine agonist withdrawal is awful. I suffer from DAWS, and I've done several stays in an hospital neurology service, and they are doing their best to help me, but something is awfully wrong. I got out of the hospital the day after yesterday. Yesterday, I had a
Mikatrap
in
Restless Legs Syndrome
3 months ago
Augmented, now a drug holiday
Diagnosed with RLS 14 years ago. Since then, was on Pramipexole and augmented. Then prescribed Ropinerole and augmented. Saw a new neurologist (which I love!) and it is time for detox from all dopamine agonists. Scared to go through this, but know that it's necessary. What did you all do to help
Diagnosed with RLS 14 years ago. Since then, was on Pramipexole and augmented. Then prescribed Ropinerole and augmented. Saw a new neurologist (which I love!) and it is time for detox from all dopamine agonists. Scared to go through this, but know that it's necessary. What did you all do to help
PianoRunner
in
Restless Legs Syndrome
3 months ago
My response to the AASM Guidelines For RLS
I am posting this in the hope that it helps in forming your own response and if you agree with some of them, including them in your own response might help them pay more attention to them. ---------------------------------------------------------------------------------------------------------------
I am posting this in the hope that it helps in forming your own response and if you agree with some of them, including them in your own response might help them pay more attention to them. ---------------------------------------------------------------------------------------------------------------
SueJohnson
in
Restless Legs Syndrome
3 months ago
Dopamine Agonist Withdrawal Syndrome (DAWS)
https://dc.etsu.edu/asrf/2024/schedule/123/ A case report of DAWS presenting as confusion, emotional liability and headache. Most of us who have been through withdrawal from Ropinirole, Pramipexole and Neupro recognise these symptoms, but hopefully, this article and others will help doctors to understand
https://dc.etsu.edu/asrf/2024/schedule/123/ A case report of DAWS presenting as confusion, emotional liability and headache. Most of us who have been through withdrawal from Ropinirole, Pramipexole and Neupro recognise these symptoms, but hopefully, this article and others will help doctors to understand
Joolsg
in
Restless Legs Syndrome
3 months ago
Parkinsons caused by sugar?
Sugars…. If i was told i had to confirm what it is today id say sugars. Its like diabetes but specifically in the brain behind the blood brain barrier. Why sugar? High link to diabetes, causes high inflammation in both brain & gut, sugar effects dopamine levels which are misbalanced, my personal bad
Sugars…. If i was told i had to confirm what it is today id say sugars. Its like diabetes but specifically in the brain behind the blood brain barrier. Why sugar? High link to diabetes, causes high inflammation in both brain & gut, sugar effects dopamine levels which are misbalanced, my personal bad
Edge999
in
Cure Parkinson's
3 months ago
Big News
Big news with positive result announced for a randomized study of a GLP-1 agonist for Parkinson's just released NEJM A new era for Parkinson's or alternatively, more questions than answers raised by Meissner and colleagues. Key Points: - This multi-center French trial studied Lixisenatide which is a
Big news with positive result announced for a randomized study of a GLP-1 agonist for Parkinson's just released NEJM A new era for Parkinson's or alternatively, more questions than answers raised by Meissner and colleagues. Key Points: - This multi-center French trial studied Lixisenatide which is a
Farooqji
in
Cure Parkinson's
4 months ago
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