Nicotine…… a complete no-brainer. - Cure Parkinson's

Cure Parkinson's

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Nicotine…… a complete no-brainer.

38yroldmale profile image
32 Replies

Update

most don’t know about nicotine, you should. Read my previous post if you’re wondering about it.

I’ll soon be off c/l. I have experimented with nicotine and it seems to work better than the meds. My sense of smell is returning. I’m smelling things that I wish I couldn’t smell, lol. I forgotten the smells of lots of different things. Really if you’ve never smoked before, nicotine is not addictive. And hypothetically if it is, aren’t you addicted to c/l. I’ve said before I stopped c/l cold turkey early in my diagnosis and went into neural malignant syndrome. You can die from that. You can’t die from stopping nicotine. Nicotine has been shown to be neuroprotective. I’d rather be addicted to something protective of my brain. It is a crime that this has been suppressed in my opinion. The gum works better for myself. Kinda as it as needed. Do you know that our wonderful president wants to stop nicotine products by 2030?? Wonder why?

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38yroldmale
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32 Replies
Nitro53 profile image
Nitro53

Nicotine is not addictive? Show me the science behind that. How about alcohol?

38yroldmale profile image
38yroldmale in reply toNitro53

Nicotine is known as the drug that is responsible for the addicted behaviour of tobacco users, but it has poor reinforcing effects when administered alone

This is from a Harvard, is that credible enough ?

pubmed.ncbi.nlm.nih.gov/260...

goldiewan profile image
goldiewan

I agree that nicotine helps! Have been using 7mg patches, now reduced to 3.5mg daily with good improvement in energy and cognition.

gwendolinej profile image
gwendolinej

Hi there 38yoldmale

I’m not on the site like I used to be, as my husband, Alan passed last year. I do though have a98 year old friend with PD. The infrared coronet and CoroNase are arriving this week.

Anyway, I saw the word Nicotine and remembered Professor Andrew Lees who was quoted on this site quite awhile ago. In 2011 he was named the world’s most highly cited Parkinson’s Disease Researcher. I also saw an article quoting him on what he’d do if he had PD. I quote “I’d increase my coffee intake and even chew some nicotine gum twice a week.”

Gwendoline

PS The Wellred CoroNase gave my husband back his sense of taste and smell.

JayPwP profile image
JayPwP in reply togwendolinej

Sad to hear of your husband's demise Gwen,... May his soul rest in peace 🙏

gwendolinej profile image
gwendolinej in reply toJayPwP

Thanks Jay. He died very quickly from a catastrophic bleed. It was a blessing really, as he’d had delirium a few times, which led to dementia. I miss him terribly.

Gwendoline

38yroldmale profile image
38yroldmale in reply togwendolinej

I’m so sorry for loss. I still use the well red every day!

Smittybear7 profile image
Smittybear7 in reply togwendolinej

is it safe to use?

38yroldmale profile image
38yroldmale in reply toSmittybear7

yes, very safe. You do it 1-2 times a day with 8 hrs at least between.

gwendolinej profile image
gwendolinej in reply toSmittybear7

yes, Catherine from Wellred says to start once a day in the morning after breakfast and if all is well , add in the evening sessions straight after the evening meal.

I have a very old friend with PD (98years old). I’ve convinced him to start using the coronet and CoroNase. It’s arriving this week. His symptoms are mild, although his handwriting is very bad. Catherine suggested “get a notepad and write out a line of poetry with the date on it. Do it daily and note which day he starts the Coronet once daily, and which day he moves to twice daily. He can keep a record and see for himself. “

Catherine also said that we are hoping for two outcomes

1. symptom Improvement

2. slowing the disease progression

Gwendoline

Ps I’ve seen videos on this site featuring Catherine and Wellred, also on YouTube.

PD_Partner profile image
PD_Partner

Be careful on nicotine as it can cause osteoporosis. My partner just went through 6 months of very painful compression fractures in his back due to osteoporosis. 4 of them, T5-8, one at a time almost a month apart each. Spend 12 weeks in a brace and Now on Reclast to rebuild bone to avoid more fractures. Parkinson’s progressed of course due to inactivity, been a nightmare for him. All causes of osteoporosis ruled out except for smoking for 50 years.

Need to weigh if the nicotine is worth it for you.

Nicotine can contribute to osteoporosis:

It can disrupt the balance between bone resorption and formation, which can lead to osteoporosis. Slows the production of osteoblasts, which are bone-producing cells. Can reduce the body's ability to absorb calcium from food, which is necessary for bone mineralization. And can reduce blood flow to bones and other tissues.

Smittybear7 profile image
Smittybear7 in reply toPD_Partner

Thanks good to know. I have osteoporosis.

Zardoz profile image
Zardoz

38,

You say you got back your sense of smell. How has nicotine helped other aspects of PD?

Can you walk and move better? Relieved constipation? Relieved fatigue?

38yroldmale profile image
38yroldmale in reply toZardoz

I have almost no fatigue and it works as good as c/l with my gait (which isn’t great) Helps with mood.

kaypeeoh profile image
kaypeeoh

"Really if you’ve never smoked before, nicotine is not addictive...." Oh, horse manure, dude. My dad and mon smoked since they were teens. Then when I was 17 and leaving home they managed to uit. But when dad was sick with prostate cancer he went back to smoking. Mom had quit and never went back.

38yroldmale profile image
38yroldmale in reply tokaypeeoh

Not sure how that applies? They both smoked. I’ve never said tobacco is not addictive. it’s the delivery system and the chemicals they add to smokes that make them addictive.

All the arguments against nicotine turn out to be fraudulent in some way when examined - somebody is making money by convincing you it is harmful. As an example, they repeat that nicotine harms the CV system, in some way. However, the world authority on long-term pure nicotine administration to never-smokers, Dr Paul Newhouse, states clearly that the only chronic effect he can locate unrelated to treating patients with assorted medical conditions is that nicotine lowers the blood pressure slightly.

You might want to read that last sentence again. It’s made by the person with the largest database on pure nicotine clinical trial effects in the world, when administered to never-smokers. Nobody else has access to this size of data resource.

Esperanto profile image
Esperanto

Research has extensively shown that smoking is beneficial for a later onset of Parkinson's disease. However, a recent study on the effects of smoking in diagnosed PD patients found a direct association between smoking and various symptoms. PD patients who smoked experienced more difficulties with drooling, swallowing, freezing, unexplained pains, memory problems, and feelings of sadness. These findings suggest that smoking may aggravate both motor and non-motor symptoms in PD.

gomelgo profile image
gomelgo in reply toEsperanto

But the topic of this post is not smoking.

Esperanto profile image
Esperanto in reply togomelgo

It must be due to my limited English, but this post is indeed about smoking and nicotine. Towards the end, nicotine gum is mentioned, but definitely not your nicotine patches... No problem at all, go ahead, don't keep your thoughts to yourself. 😉

gomelgo profile image
gomelgo in reply toEsperanto

Thanks, and I can see how one could easily interpret  38yroldmale 's post to be about smoking. I don't think he is advocating that. But I will let him speak for himself. I did not interpret his post as being about smoking. It was focused on nicotine. Not the same thing.

38yroldmale profile image
38yroldmale in reply togomelgo

It’s not about smoking, I’m sorry if I’m being confusing. It’s about nicotine. The 2nd most abundant source of nicotine is eggplants. 3rd is tomatoes. God put it in plants for a reason. Nicotine in tobacco is addictive. Nicotine in never smokers is not. People don’t have eggplant breaks, they do have smoke breaks.

gomelgo profile image
gomelgo in reply to38yroldmale

Cigarettes are made to be addictive, with toxic chemicals added in to CAUSE addiction. google.com/search?q=additiv...

gomelgo profile image
gomelgo

Wearing a patch for 2 days now. :) Figured it was worth a try. I'm an ex smoker, so I doubt it will make me want to smoke again.

Sydney75 profile image
Sydney75

It was a big no for my HWP bc of degenerative disk disease. Study disputes effectiveness but if it works for you check what biomarkers to monitor to make sure it does impact other health etc.

evidence.nejm.org/doi/abs/1...

chartist profile image
chartist in reply toSydney75

Several friends with degenerative disc disease (DDD) have had very good experience using a two part combo which consists of this product :

amazon.com/NOW-Hyaluronic-A...

And this product :

amazon.com/Stopain-Strength...

The first product requires 1 capsule at breakfast, lunch and dinner for a total of 3 capsules total per day or 300 mg/day total. The second product requires application as needed for pain until the capsules start to take effect. Once the pain is managed, they were able to discontinue the second product.

In addition, these friends told me that melatonin lotion was additive to the benefit. I explained how other friends made melatonin lotion here :

healthunlocked.com/cure-par...

Art

Sydney75 profile image
Sydney75 in reply tochartist

Thank you!

chartist profile image
chartist in reply toSydney75

You're welcome!

If you decide to try the combo for DDD, they said they started to notice benefit within the first week and very noticeable in the second week with discontinuation of Stopain around 5 weeks.

Art

TheGimba profile image
TheGimba

Couldn't agree more. More luck with gum than patches, not sure why...

busters_dad profile image
busters_dad in reply toTheGimba

The double blind studies I've seen using patches all found no benefit and even worsening symptoms in some. Not saying there isn't something there, but I think the patch route looks pretty useless. Would love to see some studies using nicotine gum. One huge issue with discussion boards like this use keeping in mind correlation does not equal causation. That's what placebo controlled double blind studies are for.

TheGimba profile image
TheGimba in reply tobusters_dad

Hi, Unfortunately we don't really have time to wait for a placebo controlled double blind study for gum. I just wish we had tried the gum 10 years ago instead of big pharma drugs with side effects that almost destroyed our family.

busters_dad profile image
busters_dad in reply toTheGimba

I'm not saying you have to wait. I'm just pointing out that patches have been proven to not work and in fact people got worse. So THAT route of nicotine probably doesn't work. I don' think the gum would hurt. If the gum is doing something for you, great!

38yroldmale profile image
38yroldmale

The reason why I quit the boards is PD had become an obsession, mainly. I didn’t take it personal, it’s hard to engage with people that aren’t open.

I’m nearly off cl. 2 pills a day and feeling better. Look into Biotin.

Low carb has been as helpful as anything, especially mental symptoms.

Those that want to discuss stuff or ask me can email me at Cameronhermansen@gmail.com.

It’s not you guys, it’s a personal choice. I’d love to discuss anything but not in this format

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