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Deep brain stimulation (DBS)
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dbs and massage chairs
THis might sound trival but I cannot find a good full massage chair which is pacemaker /
DBS
friendly. They all exclude people with these devices. Same goes for vibration plates. I get it, they both emit electromagnetic fields. So does my microwave and phone.
THis might sound trival but I cannot find a good full massage chair which is pacemaker /
DBS
friendly. They all exclude people with these devices. Same goes for vibration plates. I get it, they both emit electromagnetic fields. So does my microwave and phone.
Curious_Fred
in
Cure Parkinson's
1 year ago
Deep Brain Stimulation
Does anyone have recent personal experience of
DBS
for tremors? How successful was it as a treatment? Anecdotal information I can probably research for myself. Thank you. I have Cerabellar Ataxia.
Does anyone have recent personal experience of
DBS
for tremors? How successful was it as a treatment? Anecdotal information I can probably research for myself. Thank you. I have Cerabellar Ataxia.
Ostap
in
Ataxia UK
1 year ago
Video- a personal story
A moving video diary of one young man’s Parkinson’s journey to
DBS
. Take a look, it is well worth the time. https://m.youtube.com/watch?v=ZGcSGWenvA8
A moving video diary of one young man’s Parkinson’s journey to
DBS
. Take a look, it is well worth the time. https://m.youtube.com/watch?v=ZGcSGWenvA8
Buckholt
in
Cure Parkinson's
1 year ago
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Need faster research on Neuro-modulation
We see the results of
DBS
and as any treatment one size is not going to fit everyone. There are supplements, vitamins, ideas related to changing the flora within the gut, several concepts of Neuro-modulation, Focus Ultrasound? Stem Cell, Angio-genesis and even Fecal transplant.
We see the results of
DBS
and as any treatment one size is not going to fit everyone. There are supplements, vitamins, ideas related to changing the flora within the gut, several concepts of Neuro-modulation, Focus Ultrasound? Stem Cell, Angio-genesis and even Fecal transplant.
Furch
in
Cure Parkinson's
1 year ago
DBS and cognition
Does having a diagnosis of "major neurocognitive disorder"-- a DSM diagnosis, usually disqualify someone for
DBS
? Is it dependent on other factors?
Does having a diagnosis of "major neurocognitive disorder"-- a DSM diagnosis, usually disqualify someone for
DBS
? Is it dependent on other factors?
Agnes1234
in
Cure Parkinson's
1 year ago
B1 Therapy #Case 2 *Andreia Peres
They had become so severe that she began considering surgical intervention, known as
DBS
, to alleviate the disease's symptoms. About a month ago, she called me. She wanted information about my surgery, which was done using a different, much less invasive technique.
They had become so severe that she began considering surgical intervention, known as
DBS
, to alleviate the disease's symptoms. About a month ago, she called me. She wanted information about my surgery, which was done using a different, much less invasive technique.
Markbit
in
Cure Parkinson's
10 months ago
Next NoSilverBullet webinar on 12th of February: Dr Raul Martinez on “The role of Focused Ultrasound in the management of Parkinson's”
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 12th of February. Dr Raul Martinez Will be talking to us about “The role of Focused Ultrasound in the management of Parkinson's Disease”. Please use the Eventbrite link below
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 12th of February. Dr Raul Martinez Will be talking to us about “The role of Focused Ultrasound in the management of Parkinson's Disease”. Please use the Eventbrite link below
Michel0220
in
Cure Parkinson's
7 months ago
Onset/diagnosis after years
Treatment with levodopa had short-lived effects so doctors decided to use
DBS
therapy.
DBS
did not have the desired effect; my aunt has electrodes in her brain that stimulate dopamine production.
Treatment with levodopa had short-lived effects so doctors decided to use
DBS
therapy.
DBS
did not have the desired effect; my aunt has electrodes in her brain that stimulate dopamine production.
Paulaaaa
in
PSP Association
1 year ago
DBS and Sinemet
I had the
DBS
surgery last October. After
DBS
, Sinemet made my PD symptoms worse...especially balance (It's like I am constantly falling forward and my legs are trying to keep up). I told my neurologist about it and she thought is odd that Sinemet would do that.
I had the
DBS
surgery last October. After
DBS
, Sinemet made my PD symptoms worse...especially balance (It's like I am constantly falling forward and my legs are trying to keep up). I told my neurologist about it and she thought is odd that Sinemet would do that.
DeanGreen
in
Cure Parkinson's
1 year ago
Suggestions For Reducing 'Off' Time
I’m trying to hold off on the
DBS
surgery and hoping the gloves from Stanford will become available soon. "Update: the switch from Rytary 4 doses within a 24 hour period to 1 Rytary dose at night and 6 C/L doses during the day. The change was made because the day doses were less effective.
I’m trying to hold off on the
DBS
surgery and hoping the gloves from Stanford will become available soon. "Update: the switch from Rytary 4 doses within a 24 hour period to 1 Rytary dose at night and 6 C/L doses during the day. The change was made because the day doses were less effective.
tandolino
in
Cure Parkinson's
5 months ago
DBS surgery to help with “ frozen feet “
I have switched exercise workouts to a stationary bicycle, PT therapy 3 times a day, Rock Steady Boxing and now I am thinking about
DBS
surgery, so will
DBS
have a effect on my “ frozen feet “ ? I understand focused ultrasound does not help with this, thx
I have switched exercise workouts to a stationary bicycle, PT therapy 3 times a day, Rock Steady Boxing and now I am thinking about
DBS
surgery, so will
DBS
have a effect on my “ frozen feet “ ? I understand focused ultrasound does not help with this, thx
NewHope1961
in
Cure Parkinson's
1 year ago
New to the community
Turns out it was because of the meds 😢 she was ok at the beginning but after having severe muscle pains 2 years after she decided to undergo “deep brain stimulation (
DBS
)” operation, which in hindsight, was a decision made in rush.
Turns out it was because of the meds 😢 she was ok at the beginning but after having severe muscle pains 2 years after she decided to undergo “deep brain stimulation (
DBS
)” operation, which in hindsight, was a decision made in rush.
Burakakgl
in
Multiple System Atrophy Trust
1 year ago
Departing the Soul
She does not want
DBS
. There is so much to say but I do not have ability or strength to go on right now maybe I will update later. I have no one to ask to make her understand and think rationally.
She does not want
DBS
. There is so much to say but I do not have ability or strength to go on right now maybe I will update later. I have no one to ask to make her understand and think rationally.
gurdeep11
in
Cure Parkinson's
1 year ago
A New Parkinson's Treatment - DBS Plus
A New Parkinson's Treatment -
DBS
Plus - Feb 11, 2020 Learn about a new treatment for Parkinson's being studied at the University of Kentucky HealthCare Brain Restoration Center. https://youtu.be/mdpCPXGtxug
A New Parkinson's Treatment -
DBS
Plus - Feb 11, 2020 Learn about a new treatment for Parkinson's being studied at the University of Kentucky HealthCare Brain Restoration Center. https://youtu.be/mdpCPXGtxug
Bolt_Upright
in
Cure Parkinson's
1 year ago
vimpat / lacosamide stopped fully working
the Vimpat stopped working to completely resolve my RLS. Recent MRIs showed multiple Tarlov cysts on my spine, which is possibly causing the left leg pain and movement. It is positional and separate from the RLS in both legs in my arms and body. I see a new neurosurgeon next week. I’ve had multiple
the Vimpat stopped working to completely resolve my RLS. Recent MRIs showed multiple Tarlov cysts on my spine, which is possibly causing the left leg pain and movement. It is positional and separate from the RLS in both legs in my arms and body. I see a new neurosurgeon next week. I’ve had multiple
SleeplessinNC
in
Restless Legs Syndrome
2 months ago
What am I doing wrong!
Well you know me ! only on here when I am in a pickle !! am boy I am in that pickle.! Cut a long story short have had slow transit bowel all my life but since last August off the scale with impaction after impaction ,trips to A &E and shed loads of movicol ( was going to say something else then !)
Well you know me ! only on here when I am in a pickle !! am boy I am in that pickle.! Cut a long story short have had slow transit bowel all my life but since last August off the scale with impaction after impaction ,trips to A &E and shed loads of movicol ( was going to say something else then !)
Shopnow1
in
IBS Network
2 months ago
Weird leg pain
Hi everyone, I'm hoping someone can shed some light on this weird symptom! For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like
Hi everyone, I'm hoping someone can shed some light on this weird symptom! For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like
Womble84
in
Endometriosis UK
3 months ago
Horizant
Hi everyone and Sue Johnson. I'm wondering if Horizant is the same as Pregabalin? I guess it is a stronger version of gabapentin. I have tried it and it seems to work pretty good for me.
Hi everyone and Sue Johnson. I'm wondering if Horizant is the same as Pregabalin? I guess it is a stronger version of gabapentin. I have tried it and it seems to work pretty good for me.
DocCookie
in
Restless Legs Syndrome
3 months ago
medication timing???
I am now almost 4 weeks free of Pramipexole 😀 I feel like I am over the worst ( back from hell) but I’m now religiously waking at 11pm then again at 12pm (and sometimes at 1am) with RLS. I have a 10 minute walk around the house and this does ease my pain. I am slowly increasing my Gabapentin dose and
I am now almost 4 weeks free of Pramipexole 😀 I feel like I am over the worst ( back from hell) but I’m now religiously waking at 11pm then again at 12pm (and sometimes at 1am) with RLS. I have a 10 minute walk around the house and this does ease my pain. I am slowly increasing my Gabapentin dose and
Cookiebum24
in
Restless Legs Syndrome
3 months ago
What is an ICM?
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin on your breastbone to record the activity of your heart. It can remain in place for up to 3 years. The device will capture and record 'episodes'. The recorded data will be collated and assessed and help to diagnose
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin on your breastbone to record the activity of your heart. It can remain in place for up to 3 years. The device will capture and record 'episodes'. The recorded data will be collated and assessed and help to diagnose
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
4 months ago
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