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Diamine oxidase (DAO) deficiency
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Iron Infusion in the U.S.
Hello wise RLS colleagues!Has anyone had Medicare pay for an iron infusion for their RLS? I meet the RLS guidelines for iron infusion, but I have been told that Medicare will not cover it because I am not anemic. If it was covered, can you share with me what code was used? I have had RLS for 20 years
Hello wise RLS colleagues!Has anyone had Medicare pay for an iron infusion for their RLS? I meet the RLS guidelines for iron infusion, but I have been told that Medicare will not cover it because I am not anemic. If it was covered, can you share with me what code was used? I have had RLS for 20 years
Qalba
in
Restless Legs Syndrome
1 year ago
Results
Can anyone make sense of these results for me please? I was ferritin level 6ugL (23-300) in September. It has rose which I'm happy about but I'm still incredibly symptomatic, I don't really understand blood test readings, can anyone shed some light on it? Serum Ferritin level (XE24r) 26ug/L (23-300
Can anyone make sense of these results for me please? I was ferritin level 6ugL (23-300) in September. It has rose which I'm happy about but I'm still incredibly symptomatic, I don't really understand blood test readings, can anyone shed some light on it? Serum Ferritin level (XE24r) 26ug/L (23-300
Pheebs93
in
Pernicious Anaemia Society
1 year ago
Treating anaemia alongside thyroid medication
Having been on T3 only for about 8 months, I have made some massive strides in terms of my general health. Most of the symptoms that had me at my absolute lowest ebb, have gone. However, if one remains it is a general feeling of weakness. I used to weight lift 4 - 5 times a week before thyroid illness
Having been on T3 only for about 8 months, I have made some massive strides in terms of my general health. Most of the symptoms that had me at my absolute lowest ebb, have gone. However, if one remains it is a general feeling of weakness. I used to weight lift 4 - 5 times a week before thyroid illness
JonnyA
in
Thyroid UK
1 year ago
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Could anyone help me with my results please
18/11/22 Serum iron 24 .4 range 5.8-34.5 Transferrin 2.34 range 2-3.6 Unsat binding capacity 59 range 50-90 % transf sat 41% range 16-40% Haemoglobin 138 range 120-160 RBC 4.49 range 4.1-5.1 RDW 12 2% range 11.5-15.7 MCV 93.1 range 80-100 MCH 330 range 30.7 range 27-33 MCHC 30.7 range 320-369
18/11/22 Serum iron 24 .4 range 5.8-34.5 Transferrin 2.34 range 2-3.6 Unsat binding capacity 59 range 50-90 % transf sat 41% range 16-40% Haemoglobin 138 range 120-160 RBC 4.49 range 4.1-5.1 RDW 12 2% range 11.5-15.7 MCV 93.1 range 80-100 MCH 330 range 30.7 range 27-33 MCHC 30.7 range 320-369
Paula1710
in
Pernicious Anaemia Society
1 year ago
Low B12 and headaches
I suffer with low iron and low b12. I had an iron infusion 10 days ago, prior that I and a persistent headache for a week. I had a b12 injection 2 days after the iron infusion. The headache went 2 days after the b12 jab, but then came back 3 days later with really bad dizziness. I’ve had another b12
I suffer with low iron and low b12. I had an iron infusion 10 days ago, prior that I and a persistent headache for a week. I had a b12 injection 2 days after the iron infusion. The headache went 2 days after the b12 jab, but then came back 3 days later with really bad dizziness. I’ve had another b12
Beee2
in
Pernicious Anaemia Society
1 year ago
how much gentle iron?
what dose should i start on… i have bought iron bisglycinate 20 mg. But have been recommended 320 mcg ferrous sulphate. So very confused at the different levels. How do these figures relate to each other? And do you have to take gentle iron on an empty stomach? The bottle says to take with food. Any
what dose should i start on… i have bought iron bisglycinate 20 mg. But have been recommended 320 mcg ferrous sulphate. So very confused at the different levels. How do these figures relate to each other? And do you have to take gentle iron on an empty stomach? The bottle says to take with food. Any
Jukebox55
in
Restless Legs Syndrome
1 year ago
PA with iron deficiency
Hi all.I think I told you guys that my Iron is very low. Ferritin is 5, iron saturation is 4 and always low rbc. I finally got set up with an infusion center for iron and start next. I'll do one a week for 10 weeks. I've felt off, breathy and tired for a year or so now. Someday's, i just can't get off
Hi all.I think I told you guys that my Iron is very low. Ferritin is 5, iron saturation is 4 and always low rbc. I finally got set up with an infusion center for iron and start next. I'll do one a week for 10 weeks. I've felt off, breathy and tired for a year or so now. Someday's, i just can't get off
Wowo23
in
Pernicious Anaemia Society
1 year ago
Iron/Ferritin
Dear All,I have now had my latest blood tests back and my ferritin levels, with the help of iron tablets, has risen from 45 to 120. However, unlike others in our group, my RLS are still pretty awful. Do I have to be patient and hope the RLS now improve???? Otherwise it will be pretty depressing. Sue
Dear All,I have now had my latest blood tests back and my ferritin levels, with the help of iron tablets, has risen from 45 to 120. However, unlike others in our group, my RLS are still pretty awful. Do I have to be patient and hope the RLS now improve???? Otherwise it will be pretty depressing. Sue
Simkin
in
Restless Legs Syndrome
1 year ago
Dad’s iron studies
Hello all My dad has just collected his latest iron studies prior to call from GP at some point today. Would you mind taking a look and interpreting please. Have tried to use the Polish calculator to work out percentages but there’s an error and I can’t use it. 23/11/22 CRP <4 (0 - 9) Ferritin
Hello all My dad has just collected his latest iron studies prior to call from GP at some point today. Would you mind taking a look and interpreting please. Have tried to use the Polish calculator to work out percentages but there’s an error and I can’t use it. 23/11/22 CRP <4 (0 - 9) Ferritin
musicaljune
in
Thyroid UK
1 year ago
how to get IV iron infusion
i have had RLS for 30 years. Been on dopamine for 6 years. Shocked to read about how iron can help. Has anyone been able to get IV iron infusion? Who from? How best to go about it?? thanks!!!
i have had RLS for 30 years. Been on dopamine for 6 years. Shocked to read about how iron can help. Has anyone been able to get IV iron infusion? Who from? How best to go about it?? thanks!!!
Jukebox55
in
Restless Legs Syndrome
1 year ago
IMPORTANT: Nicotinamide riboside (or NAD+ or Tru Niagen) may be involved in neoplastic and metastatic processes
Some of us were taking nicotinamide riboside for RLS. A few days ago a paper was published with data suggesting it could be involved neoplastic and metastatic processes. Hence, please take this in consideration if you were taking nicotinamide riboside. Here is the reference: A bioluminescent-based
Some of us were taking nicotinamide riboside for RLS. A few days ago a paper was published with data suggesting it could be involved neoplastic and metastatic processes. Hence, please take this in consideration if you were taking nicotinamide riboside. Here is the reference: A bioluminescent-based
enjoy2013
in
Restless Legs Syndrome
1 year ago
IFAB testing guidelines per Mayo clinic laboratory website
I found this IFAB test guideline. I found a few things pretty interesting. This particular lab which is the lab that did my IFAB test says that you should be fasting for 8 hours before you take this test and you should not have had any B12 injections within 2 weeks prior to the test. Another interesting
I found this IFAB test guideline. I found a few things pretty interesting. This particular lab which is the lab that did my IFAB test says that you should be fasting for 8 hours before you take this test and you should not have had any B12 injections within 2 weeks prior to the test. Another interesting
EllaNore
in
Pernicious Anaemia Society
1 year ago
Seemingly a sudden drop in ferritin but is it really?
15/08/22 Ferritin 236ug/L (13 - 150) Quite a bit over range, so I’m puzzled that a mere 12 weeks later - 16/11/22 - according to the new reference range it has suffered a significant drop to 39% through Yes, I immediately stopped iron supplementation but I continued with acerola to aid with food
15/08/22 Ferritin 236ug/L (13 - 150) Quite a bit over range, so I’m puzzled that a mere 12 weeks later - 16/11/22 - according to the new reference range it has suffered a significant drop to 39% through Yes, I immediately stopped iron supplementation but I continued with acerola to aid with food
Noelnoel
in
Thyroid UK
1 year ago
Iron Infusions
An interesting article on iron infusions and when they should be considered for the general population.It mentions that inflammation can stop iron absorption. It also confirms that newer iv iron formulations are much safer with very low risk of adverse side effects. Most GPs will say iron infusions are
An interesting article on iron infusions and when they should be considered for the general population.It mentions that inflammation can stop iron absorption. It also confirms that newer iv iron formulations are much safer with very low risk of adverse side effects. Most GPs will say iron infusions are
Joolsg
in
Restless Legs Syndrome
1 year ago
results
follow on from my post yesterday finally have full test results. There also full blood count results but I guess they’re not relevant Test results 9 nov 22 Thyroid ft4 13.1 (12-22) TSH 2.49 (0.27-4.20) Ferritin 9.1 (13-150) Transferrin 3.49 (2.0-3.6) Iron 12.6 (10-30) Saturation % 14.4 (<55)
follow on from my post yesterday finally have full test results. There also full blood count results but I guess they’re not relevant Test results 9 nov 22 Thyroid ft4 13.1 (12-22) TSH 2.49 (0.27-4.20) Ferritin 9.1 (13-150) Transferrin 3.49 (2.0-3.6) Iron 12.6 (10-30) Saturation % 14.4 (<55)
jeffbird
in
Thyroid UK
2 years ago
Blood Test Results - Unusual Symptoms
Hi there I'm a 56 year old woman and have been treated for an under active thyroid for a decade or so. Currently taking 150 mcg Levothyroxine sodium per day. Around 8 weeks ago I started to experience some unusual symptoms; intense anxiety, fatigue, calf muscle twitches (and random twitching elsewhere
Hi there I'm a 56 year old woman and have been treated for an under active thyroid for a decade or so. Currently taking 150 mcg Levothyroxine sodium per day. Around 8 weeks ago I started to experience some unusual symptoms; intense anxiety, fatigue, calf muscle twitches (and random twitching elsewhere
DonEstello
in
Thyroid UK
2 years ago
IFA negative, Low Active B12 - advice please.
Hi - a brief update and request for advice on B12. I have autoimmune hypothyroidism. Following a disappointing Endo appointment I wrote a detailed email to request an appointment with the Consultant as I felt I hadn’t had the chance to discuss my concerns properly with her junior. This was granted
Hi - a brief update and request for advice on B12. I have autoimmune hypothyroidism. Following a disappointing Endo appointment I wrote a detailed email to request an appointment with the Consultant as I felt I hadn’t had the chance to discuss my concerns properly with her junior. This was granted
GW1000
in
Pernicious Anaemia Society
2 years ago
Anemia
dealing with iron deficiency anemia of chronic diseases and suspect a B12 deficiency too but I almost think my immune system has attacked something else, to the point that I have a whole nother level of Anemia’s … It’s been 6 weeks since I had my last iron infusion and I’m starting to feel really weak
dealing with iron deficiency anemia of chronic diseases and suspect a B12 deficiency too but I almost think my immune system has attacked something else, to the point that I have a whole nother level of Anemia’s … It’s been 6 weeks since I had my last iron infusion and I’m starting to feel really weak
SouthernBell50
in
Pernicious Anaemia Society
2 years ago
Iron Info Heme vs Non Heme
So, Heme iron is from animal sources and is apparently better absorbed than non Heme iron (from plant sources). The two different iron types are absorbed by different pathways. But, there are real risks in supplementing with Heme iron - Coronary Artery disease and Cancer incidence increases. I would
So, Heme iron is from animal sources and is apparently better absorbed than non Heme iron (from plant sources). The two different iron types are absorbed by different pathways. But, there are real risks in supplementing with Heme iron - Coronary Artery disease and Cancer incidence increases. I would
DicCarlson
in
Restless Legs Syndrome
2 years ago
Adjusting to new thyroxine dosage
Please could someone help as have recently had my dosage of thyroxine increased after blood tests indicated that it needed to be done. I also managed to have my brand changed back to Goldshield recently. Have been feeling like hell for some time so eventually my GP agreed to have bloods done, thus
Please could someone help as have recently had my dosage of thyroxine increased after blood tests indicated that it needed to be done. I also managed to have my brand changed back to Goldshield recently. Have been feeling like hell for some time so eventually my GP agreed to have bloods done, thus
JennyWrenn4
in
Thyroid UK
2 years ago
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