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Cyclosporin
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Gout control after transplant
I had a transplant about 10 years ago. So far so good. God sent. But, I had a third gout (last one was 6 years ago) about 9 days ago after the transplant partially due to Cyclosporine. I took Colchicine to treat the flare this time on the 7th day as symptoms got worse on the 5th day. After 0.6 mg Colchicine
I had a transplant about 10 years ago. So far so good. God sent. But, I had a third gout (last one was 6 years ago) about 9 days ago after the transplant partially due to Cyclosporine. I took Colchicine to treat the flare this time on the 7th day as symptoms got worse on the 5th day. After 0.6 mg Colchicine
SouthwoodTiger
in
Kidney Transplant
2 years ago
Sjogrens etc
I would be very grateful for advice...it's probably something I should know already. I have Sjogrens, probably Lupus (or some sort of overlap) and Hashimoto's. I feel pretty rubbish quite a lot of the time...but know that I need to really think about what I can do to look after myself to try to avert
I would be very grateful for advice...it's probably something I should know already. I have Sjogrens, probably Lupus (or some sort of overlap) and Hashimoto's. I feel pretty rubbish quite a lot of the time...but know that I need to really think about what I can do to look after myself to try to avert
puffyface
in
The Australian Sjögren's Syndrome Association
2 years ago
Hard time with meds
Hi everyone! I had my transplant around 8 months ago, and was doing well for the first three, higher energy than before the transplant, excitement and was feeling super positive about the whole thing. Then the meds really started to mess with me. I switched from tac to everolimus because the tremors
Hi everyone! I had my transplant around 8 months ago, and was doing well for the first three, higher energy than before the transplant, excitement and was feeling super positive about the whole thing. Then the meds really started to mess with me. I switched from tac to everolimus because the tremors
steeens_
in
Kidney Transplant
2 years ago
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Losing weight while on steroids
Hi all , I had a lung transplant 5 years ago and have been on dual anti rejection meds of prednisolone and
cyclosporin
. I'm on 8mg of steroids daily I also have gastropharesis.
Hi all , I had a lung transplant 5 years ago and have been on dual anti rejection meds of prednisolone and
cyclosporin
. I'm on 8mg of steroids daily I also have gastropharesis.
Hidden
in
Lung Conditions Community Forum
3 years ago
Tacrolimus vs. Cyclosporine
Does anyone take Cyclosporine instead of Tacrolimus? I have recently made the change to Cyclosporine in order to grow back my very thin hair. Tacrolimus caused my really good head of hair to thin and fall out.
Does anyone take Cyclosporine instead of Tacrolimus? I have recently made the change to Cyclosporine in order to grow back my very thin hair. Tacrolimus caused my really good head of hair to thin and fall out.
Pc3661
in
Kidney Transplant
2 years ago
VOLUNTEER EXPERT PATIENTS NEEDED - Moderate/Severe Lupus Nephritis for NICE Appraisal of Voclosporin
Hi everyone, NICE recently announced that they will be conducting a Health Technology Appraisal (HTA) for the use of voclosporin with immunosuppressives for treating lupus nephritis - https://www.nice.org.uk/guidance/indevelopment/gid-ta10878 Voclosporin is a new drug for the treatment of lupus nephritis
Hi everyone, NICE recently announced that they will be conducting a Health Technology Appraisal (HTA) for the use of voclosporin with immunosuppressives for treating lupus nephritis - https://www.nice.org.uk/guidance/indevelopment/gid-ta10878 Voclosporin is a new drug for the treatment of lupus nephritis
Paul_Howard
LUPUS UK
in
LUPUS UK
3 years ago
Steroid dependent membranous nephritis
male.i was first diagnosed with proteinuria in 2007 and biopsy result showed Minimal change disease.i was given occasional steroids in various forms till 2011.remission occured and went well till 2016.in 2016 i again underwent biopsy and it showed early membranous nephritis.since then i have been given
Cyclosporin
male.i was first diagnosed with proteinuria in 2007 and biopsy result showed Minimal change disease.i was given occasional steroids in various forms till 2011.remission occured and went well till 2016.in 2016 i again underwent biopsy and it showed early membranous nephritis.since then i have been given
Cyclosporin
Sajjadsadique
in
Kidney Disease
3 years ago
Pfizer antiviral Covid-19 tablet “Paxlovid” a word of caution
On 22 December the U.S. Food and Drug Administration issued an emergency use authorisation (EUA) for Pfizer’s Paxlovid (nirmatrelvir tablets and ritonavir tablets, co-packaged for oral use) for the treatment of mild-to-moderate coronavirus disease (COVID-19) in adults. Pfizer has also announced an agreement
On 22 December the U.S. Food and Drug Administration issued an emergency use authorisation (EUA) for Pfizer’s Paxlovid (nirmatrelvir tablets and ritonavir tablets, co-packaged for oral use) for the treatment of mild-to-moderate coronavirus disease (COVID-19) in adults. Pfizer has also announced an agreement
Richard-Allen
in
British Liver Trust
3 years ago
Belatacept Infusion
Has anyone been in this forum been given a Belatacept Infusion to replace their Tacrolimas of Cyclosporine? If so what are your thoughts?
Has anyone been in this forum been given a Belatacept Infusion to replace their Tacrolimas of Cyclosporine? If so what are your thoughts?
Brownsfan22
in
Kidney Transplant Patient Support
3 years ago
Covid Vaccine information Via JCVI
I am posting this for purely information relating to the immunosuppressed and Covid vaccination, it is a letter I received today from the Hospital. " Please note the third dose is part of your primary course of vaccination and is separate to a booster vaccination, which you will also be eligible for
I am posting this for purely information relating to the immunosuppressed and Covid vaccination, it is a letter I received today from the Hospital. " Please note the third dose is part of your primary course of vaccination and is separate to a booster vaccination, which you will also be eligible for
AncientMariner
in
PMRGCAuk
3 years ago
Medication and abnormal liver blood tests
Hello, I am wondering if any of you more experienced people can help? My husband has been on methotrexate injections. Last year he had hydroxychloroquine and a steroid injection to control a flare, but the steroids affected his diabetes, which has has now brought back under control with diet and loosing
Hello, I am wondering if any of you more experienced people can help? My husband has been on methotrexate injections. Last year he had hydroxychloroquine and a steroid injection to control a flare, but the steroids affected his diabetes, which has has now brought back under control with diet and loosing
strongmouse
in
NRAS
3 years ago
A Measure of Health with SLE Lupus
Am a 64 year old female diagnosed with SLE Lupus in the June 2000 at age 43, after 2 years of marriage. It affected my left lung (pulmonary fibrosis--doctors were preparing me for a lung transplant but refused it). At this time I was being treated with cyclosporine in preparation for the transplant
Am a 64 year old female diagnosed with SLE Lupus in the June 2000 at age 43, after 2 years of marriage. It affected my left lung (pulmonary fibrosis--doctors were preparing me for a lung transplant but refused it). At this time I was being treated with cyclosporine in preparation for the transplant
UKMoss
in
LUPUS UK
3 years ago
Any advice or research on switching from cyclosporine to tacrolimus
I am 30 years post transplant with creatinine of .8 and Allosure steadily increasing to .68 last month. My new transplant doctor wants to switch me from cyclo to tacro and wants my input. I am really torn. I would like to read and research some more on the topic. Please share advice or information
I am 30 years post transplant with creatinine of .8 and Allosure steadily increasing to .68 last month. My new transplant doctor wants to switch me from cyclo to tacro and wants my input. I am really torn. I would like to read and research some more on the topic. Please share advice or information
Rheap123
in
Kidney Transplant
3 years ago
THE 2021 EUROPEAN GROUP ON GRAVES' ORBITOPATHY (EUGOGO) CLINICAL PRACTICE GUIDELINES FOR THE MEDICAL MANAGEMENT OF GRAVES' ORBITOPATHY
Despite brexit, this group includes the UK and has two members located in UK hospitals. [i]Eur J Endocrinol . 2021 Jul 1;EJE-21-0479.R1. doi: 10.1530/EJE-21-0479. Online ahead of print.
THE 2021 EUROPEAN GROUP ON GRAVES' ORBITOPATHY (EUGOGO) CLINICAL PRACTICE GUIDELINES FOR THE MEDICAL MANAGEMENT
Despite brexit, this group includes the UK and has two members located in UK hospitals. [i]Eur J Endocrinol . 2021 Jul 1;EJE-21-0479.R1. doi: 10.1530/EJE-21-0479. Online ahead of print.
THE 2021 EUROPEAN GROUP ON GRAVES' ORBITOPATHY (EUGOGO) CLINICAL PRACTICE GUIDELINES FOR THE MEDICAL MANAGEMENT
helvella
Thyroid UK
in
Thyroid UK
3 years ago
Methotrexate
Hi Ruby Robs, I have circumferential Morphea with fasciitis. My elbows, wrists, fingers, knees and ankles are affected - bent and locked, my skin between the joints is hard/inflamed. I’ve been taking methotrexate since February 2020 - injected weekly 22.5mg as well as other immunosuppressants; Mycophenolate
Hi Ruby Robs, I have circumferential Morphea with fasciitis. My elbows, wrists, fingers, knees and ankles are affected - bent and locked, my skin between the joints is hard/inflamed. I’ve been taking methotrexate since February 2020 - injected weekly 22.5mg as well as other immunosuppressants; Mycophenolate
Oscar_20
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updat
– 63% were on mycophenolate mofetil (CellCept) – 87% were on steroids (like prednisone) – 79% were on calcineurin inhibitors (such as tacrolimus and
cyclosporin
) – Others were on others such as mammalian target of rapamycin inhibitors, and belatacept How were they vaccinated against COVID-19?
– 63% were on mycophenolate mofetil (CellCept) – 87% were on steroids (like prednisone) – 79% were on calcineurin inhibitors (such as tacrolimus and
cyclosporin
) – Others were on others such as mammalian target of rapamycin inhibitors, and belatacept How were they vaccinated against COVID-19?
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Skyrizi (Risankizumab) biologic
I was briefly put on
Cyclosporin
for a flare up but came off due to high blood pressure and went back to methotrexate. In late 2020 it was apparent that it was not improving the psoriasis and was changed to Acertretin (awful side effects). As a result I was changed to Skyrizi.
I was briefly put on
Cyclosporin
for a flare up but came off due to high blood pressure and went back to methotrexate. In late 2020 it was apparent that it was not improving the psoriasis and was changed to Acertretin (awful side effects). As a result I was changed to Skyrizi.
Fishing1949
in
Beyond Psoriasis
3 years ago
Diagnosed with lupus 18 months ago
Hi, I’m not new to this forum , though this is the first time I have posted. I have spent the last 10 months since signing up reading all your posts and plucking up the courage to finally post!! I’m currently sat waiting in the DSA suite in my local hospital to be taken down for a liver biopsy.
Hi, I’m not new to this forum , though this is the first time I have posted. I have spent the last 10 months since signing up reading all your posts and plucking up the courage to finally post!! I’m currently sat waiting in the DSA suite in my local hospital to be taken down for a liver biopsy.
YellowLego
in
LUPUS UK
3 years ago
Dry eyes
I have suffered dry eyes for over 40 years. All was fine until last summer when I started having problems again. I contacted my GP who told me to go to my optician. The optician told me if I didn't take more care of my eyes I would suffer with corneal scarring and other problems. He told me to research
I have suffered dry eyes for over 40 years. All was fine until last summer when I started having problems again. I contacted my GP who told me to go to my optician. The optician told me if I didn't take more care of my eyes I would suffer with corneal scarring and other problems. He told me to research
Bailybiscuit
in
NRAS
3 years ago
Anyone had prednisolone and/or cyclosporin for TED?
Has anyone had this treatment? Back in 2019 when my TED flared, I was offered a high dose of IV prednisolone plus cyclosporine for 12 weeks... but because I'd just come out of cancer treatment, and because I was all hyper and anxious because, duh, Graves, I knocked back the offer. I had heard that '
Has anyone had this treatment? Back in 2019 when my TED flared, I was offered a high dose of IV prednisolone plus cyclosporine for 12 weeks... but because I'd just come out of cancer treatment, and because I was all hyper and anxious because, duh, Graves, I knocked back the offer. I had heard that '
Ffantastig
in
Thyroid UK
4 years ago
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