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Cyclosporin
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VOLUNTEER EXPERT PATIENTS NEEDED - Moderate/Severe Lupus Nephritis for NICE Appraisal of Voclosporin
Hi everyone, NICE recently announced that they will be conducting a Health Technology Appraisal (HTA) for the use of voclosporin with immunosuppressives for treating lupus nephritis - https://www.nice.org.uk/guidance/indevelopment/gid-ta10878 Voclosporin is a new drug for the treatment of lupus nephritis
Hi everyone, NICE recently announced that they will be conducting a Health Technology Appraisal (HTA) for the use of voclosporin with immunosuppressives for treating lupus nephritis - https://www.nice.org.uk/guidance/indevelopment/gid-ta10878 Voclosporin is a new drug for the treatment of lupus nephritis
Paul_Howard
LUPUS UK
in
LUPUS UK
2 years ago
Steroid dependent membranous nephritis
male.i was first diagnosed with proteinuria in 2007 and biopsy result showed Minimal change disease.i was given occasional steroids in various forms till 2011.remission occured and went well till 2016.in 2016 i again underwent biopsy and it showed early membranous nephritis.since then i have been given
Cyclosporin
male.i was first diagnosed with proteinuria in 2007 and biopsy result showed Minimal change disease.i was given occasional steroids in various forms till 2011.remission occured and went well till 2016.in 2016 i again underwent biopsy and it showed early membranous nephritis.since then i have been given
Cyclosporin
Sajjadsadique
in
Kidney Disease
2 years ago
Pfizer antiviral Covid-19 tablet “Paxlovid” a word of caution
On 22 December the U.S. Food and Drug Administration issued an emergency use authorisation (EUA) for Pfizer’s Paxlovid (nirmatrelvir tablets and ritonavir tablets, co-packaged for oral use) for the treatment of mild-to-moderate coronavirus disease (COVID-19) in adults. Pfizer has also announced an agreement
On 22 December the U.S. Food and Drug Administration issued an emergency use authorisation (EUA) for Pfizer’s Paxlovid (nirmatrelvir tablets and ritonavir tablets, co-packaged for oral use) for the treatment of mild-to-moderate coronavirus disease (COVID-19) in adults. Pfizer has also announced an agreement
Richard-Allen
in
British Liver Trust
2 years ago
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Belatacept Infusion
Has anyone been in this forum been given a Belatacept Infusion to replace their Tacrolimas of Cyclosporine? If so what are your thoughts?
Has anyone been in this forum been given a Belatacept Infusion to replace their Tacrolimas of Cyclosporine? If so what are your thoughts?
Brownsfan22
in
Kidney Transplant Patient Support
2 years ago
Covid Vaccine information Via JCVI
I am posting this for purely information relating to the immunosuppressed and Covid vaccination, it is a letter I received today from the Hospital. " Please note the third dose is part of your primary course of vaccination and is separate to a booster vaccination, which you will also be eligible for
I am posting this for purely information relating to the immunosuppressed and Covid vaccination, it is a letter I received today from the Hospital. " Please note the third dose is part of your primary course of vaccination and is separate to a booster vaccination, which you will also be eligible for
AncientMariner
in
PMRGCAuk
2 years ago
Medication and abnormal liver blood tests
Hello, I am wondering if any of you more experienced people can help? My husband has been on methotrexate injections. Last year he had hydroxychloroquine and a steroid injection to control a flare, but the steroids affected his diabetes, which has has now brought back under control with diet and loosing
Hello, I am wondering if any of you more experienced people can help? My husband has been on methotrexate injections. Last year he had hydroxychloroquine and a steroid injection to control a flare, but the steroids affected his diabetes, which has has now brought back under control with diet and loosing
strongmouse
in
NRAS
3 years ago
A Measure of Health with SLE Lupus
Am a 64 year old female diagnosed with SLE Lupus in the June 2000 at age 43, after 2 years of marriage. It affected my left lung (pulmonary fibrosis--doctors were preparing me for a lung transplant but refused it). At this time I was being treated with cyclosporine in preparation for the transplant
Am a 64 year old female diagnosed with SLE Lupus in the June 2000 at age 43, after 2 years of marriage. It affected my left lung (pulmonary fibrosis--doctors were preparing me for a lung transplant but refused it). At this time I was being treated with cyclosporine in preparation for the transplant
UKMoss
in
LUPUS UK
3 years ago
Any advice or research on switching from cyclosporine to tacrolimus
I am 30 years post transplant with creatinine of .8 and Allosure steadily increasing to .68 last month. My new transplant doctor wants to switch me from cyclo to tacro and wants my input. I am really torn. I would like to read and research some more on the topic. Please share advice or information
I am 30 years post transplant with creatinine of .8 and Allosure steadily increasing to .68 last month. My new transplant doctor wants to switch me from cyclo to tacro and wants my input. I am really torn. I would like to read and research some more on the topic. Please share advice or information
Rheap123
in
Kidney Transplant
3 years ago
THE 2021 EUROPEAN GROUP ON GRAVES' ORBITOPATHY (EUGOGO) CLINICAL PRACTICE GUIDELINES FOR THE MEDICAL MANAGEMENT OF GRAVES' ORBITOPATHY
Despite brexit, this group includes the UK and has two members located in UK hospitals. [i]Eur J Endocrinol . 2021 Jul 1;EJE-21-0479.R1. doi: 10.1530/EJE-21-0479. Online ahead of print.
THE 2021 EUROPEAN GROUP ON GRAVES' ORBITOPATHY (EUGOGO) CLINICAL PRACTICE GUIDELINES FOR THE MEDICAL MANAGEMENT
Despite brexit, this group includes the UK and has two members located in UK hospitals. [i]Eur J Endocrinol . 2021 Jul 1;EJE-21-0479.R1. doi: 10.1530/EJE-21-0479. Online ahead of print.
THE 2021 EUROPEAN GROUP ON GRAVES' ORBITOPATHY (EUGOGO) CLINICAL PRACTICE GUIDELINES FOR THE MEDICAL MANAGEMENT
helvella
Thyroid UK
in
Thyroid UK
3 years ago
Methotrexate
Hi Ruby Robs, I have circumferential Morphea with fasciitis. My elbows, wrists, fingers, knees and ankles are affected - bent and locked, my skin between the joints is hard/inflamed. I’ve been taking methotrexate since February 2020 - injected weekly 22.5mg as well as other immunosuppressants; Mycophenolate
Hi Ruby Robs, I have circumferential Morphea with fasciitis. My elbows, wrists, fingers, knees and ankles are affected - bent and locked, my skin between the joints is hard/inflamed. I’ve been taking methotrexate since February 2020 - injected weekly 22.5mg as well as other immunosuppressants; Mycophenolate
Oscar_20
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Skyrizi (Risankizumab) biologic
I was briefly put on
Cyclosporin
for a flare up but came off due to high blood pressure and went back to methotrexate. In late 2020 it was apparent that it was not improving the psoriasis and was changed to Acertretin (awful side effects). As a result I was changed to Skyrizi.
I was briefly put on
Cyclosporin
for a flare up but came off due to high blood pressure and went back to methotrexate. In late 2020 it was apparent that it was not improving the psoriasis and was changed to Acertretin (awful side effects). As a result I was changed to Skyrizi.
Fishing1949
in
Beyond Psoriasis
3 years ago
Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updat
– 63% were on mycophenolate mofetil (CellCept) – 87% were on steroids (like prednisone) – 79% were on calcineurin inhibitors (such as tacrolimus and
cyclosporin
) – Others were on others such as mammalian target of rapamycin inhibitors, and belatacept How were they vaccinated against COVID-19?
– 63% were on mycophenolate mofetil (CellCept) – 87% were on steroids (like prednisone) – 79% were on calcineurin inhibitors (such as tacrolimus and
cyclosporin
) – Others were on others such as mammalian target of rapamycin inhibitors, and belatacept How were they vaccinated against COVID-19?
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Diagnosed with lupus 18 months ago
Hi, I’m not new to this forum , though this is the first time I have posted. I have spent the last 10 months since signing up reading all your posts and plucking up the courage to finally post!! I’m currently sat waiting in the DSA suite in my local hospital to be taken down for a liver biopsy.
Hi, I’m not new to this forum , though this is the first time I have posted. I have spent the last 10 months since signing up reading all your posts and plucking up the courage to finally post!! I’m currently sat waiting in the DSA suite in my local hospital to be taken down for a liver biopsy.
YellowLego
in
LUPUS UK
3 years ago
Dry eyes
I have suffered dry eyes for over 40 years. All was fine until last summer when I started having problems again. I contacted my GP who told me to go to my optician. The optician told me if I didn't take more care of my eyes I would suffer with corneal scarring and other problems. He told me to research
I have suffered dry eyes for over 40 years. All was fine until last summer when I started having problems again. I contacted my GP who told me to go to my optician. The optician told me if I didn't take more care of my eyes I would suffer with corneal scarring and other problems. He told me to research
Bailybiscuit
in
NRAS
3 years ago
Anyone had prednisolone and/or cyclosporin for TED?
Has anyone had this treatment? Back in 2019 when my TED flared, I was offered a high dose of IV prednisolone plus cyclosporine for 12 weeks... but because I'd just come out of cancer treatment, and because I was all hyper and anxious because, duh, Graves, I knocked back the offer. I had heard that '
Has anyone had this treatment? Back in 2019 when my TED flared, I was offered a high dose of IV prednisolone plus cyclosporine for 12 weeks... but because I'd just come out of cancer treatment, and because I was all hyper and anxious because, duh, Graves, I knocked back the offer. I had heard that '
Ffantastig
in
Thyroid UK
3 years ago
Should You Get the COVID-19 Vaccine During a Disease Flare-Up?
Here’s what rheumatologists and other specialists are telling their patients about getting the vaccine even during higher than usual disease activity. Learn more about our FREE COVID-19 Patient Support Program for chronic illness patients and their loved ones. Arthritis Hand Wrist Pain If you live with
Here’s what rheumatologists and other specialists are telling their patients about getting the vaccine even during higher than usual disease activity. Learn more about our FREE COVID-19 Patient Support Program for chronic illness patients and their loved ones. Arthritis Hand Wrist Pain If you live with
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
7 Questions to Ask Your Rheumatologist If You’re Nervous About Getting the COVID-19 Vaccine
Rheumatologists and public health experts are urging most autoimmune and immunocompromised patients to get vaccinated as soon as they can. If you have concerns, consider discussing these questions with your doctor for reassuring answers. What to Ask Rheumatologist About COVID-19 Vaccine It’s understandable
Rheumatologists and public health experts are urging most autoimmune and immunocompromised patients to get vaccinated as soon as they can. If you have concerns, consider discussing these questions with your doctor for reassuring answers. What to Ask Rheumatologist About COVID-19 Vaccine It’s understandable
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Getting a COVID-19 Vaccine with Autoimmune or Inflammatory Rheumatic Disease: New Guidance from the American College of Rheumatology
If you have a form of autoimmune or inflammatory arthritis or take immunosuppressant medication, chances are you’ve had questions about getting a COVID-19 vaccine. Here are some answers from a new resource from the American College of Rheumatology. Learn more about our FREE COVID-19 Patient Support
If you have a form of autoimmune or inflammatory arthritis or take immunosuppressant medication, chances are you’ve had questions about getting a COVID-19 vaccine. Here are some answers from a new resource from the American College of Rheumatology. Learn more about our FREE COVID-19 Patient Support
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Skin pain driving me mad
But I have severe IBS and
Cyclosporin
made that terribly worse. Everything rescts with my bowel. Ive had IBS for many years and it's ruined my life. But this is worse. Since having the flu jab everything has flared up. Hypersensitivity is awful on my legs. Feels like i am covered in sand and grit.
But I have severe IBS and
Cyclosporin
made that terribly worse. Everything rescts with my bowel. Ive had IBS for many years and it's ruined my life. But this is worse. Since having the flu jab everything has flared up. Hypersensitivity is awful on my legs. Feels like i am covered in sand and grit.
Carlettejaque
in
MY SKIN
3 years ago
Dry eye and Meibomian Gland Dysfunction...
Hello All. I have Hashimotos, and have developed dry eye (tear deficiency) and MGD - blocked glands and was diagnosed with same about a month ago. This appeared out of the blue and came on within about 2 months. Never had a problem with dry eyes before... I don't have blepharitis (the crusty eyelash
Hello All. I have Hashimotos, and have developed dry eye (tear deficiency) and MGD - blocked glands and was diagnosed with same about a month ago. This appeared out of the blue and came on within about 2 months. Never had a problem with dry eyes before... I don't have blepharitis (the crusty eyelash
cltt97
in
Thyroid UK
3 years ago
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