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Cyclophosphamide
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Hi Everybody. First thanks for all your great posts, and apologies I've been "lurking" too much recently and not posting. One minor issue just come up for me, I'd be interested what people's views are: The very large, and now global company I work for requires you to use a pass card to get in and
Hi Everybody. First thanks for all your great posts, and apologies I've been "lurking" too much recently and not posting. One minor issue just come up for me, I'd be interested what people's views are: The very large, and now global company I work for requires you to use a pass card to get in and
Ernest2
in
CLL Support
10 years ago
CLL specialists ?
My FCR treatment has been stopped after 2 courses due to a new problem - fluid on my lungs. I am awaiting another bone marrow biopsy and CT scan. Depending on what my haematologist has to say in due course, I may request another opinion with a CLL specialist. I am in Hereford. Does anyone know of
My FCR treatment has been stopped after 2 courses due to a new problem - fluid on my lungs. I am awaiting another bone marrow biopsy and CT scan. Depending on what my haematologist has to say in due course, I may request another opinion with a CLL specialist. I am in Hereford. Does anyone know of
Haileybury
in
CLL Support
10 years ago
Ibrutinib as a monotherapy
Hi, I've just joined this forum and have read most of your posts and found them very useful. I have CLL/SLL and after 6 cycles of FCR (which gave me just over a year's remission) I'm now two weeks into starting on Ibrutinib as a mono therapy. So far no side effects. Is anybody else in the UK (as the
Hi, I've just joined this forum and have read most of your posts and found them very useful. I have CLL/SLL and after 6 cycles of FCR (which gave me just over a year's remission) I'm now two weeks into starting on Ibrutinib as a mono therapy. So far no side effects. Is anybody else in the UK (as the
SycamoreN
in
CLL Support
10 years ago
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Low neutrophils
Hello everyone. I have been reading posts daily since joining and find the community a good resource. Thank you. I have been on W/W since September 2012 and have remained stable since then. However, last February I had bowel, sacrum and sciatic nerve pain. My GP did several tests but they all came back
Hello everyone. I have been reading posts daily since joining and find the community a good resource. Thank you. I have been on W/W since September 2012 and have remained stable since then. However, last February I had bowel, sacrum and sciatic nerve pain. My GP did several tests but they all came back
Hidden
in
CLL Support
10 years ago
Fluid in my lungs and heart slightly enlarged
I have completed two courses of FCR but have been becoming quite breathless and with tightness in the lower neck/upper chest area. My consultant arranged for a chest x-ray which shows I have a little fluid in my lungs and a marginally enlarged heart. Could this have been caused by the FCR drugs or
I have completed two courses of FCR but have been becoming quite breathless and with tightness in the lower neck/upper chest area. My consultant arranged for a chest x-ray which shows I have a little fluid in my lungs and a marginally enlarged heart. Could this have been caused by the FCR drugs or
Haileybury
in
CLL Support
10 years ago
Got a question about test results for Susan Le Clair?
Regular readers won't need an introduction to either Andrew Schorr of Patient Power or Dr Susan Le Clair, who has provided much to the CLL community on understanding your blood test results. For Dr Le Clair's earlier video coverage, see: http://www.patientpower.info/video/understanding-your-cll-blood-tests-immunoglobulin-complete-blood-counts-platelets-and-more
Regular readers won't need an introduction to either Andrew Schorr of Patient Power or Dr Susan Le Clair, who has provided much to the CLL community on understanding your blood test results. For Dr Le Clair's earlier video coverage, see: http://www.patientpower.info/video/understanding-your-cll-blood-tests-immunoglobulin-complete-blood-counts-platelets-and-more
AussieNeil
Administrator
in
CLL Support
10 years ago
Im to start warfarin in mid july ,Rhuematolosist suspect clotting of optic nerve ivw gca pmr vasculituis ,he thinks sticky blood ,hughes .
Im also type 1 diabetic ,and have addisons .Does the hughes make you tired I am knackered ,may be pred and methotrexate im on as well as insulin also.Does the warfarin make you tired coz if it does ill be more tired than now with all the other drugs .Got to start 2nd course of chemotherapy
cyclophosphamide
Im also type 1 diabetic ,and have addisons .Does the hughes make you tired I am knackered ,may be pred and methotrexate im on as well as insulin also.Does the warfarin make you tired coz if it does ill be more tired than now with all the other drugs .Got to start 2nd course of chemotherapy
cyclophosphamide
mickt
in
Hughes Syndrome APS Forum
10 years ago
Help, FCR OR BR?
My oncologist has telephoned me today giving me an option of either FCR or BR. As I am 11q del I thought I had only one option! She told me that the FLAIR trial will be starting in 6-8 weeks time but as my WBC is at 387 and my Hg is 95 she would like me to start treatment now. I am 52 years old now and
My oncologist has telephoned me today giving me an option of either FCR or BR. As I am 11q del I thought I had only one option! She told me that the FLAIR trial will be starting in 6-8 weeks time but as my WBC is at 387 and my Hg is 95 she would like me to start treatment now. I am 52 years old now and
flutterbye
in
CLL Support
10 years ago
LATE ONSET NEUTROPENIA MAY BE A COMPLICATION OF FCR (or rituximab, obinutuzumab or other anti-CD20 monoclonal antibody infusions - Admin)
By the way, here are all the EHA abstracts from last week: http://www.ehaweb.org/congress-and-events/19th-congress/congress-program/abstracts-online/ The paper: LATE ONSET NEUTROPENIA IS A COMMON COMPLICATION OF FLUDARABINE,
CYCLOPHOSPHAMIDE
AND RITUXIMAB (FCR) THERAPY AND IS ASSOCIATED WITH SUBSTANTIAL
By the way, here are all the EHA abstracts from last week: http://www.ehaweb.org/congress-and-events/19th-congress/congress-program/abstracts-online/ The paper: LATE ONSET NEUTROPENIA IS A COMMON COMPLICATION OF FLUDARABINE,
CYCLOPHOSPHAMIDE
AND RITUXIMAB (FCR) THERAPY AND IS ASSOCIATED WITH SUBSTANTIAL
zevkalman
in
CLL Support
10 years ago
That's it then FCR here we come
WBC 118 RBC 3.34 HGb 110 (11) HCT 0.34 MCV 101.3 MCH 32.9 MCHC 325 RDW 15.4 PLT 15.4 Neut percent 0.9 Lymph percent 79.6 Absolute Nuets 1.02 Absolute Lmphs 94.39 Been waiting for the call to the cocktail bar and got it today after concern about Nuets fortunately no problems with genome results so should
WBC 118 RBC 3.34 HGb 110 (11) HCT 0.34 MCV 101.3 MCH 32.9 MCHC 325 RDW 15.4 PLT 15.4 Neut percent 0.9 Lymph percent 79.6 Absolute Nuets 1.02 Absolute Lmphs 94.39 Been waiting for the call to the cocktail bar and got it today after concern about Nuets fortunately no problems with genome results so should
Cammie
in
CLL Support
10 years ago
Here's my experience of Day 1 of my 4th FCR Treatment. Think W&W is challenging? Let me tell you the time I spent Waiting.....
I would like to see what a CT Scan reveals before your next treatment (July 10). 15:45 I’m paged – Treatment Room 15:50 Pre-treatment – tubed-up - Saline, Pinton and more Saline by IV – 2x Paracetamol. 16:00 Tablet Induction - 9x
CYCLOPHOSPHAMIDE
(the C in FCR) on days 2, 3 and 4 (empty stomach
I would like to see what a CT Scan reveals before your next treatment (July 10). 15:45 I’m paged – Treatment Room 15:50 Pre-treatment – tubed-up - Saline, Pinton and more Saline by IV – 2x Paracetamol. 16:00 Tablet Induction - 9x
CYCLOPHOSPHAMIDE
(the C in FCR) on days 2, 3 and 4 (empty stomach
Bribin
in
CLL Support
10 years ago
Methotrexate vs Mycophenalate
If all stays balanced and well behaved until then I get to decide whether I want Methotrexate or Mycophenalate to replace good ol'
cyclophosphamide
. Decisions, decisions! I have been told today there is insufficient clinical evidence for PAN patients to favour one over the other.
If all stays balanced and well behaved until then I get to decide whether I want Methotrexate or Mycophenalate to replace good ol'
cyclophosphamide
. Decisions, decisions! I have been told today there is insufficient clinical evidence for PAN patients to favour one over the other.
Wellsie
in
Vasculitis UK
10 years ago
Husband's anemia (PRCA) interrupted FCR last fall; cyclosporin worked until it was discontinued. We're looking into next treatment steps...
any suggestions or guidance would be much appreciated!
any suggestions or guidance would be much appreciated!
LAinNYC
in
CLL Support
10 years ago
How do I go about getting a second expert opinion without upsetting my haematologist consultant?
I have previously posted on being concerned about still having lumps in my neck during FCR treatment. I have now had 5 of the 6 cycles of treatment and the last treatment at best only reduced the lumps marginally. Consultant (at Colchester General Hospital in Essex) thinks that I will just go back to
I have previously posted on being concerned about still having lumps in my neck during FCR treatment. I have now had 5 of the 6 cycles of treatment and the last treatment at best only reduced the lumps marginally. Consultant (at Colchester General Hospital in Essex) thinks that I will just go back to
yorkie19
in
CLL Support
10 years ago
Rituximab
Got to have 2 infusions of ritux 2 weeks apart ,ive had 6 inf of
cyclophosphamide
,had flere with eyesight.On 30mg pred daily and 25mg injection of methotrexate weekly.Ive gca wondrering if any have had same.
Got to have 2 infusions of ritux 2 weeks apart ,ive had 6 inf of
cyclophosphamide
,had flere with eyesight.On 30mg pred daily and 25mg injection of methotrexate weekly.Ive gca wondrering if any have had same.
mickt
in
Vasculitis UK
10 years ago
Cyclophosphamide ? I saw my rheumy today and he wants to stop my methotrexate tablets and give me Cyclo infusions. Any advice on this drug.
I have Scleroderma, Sjorgens and CTD. My joints are getting worse. I would be grateful to hear from anyone who has had these infusions, side effects and benefits. Thanks. helen.
I have Scleroderma, Sjorgens and CTD. My joints are getting worse. I would be grateful to hear from anyone who has had these infusions, side effects and benefits. Thanks. helen.
Helen58
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
ALC I am between 1st and delayed 2nd courses of FCR while waiting for my platelets to recover. I keep reading that ALC is what I should be c
Haileybury
in
CLL Support
10 years ago
cyclophosphamide?
So I was just wondering whether anyone else on here is having
cyclophosphamide
as treatment? if so how are you coping with it?
So I was just wondering whether anyone else on here is having
cyclophosphamide
as treatment? if so how are you coping with it?
Priya_S
in
LUPUS UK
10 years ago
I have cerebral vasculitis and also pmr, I finished a second course of cyclophosphamide Mid march, I was ok until about three weeks ago when
I had a chest infection, since both vasculitis and pmr have flared, any idea,s if this could be due to chest infection have had a course on antibiotics.?
I had a chest infection, since both vasculitis and pmr have flared, any idea,s if this could be due to chest infection have had a course on antibiotics.?
Louzoejf29
in
Vasculitis UK
10 years ago
Low platelet count. How long before this recovers ?
I started my first course of FC(without R for the first course) six weeks ago. WBC down from 139.3 to 14.4 which seems a good start. However, my platelet count is now 68 and my consultant wants this to recover before my next FCR and has put me on Folic acid tablets. Does anyone know how long this
I started my first course of FC(without R for the first course) six weeks ago. WBC down from 139.3 to 14.4 which seems a good start. However, my platelet count is now 68 and my consultant wants this to recover before my next FCR and has put me on Folic acid tablets. Does anyone know how long this
Haileybury
in
CLL Support
10 years ago
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