CCUS/MDS and B12 def

[Annaunge]

Best members ,

I inject hydroxocobalamin EOD since october 2022. I had amongst all other classical symptoms the most terrible kimd of burning parestisias from my waist to my knees, terrible burning waves, I consider this as symptomd from subacute combined degeneration of spinal cord. Last weeks I am much better! So happy! The sacd was the spts that really knocked me out, couldn t do anythong , just try ro copying spts specially in the evenings. Now my life slowly is coming back to me. But……this weeks I have anemia spts worsening and blood tests showing anemia , Hb 105 g/litre. Tired, air hunger, freezeing, dizzy. Hematologist says , CCUS, premalignant condition that can turn to MDS. I am not sure. Next week hematologist ordered iron tests, I am not taking any iron with my EOD B12.

what is your experiance about having B12 def and maybe blood malignicy?

[Narwhal10]

Hi Annaunge,

I am really sorry to read that you are struggling.

I am afraid, I do not know what you mean when you type :- spts.

The Haematologist has said you have Iron Deficiency Anaemia ? As there are over 200 anaemias.

I do not know what you mean by CCUS, it has all different types of meanings. 🤷‍♀️

Do you mean Myelodysplastic Syndrome by MDS ?

Have you had tests to confirm subacute combined degeneration of spinal cord.

Let us hope Haematologist is able to get to the bottom of it. Wishing you better soon.

😘