Mid and South Essex (MSE) Intergrated care board

[Nackapan]

I wrote on October 10th 2023 ( apparently ,as a vague recollection as alot going on ) Had a reply today.

My complaint about inconsistency in prescribing b12 .

Lack of training with Gps and nurses.

Ignoring clear NICE guidelines.

Challenging my prescription time and

time again.

Withholding treatment

On what scientific grounds are b12 frequencies set other than for the best outcome in patients .

Also clinical response often ignored

Unnecessary b12 leveks done after b1e injections start

Then used to wrongly stop b12 treatment

It's been passed on ,now escalated to;

The Medicines Optimation Team

To the complaints officer in Nursing and quality .

I write alot of emails and letter mostly when enraged by posts .

Also when my prescription challenged again and again.

Last time shocked me when I walked into the surgery and a definite atmosphere and mutterings.

Actual nurse I saw ( different) out of her way with kindness .

No idea what impact im having but strive to continue .

Had an apology of late reply and will be informed and updated of outcome

[Jillymo]

Well done. 👋

I applaud your continued effort which must be getting rather tiresome.

[Nackapan in reply to Jillymo]

Gives me an outlet to vent at times.

[Thrones12 in reply to Nackapan]

Hi Nackapan yes agreed very well done it must be so frustrating for you. Xx

[Narwhal10]

Hi Nackapan,

I am so very sorry that you are going through this. Your family, (daughter and mother) and yourself have had to fight for so much to be taken seriously. Receiving diagnoses and treatment.

An extremely important point that you raised is OUTCOME. It is a measurable and auditable piece of Data.

Another noteworthy aspect you can really focus on is this :-

Unnecessary b12 levels done after 1 mg/L Hydroxycobalamin injections have commenced.

Now, implied consent is given when you offer your arm. You can state to Mid and South Essex IC Board that you would NOT have consented to having that particular blood test, if you knew that they were checking them. It is ONLY on the proviso, you did NOT know they would be testing B12. If you did know then it is a grey area.

With regards to the muttering and atmosphere, you have an insidious disease, you did not ask for it. Nobody ask for an illness, disease or condition.

You yourself have worked for the NHS, it maybe worth reminding them of your former occupation and where.

On Mid and South Essex Integrated Care Board website, on their main page it states :-

‘The role of the Mid and South Essex Integrated Care Board is to join up health and care services, improve people’s health and wellbeing and reduce health inequalities.’

Another click, under Your Health :-

Local health and wellbeing services that are available across mid and south Essex as well as details on how you can personalise your care.

Please also find a link to the NHS Constitution by the Department of Health & Social Care (Updated 17 August 2023) :-

gov.uk/government/publicati...

The NHS is founded on a common set of principles and values :-

1. There are 7 Key Principles.

2. There are 6 Values including Working together for Patients, Respect and Dignity, Commitment to Quality of Care and Improving Lives.

You can point out ANY organisation’s policies to them. Most are taken aback that you have bothered to read them.

Best of luck.

🐳

[Sleepybunny]

I admire your persistence.

[Wwwdot]

Hi Nackapan

You are amazing! Thank you for your persistence this is definitely a win!

It takes courage to stand up and put your head above the parapet. You deserve a medal 🥇 or two 🥇🥇

🤗🤗🤗

[Hectorsmum2]

welldone Nackapan and dont worry about the atmosphere at the surgery. You are there to get treatment not make friends. I have worked in the NHS and am aware that people seen as trouble makers might not be liked but get better care.

[Mashie44]

Well done! It's tough. I complained in writing that they were not following NICE guidelines. The GP was foul about it and just refused to do anything. The reception staff are now incredibly unhelpful and unpleasant to me. And they make snide notes on my record with a one-sided telling of conversations. I tried to speak to the Practice Manager to clear the air but after waiting for over an hour and a half (she was 'busy') I gave up, as it was hard for me to overcome my dislike of them to go there at all.

The letter I wrote about NICE guidelines has been 'lost'. I am planning to write another but worry they'll treat me worse. I would change surgery but I suspect the same happens everywhere. I shake when I have to visit (I have it on my notes that I will never again see that GP - their 'neurology' expert) but most of the GPs are quite good. My theory is that when the reception team bully patients like this someone is probably bullying them and they are taking out their frustration on the people they have power over.

[Nackapan in reply to Mashie44]

Write again and keep a copy. Respect and politeness works both ways.